National Indigenous Times (Australia) - The
Roebourne foetal alcohol disorder sufferer turning disability into opportunity
for local mob
For 43-year-old Ieramagadu (Roebourne) woman Rachel Samson, her diagnosis
of foetal alcohol spectrum disorder opened the door to work and putting smiles
on the faces of mob in the Pilbara.
Read more
Vitalité Health Network (Canada) - New
Brunswick Fetal Alcohol Spectrum Disorder (FASD) Centre of Excellence Dream
Catcher service delivery model: An Innovative Approach presented to the
Legislative Assembly
The New Brunswick Fetal Alcohol Spectrum Disorder (FASD) Centre of
Excellence’s Dream Catcher model was presented to the Legislative Assembly on
October 18, 2022 at the request of the members of the Select Committee on
Accessibility in New Brunswick.
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Girls, Women, Alcohol, and Pregnancy - Every
Moment Matters – An evidence-based FASD prevention campaign for Australia
Every Moment Matters is a nation-wide health promotion campaign launched in
Australia which shares the latest evidence-based information about alcohol
during pregnancy and breastfeeding.
Read more
CanFASD (Canada) - CanFASD Celebrates
Open Access Week 2022
Open access to information has the power to transform the way knowledge is
shared. Open access is the free, immediate, online access to scholarly
research.
Read more
SHAAP (Scotland) - Fetal Alcohol
Spectrum Disorder : It’s not all about the face!
In this blog post, Dr Christopher Steer looks at the history of Fetal
Alcohol Spectrum Disorder, how the diagnosis has progressed beyond the physical
characteristics of the individual and highlights the importance of raising
awareness, providing support and offering training in the future.
Read more
VIDEOS and MATERIALS
NOFASD Australia - Through Different Eyes
“Through Different Eyes” has been developed with the knowledge that
evidence shows that individuals with a neurodevelopmental disorder such as FASD
who receive appropriate support at an early age will have better long-term
outcomes than those whose disability goes unrecognised and unsupported.
Read more
CanFASD - FASD and Sexuality: The
Importance of Sexual Health
This webinar recording provides an overview of sexuality and fetal alcohol
spectrum disorder while giving a summary of relevant literature and identifying
gaps for future research.
Read more
FASDHub Scotland - Kenny LaJoy
"Living well with FASD" Wednesday Webinar
Read more
Rural FASD Support Network - FASD
Awareness Day at Parliament Hill
On Oct 20, 22 individuals impacted by FASD and their caregivers from Rural
FASD and sponsored by MP Scott Reid met with Parliamentarians, Senators,
representatives from the Nishnawbe Aski Nation, researchers and service
providers.
Read more
The Matilda Centre - Learning with FASD:
Building Capacity: The Case of Supporting Students Impacted by FASD
This webinar is for primary school teaching and support staff who are
interested how school communities can build capacity to address diverse needs
of all students.
Read more
FASD Hope - 163 - Be Still - Our Final
Episode
Episode 163 is our FINAL episode of FASD Hope. For over two years, we have
been blessed to be a voice for giving IMPORTANT guests a platform to share
their journeys, experience, research, clinical work, legislative activity,
philanthropy and inspiration for the FASD Community!
Read more
Caregiverdoc – UNSEEN
Many parent caregivers for children or adults who are disabled or medically
complex are exhausted and isolated. Their mental and physical struggle is a
public health crisis that costs us all. The “Unseen” documentary gives an
unfiltered, honest glimpse into their lives to enable a change for millions of
caregivers and their families.
Read more
FASD Hope - 162 - The Families and The
Kids That We’ve Left Behind - A Conversation with Best Selling Author, Andrew
Bridge
Leaving foster care at eighteen, Andrew Bridge attended Wesleyan
University, then graduated from Harvard Law School and he was awarded a
Fulbright Fellowship.
Read more
Fasd Success Show - #130 Michelle Trager
Powerful Parenting from Afar
When Michelle and her husband adopted their son, they were told he may have
issues in school because of his international adoption background – but no one
mentioned FASD. Despite hitting all his early milestones, his challenges
escalated as he got older.
Read more
FASD Family Life - FASD World Tour: New
Zealand Research into Caregiver Stress and Resilience
Welcome to Season 4, episode 8 of the FASD Family Life Podcast. the show
for families by families raising children and youth with Fetal Alcohol Spectrum
Disorder.
Read more
FoothillsFAS - Ten Brain Domains
(Functions) Affected by FASD
Alcohol affects the growth and formation of the brain, and this is often seen
in an individual's behavior and development.
The following brain functions or domains are evaluated by a diagnostic
team during an FASD assessment.
Read more
National FASD - Raja & Neil's FASD
Book Club - Session 5, How FASD Presents Across the Lifespan
In session 5 of Raja & Neil’s FASD Book Club, Prof. Hanlon-Dearman
discussed her chapter, ‘How FASD Presents Across the Lifespan’.
Read more
Indigo - BEHIND THE LABEL: GLORIA &
WILLA
Gloria, an impulsive, naïve and likeable teen with Fetal Alcohol Spectrum
Disorder (FASD), tries to keep her family together while their mother’s
addictions threaten a move to foster care.
Read more
CanFASD - Guidelines for talking and
writing about FASD
CanFASD strongly believes that all language and messaging should promote
respect, dignity, and human worth for people with FASD, people who are
pregnant, and their support systems.
Read more
National FASD - Social care workers
Social workers are the primary profession to work with children and young
people who are affected by their family’s alcohol and substance use and that
they, therefore, require mandatory training in FASD.
Read more
RESEARCH
Archives of Disease in Childhood - Assessing maternal alcohol consumption in
pregnancy: does phosphatidylethanol measured from day 5 newborn blood spot
cards have any value? An observational, population-based study
Prenatal alcohol exposure (PAE) places children at risk of fetal alcohol
spectrum disorder (FASD) but ascertainment of PAE is problematic. Early
intervention for children at risk of FASD may help mitigate long-term
difficulties.
Read more
HELDA - Effects of in vitro alcohol
exposure on endoderm, mesoderm, and ectoderm during gastrulation
The results show that the number of genes with alcohol-induced differential
expression is considerably higher in hESCs than in the germ layers indicating
that undifferentiated hESCs are more susceptible to alcohol than
differentiating cells, which is in agreement with findings from previous
studies.
Read more
University of East Anglia - Foetal
Alcohol Spectrum Disorders (FASD): the parent perspective on education and
implications for educational psychologists (EPs)
This study gathered the voice of adoptive parents and foster carers who
parent a child with a confirmed diagnosis of foetal alcohol spectrum disorders
(FASD).
Read mroe
Research in Developmental Disabilities - Adaptive
behavior, sleep, and physical activity in adolescents with fetal alcohol
spectrum disorder
Adolescents with FASD experience considerable challenges with regards to sleep
and adaptive behavior. Physical activity, particularly organized sport, may
provide opportunities for the improvement of adaptive behavior in this
population.
Read more
Nutrients - Mediating and Moderating
Effects of Iron Homeostasis Alterations on Fetal Alcohol-Related Growth and
Neurobehavioral Deficits
Given that early iron deficiency and PAE both lead to growth restriction
and deficits in recognition memory and processing speed, we hypothesized that
PAE-related iron homeostasis alterations may mediate and/or moderate effects of
PAE on growth and neurobehavior.
Read more
JCPP Advances - Prenatal alcohol
exposure and child sleep problems: A family-based quasi-experimental study
There is a moderate association between maternal hazardous drinking during
pregnancy and offspring sleep problems up to age three. This association is
explained by risk factors differing between families and does not reflect a
cause-effect relationship.
Read more
Heliyon - Dose-related shifts in
proteome and function of extracellular vesicles secreted by fetal neural stem
cells following chronic alcohol exposure
Accumulating evidence indicates that extracellular vesicles (EVs) mediate
endocrine functions and also pathogenic effects of neurodevelopmental
perturbagens like ethanol.
Read more
Alcoholism: Clinical and Experimental
Research - Alcohol-related dysmorphic features as predictors of
neurodevelopmental delay in infants and preschool-aged children: Results from a
birth cohort in Ukraine
Predictive analysis based on dysmorphic features and measures of growth
performed modestly in this sample. As these features are reliably measurable at
an earlier age than neurodevelopment, their inclusion in predictive models
should be further explored and validated in different settings and populations.
Read more
Midwifery - Differential effectiveness
of a practice change intervention to improve antenatal care addressing alcohol
consumption during pregnancy: Exploratory subgroup analyses within a randomised
stepped-wedge controlled trial
These exploratory results suggest that the intervention may have had
similar effects between different subgroups of women and types and location of
services, with the exception of women who were non-Aboriginal and women who had
not consumed alcohol, for whom the intervention was potentially more effective.
Read more
Circulation - Transcriptomic Expression
Changes in Embryonic Mouse Hearts Following Single-Dose Maternal Binge Alcohol
Consumption: Implications for Congenital Heart Defects
These results suggest that Wnt7a and related signaling pathway genes are
disrupted by alcohol action in the embryonic heart, thereby opening new avenues
for investigation into molecular underpinnings of alcohol-induced congenital
heart defects.
Read more
Campbell Collaboration - Interventions
for improving executive functions in children with foetal alcohol spectrum
disorder (FASD)
This review found limited evidence for the effectiveness of interventions
designed to improve executive functioning (EF) in children with prenatal
alcohol exposure (PAE).
Read more
IN OTHER LANGUAGES
Kehitysvammaliitto (Finland) - VOIKO FASD IHMINEN JÄÄDÄ YKSIN?
Hejsan hopsan falleralleraa! Nyt oon ollu taas hetken Suomessa, mutta ennen
kun mä häippäsen uusiks maailmalle, ni kerkiän täsä välissä avautumaan vähän
meijän FASDien herkästä alttiudesta syrjäytymiseen.
Read more
Insuedthueringen.de (Germany) - „Woher
haben Sie das alkoholgeschädigte Kind?“
Michael und Kerstin Fuhrmann aus Solz haben drei Pflegekinder, die mit
einer Alkohol-Schädigung geboren wurden.
Read more
Niezależna (Poland) - Pijesz alkohol w
czasie ciąży? To poważny błąd. Sprawdź, czym to grozi
O ile dorosła osoba ma w pełni wykształcone narządy, w tym wątrobę, która
przynajmniej do czasu radzi sobie z tą trucizną, jaką jest alkohol etylowy, to
dziecko w łonie matki jest wobec alkoholu bezbronne. Jaki jest najczęstszy
skutek drinków alkoholowych wypijanych w ciąży? Niewidzialne na początku
zaburzenia neurorozwojowe.
Read more
WAZ (Germany) - Alkohol in der
Schwangerschaft: Tim bezahlt dafür lebenslang
Lange war eine Gelsenkirchener Adoptivmutter ratlos, warum ihr Sohn
eingeschränkt ist. Dann die Antwort: Es war der Alkoholkonsum seiner Mutter.
Read more
Chaos im Kopf Podcast (Germany) - Geschwister
von Pflege- oder Adoptivkindern mit FASD
Mein Gast in dieser Episode ist Uli Altmann. Sie ist absoluter
Seminar-Profi. Sie gibt auch Seminare zu FASD.
Read more
37 Grad (Germany) - Betrunken im
Mutterleib: So lebt Beni mit dem Fetalen Alkoholsyndrom I 37 Grad
Als Grundschüler gilt Beni als verhaltensauffällig, unerzogen und
unkontrollierbar. Bis er mit der Fetalen Alkohol-Spektrum-Störung
diagnostiziert wird.
Read more
W ciąży bez alkoholu (Poland) - Ogólnopolska
kampania edukacyjno – profilaktyczna
Głównym celem kampanii jest zmniejszenie liczby kobiet pijących alkohol w
czasie ciąży, promocja całkowitej abstynencji w tym okresie oraz zwiększenie
wiedzy o negatywnym wpływie alkoholu na rozwijające się w łonie matki dziecko.
Read more
AIDEFAD (Italy) - Una storia (clinica)
di FASD
Si è venuto a creare un vero e proprio cortocircuito nella relazione
medico-paziente che si auto-alimentava in una continua reiterazione di
dinamiche.
Read more
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