Anchorage Daily
News - Living with FASD: ‘I’m going to have this for the rest
of my life’
Like many other
city-dwelling, twentysomething Alaskans, Shawna gets up in the
morning and goes to work. She spends time with her family. She posts
cute selfies on Instagram. She likes funny memes and reading and
makeup.
Buffalo News (USA)
- Another Voice: Fetal alcohol spectrum disorders demand more
attention
I find myself in a
small, nondescript meeting room in my county’s Department of Human
Services. Again. The faces are familiar — the judge, the
developmental service agency representatives and the disability
rights lawyer who has invited me again to testify. The only person
new to this room is the caregiver — a grandmother of a 10-year-old
boy whom we’ll call “Marcus.”
Noted - The
women out to dispel myths about fetal alcohol spectrum disorder
Every week,
Eleanor Bensemann leaves her Kāpiti home to drive north to see her
22-year-old grandson. Daniel no longer lives with her, but she raised
him for much of his life. He was eight when he first got into trouble
with the law, then he spent his time as a teenager in and out of the
courts and living on the streets.
Noted (New
Zealand) - What the death of a young-adult FASD sufferer shows
about NZ's health system
Heke, who came
into the Willcox’s care at the age of one, was their second foster
child with FASD. His disability meant he was slower to crawl and
walk, and needed help with eating. At times, his behaviour and the
level of care he needed were so difficult that the couple asked for
extra support from the then Child, Youth and Family agency.
Particle
(Australia) - PARTICLE PODCAST: TACKLING FASD IN WA
Fetal Alchohol
Spectrum Disorder – or FASD – has been a growing concern for
families in regional Australia.
Jamaica Observer -
PAHO launches online course to address alcohol use in pregnancy
The Pan American
Health Organisation (PAHO), worried that the rates of alcohol
disorders among women are higher in the region of the Americas than
in any other region of the world, has launched a new initiative to
provide health care workers with the technical skills they need to
identify and address alcohol consumption in pregnant women and those
of reproductive age.
The Guardian (UK)
- How secondhand drinking ruins lives: ‘Every family has been
touched by this’
Passive smoking is
treated as a serious hazard. So why have we been so slow to wake up
to the dangers alcohol poses to those who live with – or have a
devastating encounter with – a heavy drinker?
Police News - Why
a different approach is needed when interacting with people with
disabilities
Police officers
are sworn to protect and serve the public. Not one of them wants to
be in a situation where they use force on an individual who they
mistakenly believe is being noncompliant when, in fact, the person
has a disability or communication disorder. Yet, it happens all too
frequently.
Rehab4Alcoholism -
The Dangers of Drinking Alcohol When Pregnant
Are you pregnant
but wondering if taking one or two glasses of wine on a weekend can
harm the fetus growing in your womb? If yes, then you are not alone.
VIDEOS and
MATERIALS
FASD Hub Australia
- GPaskthequestion project stresses the importance of talking to
women planning pregnancy about their alcohol use
GPs are often the
first health professional a woman goes to when she is either planning
a pregnancy or thinks she may be pregnant.
HOPE+RESQ / HOPE
27 - Embraced - Joel on Why Donate
Filmmaker, Joel
Sheagren sharing why we need donations to make the documentary,
Embraced, Truth About Fetal Alcohol Spectrum Disorders. FASD is the
Western Hemisphere's number one birth defect that few people know
about.
HOPE+RESQ / HOPE
27 – Jodee-endorsement
Embraced, Truth
About FASD (Fetal Alcohol Spectrum Disorder).
Embraced Movement
– A Documentary Film Project About Fetal Alcohol Spectrum
Disorder
Embrace, Truth
About FASD came out of a passion to help my son, Sam, who was
diagnosed with ARND — Alcohol Related Neurological Disorders — a
specific diagnosis under the FASD umbrella a few years ago.
Rhiannon Tuffield
(Australia) - FASD Clinic
In the community
of Shepparton, substance abuse has long been a driver behind
community health issues, according to GV Health's Clinical Director
of Paediatrics, Dr Dan Garrick.
RESEARCH
canfasd.ca -
Policy Action Paper: Toward a Standard Definition of Fetal Alcohol
Spectrum Disorder in Canada
Language is a
reflection of how people in a society see one another, which can
impact perceptions and consequently how people think. In particular,
language is a powerful tool in influencing how society and culture
constructs disabilities.
BioRxiv -
Hippocampal transcriptome analysis following maternal separation
implicates altered RNA processing in a mouse model of fetal alcohol
spectrum disorder
Fetal alcohol
spectrum disorders (FASD) are common, seen in 1-5% of the population
in the United States and Canada. Children diagnosed with FASD are not
likely to remain with their biological parents, facing early maternal
separation and foster placements throughout childhood.
BMC Public Health
- Population-based prevalence of fetal alcohol spectrum disorder
in Canada
This study
provides the first population-based estimate of the prevalence of
FASD in Canada. The estimate is approximately double or possibly even
triple previous crude estimates.
Int. J. Environ.
Res. Public Health - The Distribution of Available Prevention and
Management Interventions for Fetal Alcohol Spectrum Disorder (2007 to
2017): Implications for Collaborative Actions
The global
prevalence of Fetal Alcohol Spectrum Disorder (FASD) remains high
despite the various preventive and management interventions that have
been designed and implemented to tackle the issue in various
settings.
South African
Medical Journal - Maternal alcohol use and children’s emotional
and cognitive outcomes in rural South Africa
While HD rates
were low, maternal/caregiver alcohol use negatively impacted on
parenting and children’s behavioural/cognitive outcomes.
International evidence suggests that integrated approaches engaging
parents and families may be more effective for parent-child outcomes
than individual psychiatric or medical care for the parent on their
own.
International
journal of Environmental Research and Public Health - The
Prevalence of Fetal Alcohol Spectrum Disorders in An American Indian
Community
The prevalence of
fetal alcohol spectrum disorders (FASD) differs among populations and
is largely unknown among minority populations. Prevalence and
characterization of FASD is necessary for prevention efforts and
allocation of resources for treatment and support.
OSFPREPRINTS - A
preliminary investigation of the effects of prenatal alcohol exposure
on facial morphology in children with Autism Spectrum Disorder
Alcohol exposure
during pregnancy has been associated with altered brain development
and facial dysmorphology. While autism spectrum disorder (ASD) is not
specifically related to distinct facial phenotypes, recent studies
have suggested certain facial characteristics—increased facial
masculinity and asymmetry—may be associated with ASD
bioRxiv - Prenatal
alcohol exposure programs offspring disease: Impacts on metabolic
health and dietary preference in a rat model of acute exposure
These data suggest
that a relatively low-level, acute PAE can still program metabolic
dysfunction in offspring in a sex-specific manner. These results
highlight that alcohol consumption during pregnancy has the potential
to affect the long-term health of offspring.
BMJ - Analysis
of non-respondent pregnant women who were registered in the Japan
Environment and Children’s Study: a longitudinal cohort study
The non-response
rate decreased when participants reported health-related behaviour or
characteristics. Obtaining the understanding of people around each
participant might help increase response rates.
Frontiers in
Pediatrics - NEONATAL OUTCOMES IN MATERNAL DEPRESSION IN RELATION
TO INTRAUTERINE DRUG EXPOSURE
SSRIs (Selective
Serotonin Reuptake Inhibitors) are the most useful drugs to treat
depression during pregnancy. Intrauterine exposure to SSRIs may
increase the risk of growth restriction, preterm birth and neonatal
complications.
IN OTHER LANGUAGES
Neue Presse
(Germany) - Vollrausch im Mutterleib: So gefährlich ist Alkohol
in der Schwangerschaft
Ein Glas Wein kann
nicht schaden? Alkohol in der Schwangerschaft ist gefährlicher, als
die meisten glauben. Auch geringe Mengen können verheerende Folgen
haben – fast jedes vierte Pflegekind ist betroffen.
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