FASD News - 47/2023

The Conversation - For decades, mothers have borne the brunt of scrutiny for alcohol use during pregnancy − new research points to dad’s drinking as a significant factor in fetal alcohol syndrome
Men drink more, are more likely to binge drink and are almost four times more likely to develop alcohol use disorder than women, according to the Centers for Disease Control and Prevention.
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France 24 (South Africa) - South Africa has highest prevalence of Foetal alcohol spectrum disorders in the world
South Africa has the highest reported cases of Fetal alcohol spectrum disorders (FASD) in the world, with a prevalence rate as high as 28 percent.
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Eileen Devine - Three Things Your Irritability Might Be Masking
This is the sentiment a parent shared with me when we met a few weeks ago. As she described this ever-present irritability, always bubbling right beneath the surface throughout her day, she went on to explain the frustration and shame this feeling also elicits.
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National Child Day - Inclusion for Young People with FASD
National Child Day is celebrated in Canada on November 20th to acknowledge the importance of children’s rights and our country’s commitment to upholding them. This year’s theme is “Inclusion for Every Child.”
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CanFASD - Supporting Addictions Recovery Among Women and Girls with Complex Needs
This week is National Addictions Awareness Week, and today we’re sharing a timely study recently published in the journal, Substance Abuse: Research and Treatment.
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FASD United - The Triumphs and Troubles of Living with FASD: An Interview with Self-Advocate Marlee
People are not just one thing. As we know, living with FASD can lead to challenges. It can also highlight the unique strengths and positive qualities of those with them.
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VIDEOS and MATERIALS
FASD Awareness - Sam Armstrong - EHC Plans, Empower Yourself! - FASD Webinar #21
Samantha Armstrong has worked in education for 18 years, as a teacher and SENCO and now for the Specialist Teaching and Learning Service. Her role involves supporting children with a range of special educational needs who attend a mainstream education setting - from 3-19 years old age.
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Oklahoma Adoption Competency Network - Fetal Alcohol Syndrome OACN Lunch and Learn
The Oklahoma Adoption Competency Network (OACN) is a statewide effort to come together - adoptive parents, adoptees, biological families, and adoption professionals - doing our best to learn, discuss, and support each and other and adoptive families in Oklahoma.
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Patricia Kasper, Your FASD Coach - Current FASD Research with Dr Christie Petrenko
Living with FASD is an educational and human interest show for those living with the effects of prenatal exposure to alcohol, their loved one and anyone interested in learning more about Fetal Alcohol Spectrum Disorders, brought to you by someone with both professional and living experience with FASD.
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Patricia Kasper, Your FASD Coach - Personal Space, Boundaries & Sleep
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Justice For Orphans - JFO "FASD" 2023
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Patricia Kasper, Your FASD Coach - A Candid Conversation with Dr. Susan Rich
Living with FASD is an educational and human interest show for those living with the effects of prenatal exposure to alcohol, their loved one and anyone interested in learning more about Fetal Alcohol Spectrum Disorders, brought to you by someone with both professional and living experience with FASD.
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Able to Care Podcast - Understanding Foetal Alcohol Spectrum Disorder (FASD) - Able To Care Podcast #011
This months podcast explores Foetal Alcohol Spectrum Disorder and how we can help those living with it.
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RESEARCH
Journal of Intellectual & Developmental Disability - An Australian online training and support program for caregivers of children and youth with Fetal Alcohol Spectrum Disorder: Families linking with families
Specialist FASD caregiver education and support programs are beneficial for caregivers who care for children and youth with FASD. Further research through a randomised control trial could establish the efficacy of the program.
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University of Johannesburg - Rethinking Local Economic Development for Foetal Alcohol Spectrum Disorder in Renosterberg Municipality
Two towns in the Renosterberg local municipality (RLM) in the Northern Cape Province of South Africa, Petrusville and Philipstown, have high Foetal Alcohol Spectrum Disorder (FASD) prevalence rates.
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Journal of Mental Health Research in Intellectual Disabilities - Polyvictimization and Impairments in Functioning for Children and Youth with Fetal Alcohol Spectrum Disorder
The findings highlight the increased risk of individual and familial difficulties in children diagnosed with FASD. The limitations and clinical implications are discussed to inform further research and assist in the development of trauma-informed clinical interventions.
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Alcohol: Clinical and Experimental Research - Extension of Community Health Outcomes (ECHO) FASD: Tele-mentoring program to increase healthcare capacity for fetal alcohol spectrum disorder (FASD) diagnosis
ECHO FASD is a feasible training method that shows promise to increase diagnostic capacity across many geographic regions.
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Applied Neuropsychology: Child - Neuropsychological evaluation of children and adolescents with fetal alcohol spectrum disorders in the Brazilian population
Our results point to the need for more clinical research on FASD in Brazil, as well as for the standardization and validation of neurodevelopmental assessment tools for the accurate diagnosis of FASD in Brazil.
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Makerere University - Alcohol use among pregnant women in post conflict northern Uganda: Prevalence, women’s experiences and effect of a communication intervention
Policy makers should ensure that interventions aimed at promoting alcohol abstinence during pregnancy should be implemented alongside other strategies that address factors that influence pregnant women to drink to achieve maximum results.
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The Clinical Neuropsychologist - Questioning cognitive heterogeneity and intellectual functioning in fetal alcohol spectrum disorders from the Wechsler intelligence scale for children
Our results question the notion of WISC profile heterogeneity in FASD and point to working memory and processing speed over-impairment, with global repercussions but most often preserved elementary reasoning abilities.
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Biological Research - Prenatal ethanol exposure and changes in fetal neuroendocrine metabolic programming
Prenatal ethanol exposure (PEE) (mainly through maternal alcohol consumption) has become widespread. However, studies suggest that it can cause intrauterine growth retardation (IUGR) and multi-organ developmental toxicity in offspring, and susceptibility to various chronic diseases (such as neuropsychiatric diseases, metabolic syndrome, and related diseases) in adults.
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JAMA Network - Brain Volume in Fetal Alcohol Spectrum Disorders Over a 20-Year Span
These findings suggest that a sustained spectrum of brain volume deficits endured from adolescence into early middle age based on the original severity of dysmorphia and a diagnostic distinction between fetal alcohol syndrome and alcohol-related neurodevelopment disorder.
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Prevention Science - Systematic Review and Meta-analysis of the Relationship Between Exposure to Parental Substance Use and Attention-Deficit/Hyperactivity Disorder in Children
Attention-deficit/hyperactivity disorder (ADHD) is characterized by persistent patterns of inattention, hyperactivity, and impulsiveness. Among US children and adolescents aged 3–17 years, 9.4% have a diagnosis of ADHD.
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Journal of Public Health - Identifying the motives for and against drinking during pregnancy and motherhood, and factors associated with increased maternal alcohol use
Stress reduction motives may be a risk factor for heavier maternal drinking, while motives for not drinking seem to be focused on child welfare and maternal well-being.
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BMC Pregnancy and Childbirth - Clustering of smoking, alcohol consumption and weight gain in pregnancy: prevalence, care preferences and associated factors
Around one in eight women reported clustered preventable risk factors during pregnancy, most of whom would like support to address these risks.
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IN OTHER LANGUAGES
Kehitysvammaliitto (Finland) - KEHITYSVAMMALIITTO VASTUSTAA ALKOHOLILAIN MUUTTAMISTA
Alkoholin kokonaiskulutukseen vaikuttavat eniten saatavuus ja hinta. Tästä syystä Kehitysvammaliitto vastustaa suunniteltuja muutoksia alkoholijuomien vähittäismyyntiä koskeviin säännöksiin. Alkoholin saatavuuden helpottaminen lisäisi sikiöaikaisia alkoholivaurioita.
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Landkreis Stade (Germany) - „FASD ist nicht das Ende“: Pflegeeltern erhalten Unterstützung – Fachtag in Stade
Alkoholkonsum in der Schwangerschaft wird noch immer verharmlost. Dabei drohen den Kindern bei einer fetalen Alkoholspektrumsstörung – kurz FASD – schwerwiegende Folgen.
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021 (Sebia) - Očeve navike ispijanja alkohola mogu uticati na izgled bebinog lica
Očeve navike pijenja alkohola pre začeća mogu oštetiti lica njihovih beba, pokazuju istraživanja.
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Net.hr (Croatia) - Alkoholiziranje budućih očeva loše utječe na fetus?! 'Može dovesti do ovih šokantnih posljedica na nerođeno dijete'
Stopa rasta bebine glave, usta i čeljusti može biti oštećena kao rezultat prekomjerne konzumacije alkohola od strane oca
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ddwloclawek.pl (Poland) - Robisz to w ciąży? Twoje dziecko przez wiele lat może mieć te problemy
Czy kobiety ciężarne mogą pić alkohol? Naukowcy nie stwierdzili jednoznacznie, jaka ilość alkoholu w czasie ciąży jest bezpieczna.
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Padua Thesis and Dissertation Archive (Italy) - Brindisi rischiosi. Indagine sull'uso di alcol in gravidanza
L’alcol è uno dei fattori di rischio di molte malattie ed è una delle sostanze psicoattive più utilizzate, con un aumento del consumo negli ultimi anni soprattutto nelle giovani donne.
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NDR (Germany) - FASD-Ausstellung: Eine unsichtbare Behinderung sichtbar machen
FASD hat viele Gesichter. Rund 1,6 Millionen Menschen leiden in Deutschland an der Fetalen Alkoholspektrumsstörung. In Rostock ist nun eine Foto-Ausstellung von Andreas Ehrig mit Bildern von Betroffenen zu sehen.
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Lääkärilehti (Finland) - FASD- ja ADHD-diagnoosit uupumisen takana
Paras ja pisin aika ilman uupumusta on ollut neljä vuotta. Opiskelin tuolloin luovaa alaa. Valmistumisen jälkeen aloitin satunnaiset taidealan työt. En jaksanut roikkua kauan pätkätöissä ja myös taloudellisista syistä lähdin muihin töihin.
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