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Sunday, February 11, 2024

FASD News - 6/2024


Fatherly - Yes, Dad’s Drinking May Contribute To Fetal Alcohol Syndrome
If you were to guess based on TV and movies, baby-making typically includes some R&B slow jams and a few glasses of wine. Unfortunately, this could be bad for the baby, as new research has prompted one expert to recommend that aspiring dads lay off of the booze for 90 days before they attempt to conceive.
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FASD United - Learn With Liv: Internship at FASD United
As Liv interns at FASD United, she will be sharing the things she is learning and doing to inspire and explore FASD awareness through a public health lens. In her time with our organization, she will have opportunities to experience the roundedness of our programs, aid in important projects, and explore her understanding through reflection.
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CanFASD - THO 2.0: An updated framework for integrated community intervention
The Towards Healthy Outcomes (THO) framework for individuals with FASD offers an individualized, evidence-based resource that facilitates collaborative goal-setting and intervention planning across the lifespan (Joly et al., 2022). THO was developed by the Intervention Network Action Team of Canada FASD Research Network, led by Dr. Jacqueline Pei and colleagues, and introduced to the community in 2019.
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CBC (Canada) - Years-long wait for FASD diagnosis preventing vulnerable Manitoba youth from getting help they need, occupational therapist says
A 14-year-old girl fatally stabbed last month in downtown Winnipeg was just one of many youth on a long waiting list to be assessed for fetal alcohol spectrum disorder.
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FASD United - Celebrating Women in Medicine: Interview with Adiaha Spinks-Franklin
For those of you who are unaware- It’s National Women Physician’s Day, February 3rd! This day celebrates the accomplishments and contributions of women in medicine. Specifically, it honors the birthday of Elizabeth Blackwell, who, in 1849 became the first woman to receive a medical degree in the United States.
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VIDEOS and MATERIALS
Adopt4LifeON - Until Next Time—Work | FASD & Me: For Teens video series
We’ve partnered with 6 remarkable teens with FASD, to listen and learn what they want us (and all of you!) to know about their experiences with school, work, friendships, family, their communities, and more.
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Adopt4LifeON - Until Next Time—School | FASD & Me: For Teens video series
If you’re a teen, school is a BIG part of your everyday. For teens with FASD, it can also be a place where you don’t always feel seen, understood, or accepted. With the right supports though, things can be a lot better. Hear what our team of teen mentors with FASD want you to know about school, and how to help. Until next time!
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Adopt4LifeON - Until Next Time—Introduction | FASD & Me: For Teens video series
Caring for someone with FASD doesn’t come with a manual—but we’ve got the next best thing!
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FASD United - FASD United Affiliate Meeting - January 18, 2024
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FASD United - FASD United Policy Forum - January 2024
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Patricia Kasper, Your FASD Coach - Understanding Suggestibility in FASD with Dr. Jerrod Brown
Join your host and FASD coach, Patti Kasper, as she welcomes the incredibly knowledgeable Dr. Jerrod Brown back to the microphone for a session packed with insights that promise to leave you with pages of notes.
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National FASD - Taking the message to the Health and Social Care Committee
The National Organisation for FASD's Chief Executive Sandra Butcher gave oral evidence to the Health and Social Care Committee on 6 February 2024 about the prevention of harm from alcohol in pregnancy and the prevention of further harm from undiagnosed and unsupported FASD.
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Patricia Kasper, Your FASD Coach - Embracing Neurodiversity & FASD: a Candid Conversation with Jodee Kulp
In this enlightening episode, we have the privilege of engaging with Jodee Kulp, an esteemed advocate in FASD circles with a wealth of knowledge and personal insight into FASD. Jodee brings to the conversation a profound understanding of the "normal" that comes with neurodiversity, sharing her family's journey through the lens of both a parent and an individual with FASD.
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Talk Like a Mother: Parenting Autism Podcast - Interview with Natalie Vecchione from FASD Hope
We had the pleasure of interviewing Natalie Vecchione of FASD Hope for FASD Awareness Month.
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The raw and the real of FASD - Bio Mom vs Adoptive Mom
We are so happy to finally have this project up and started. This is the first of many videos you have been waiting for. Take a moment and listen to the perspective of two different mothers who are not so different after all.
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Fasd Success Show - #141 Discover a New Mental Health Tool with Emma Jewell
Emma Jewell, MSW, RSW (she/her) is a registered social worker and Research Assistant with the Psychology, Law, and Neurodevelopment (PLAN) Policy and Research Group at the University of Guelph, as well as the Canada FASD Research Network.
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RESEARCH
Advances in Pediatric Research - Washington and Alaska Statewide Fetal Alcohol Spectrum Disorder Diagnostic Clinical Networks: Comparison of Three Decades of 4-Digit Code Diagnostic Outcomes and Prenatal Alcohol Exposure Histories
Both States demonstrated the feasibility and value of establishing Statewide interdisciplinary FASD diagnostic clinical networks using the FASD 4-Digit-Code. Legislative support, centralized data collection, and use of a single, evidence-based FASD diagnostic system have been key to the long-term, ongoing success of these two diagnostic networks.
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Neuropharmacology - Optogenetic stimulation of corticostriatal circuits improves behavioral flexibility in mice with prenatal alcohol exposure
Taken together these results suggest that stimulation of OFC-dS projections can improve early reversal learning in PAE and control mice, and these improvements can persist even into later stages of the task days later.
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Neuropediatrics - Reduced Inter-hemispheric coherence and cognition in children with Fetal Alcohol Spectrum Disorders (FASD) - a quantitative EEG study
Our findings could imply hypo-connectivity between the hemispheres with impact on cognition. We suggest that EEG coherence analysis could be a sensitive parameter in the detection of electrophysiological abnormalities in FASD with possible clinical relevance.
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Alcohol: Clinical and Experimental Research - Australian psychologists' knowledge, confidence, and practices in fetal alcohol spectrum disorder diagnostic assessment
Recognition of FASD is growing in Australia, however, further work is required to improve clinicians' understanding of and confidence in completing FASD assessments.
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Alcohol: Clinical and Experimental Research - Machine learning approaches to the identification of children affected by prenatal alcohol exposure: A narrative review
We conclude by considering the scalability of these approaches and how these machine learning models, largely developed from clinical samples or highly exposed birth cohorts, may perform in the general population.
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CBMH - Neuropsychological profiles of adolescents sentenced to detention in Western Australia with and without prenatal alcohol exposure
While no statistically significant differences were found between the groups, the results provided a unique insight into the neurocognitive profile of Australian youth in detention. Routine screening assessments were recommended for young people sentenced to detention.
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American Journal of Preventive Medicine - Relationships Between Alcohol Policies and Infant Morbidities and Injuries
Findings suggest that limiting alcohol availability for the general population may help reduce adverse infant outcomes related to pregnant people's alcohol use.
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Alcohol: Clinical and Experimental Research - Sex-specific alterations in cognitive control following moderate prenatal alcohol exposure and transient systemic hypoxia ischemia in the rat
Transient systemic hypoxia ischemia impaired performance on the 5C-CPT in females, leading to a bias toward stimulus responsivity regardless of stimulus type.
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Neuroscience & Biobehavioral Reviews - Developmental alcohol exposure is exhausting: Sleep and the enduring consequences of alcohol exposure during development
Prenatal alcohol exposure is the leading nongenetic cause of human intellectual impairment. The long-term impacts of prenatal alcohol exposure on health and well-being are diverse, including neuropathology leading to behavioral, cognitive, and emotional impairments.
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Scientific Reports - Prenatal alcohol exposure is associated with changes in placental gene co-expression networks
The reported findings provide insights into the molecular pathways affected by prenatal alcohol exposure and highlight the potential of placental biomarkers for detecting and understanding the effects of alcohol on fetal development.
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Neuroscience and Behavioral Physiology - Structural Changes in Human Brain Tissue in Prenatal Alcoholization at Different Periods of Intrauterine Development
Alcohol led to changes in the sizes and numbers of neuroblasts, glioblasts, and MCB vessels and, as a consequence, to disproportionality in the development of all brain tissue. Changes progressed with increasing development time.
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Research in Developmental Disabilities - “It’s a learning curve throughout your entire life”: Experiences and impact of FASD in adolescence explored in online photovoice research
Participatory online research allowed insight into the impact of FASD as a disability and underlines a consistent need for support in adolescence and the transition into adulthood.
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IN OTHER LANGUAGES
Kehitysvammaliitto (Finland) - ONKO FASD VUONNA 2024 VIELÄKIN TUNTEMATON?
Vuonna 1726 havaittiin alkoholin yhteys sikiövaurioihin. Vuonna 1968 havaittiin alkoholistiäitien lapsissa alkoholialtistuksen aiheuttamia piirteitä. Vuonna 1973 FAS-nimikettä käytettiin ensimmäistä kertaa ja se vakiintui kuvaamaan alkoholialtistuksen aiheuttamaa oireyhtymää. 2000-luvun alussa alkoholin aiheuttamien vaurioiden kirjoa alettiin kuvata termillä FASD.
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RTL (Germany) - Ihre Mutter trank in der Schwangerschaft! Wie Marie (19) mit den Folgen lebt
Die 19-jährige Marie hat es nicht leicht, leidet unter Lern- und Sprachstörungen. Der Grund: Ihre Mutter trank während der Schwangerschaft Alkohol. Heute kämpft die junge Frau nicht nur mit den eigenen Einschränkungen, sondern auch dafür, als Mensch mit all seinen Bedürfnissen anerkannt zu werden.
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