EUFASD - New member of the EUFASD Alliance
The EUFASD Alliance welcomes our new member organization, Fremtidens børn (Children of the future), from Denmark. Fremtidens børn work to increase knowledge and prevent children from being exposed to alcohol, drugs, violence and trauma.
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popNAD (Finland) - Use
of alcohol and/or illicit drugs during pregnancy and long-term consequences for
child development
Consuming alcohol and/or illicit drugs when pregnant can have serious
consequences on a wide range of issues for the child. In her doctoral
dissertation, Niina-Maria Nissinen studied how Finnish youth exposed to
maternal substance abuse during pregnancy were performing at the age of 18 to
24 years in terms of secondary education, financial self-supporting and mental
health compared with youth without registered evidence of maternal substance
use during pregnancy.
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CBC (Canada) - How
FASD Classrooms in the Winnipeg School Division are Helping Kids Thrive
Lorelei Bunkowsky, Assistant Superintendent with the Winnipeg School
Division, explains to host Marcy Markusa what a difference an FASD diagnosis
can make in a child's life, since they can attend classes for kids with FASD
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CanFASD (Canada) - Advocate
for people with FASD in Public Health Consultation
The Public Health Agency of Canada (PHAC) is leading a consultation to
inform their Vision 2030 initiative – a plan that looks to shape the future of
public health in our country.
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NoFASD Australia
(Australia) - PARENTING WITH FASD
I am not sure how many people at this point know, but in early 2020 I
became a Mom through adoption. The
adoption was completed in September 2020. It began six years before the writing
of this, when a very special and wonderful little boy walked through my door
and into my heart.
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MedicalXpress - Study
shows importance of coaching as part of lifestyle programs for women planning
pregnancy
Personalized support by health professionals is critical to optimizing
women's engagement and motivation in lifestyle programs, and improves outcomes
for women planning to conceive, Monash University research has found.
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Holes in the Wall (UK)
- The experiences of families caring for children with FASD: “no one came to
help”
It is suggested that the prevalence of foetal alcohol spectrum disorders
(FASD) is greater than autism, and yet there remains significantly less
understanding of this issue, information for families and practitioners, and
support for those impacted by the condition.
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FARE (Australia) - “There
could be greater awareness in the community about the affects of alcohol during
pregnancy”
It takes a village to raise a child – and to support a woman during
pregnancy. Partners, friends and family can all play an important role in
helping someone to achieve an alcohol-free pregnancy.
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Relay - Alcohol-Free
Wine and Pregnancy
When it comes to non-alcoholic wine and beer during pregnancy, it is best
to err on the side of caution and avoid these beverages. While the alcohol
content in non-alcoholic options may be significantly lower than in their
alcoholic counterparts, there is still a risk of consuming alcohol, even in
small amounts.
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VIDEOS and MATERIALS
The Matilda Centre - Learning with FASD: The referral, assessment, and
diagnostic process for FASD
The webinar is aimed at primary school teaching and support staff and
provides an overview of the referral, assessment, and diagnostic process for
Fetal Alcohol Spectrum Disorder (FASD) for an education audience.
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FASD United - FASD
United Affiliate Meeting - February 15, 2024
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CanFASD - Transitioning
into Adulthood with FASD: Perspectives from Research and Lived Experience
In this webinar recording, presenters cover the topic of the challenges and
benefits of transitioning from youth to adulthood while living with FASD.
Viewers will learn from a researcher studying the experiences of adults with
FASD, their caregivers, and other supportive individuals during the transition
to adulthood.
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FASD Awareness - Tracy
Allen -Transitioning into adulthood and supported living. Webinar #24
In this webinar we welcome back Tracy Allen (Founder of FASD Awareness) to
discuss how to empower FASD individuals to take the next steps into “greater
independence as they are transitioning into adulthood”
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Patricia Kasper, Your
FASD Coach - FASD, Foster Care & Future Generations, with Dr. Susan Rich
In this compelling episode, we tackle the staggering prevalence of
Neurodevelopmental Disorder from Prenatal Alcohol Exposure (ND-PAE) within
foster care and question the efficacy of current social services. Are we truly
aiding these children, or are we exacerbating their struggles?
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Patricia Kasper, Your
FASD Coach - FASD & Education: Beyond Diagnosis in IEP Meetings
In this insightful episode of Living with FASD, we delve into the
complexities of navigating the education system for children with Fetal Alcohol
Spectrum Disorders.
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Fasd Justice - FASD
& the Justice System: A Better Understanding - Part III
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The Liberated Healer
Podcast - ALCOHOL ABUSE when pregnant, What are the signs? LIVING and
LEARNING
Patti is committed to improving children's lives by providing practical
tools to parents and professionals who care for children with brain-based
differences, whose behaviors are reflective of either brain changes that
resulted from exposure to prenatal toxins and/or from trauma, or reflective of
the poor fit between their cognitive abilities and the world's expectations of
them.
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OBGYN and Reproductive
Sciences Grand Rounds - Fetal Alcohol Syndrome: Doctor & Patient
Perspectives
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Fasd Success Show - #146:
Navigating the Swear Storms: Understanding FASD and Swearing
Strap in for an unflinching dive into one of the more colorful aspects of
FASD caregiving - navigating the world of swearing. In Episode #146 of The FASD
Success Show, host Jeff Noble takes us through the whys and hows of swearing in
individuals with Fetal Alcohol Spectrum Disorder (FASD), offering a blueprint
for understanding and managing these outbursts.
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RESEARCH
Children - Prenatal Alcohol Exposure and Metabolic Disorders in Pediatrics:
The Role of the Oxidative Stress—A Review of the Literature
Prenatal alcohol exposure is responsible for increasing chronic disease
risk in later life, including obesity and metabolic syndrome. Alcohol drinking
may compromise endogenous antioxidant capacity, causing an increase in free
radicals and reactive oxygen species in the newborn.
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Neuroscience - Sex-specific
differences in resting oscillatory dynamics in children with prenatal alcohol
exposure
At rest children with prenatal alcohol exposure (PAE) exhibit impaired
static and dynamic functional connectivity, along with decreased alpha
oscillations. Sex-specific information regarding the impact of PAE on
whole-brain resting-state gamma spectral power remains unknown.
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Australian and New
Zealand Journal of Family - ‘No one believed us: no one came to help’:
caregivers' experiences of violence and abuse involving children with fetal
alcohol spectrum disorder
Child and adolescent-to-parent violence and abuse (CAPVA) refers to abusive
and violent behaviours by children towards their parents or primary caregivers.
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Frontiers in Public
Health - Racial and ethnic disparities in psychological care for individuals
with FASD: A Dis/ability Studies and Critical Race Theory perspective towards
improving prevention, assessment/diagnosis, and intervention Running head:
Racial and ethnic disparities in FASD
FASD can affect people of all races and ethnicities; however, there are
important racial and ethnic disparities in alcoholexposed pregnancy prevention,
assessment and diagnosis of FASD, and interventions to support individuals with
FASD and their families.
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Mutation
Research/Genetic Toxicology and Environmental Mutagenesis - Constitutional
chromosomal anomalies in children, fetal alcohol syndrome, and maternal
toxicant exposures: A longitudinal cohort study
DNA alterations in gametes, which may occur either spontaneously or as a
result of exposure to genotoxicants, can lead to constitutional chromosomal
anomalies in the offspring. Alcohol is an established genotoxicant.
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Research Square - Validation
of the ND-PAE Diagnosis in Children with Heavy Prenatal Alcohol Exposure
This study evaluated criteria for Neurobehavioral Disorder Associated with
Prenatal Alcohol Exposure (ND-PAE). Kable et al. (2022) assessed the validity
of this diagnosis in a sample with low exposure to alcohol.
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International Journal
of Molecular Sciences - The Impacts of Periconceptional Alcohol on Neonatal
Ovaries and Subsequent Adult Fertility in the Rat
Maternal exposures during pregnancy can impact the establishment of the
ovarian reserve in offspring, the lifetime supply of germ cells that determine
a woman’s reproductive lifespan.
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Preventive Medicine - Associations
between maternal periconceptional alcohol consumption and risk of omphalocele
among offspring, National Birth Defects Prevention Study, 1997–2011
We observed modest associations between maternal periconceptional alcohol
consumption and omphalocele. Based on our bias analysis, studies of alcohol and
birth defects not accounting for exposure misclassification may underestimate
associations.
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BMC Primary Care - Scoping
review on the role of the family doctor in the prevention and care of patients
with foetal alcohol spectrum disorder
The interventions of GPs in the management of patients with FASD are
comprehensive: prevention, identification, diagnosis, follow-up, education, and
the role of coordinator for patients, their families, and pregnant women and
their partners.
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Biomedicines - Novel
Interventions on Comorbidities in Patients with Fetal Alcohol Spectrum Disorder
(FASD): An Integrative Review
Novel treatments like choline and natural antioxidants and nutritional
supplements are the most investigated treatments in humans with promising
results. More follow-up studies need to be performed, to confirm and generalize
reported efficacy to a wide sample size.
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IN OTHER LANGUAGES
Chaos im Kopf Podcast - Dein FASD Podcast (Germany) - Zeit für mich:
Auszeiten für Bezugspersonen von Menschen mit FASD (C66)
n dieser Episode geht es darum, warum regelmäßige Auszeiten für
Bezugspersonen von Menschen mit FASD so wichtig sind und wie sie durch
Selbstfürsorge ihre Lebensqualität verbessern können.
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