Fetal alcohol spectrum disorders (FASDs) are disabilities that last a lifetime. People with FASDs can have behavioral, intellectual, and neurological problems. FASDs can occur when a developing baby is exposed to alcohol during pregnancy.
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NZ Doctor (New Zealand) - Whakakotahitanga
Fetal Alcohol Spectrum Disorder guidelines launched
Māori Public Health Organisation, Hāpai Te Hauora, released the
Whakakotahitanga Fetal Alcohol Spectrum Disorder Guidelines, alongside the
Government who announced its renewed priorities for FASD this morning at
Papakura Marae.
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Lanarkleedstoday.ca (Canada) - Community
Spotlight: Red Shoes Run for Rural FASD
The first of what the Rural FASD hopes is many Red Shoes Run Family Day is
Saturday.
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Mirage News (Australia) - FARE Cheers
Govt's Continued Support for Every Moment Matters Campaign
FARE welcomes the Australian Government's continued investment in the Every
Moment Matters campaign to support alcohol-free pregnancies and safe
breastfeeding practices across Australia.
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Yahoo Lifestyle Canada (Canada) - Plans to
record mothers’ drinking habits on baby health records scrapped
Proposals to include a pregnant woman’s drinking habits on her child’s
medical record have been ditched, campaigners said.
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CanFASD (Canada) - New Issue Paper: The
Prevalence of Alcohol Use During Pregnancy in Canada
Researchers have identified alcohol use during pregnancy as a significant
public health concern. It is associated with adverse fetal development and
increases the likelihood of several complications during pregnancy. These
include miscarriage, stillbirth, low birth weight, and preterm birth. It may
also result in FASD.
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CanFASD (Canada) - “It feels like home to
get together with like-minded people”: Canada FASD Conference
Reflecting on the Canada FASD Conference 2023, one of our biggest successes
was the inclusion of people with lived experience. This was shown through the
unique program that had someone with lived experience speaking in every single
session on the program. Additionally, it was demonstrated through our
Conference Travel Award program.
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UK Government and Parliament/Petitions (UK) - Fund
improved care and support for individuals with FASD
We believe it is time that the Government takes action on this critical
issue affecting so many lives across our country. We urge it to act swiftly in
implementing these changes so that individuals affected by FASD can receive the
care they need.
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VIDEOS and MATERIALS
Centre for Excellence in Child and Family Welfare - AVITH in Context: Fetal
Alcohol Spectrum Disorder (FASD)
Exploring a challenging area of practice, when Fetal Alcohol Spectrum
Disorder (FASD) is a contributing factor in a young person’s use of violence in
the home, Professor Gibbs shared some of her recent academic research on this
topic, as well as her experience being the adoptive mother for two young people
with FASD and additional neurodivergent dis/abilities.
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CISUR - FASD Prevention and Public Health
Policy
This webinar explored a highly stigmatized topic in the alcohol field; the
prevention of alcohol use in pregnancy, and how action on alcohol, child
welfare and related public health policy matters in FASD prevention.
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FASD United (formerly NOFAS) - FASD United
Policy Forum - April, 2024
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CanFASD - Building Stability: Innovative
Housing Strategies for Individuals with FASD
In this webinar recording, viewers will learn about the ongoing ChOoSE
research initiative where the goal is to co-create innovative housing solutions
for those with FASD.
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Health Nexus Santé - FASD Family/Caregiver
Support Group Application Support Webinar 2024-25
Webinar to guide applicants through the application process for the FASD
Support Group funding.
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FASDSUCCESS - Demi Shares How Music Calms
Symptoms Of Fetal Alcohol Syndrome(FASD)
In this interview clip, Demi Forsyth shares how music helped her soothe the
symptoms associated with Fetal Alcohol Spectrum Disorder.
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FASDSUCCESS - Uncovering Fetal Alcohol
Syndrome(FASD) Brain Growth: What You Need To Know
In this episode, we uncover all of that and more with Dr. Catherine Lebel.
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FASDSUCCESS - Audrey McFarlane Fetal
Alcohol Syndrome Pioneer & CANFASD Director
Discover the latest on Fetal Alcohol Syndrome (FAS) in this episode, where
Audrey jumps into evolving FASD discussions, shifting focus beyond prevention
to holistic care.
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Health Nexus Santé - Financial Planning
Across the Lifespan for Your Loved One with FASD
This virtual training addresses the key financial essentials for those
impacted by Fetal Alcohol Spectrum Disorder.
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FASD Hub Australia - 2024 Heather Jones
Community Award: Jessica Birch
The Heather Jones Award for Contribution to Awareness and Understanding of
FASD, was created to honour the ‘unsung heroes’ of FASD, and is named after the
late Heather Jones, who was a tireless advocate for improving awareness and
understanding of FASD.
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The Edge Treatment Center - What is Fetal
Alcohol Syndrome? A Look at FAS
One of the saddest and most complex results of alcohol use is fetal alcohol
syndrome or FAS. A developmental disability caused by alcohol exposure during
pregnancy, there’s currently no cure for FAS.
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Manitoba FASD Coalition - Manitoba FASD
Coalition Info Series Workshop April 26, 2024 - Lori Stetina
Lori Stetina shares her story about raising her child Ryan, who has FASD.
She will shares the ups, the downs, the laughter and the tears while raising
Ryan from childhood to adulthood and how she continues to provide unwavering
support to him today.
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Patricia Kasper, Your FASD Coach - Relationship
Challenges and FASD, with Dr. Kathryn Page
Dr. Kathryn Page has had a circuitous career, winding through starting and
directing a diagnostic clinic at the county hospital, working as a school
psychologist, several years as a psychotherapist, and currently training the
mental health clinicians of a large county in California on the subject of
fetal alcohol spectrum disorders.
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Health New Zealand – Fetal Alcohol Spectrum
Disorder (FASD) Diagnostic Guidelines for Aotearoa New Zealand
This guideline detail recommendations and principles required for the
diagnosis of Fetal Alcohol Spectrum Disorder (FASD) in Aotearoa New Zealand.
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RESEARCH
Nature - Reduction of APOE accounts for neurobehavioral deficits in fetal
alcohol spectrum disorders
A hallmark of fetal alcohol spectrum disorders (FASD) is neurobehavioral
deficits that still do not have effective treatment. Here, we present that
reduction of Apolipoprotein E (APOE) is critically involved in neurobehavioral
deficits in FASD.
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European Child & Adolescent Psychiatry - Qualitative
study of the lived experience of methylphenidate prescribed for children with a
fetal alcohol spectrum disorder
This study aims to explore the lived experience of children with FASD
taking MPH and their caregivers to adapt prescribing modalities by considering
different ways to administer the drugs.
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Applied Neuropsychology: Child - An
examination of executive functioning in adolescents with FASD in a
self-regulation intervention
These findings highlight the potential of the SR intervention to positively
impact EF in adolescents with FASD. This study contributes to the growing
literature that demonstrates the potential of individuals with FASD to benefit
from direct intervention.
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Biomolecules - Risk and Resilience Variants
in the Retinoic Acid Metabolic and Developmental Pathways Associated with Risk of FASD Outcomes
In this study, using a candidate gene approach, we performed a genetic
variant analysis of retinoic acid (RA) metabolic and developmental signaling
pathway genes on whole exome sequencing data of 23 FASD-diagnosed individuals.
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Journal of Forensic Psychology Research and
Practice - Innovating Services for Justice-Involved Individuals with Fetal
Alcohol Spectrum Disorder: The In Reach Project
Fetal Alcohol Spectrum Disorder (FASD) is a term describing the range of
neurocognitive, physical, behavioral, and learning difficulties resulting from
prenatal alcohol exposure. Individuals with FASD are at an increased risk,
relative to those without FASD, for justice system involvement.
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Journal of Affective Disorders - Prevalence
of co-occurring diagnoses in people exposed to alcohol prenatally: Findings
from a meta-analysis
Co-occurring diagnoses are extremely prevalent in people with PAE, with
older individuals, females, and those diagnosed with FASD being most at risk
for having a co-occurring disorder.
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Series of endocrinology, diabetes &
metabolism - Growth hormone therapy in a child with fetal alcohol syndrome:
personal experience with literature review
GH therapy in children with FAS may lead to an improvement in growth rate
and an increase in final height, although, this condition is not included in
the specific recommendations for use of GH.
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Alcohol: Clinical and Experimental Research - Influence
of childhood trauma and traumatic stress on a woman's risk of having a child
with a fetal alcohol spectrum disorder
No direct influence of maternal childhood trauma on FASD diagnosis could be
demonstrated. However, maternal trauma may indirectly contribute to the risk of
having a child diagnosed with FASD.
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Frontiers in Neural Circuits - Effects of
prenatal alcohol exposure on the olfactory system development
These findings suggest that the timing, duration, and extent of fetal
alcohol exposure can yield diverse effects on olfactory system development.
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Alcohol: Clinical and Experimental Research - Lower
resting state functional connectivity partially mediates adverse effects of
prenatal alcohol exposure on arithmetic performance in children
This study demonstrates PAE-related functional connectivity impairments in
functional networks involved in number processing.
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medRxiv - Trends in fetal alcohol spectrum
disorder (FASD) research: a systematic scoping review and bibliometric analysis
We conducted a systematic scoping review and bibliometric analysis to
describe trends in the volume and characteristics of original research on FASD
published between 2000–2023 (Review 1).
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Alcohol: Clinical and Experimental Research - Current
and ideal living arrangements and supports for Canadian adults with fetal
alcohol spectrum disorder: Part II—Perspectives from caregivers
This study explores caregivers' perspectives regarding living support
needed by adults with FASD, which can inform support programs and housing
services.
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Children - The Fetal Alcohol Spectrum
Disorders—An Overview of Experimental Models, Therapeutic Strategies, and
Future Research Directions
Since the establishment of a clear link between maternal alcohol
consumption during pregnancy and certain birth defects, the research into the
treatment of FASD has become increasingly sophisticated.
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Social Work Education - Advancing social
work curriculum to challenge FASD-related stigma and promote strengths-based
family engagement
The need for professionals to become educated in fetal alcohol spectrum
disorder (FASD) has emerged as a critical topic in child and family settings.
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bioRxiv - Altered markers of brain
metabolism and excitability are associated with executive functioning in young
children exposed to alcohol in utero
Here, we present the first study of PAE-related brain metabolite
differences in early childhood (ages 3-8 years) and their associations with
cognitive performance, including executive functioning (EF) and pre-reading
skills.
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Alcohol - The histamine H3 receptor inverse
agonist SAR-152954 reverses deficits in long-term potentiation associated with
moderate prenatal alcohol exposure
Previous work from our group demonstrated deficits in long-term
potentiation (LTP) of excitatory synapses on dentate gyrus granule cells in
adult offspring of rat dams that consumed moderate levels of alcohol during
pregnancy.
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Anais da Academia Brasileira de Ciências - Neonatal
outcomes associated with tobacco, alcohol, and crack use during pregnancy in
three Neonatal Intensive Care Units
Our results underscore the substantial impact of maternal substance use on
NICU-admitted infants, emphasizing the necessity for targeted interventions
that address both neonatal health and maternal well-being, thereby underscoring
the crucial role of comprehensive care in NICU settings.
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Social Work in Public Health - Reporting on
Health Care and Social Service Provider Approaches to Promoting Alcohol
Abstinence During Pregnancy
The purpose of this study was to explore the current practices of HCPs and
SSPs when discussing alcohol use during pregnancy, and to understand their
rationale for their specific recommendations.
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BMC Public Health - Maternal smoking,
consumption of alcohol, and caffeinated beverages during pregnancy and the risk
of childhood brain tumors: a meta-analysis of observational studies
Maternal passive smoking, consumption of caffeinated beverages during
pregnancy should be considered as risk factors for CBTs, especially glioma.
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Frontiers in Pediatrics - Unveiling the Hidden Risk: Paternal
Smoking and Alcohol Exposure Prior to Conception as Independent Factors for
Allergic Rhinitis in Children
Paternal smoking and alcohol consumption prior to conception contribute to
an increased risk of allergic rhinitis in children, with the risk being
dependent on the dosage and duration of exposure.
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Disabilities - FASD:
The Living Experience of People with Fetal Alcohol Spectrum Disorder—Results of
an Anonymous Survey
By surveying those with FASD, this work expanded upon prior survey work
which illustrated a multitude of early-onset physiological issues occurring at
rates much higher than is typical of the general population.
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IN OTHER LANGUAGES
Sosiaalilääketieteellinen Aikakauslehti (Finland) - Päihteille raskausaikana
altistuneet nuoret alttiita haasteille aikuistumisen kynnyksellä
Päihteet, mukaan lukien alkoholi ja laittomat huumeet, eivät ole tavallinen
kulutushyödyke [1]. Päihteidenkäyttö, erityisesti liikakäyttö ja päihde[1]riippuvuus
aiheuttavat merkittäviä terveydellisiä ja sosiaalisia haittoja niin päihdettä
käyttävälle henkilölle kuin myös läheisille ja perheille.
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Sosiaalilääketieteellinen Aikakauslehti (Finland)
- Sikiöaikana päihteille altistuneet lapset aikuisuuden kynnyksellä –
Yhteenveto ADEF Helsinki -tutkimusprojektin tuloksista
A comprehensive picture of developmental outcomes and associated
environmental risks among youth with prenatal substance exposure (PSE) is
scarce in Finland and other countries as well. This longitudinal register-based
cohort study compared youth with PSE (n=615) and matched unexposed controls
(n=1787) regarding mental health, completed secondary education, financial
social support, and injuries and poisoning.
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