Today, we come together to recognize Fetal Alcohol Spectrum Disorder (FASD) Awareness Day and Month. For 25 years, September 9 has been dedicated to raising awareness about this critical issue that affects individuals and families across Canada in far-reaching ways. This date, the nineth day of the nineth month, honours the nine months of pregnancy.
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BBC (UK) - 'Nobody asked me about alcohol
when I was pregnant'
There are calls for more awareness education and support into those with
foetal alcohol spectrum disorder (FASD).
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Netwerk24 (South Africa) - Collaborating on
FASD
September marks Foetal Alcohol Spectrum Disorder (FASD) Awareness Month,
and South Africa faces a significant challenge with the condition, one that is
100% preventable yet alarmingly prevalent in this country.
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BBC (UK) - Baby vests protest over foetal
alcohol disorder
Baby vests have been hung on a bridge by a charity which says the NHS is
failing to take enough action to prevent foetal alcohol spectrum disorder
(FASD).
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CBC (Canada) - 'Everyone plays a part':
Yukon organizations gather in support of FASD awareness day
People gathered in Whitehorse's Shipyards Park on Monday to mark Fetal
Alcohol Spectrum Disorder (FASD) awareness day.
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NZ Herald (New Zealand) - ‘No safe amount’:
Push for more Fetal Alcohol Spectrum Disorder awareness
In New Zealand, there is ongoing concern about the lack of awareness of the
harm caused by drinking whilst pregnant and children with FASD not getting
support in schools.
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The Press (New Zealand) - Fetal Alcohol
Syndrome: the ‘hidden’ disability
Megan* had no idea what Fetal Alcohol Spectrum Disorder (FASD) was until a
doctor told her her foster son had it. That was just before he diagnosed the
boy with something else.
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National Indigenous Times (Australia) - Peak
body calls for better access to foetal alcohol spectrum disorder intervention
in the Top End
The peak body for Aboriginal Community Controlled Health Services in the
Northern Territory has raised concerns regarding the lack of screening and
early intervention for children and young people suffering from Foetal alcohol
spectrum disorder (FASD).
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Movendi - Special Feature: Understanding
FASD Burden and Solutions
Of all the behavioral choices people make in conjunction with pregnancy,
none are of greater importance to the child’s future health and development
than the ones people make in relation to alcohol.
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Lifeline - Living With FASD
According to Fetal Alcohol Spectrum Consultation Education and Training
Services (FASCETS), Fetal Alcohol Spectrum can be described most simply as “an
invisible brain-based physical condition with behavioral symptoms.”
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Tay Township (Canada) - Proclamation: Fetal
Alcohol Spectrum Disorder (FASD) Awareness Day - September 9, 2024
WHEREAS there is no safe amount, no safe time, or no safe kind of alcohol
that a pregnant individual can drink during pregnancy
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FARE (Australia) - Australian landmarks go
red to raise awareness of Fetal Alcohol Spectrum Disorder
Major landmarks across the country will go red this September to mark
International Fetal Alcohol Spectrum Disorder (FASD) Awareness Month,
encouraging conversations about FASD and the importance of supporting
alcohol-free pregnancies.
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CanFASD - “How can you tell if someone has
FASD?” and other FAQs
In this blog, we are debunking the myths and answering the most common
questions people ask about Fetal Alcohol Spectrum Disorder (FASD).
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NordAN - FASD in the Nordic countries: A
present concern for children’s health
In the Nordic countries, FASD remains a significant concern, affecting
thousands of children each year. While the statistics vary by country, the
message is clear: prenatal alcohol exposure can lead to irreversible damage,
and awareness must be raised to prevent new cases.
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VIDEOS and MATERIALS
Hôtel-Dieu Grace Healthcare - FASD Testimonial - Deb's Story
Hear from Deb, a client of HDGH's Regional Children's Centre's Fetal
Alcohol Spectrum Disorder (FASD) program, as she shares about her family's
journey.
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City of Sault Ste. Marie - FASD Awareness
Month
https://www.youtube.com/watch?v=jxQ66TPUPmc
National FASD - 2024 FASD Day - 660 baby
vests highlight the number with FASD born in a year in Greater Manchester
On the 9th of September 2024, International FASD Awareness Day, National
FASD joined with members of the Greater Manchester FASD Network, FASD Greater
Manchester, NHS Greater Manchester, the University of Salford, Manchester
Council, Drymester and more to hang 660 baby vests across the footbridge in
Media City, Salford.
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United States Drug Testing Laboratories
(USDTL) - ToxTime: Be Part of The Team - Identify and Assess for FASD
Fetal Alcohol Spectrum Disorders are not rare. In fact, they are more
prevalent than either autism or Down Syndrome, but they are rarely diagnosed,
denying services to those who need them to address immediate developmental
concerns and mitigate lifelong damage caused by prenatal alcohol exposure.
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Beyond 6 Seconds - Fetal Alcohol Spectrum
Disorders (FASD) - with Patti Kasper
Patti’s approach to coaching and training draws on her personal experience
with FASD, her degrees in social work and psychology, as well as her training
as a Certified Facilitator of FASCETS Neurobehavioral Model.
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FASD Awareness - Celebrating FASD Advocates
in 2024- FASD Webinar #29
In this live webinar, our host Andrew Keeping (CEO of FASD Awareness),
interviews some amazing individuals living with FASD, celebrating their
achievements and hearing more about their aspirations and future plans.
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FASD Hub Australia - The role of Social
Workers in supporting children and families towards and beyond a FASD diagnoosis
In this webinar you will hear from paediatrician and researcher Professor
Elizabeth Elliott, Dr Kerryn Bagley, Senior Lecturer in Social Work and Social
Policy at La Trobe University and Julia Perl, Senior Social Worker at the
CICADA FASD Service in Sydney.
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Living Local Network - Signs and Symptoms
of FASD (Fetal Alcohol Spectrum Disorders)
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Patricia Kasper, Your FASD Coach - International
FASD Awareness Day Celebration with Jenn Wisdhal and Rebecca Tillou
In this special Living episode with FASD, host Patti Kasper celebrates
International FASD Awareness Day with two distinguished guests, Rebecca Tillou
and Jenn Wisdahl.
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CMSU Behavioral Health - FASD Fetal Alcohol
Spectrum Disorder Webinar
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FASD United (formerly NOFAS) - FASD United
Monthly Policy Forum - July 2024
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FASD United (formerly NOFAS) - FASD United
Monthly Policy Forum - August 2024
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FASD Hub Scotland and FASD Hub UK - FASD
Hub Webinar: Nate Sheets
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Saskatchewan Prevention Institute - Assessment
and Support of Preschoolers with Prenatal Alcohol Exposure
Learning Objectives: Outline the basic definition of Fetal Alcohol Spectrum
Disorder (FASD) and recognize how prenatal alcohol exposure may impact the
developing brain…
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fasdNL - Part 3 - Pregnancy, Alcohol &
FASD - Alcohol & Safer Sex Video Series
This is the third video in our 3-part Alcohol and Safer Sex Video Series!
This series is designed for students from grades 7-12 to teach them about Fetal
Alcohol Spectrum Disorder (FASD) and how alcohol affects pregnancy.
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Justice For Orphans - The Adoption &
Foster Care Journey - Ep. 443 - FASD Change Maker, Maggie Mae
September is FASD Awareness Month and we’re kicking it off a special guest,
Maggie May. Maggie is an adult born in Ireland with an FASD. She speaks
internationally about the impact prenatal exposure to alcohol has had on her
life.
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RESEARCH
IJPDS - Identifying substance misuse related foetal anomaly cases in
routinely collected data
A novel method to identify SM-related foetal anomaly cases using routinely
collected data in Wales is provided. The published code to identify mothers and
children exposed to SM-related events can also be reused in future projects.
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Ultrasound in Obstetrics and Gynecology - Drinking
even small amounts of alcohol during pregnancy could alter fetal brain
structure
Alcohol consumption during pregnancy can affect fetal brain development, as
seen in temporal brain asymmetry detected by fetal MRI.
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Journal of Applied Research in Intellectual
Disabilities - Integrated service delivery for individuals with fetal
alcohol spectrum disorder
This study may help to inform a roadmap for enhancing FASD service delivery
and guiding FASD research and policy in Canada and beyond.
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Multidisciplinary Reviews - A lifespan
perspective on fetal alcohol syndrome: Developmental challenges and outcomes
This disorder represents the intersection of complicated societal,
community, family, and biological circumstances that increase the risk for
intergenerational suffering, health disparity, and social injustice.
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Brain Communications - Subcortical volume
in middle-aged adults with fetal alcohol spectrum disorders
Studies of youth and young adults with prenatal alcohol exposure (PAE) have
most consistently reported reduced volumes of the corpus callosum, cerebellum
and subcortical structures.
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University of Guelph - Guilty Pleas in
Youth and Young Adults with and without Fetal Alcohol Spectrum Disorder (FASD)
Overall, findings highlight the importance of developmentally-informed plea
practices for youth, and suggest young adults may require more support
throughout this process than previously thought.
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Disabilities and Autism: Ethics and Practice -
Ethical Considerations Arising in the Assessment, Treatment, and Support of
Individuals and Families Living with FASD
This chapter discusses the ethical challenges associated with crafting
effective and non-stigmatizing public health messaging about FASD, issues of
mother-blame and the villainizing of women who consume alcohol in pregnancy,
and an overview of some of the ethical considerations in the assessment,
diagnosis, treatment, and support of individuals and families living with FASD.
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Laurier - Exploring the Transition from
Childhood to Adulthood for Adults with Fetal Alcohol Spectrum Disorder
Previous research has demonstrated that adults with fetal alcohol spectrum
disorder (FASD) often lack support after reaching 18 years old because they are
no longer eligible for the support they receive as children.
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Western University - Improving the
Educational Experience of Students with Fetal Alcohol Spectrum Disorder (FASD)
Fetal Alcohol Spectrum Disorder (FASD) is recognized as one of the leading
causes of developmental disability in the Western world (Flannigan et al.,
2018). Its prevalence is estimated at 4% of the population.
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Drug and Alcohol Dependence - Administratively
reported fetal alcohol spectrum disorders in commercially- and Medicaid-insured
samples of children in the United States, 2015 – 2021
Although an underestimate of the true population of children with FASDs,
patterns in administratively reported FASDs by demographics were consistent
with previous studies.
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Substance Use & Addiction Journal - Answering
a Call to Action: Reducing Fetal Alcohol Spectrum Disorders Using a Healthcare
Champion Model
Through the advocacy, education, and mission of these 6 health sectors in
collaboration with national organizations and educational institutions, the
evidence-based approach of alcohol SBI is being disseminated throughout the
United States to reduce the harmful effects of prenatal alcohol exposure.
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Paediatrics and Child Health - Drugs and
alcohol in pregnancy: what a paediatrician needs to know, how to ask and why it
matters
This article will explore the immediate and long-term impact of exposure to
these substances in pregnancy and consider how to obtain an accurate history of
exposure to drugs and alcohol in pregnancy as part of standard paediatric
history taking.
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bioRxiv - Longitudinal mapping of cortical
change during early adolescence associated with prenatal tobacco and/or alcohol
exposure in the Adolescent Brain Cognitive DevelopmentSM Study
Cortical thickness (mm) and cortical surface area (mm2) measured
approximately 2 years apart in early adolescence, across 68 bilateral cortical
regions.
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IN OTHER LANGUAGES
Helsinkin Sanomat (Finland) - Näkymätön taakka
Violan äiti joi alkoholia raskausaikana. Vasta aikuisena Violalle selvisi,
että hänellä on aivojen toimintahäiriö, arnd. Se ei näy ulospäin mutta
vaikuttaa koko elämään. Moni suomalainen kärsii häiriöstä tietämättään.
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NTNU (Norway) - Søvnforstyrrelser,
epilepsi, EEG-funn og klinisk funksjon hos norske barn med føtalt alkohol
spektrumforstyrrelse (FASD)
Vi har utført en omfattende undersøkelse av barn og ungdom med diagnosen
FASD som har vært til diagnostisering og utredning ved Regional
Kompetansetjeneste – Medfødte Russkader (RK-MR) ved Sørlandet Sykehus HF.
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NACOA Deutschland (Germany) - FASD
Aktionswoche: Lunchtime-Interview zu "Tim: Ein Leben mit dem Fetalen
Alkoholsyndrom"
Das Baby sei eine "Mangelgeburt", hieß es, als Monika Reidegeld
ihren gerade geborenen Adoptivsohn zum ersten Mal sah. Ein kleines, leichtes
Kind, zu dem sie lange keine Beziehung aufbauen konnte.
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Chaos im Kopf Podcast - Dein FASD Podcast
(Germany) - FASD Aktionswoche 2024
Vom 9. bis 16. September 2024 läuft die FASD Aktionswoche, und in dieser
Episode erfährst du einiges über die geplanten Aktionen und Veranstaltungen.
Freue dich auf exklusive O-Töne und spannende Events.
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Kehitysvammaliitto (Finland) - Jospa olisin
tiennyt – kansainvälinen FASD-päivä 9.9.
Alkoholi on kaikkein merkittävin sikiön kehitystä uhkaava tekijä, johon
odottava äiti voi itse vaikuttaa. Kaikista päihteistä juuri alkoholi aiheuttaa
eniten sikiövaurioita. Vuosittain Suomessa syntyy karkean arvion mukaan
600-3000 alkoholille altistunutta lasta.
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