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Sunday, December 18, 2022

FASD News - 50/2022

Iriss (UK) - Social work and fetal alcohol spectrum disorders (FASD)
Given the prevalence, severity and impact of fetal alcohol spectrum disorders (FASDs) on individuals and communities, there should be better social work knowledge and understanding of, as well as support for, these disorders
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Kidspot (Australia) - It took 12 years for my son to be correctly diagnosed with FASD
Wyatt's learning difficulties were attributed to his parent's divorce, then doctors misdiagnosed him. It took over a decade for Debbie's suspicions over her son's condition to be proved correct.
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BBC (UK) - How I found success despite foetal alcohol spectrum disorder
The 39-year-old, who was adopted as a baby - is a parent, has a full time job at Fife College and leads a programme of support for adopted children for the charity Adoption UK.
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Newstalk (Ireland) – Drinking while pregnant: 10% of babies born with FASD
Ireland needs a new education campaign about drinking during pregnancy – with one in ten babies born with foetal alcohol disorders every year.
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CFJC Today Kamloops (Canada) - Government’s autism funding model reversal still leaves out some neurodiverse children: Kamloops advocate
Two weeks ago, the NDP government reversed course on a decision that would have helped Bonnie McBride and her family, instead, they are still advocating for proper funding.
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Taproot Edmonton (Canada) - Toolkit aims to help families of children with neurodevelopmental disabilities
Families of children with autism, cerebral palsy, and fetal alcohol spectrum disorder now have access to a free online resource called the Neurodevelopmental Disability Navigator Toolkit.
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Stuff.co.nz (New Zealand) - Man with foetal alcohol spectrum disorder has aggravated robbery jail sentence cut
A young man with foetal alcohol spectrum disorder jailed for robbing an Auckland bakery has had his time behind bars cut.
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WXPR (USA) - Policing pregnancy: Wisconsin’s ‘fetal protection’ law, one of the nation’s most punitive, forces women into treatment or jail
Officials investigate about 400 pregnant people a year for alleged ‘unborn child abuse’ under Act 292. Critics say that can do more harm than good.
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Our Sacred Breath (Canada) - NATIONAL FRAMEWORK FOR FASD BILL S-253 PASSES 2ND READING
Hon. Mohamed-Iqbal Ravalia moved second reading of Bill S-253, an Act respecting a national framework for fetal alcohol spectrum disorder. Still a long way to become law, but exciting to see it discussed and making its way through Senate.
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NOFASD Australia - MANAGING OVERWHELM AT CHRISTMAS
December is a time of frantic shoppers, once-a-year social visits, flashing lights, bright decorations, loud and often incessant Christmas carols, and oh so many expectations
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VIDEOS and MATERIALS
FASD Awareness - Raja Mukherjee - Internationally acclaimed expert in FASD. (Webinar #13)
Dr Raja Mukherjee is an Adult Learning Disability Consultant Psychiatrist for Surrey and Border’s Partnership NHS Foundation Trust, with interest in the management of developmental disorders across the lifespan.
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FASD United (formerly NOFAS) - FASD United Policy & Training Center: November 2022 Virtual Forum
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FASD United (formerly NOFAS) - FASD United Circle of Stars 2022 - Full Event
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Kids Brain Health Network - Full Chamber Speech—Bill S-253 National Framework for Fetal Alcohol Spectrum Disorder (FASD) Bill
Senator Colin Deacon speaks about his stance on Bill S-253 National Framework for Fetal Alcohol Spectrum Disorder (FASD) Bill during its second reading held last November 15, 2022
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National FASD - Raja & Neil's FASD Book Club - Session 8, Transition to Adulthood & Avoiding Secondary Disabilities
ABOUT THIS VIDEO - Raja & Neil’s FASD Book Club – Session 8, Transition Into Adulthood & Avoiding Secondary Disabilities, with Raja Mukherjee, filmed 3rd November 2022.
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LINKS Resource Center - FASD Awareness and Education
If you found this training useful please consider completing our brief survey.
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Love Alaska, Priceless, & Chosen - EQUIP Training: Learning about FASD
This video is lead by Brighton Brooks a clinician cased out of Fairbanks Alaska that did their masters work in Fetal Alcohol Spectrum Disorder.
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Learning with FASD - Teaching and learning strategies to support primary aged children with FASD
Children affected by FASD can learn and behave differently to neurotypical children due to the impact of prenatal alcohol exposure.
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NOFASD Australia Podcast - #16 FASD First Voices Part 4 with CJ Lutke
In this fourth and final episode in this multi-part FASD “First Voices” mini-series, Kurt’s quest comes to its conclusion when he talks with another adult who lives with this invisible disability, to learn more about how they live with FASD
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Dalgarno Institute - Pregnant and Drinking Don’t Mix – At All!
But how do you have that ‘conversation’ with someone who is having a baby and seems oblivious to the harms of alcohol to her baby?
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Proof Alliance - Hello and Invitation from the new Executive Director of Proof Alliance
Please make a moment to give to Proof Alliance and light the candle so we can continue our work to prevent prenatal alcohol exposure and improve outcomes for people impacted by an FASD throughout Minnesota and beyond.
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RESEARCH
Aotearoa New Zealand Social Work - Best practices for justice: Practitioner views on understanding and helping youth living with fetal alcohol spectrum disorder (FASD)
Urgent training and practice guidance is required for all professionals working in the youth justice space. Practice needs to ensure disability rights are upheld to enable flourishing and participation by young people often on the margins of society.
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Drug and Alcohol Review - Midwives' knowledge and perceived barriers to screening alcohol use among pregnant women in a southwestern US state
More in-depth research and larger samples are needed to explore barriers (knowledge gaps, limited time with patients, need for additional training) that hinder midwives' dissemination of abstinence messages to pregnant women and limit the uptake of validated alcohol screening tools.
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Brain Sciences - Effects of Genetics and Sex on Acute Gene Expression Changes in the Hippocampus Following Neonatal Ethanol Exposure in BXD Recombinant Inbred Mouse Strains
These results demonstrate that genetic background and sex are important factors that affect differential cell death pathways after alcohol exposure during development that could have long-term consequences.
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HEALTHY POPULATIONS JOURNAL - DEVELOPING AN FASD HEALTH PROMOTION SOCIAL MEDIA CAMPAIGN USING COMMUNITY-BASED PARTICIPATORY PEER REVIEW: NOTES FROM ATLANTIC CANADA
With the inclusion of diverse voices from the FASD community in the co-creation of the content, we argue that the campaign’s style, messaging, and language more accurately reflected the intended audiences and was made accessible to a wider demographic, thus strengthening awareness and prevention messages.
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Preprints - Direct Implications between Prenatal Alcohol Consumption and Gut Microbiome in the Neurodevelopment of Mice Offspring – Focusing On Foetal Alcoholic Spectrum Disorders
In this review we focus on the role of gut microbiota on the neurodevelopment of mice when ethanol consumption is one of the major stressors during prenatal period.
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Substance Abuse Treatment, Prevention, and Policy - Effect of a communication intervention on alcohol use during pregnancy in post conflict Northern Uganda: a quasi experimental study
The communication intervention affected some patterns of alcohol use among pregnant women and not others.
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The Brown University Child & Adolescent - Maternal use of substances while pregnant does not affect ADHD symptoms in offspring
A recent study has found that in contrast to some previously published studies, maternal prenatal substance use with legal substances is not associated with offspring attention-deficit hyperactivity disorder (ADHD).
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Drug and Alcohol Dependence - Prenatal cocaine exposure and substance use disorder in emerging adulthood at age 21
PCE may increase risk for SUD in emerging adulthood through childhood externalizing behaviors and adolescent substance use.
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JCI Insight - Embryonic alcohol exposure disrupts the ubiquitin-proteasome system
Our studies identify the proteasome as a target of EtOH exposure and signify that UPS disruptions contribute to craniofacial, neurological, and endodermal phenotypes in FASDs.
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BMC Pregnancy and Childbirth - Women’s views on moderate and low alcohol consumption: stages of the subjective transition from pregnancy to postpartum
Many women express a need for guidance and counselling by health care professionals at some stages of the transition to motherhood.
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Plos one - Alcohol use during pregnancy and motherhood: Attitudes and experiences of pregnant women, mothers, and healthcare professionals
Alcohol is the most used substance by women of childbearing age. Alcohol exposed pregnancies can have serious consequences to the fetus, and the UK has one of the highest rates of drinking during pregnancy.
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Brain Sciences - Mechanisms Underlying Cognitive Impairment Induced by Prenatal Alcohol Exposure
in this review, we aim to provide a comprehensive summary of the recently reported alterations to various mechanisms following alcohol exposure during pregnancy, and to draw potential associations with behavioral changes in affected offspring.
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International Journal of Prenatal and Life Sciences - New Insights in Foetal Alcohol Syndrome
This review shall highlight various effects of alcohol on craniofacial development, epigenetics, glia, the gamma-aminobutyric system, neovascularisation and cell death in the developing foetus.
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Journal of Neurodevelopmental Disorders - Long-term follow-up of a randomized controlled trial of choline for neurodevelopment in fetal alcohol spectrum disorder: corpus callosum white matter microstructure and neurocognitive outcomes
These preliminary findings, although exploratory at this stage, highlight potential long-term benefits of choline as a neurodevelopmental intervention for FASD and suggest that choline may affect white matter development, representing a potential target of choline in this population.
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IN OTHER LANGUAGES
FOKUS FAS (Sweden) - Den första svenska FAS-konferensen
Välkommen till två lärorika dagar om alkoholrelaterade fosterskador, FAS/FASD, och de livslånga konsekvenserna för dem som drabbas. Uppskattningsvis föds årligen 1000 barn med FASD i Sverige.
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Jasło Nasze Miasto (Poland) - Fakty o FASD – wystawa profilaktyczna w jasielskiej bibliotece
Miasto Jasło i Miejska Biblioteka Publiczna w Jaśle zapraszają do obejrzenia wystawy „Fakty o FASD. Spektrum płodowych zaburzeń alkoholowych – dowiedz się, zapobiegaj, działaj!”. Ekspozycja będzie czynna do 15 grudnia.
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Oberpfalz TV (Germany) - Dramatische Folgen bei Alkoholkonsum in der Schwangerschaft
Alkohol in der Schwangerschaft kann bei Menschen zu Behinderungen führen. Betroffen sind sehr viele Menschen. Daher werden Gesetzesänderungen gefordert.
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Microbiologia Italia (Italy) - Effetti dell’alcol in gravidanza: la sindrome feto-alcolica
La sindrome feto-alcolica (FAS) è una malattia fetale congenita (cioè presente sin dalla nascita) provocata dal consumo di alcol in gravidanza.
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Index.hr (Croatia) - Majka koja je pila dok je bila trudna otkrila kako se to odrazilo na njezinog sina
NATALIE Battaglia prestala je piti alkohol u travnju 2020. U prvoj trudnoći izbjegavala je alkohol pod svaku cijenu, dok je u drugoj bila puno opuštenija.
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Bayerischer Rundfunk (Germany) - Die Gefahr von Alkohol in der Schwangerschaft: Kinder mit FASD
Katrin Lepke und ihr Ehemann haben gleich drei Kinder mit FASD adoptiert. FASD steht für „Fetal Alcohol Spectrum Disorder“ zu Deutsch Fetale Alkohol Spektrum Störung.
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