Government of Northwest Territories (Canada) - September is FASD Awareness Month - Uniting our Strengths: Finding Solutions Together
September is Fetal Alcohol Spectrum Disorder (FASD) awareness month, a time dedicated to conversation about FASD, improving prevention, and supporting those living with FASD. The theme for this year’s FASD awareness month is Uniting our Strengths: Finding Solutions Together.
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BC Gov News (Canada) - Minister’s statement
on Fetal Alcohol Spectrum Disorder Prevention and Support Month
People living with disabilities are faced with unique challenges every day,
especially those whose disabilities are surrounded by stigma or shame. Fetal
alcohol spectrum disorder (FASD) is a lifelong neurodevelopmental disability
that approximately 40,000 people in B.C. live with each day.
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ABC (Australia) - Fetal alcohol spectrum
disorder is something you need to talk about, Cheryl Dedman says
Cheryl Dedman is passionate about breaking down stigmas around a disorder
she knows all too well. She has an adopted relative with fetal alcohol spectrum
disorder (FASD) – a lifelong condition that can impact on people's motor
skills, physical health and emotional regulation.
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Australian Government Department of Health and
Aged Care (Australia) - $1.5 million for a new tool used to screen for fetal
alcohol spectrum disorder
The expansion of a Fetal Alcohol Spectrum Disorder (FASD) screening program
will be explored in partnership with community organisations as part of a new
National Health and Medical Research Council (NHMRC) project.
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Hawaii Public Radio (USA) - State's new
Fetal Alcohol Spectrum Disorders law offers hope and awareness to families
Gov. Josh Green recently signed a bill into law that establishes a
five-year pilot program to help with the diagnosis and treatment of those with
Fetal Alcohol Spectrum Disorders, or FASD.
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Illuminate Colorado - 10 Ways to Support
Families Impacted by FASD
Fetal Alcohol Spectrum Disorder (FASD), an umbrella term used to describe a
range of effects that can occur in a fetus exposed to alcohol before birth, is
the most commonly known cause of developmental disabilities in the United
States.
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CanFASD - Mapping Supports for FASD: The
COMPASS Project
At CanFASD, we strive to create evidence-based solutions. Our research team
gathers data and evidence to better understand a problem and uses this research
to create and test solutions.
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SalfordFASD (UK) - NOVEL APPROACHES FOR
IDENTIFICATION OF PRENATAL ALCOHOL EXPOSURE
SalfordFASD welcomes Human Genetics expert Dr Arijit Mukhopadhyay to the
team to help us tackle important research on the detection of prenatal alcohol
exposure.
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COMING UP
EUFASD - 7th EUROPEAN FASD ALLIANCE
CONFERENCE (22 to 25 September 2024, Madrid, Spain)
https://eufasd2024.com/
FAS Portalen - Ny Fokus FAS-konferens i
november (14 november 2023; Stockholm, Sweden)
Konferensen Fokus FAS som arrangerades i början av året blev snabbt
fullbokad och alla som var intresserade kunde inte delta. Arrangemanget visade
sig bli en stor framgång och i utvärderingen gav deltagarna högsta betyg med
kommentarer som “En utmärkt anordnad konferens om ett viktigt ämne där
okunskapen är stor” och "Bästa utbildningen på många år!”.
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London & Region FASD Conference 2023 (October
24 & 25, 2023)
Please join us at our fourth annual London &
Region FASD Conference 2023. This virtual educational conference connects
clinicians, researchers, experts, social and support workers, and the fetal
alcohol spectrum disorder (FASD) community to share current research and
resources, facilitate dialogue, and promote advocacy.
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CanFASD - Canada FASD Conference (NOVEMBER
7-9, 2023)
The first ever Canada FASD Conference is happening in November 2023! Join
us in Saskatoon, Saskatchewan for three days of presentations and events to
learn how we can transform evidence into action in the field of Fetal Alcohol
Spectrum Disorder (FASD).
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FASD Hub Scotland & FASD Hub UK - Wednesday
Webinar - Jessica Sinarski (4 October)
Jessica Sinarski, LPCMH is an author, speaker, and instigator of hope.
Weaving user-friendly brain science into everything she does, Jessica offers
deeply trauma-informed support and education for home, school, and community
audiences.
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FASD Hub Scotland & FASD Hub UK - Helping
Sleep Happen - (FASD Hub Scotland) (5 October)
Workshop with AUK sleep counsellor and member of FASD Hub who are also
experienced adopters, foster & kinship carers about why our children can
find it difficult to settle, fall asleep and stay asleep.
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Indiana Alliance on Prenatal Substance
Exposure - Exploring the Neurodiversity of FASD (Wednesday, September 27)
All people are different. We communicate differently, we experience
emotions differently, our bodies are shaped differently, we have different hair
colors, drive different cars, and live in different houses.
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FASD Hub Scotland & FASD Hub UK - FASD:
Insights & Strategies for Professionals (Multiple dates)
This course is suitable for professionals working in the Third Sector,
education or working with adoptive, fostering or kinship families. It is not
suitable for medical/clinical practitioners.
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FASD Awareness - FASD Awareness in
conversation with RJ Formanek (Thursday, 21 September)
Having not received an FASD diagnosis until his late forties, RJ Formanek
was startled to find how many of the strategies he had used throughout life
were a result of FASD.
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FASD United - International Research
Conference on Adolescents and Adults with Fetal Alcohol Spectrum Disorder:
Review, Respond and Relate (April 11-14th in Seattle, WA)
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VIDEOS and MATERIALS
Patricia Kasper, Your FASD Coach - Deb Evensen: creator of 8 Keys for Adults
with FASD
Living with FASD is a human interest and educational show for those living with
Fetal Alcohol Spectrum Disorders, and the people who support them, by someone
with both professional and living experience with an FASD.
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Patricia Kasper, Your FASD Coach - September
Challenges: change is in the air
Each Friday in 2023, I will drop another Free Friday Tidbit that will help
you understand neurodivergence a little better using a brain-based lens.
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Sip by Sip: Candid Conversations With
People Diagnosed as Adults with Fetal Alcohol Spectrum Disorder
What an incredibly insightful book that speaks from
the hearts of a special population of individuals who have been diagnosed as
adults with Fetal Alcohol Spectrum Disorders (FASD)… Patti Kasper has put
together an outstanding book.
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Association for Child and Adolescent Mental
Health - Fetal Alcohol Spectrum
Disorder FASD – Understanding the Diagnosis
In this ‘In Conversation’ podcast, Sandra Butcher and Rachel Jackson
provide insight into Fetal Alcohol Spectrum Disorder (FASD).
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CityNews - The invisible disability
We speak to Clinical Psychologist, Dr. Valerie Temple, about an early
diagnosis when it comes to Fetal Alcohol Spectrum Disorder.
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eNCA - Raising awareness about Fetal
Alcohol Syndrome Disorders
Women who drink alcohol while pregnant should face criminal charges. That's
the view of Deputy Social Development Minister Hendrietta Bogopane-Zulu.
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CapeTalk - Should it be a crime to consume
alcohol while pregnant?
Deputy Minister of Social Development Hendrietta Bogopane-Zulu has proposed
that pregnant women who consume alcohol be criminally charged.
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FASD United (formerly NOFAS) - August 2023
Policy Forum
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Spotlight on FASD - Podcast Season 5
Episode 9 - The UK FASD Manifesto: Part 2
With Dr. Jessica Rutherford.
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FASD United - How can you get involved in
FASD@50?
September is a meaningful time to raise awareness of Fetal Alcohol Spectrum
Disorders and to celebrate the strengths, talents, and victories of the
estimated one in twenty Americans who have an FASD.
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Hôtel-Dieu Grace Healthcare - FASD ALARMS
Hear from Hôtel-Dieu Grace Healthcare's Fetal Alcohol Spectrum Disorder
(FASD) Team as they describe ALARMS, the acronym that identifies
characteristics of someone living with FASD.
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Dalgarno Institute – World Resiliency Day
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Hôtel-Dieu Grace Healthcare - FASD
Testimonial
Hear from Cindy, a client of HDGH's Regional Children's Centre's Fetal
Alcohol Spectrum Disorder (FASD) program, as she shares about her family's journey.
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The Adoption and Fostering Podcast - Podcast
Special: FASD awareness month with Jeff Noble
It's FASD awareness months and the 9th September is the FASD day so to mark
it we've spoken to Jeff Noble of FASD Success fame.
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Salt Spring and Gulf Islands FASD group – GLIMMERS
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NOFASD Australia Podcast - #32 Dispelling
the Stigma with Angelene Bruce
Kurt is joined by Angelene Bruce; a biological mother of a child with FASD,
a FASD advocate, speaker and parent mentor.
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FASD Hope Podcast - 178 - Tinderbox - A
Conversation with Lynn Alsup
Episode 178 welcomes back two-time guest, Lynn Alsup and celebrates the
launch of her new book "Tinderbox: One Family's Story of Adoption,
Neurodiversity, and Fierce Love".
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RESEARCH
Alcohol: Clinical and Experimental Research - Factors to be considered as
part of a holistic assessment for fetal alcohol spectrum disorder: A scoping
review
Areas to be considered as part of a holistic assessment and diagnostic
process spanned individual, family, and system level factors.
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University of Guelph - An Examination of
the Experiences and Needs of Individuals with Fetal Alcohol Spectrum Disorder
(FASD) who have Criminal Legal System Contact
People with fetal alcohol spectrum disorder (FASD) often experience
inadequate supports, which can lead to an increased risk of becoming involved
in the criminal legal system (CLS).
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Reproductive Toxicology - Maternal Dietary
Intake Among Alcohol-Exposed Pregnancies Is Linked to Early Infant Physical
Outcomes in South Africa
Maternal dietary intake is likely a contributing factor to fetal alcohol
spectrum disorders (FASD). Two, 24-hour dietary recalls were completed by
pregnant women (n=196) in South African communities with high rates of FASD.
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International Journal of Molecular Sciences - Effects
of In Utero EtOH Exposure on 18S Ribosomal RNA Processing: Contribution to
Fetal Alcohol Spectrum Disorder
Fetal alcohol spectrum disorders (FASD) are leading causes of
neurodevelopmental disability. The mechanisms by which alcohol (EtOH) disrupts
fetal brain development are incompletely understood, as are the genetic factors
that modify individual vulnerability.
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International Journal of Environmental
Research and Public Health - Epigenetics of Trauma Transmission and Fetal
Alcohol Spectrum Disorder: What Does the Evidence Support?
Fetal alcohol spectrum disorder (FASD) results from teratogenic impacts of
alcohol consumption during pregnancy. Trauma and prenatal alcohol exposure
(PAE) can both cause neurodevelopmental impairment, and it has been proposed
that FASD can amplify effects of trauma.
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Learning from 50 Years of Aboriginal Alcohol
Programs - Meeting the Challenge of Fetal Alcohol Spectrum Disorders (FASD)
Fetal Alcohol Spectrum Disorders (FASD) is a major source of
neurodevelopmental impairment among both Aboriginal and non-Aboriginal
Australians.
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Drug and Alcohol Review - Fetal alcohol
spectrum disorder and Aboriginal and Torres Strait Islander men: A discussion
to be had
In this paper, we discuss several areas for increased involvement by
Indigenous men in future FASD research, prevention, care and support.
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iScience - Prenatal Alcohol Alters
Inflammatory Signatures In Enteric Portal Tissues Following Adult-Onset
Cerebrovascular Ischemic Stroke
Collectively, PAE inhibits brain inflammation, but results in an
inflammatory signature in enteric portal tissues after stroke, suggesting that
PAE persistently and adversely impacts the gut-brain axis following adult onset
disease.
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University of Malta - Prenatal alcohol
exposure and risk of foetal loss
This review has concluded that whilst there is a definite increase in the
rates of foetal death when a pregnant mother is exposed to alcohol,
inconsistencies exist regarding the most detrimental factor, including the type
of alcohol, amount, frequency, dose, or gestational age at exposure.
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Australian & New Zealand Journal of Statistics
- Bayesian modelling of effects of prenatal alcohol exposure on child
cognition based on data from multiple cohorts
High levels of prenatal alcohol exposure (PAE) result in significant
cognitive deficits in children, but the exact nature of the dose-response
relationship is less well understood.
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Pediatric Research - Impact of low-level
prenatal alcohol exposure and maternal stress on autonomic regulation
Alterations in ANS regulation associated with PAE and maternal stress may
reflect abnormal development of the hypothalamic-pituitary-adrenal axis and
have long term implications for infant responsiveness and self-regulation.
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NeuroImmune
Pharmacology and Therapeutics - Prenatal and adolescent alcohol exposure,
neuroinflammation, and Alzheimer’s disease: a network meta analysis approach
This review highlights the necessity of recognizing developmental alcohol
exposure as a potential risk factor for AD and shed light on the underlying
mechanisms that may contribute to alcohol-induced neurotoxicity.
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The FASEB Journal - Alcohol
blunts pregnancy-mediated insulin resistance and reduces fetal brain glucose
despite elevated fetal gluconeogenesis, and these changes associate with fetal
weight outcomes
Prenatal alcohol exposure (PAE) impairs fetal growth and neurodevelopment.
Although alcohol is well known to alter metabolism, its impact on these
processes during pregnancy is largely unexplored.
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Alcohol: Clinical and
Experimental Research - Spiral drawing deficits in children with prenatal
alcohol exposure
The drawing skills of children with prenatal alcohol exposure have inherent
signal characteristics that differ significantly from those produced by
typically developing peers.
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Frontiers in
Psychiatry - Reducing the risk of prenatal alcohol exposure and FASD through
social services: promising results from the FAR SEAS pilot project
Changing risky behaviors (alcohol consumption and sex without
contraception) to prevent alcohol exposed pregnancies is feasible at the local
level, even without engagement of medical professionals.
Read more
IN OTHER LANGUAGES
Visual TEAF (Spain) - Qué aprenderás con estos cursos TEAF
Si eres un profesional, gracias al curso TEAF adquirirás la formación necesaria
para enfrentar día a día este problema, desde el diagnostico, soluciones de
ayuda profesional y hábitos que mejorarán el día a día de las personas
afectadas día a día.
Read more
Fædrelandsvennen (Norway) - Hvorfor snakker
ingen om barna som fødes med alkoholskader?
«Jeg har en hjerneskade fordi moren min drakk alkohol i svangerskapet, og det
kan jo ikke behandles. Vet du noen plass familien min kan få hjelp?»
Read more
Stadt Delmenhorst (Germany) - Ungeborene
Kinder vor Alkoholschäden schützen
Die Gefahr von Alkoholkonsum in der Schwangerschaft wird oftmals noch immer
deutlich unterschätzt. Das Leben von Kindern, die alkoholgeschädigt auf die
Welt kommen, ist in vielen Bereichen massiv belastet.
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Ilta-Sanomat (Finland) - Alkot aukeavat
lauantaina normaalia myöhemmin, tässä syy
Syynä on vuosittain 9.9. järjestettävä kansainvälinen FASD-päivä, jonka
tarkoituksena muistuttaa raittiudesta raskausaikana.
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Gov.pl (Poland) - Konferencja stacjonarna
„FASD – profilaktyka, diagnostyka, rehabilitacja” 2.10.2023 r.
Wojewódzka Stacja Sanitarno-Epidemiologiczna w Krakowie we współpracy z
Ekspertem Wojewódzkim ds.
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Postimees (Estonia) - Prisma alustab
laupäeval alkoholimüüki hiljem. Ja selleks on oluline põhjus
Laupäeval, 9. septembril alustavad Prisma kauplused alkoholimüüki kell
10.09, et aidata teadvustada alkoholist põhjustatud sünnikahjustusi.
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Sanità Informazione (Italy) - Alcol, rischi
molto alti per mamme e neonati
Abortività spontanea, morte intrauterina e insorgenza di difetti dello
sviluppo fetale: la Società Italiana di Neonatologia mette in guardia le donne
in attesa sulla dipendenza da alcolici
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MojaObčina.si (Slovenia) - Mednarodni dan
fetalnega alkoholnega sindrima
9. september je mednarodni dan ozaveščanja o posledicah izpostavljenosti
otroka alkoholu pred rojstvom (Dan FASD).
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MilleUnaDONNA (Italy) - Il 10% delle donne
consuma alcol in gravidanza: l'allarme dei neonatologi e i rischi per madre e
bambino
La Società italiana di neonatologia (Sin) ribadisce che "è opportuno
astenersi completamente" dall'alcol "durante tutto il periodo"
di gestazione
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Tampere University (Finland) - Secondary
Disabilities in Finnish Youth with Prenatal Substance Exposure : A longitudinal
register-based cohort study on secondary education, financial difficulties and
mood and neurotic disorders in youth with prenatal substance exposure
Altistuminen päihteille (ml. alkoholi ja laittomat huumeet) raskaudenaikana
on merkittävä riskitekijä sikiön kehitykselle, erityisesti sikiön
keskushermoston ja aivojen kehitykselle.
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Potilaan Lääkärilehti (Finland) - Mitä
tarkoittaa FASD?
Alkoholi ja raskaus eivät sovi yhteen. Turvarajaa raskaudenaikaiselle
alkoholinkäytölle ei voida varmistaa, joten täysraittius raskauden aikana on
ainoa varma vaihtoehto.
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