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Sunday, June 4, 2023

FASD News - 22/2023


CBC (Canada) - Her son's disorder has been part of her world for years. Now this mom's focus is helping others
Tanya Walsh's job at the Vitalité Health Network connects her with families navigating life with FASD
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Express & Star (UK) - Wolverhampton campaigner takes fight to Parliament over 'hidden disability' FASD
A Wolverhampton disability campaigner says a hidden condition that impacts her maths and memory skills has led to her getting turned down for more than 100 jobs.
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National Indigenous Times (Australia) - The system is the real "terror" in youth justice
How can the West Australian Premier Mark McGowan get away with describing a group of kids with disabilities as "terrorists"? Especially when we know that many of them grew up in the care and under the control of his own State's Child Protection system.
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Alaska's News Source (USA) - Teen speaks about trouble navigating Alaska’s mental health system
Recent studies show Alaska Natives and American Indians suffer more depression and cases of mental illness than any other group in the country.
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Nvrinformed - What's the deal with consequences?
It’s something that comes up often, especially with adoptive parents and parents of children with SEND (special educational needs and disabilities). Parents often feel they've done something wrong when setting boundaries and imposing consequences lead to escalations in tricky behaviour. Parents can easily feel really lost with it all.
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Telethon Kids (Australia) - Nine out of ten young people in detention found to have severe neuro-disability
Nine out of ten incarcerated youth examined by Telethon Kids Institute researchers as part of a ground-breaking study had some form of neuro-disability – most of which had gone previously undiagnosed despite multiple contacts with government and other agencies.
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Verywell Mind - Understanding Fetal Alcohol Syndrome and Its Impact on Mental Health
Fetal alcohol syndrome is one of several syndromes within a group of disorders known as fetal alcohol spectrum disorders (FASD), where a child experiences issues with growth, central nervous system problems, facial feature differences, and problems with attention span, learning, vision, and hearing.
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Maternity & Midwifery Forum (UK) - Increasing confidence levels in alcohol and pregnancy conversations
The messages around drinking alcohol in pregnancy have often been confusing, leaving maternity staff unclear about what is best advice. Joanna Buckard, Director of Innovation, and Katie Liddle, midwife and research and project officer, at National FASD explain the current guidance and share new resources available to help support maternity staff.
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FASD United - An Interview with Kenny LaJoy: FASD Advocacy and Understanding
Author of It’s OK to Be You: Living Well with FASD or Other Disabilities, and overall amazing human being- Kenny LaJoy kindly accepted an interview to be shared in conjunction with our “Yes I Am” campaign (a follow-up to “Yes I Can”).
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Express and Star (UK) - Wolverhampton campaigner takes fight to Parliament over 'hidden disability' FASD
A Wolverhampton disability campaigner says a hidden condition that impacts her maths and memory skills has led to her getting turned down for more than 100 jobs.
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National FASD (UK) - National FASD Responds to Commons Report on Alcohol Treatment Services
Nowhere in the near 30-page report is FASD or harms caused by alcohol exposure in utero mentioned. This is in spite of the Committee receiving written evidence regarding the need for specialist treatment services for specialist support for women in pregnancy from local alcohol and substance misuse providers and other mentions of FASD prior to the report’s publication.
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VIDEOS and MATERIALS
FASD Hub Australia - Webinar Setting Strong Foundations: Early Intervention to help children with FASD thrive
Early childhood is an important time for all children, providing the foundation for future wellbeing, learning and behaviour. For children with Fetal Alcohol Spectrum Disorder (FASD) and Prenatal Alcohol Exposure (PAE), early assessment, diagnosis and interventions have the potential to make a critical difference in later life.
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FASD Hub Australia - Australian FASD Indigenous Framework with Nicole Hewlett
Blending Aboriginal and Western wisdoms, taking a healing-informed approach, and facilitating two-way learning at a grass roots level are keys to improving outcomes for Aboriginal communities living with Fetal Alcohol Spectrum Disorder (FASD), according to a new study.
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National FASD - Raja & Neil's FASD Book Club - Session 15, Identifying the Child with FASD in Educational Settings
In session 15 of Raja & Neil’s FASD Book Club, Dr Carolyn Blackburn discussed her chapter, ‘Identifying the Child with FASD in Educational Settings’.
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Bfit1 - Understanding FASD with Joel & Cedrick | Journey to Wellness & Beyond
Have you come across the term FASD? It’s called “Fetal Alcohol Spectrum Disorder”. As the name suggests, they’re a group of conditions that can occur in a person whose mother consumed alcohol during pregnancy.
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Pregnancy, Alcohol and FASD: The Surprising Reality - #30 Australian FASD Indigenous Framework with Nicole Hewlett
Kurt is joined by Nicole Hewlett, a proud Palawa woman and researcher with the University of Queensland. Nicole is currently undertaking a PhD focusing on the development and implementation of Australia’s first FASD Indigenous Framework.
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FASD Family Life - The Intermission
Welcome to Season 4, episode 23 of the FASD Family Life Podcast. This is the only show about FASD hosted by an FASD Specialist and parent with 30 years lived experience.
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Girls, Women, Alcohol, and Pregnancy - FASD Prevention: An Annotated Bibliography of Articles Published in 2022
This year’s Annotated Bibliography of Articles Published in 2022 was just released and includes 113 articles from 33 countries.
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FASD Awareness - Dr Alan Price - FASD (Webinar #16)
Dr Alan Price is a Lecturer in Psychology at the University of Salford, whose main research interest is foetal alcohol spectrum disorder (FASD). His PhD thesis was on the additional impact of childhood trauma on cognitive and behavioural functioning in children with FASD.
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RESEARCH
International Journal of Drug Policy - Accounts of women identified as drinking at ‘high risk’ during pregnancy: A meta-ethnography of missing voices
This meta-ethnography provides a more nuanced understanding of the complex dynamics involved in women's ‘high risk’ drinking during pregnancy, the contexts in which they drink and their unmet needs.
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Frontiers in Neuroscience - Prenatal alcohol exposure alters mRNA expression for stress peptides, glucocorticoid receptor function and immune factors in acutely stressed neonatal brain
The amygdala, hippocampus and hypothalamus are critical stress regulatory areas that undergo functional maturation for stress responding initially established during gestational and early postnatal brain development.
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Loughborough University - Animation-based learning for individuals with Fetal Alcohol Spectrum Disorders (FASD)
The purpose of this thesis is to explore the animation production process and determine alignment and suitability to best practice educational approaches for an identified user group, in order to propose an engaging, multisensory educational intervention centred around creative storytelling and animation film making.
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Frontiers in Pediatrics - A Systematic review: Facial, dental and orthodontic findings and orofacial diagnostics in patients with FAS(D)
This review shows that to date a multitude of heterogeneous guidelines exists for the diagnosis of FASD. Uniform, objective diagnostic criteria and parameters for the orofacial region in FASD diagnosis are needed.
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Frontiers in Neuroscience - Microbiota and nutrition as risk and resiliency factors following prenatal alcohol exposure
The combined evidence from alcohol exposure in adulthood and from other neurodevelopmental disorders supports the hypothesis that gut microbiota dysbiosis is likely an etiological feature that contributes to negative developmental, including neurodevelopmental, consequences of PAE and results in fetal alcohol spectrum disorders.
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The Pennsylvania State University - The Effects of Choline Supplementation on Blood Pressure Regulation in a Mouse Model of Fetal Alcohol Spectrum Disorder
We analyzed the cardiovascular effects of PAE through blood pressure within mice models. Sex differences for blood pressures between male and female mice in models of FASD were significant, and choline has effects on blood pressure at week 12 and 24.
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medRxiv - Functional connectivity of cognition-related brain networks in adults with fetal alcohol syndrome
FC in cognition-related brain networks was altered in adults with FAS. Effects were widely distributed across these networks, potentially reflecting the diversity of cognitive deficits in these individuals.
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Physiology - Paternal alcohol consumption as a modulator of FASD in a mouse model
Recent compelling evidence for periconceptional environmental factors experienced by both parents and their influence on offspring health has highlighted the need for further research into paternal contributions to FASD.
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American Psychological Association - Fetal alcohol spectrum disorder evidence in Canadian criminal cases: A case law review.
Increasing evidence highlights the relevance and frequent consideration of fetal alcohol spectrum disorder (FASD) in Canadian criminal legal cases, though systematic evaluation of the impact of such evidence on legal outcomes remains limited.
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Neuropharmacology - Impaired cognitive control after moderate prenatal alcohol exposure corresponds to altered EEG power during a rodent touchscreen continuous performance task
These findings suggest that moderate exposure to alcohol during development can have long lasting effects on cognitive control, and task-relevant neural signals may provide a biomarker of impaired function across species.
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Alcohol Research: Current Reviews - Identifying Prenatal Alcohol Exposure and Children Affected by It: A Review of Biomarkers and Screening Tools
Biomarkers and screening tools of PAE and its impact fall short of ideal predictive validity characteristics. Higher specificity than sensitivity was found for many of the biomarkers and screening tools used to identify PAE and its impact, suggesting that current methods continue to under-identify the full range of individuals impacted by PAE.
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Women's Health - Alcohol consumption and pregnancy in American Indian and Alaska Native women: A scoping review of the literature
American Indian and Alaska Native communities have diverse cultures, histories, and contemporary experiences. Grouping them together masks the differences in health and lifestyle behaviors, chronic disease rates, and health outcomes among them.
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Acta Obstetricia et Gynecologica Scandinavica - Maternal alcohol consumption and the risk of miscarriage in the first and second trimesters: a systematic review and dose–response meta-analysis
This meta-analysis revealed no dose-dependent association between miscarriage risk and alcohol consumption, but further focused research is recommended.
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Reproductive Toxicology - Maternal alcohol intake in early pregnancy and biomarkers of fecundity in adult sons: A cohort study
Male fecundity may be largely determined through fetal programming and therefore potentially be sensitive to exposure to maternal alcohol intake during pregnancy.
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Preventive Medicine Reports - Effect of CenteringPregnancy on women’s health behaviours, health literacy and healthcare use
The objective of this study was to assess the effects of CenteringPregnancy (CP) in the Netherlands on different health outcomes.
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J. Integr. Neurosci. - Towards a Distinct Sleep and Behavioural Profile of Fetal Alcohol Spectrum Disorder (FASD): A Comparison between FASD, Autism and Typically Developing Children
The findings in this study highlight several syndrome specific features (shorter sleep duration, executive functioning difficulties, and higher levels of social and behavioural problems and panic) that potentially contribute to the unique phenotype of FASD.
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IN OTHER LANGUAGES
LokalnyReporter.pl (Poland) - POMORZE ZACHODNIE: FASD – powszechna, ale mało znana choroba. O wyzwaniach diagnostycznych i planach na dalsze działania
Statystycznie, na 300 tys. urodzeń aż 1000 dzieci rodzi się z płodowym zespołem alkoholowym, a zaburzenia będące konsekwencją FAS, mogą dotyczyć nawet 20-ciorga dzieci na 1000.
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NDR (Germany) - "Wortsafari": Schreibwerkstatt für alkoholgeschädigte Kinder
"Wortsafari und Straßenpoesie" - unter diesem Motto steht die erste Schreibwerkstatt speziell für alkoholgeschädigte Kinder.
Eine Aktion im Rostocker Literaturhaus, die auch dazu beitragen soll, den Betroffenen eine Stimme zu geben.
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theseus.fi (Finland) - Fysioterapian mahdollisuudet FASD-lapsen fyysisen toimintakyvyn tukena
FASD (Fetal Alcohol Spectrum Disorders) tarkoittaa sikiöaikaisen alkoholinkäytön aiheuttamaa oirekirjoa ja vaikutuksia sikiön kehitykselle.
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