EUFASD (Ukraine) - Supporting Ukrainian families and
carers of children with FASD in Europe
The EUFASD Alliance and the member organizations are deeply concerned about
the welfare of refugees from Ukraine, in particular children who may be
affected by FASD.
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EUFASD - EUFASD 2022--Call for Abstracts is Open!
The sixth European Conference on FASD will take place on September 12 to
14, 2022, with a pre-conference training day on 11 September. We hope to hold
the conference in-person in Arendal, Norway, but if that is not possible, the
conference will take place online.
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NICE (UK) - NICE
publishes comprehensive quality standard designed to improve the diagnosis and
assessment of fetal alcohol spectrum disorder
NICE’s latest quality standard published today (16 March 2022) sets out how
health and care services can improve the diagnosis, assessment, and prevention
of fetal alcohol spectrum disorder (FASD).
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NZ Herald (New
Zealand) - Life with mokopuna suffering Fetal Alcohol Spectrum Disorder: 'I
feel like nobody cares and nobody listens'
"It was like our trauma was a tennis ball, being batted back and
forward between Oranga Tamariki and other organisations."
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RNZ (New Zealand)
- Waitangi Tribunal hears of impact of FASD on whānau
The Waitangi Tribunal has been told about the catastrophic impact of fetal
alcohol spectrum disorder, or FASD, on whānau Māori and the neglect of the
Crown in addressing access to support.
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Stuff (New
Zealand) - Government plan to tackle Fetal Alcohol Spectrum Disorder 'has
failed'
A major government initiative to tackle Fetal Alcohol Spectrum Disorder
(FASD) has failed to deliver “any meaningful difference” to people with the
disorder, say experts who work in the field, and the Health Minister has
admitted “there is still a long way to go”.
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India Education
Diary - Trinity College Dublin: Foetal Alcohol Spectrum Syndrome: The Most
Common Preventable Cause Of Intellectual Disability
Dr Katy Tobin, School of Medicine and the Global Brain Health Institute
(GBHI) at Trinity leads the FASDcare project, focussing on Foetal Alcohol
Spectrum Disorder (FASD) – a range of conditions that occur following exposure
to alcohol before birth. It is estimated that 1 in 20 people live with the
condition in Ireland. Prenatal alcohol exposure is the most common preventable
cause of intellectual disability.
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Mamamia (Australia)
- 'At 35, I had my miracle baby. But I couldn't stop drinking.'
Even as a young child, Ange never really felt like she fit in. By the time
she reached her 20s, she found alcohol to be "an excellent social
lubricant".
Read more
2 Minute Medicine
- Maternal substance use may increase risk of childhood Attention Deficit
Hyperactivity Disorder
Substance use during pregnancy is known to exert a number of adverse
effects on fetal development, with conditions such as fetal alcohol syndrome
well-established in the literature.
Read more
Medium - Is It
Fetal Alcohol Spectrum Disorder (FASD), Or Is It Autism?
FASD does not have to happen if all women, with the support of the father,
are avoiding alcohol when pregnant or planning to become pregnant. There is no
safe time during pregnancy to drink and there is no safe amount to drink during
pregnancy. This has been known by experts in this country since around 1973.
Read more
National FASD - The
Time is Now: Ramping Up FASD Support Services
On Monday 21st of March, at the National Liberal Club in Westminster, we
unveiled The Time is Now: The National Perspective on Ramping up FASD
Prevention, Diagnosis and Support Services.
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Society for the Study
of Addiction - Better quality care in England and Wales for people with FASD
The health advisory body for England and Wales has issued a long-awaited
piece of guidance on how to improve the prevention and management of fetal
alcohol spectrum disorders (FASD) – a group of lifelong behavioural, cognitive
and physical disabilities caused by exposure to alcohol before birth.
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VIDEOS and
MATERIALS
Nudge Education - FASD Services & Complex Cases
We provide a range of services to support young people with FASD as well as
other complex conditions such who have become chronically disengaged from
education.
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Stuff - Disordered:
FASD in New Zealand, the neurodisability caused by alcohol
Documentary: The number of people in New Zealand with Fetal Alcohol
Spectrum Disorder (FASD) may be grossly underestimated.
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Pauktuutit Inuit
Women of Canada - BEAUTY IN BRAIN DIFFERENCE: A CAMPAIGN TO END FASD STIGMA
Our ‘Beauty in Brain Difference’ campaign is grounded in recognizing the
strengths and challenges unique to people with Fetal Alcohol Spectrum Disorder
(FASD).
Read more
National FASD - The
National Perspective on Ramping up FASD Prevention, Diagnosis and Support
Services 21-03-22
Nine remote meetings convened by the National FASD Experts Committee took
place between December 2021 and March 2022.
Read more
Darren J. Prior /
Mac an Phríora - FASD (Fetal Alcohol Spectrum Disorder) and FASD Ireland in
2022 - Near FM
I spoke to Tristan Casson-Rennie the CEO of FASD Ireland about the
organisation in 2022. FASD Ireland was set up in September 2021 and in early
2022 opened their HQ in Ennis in Clare.
Read more
CanFASD - Understanding
FASD Diagnosis Feb 2022
Researchers have shown that early diagnosis can improve outcomes for people
with Fetal Alcohol Spectrum Disorder (FASD). Early diagnosis can lead to
earlier support and interventions, which can reduce the risk of health
challenges and common secondary outcomes in the future.
Read more
The Matilda
Centre - What is FASD?
A short video that explains what Fetal Alcohol Spectrum Disorder is and the
impacts it can have on an individual.
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Last Door - Living
and Dealing with FASD
This week on Talk Recovery Radio we have 2 amazing guests Robbie Seale and
Lauren Richardson, Robbie the the host of “FASD Family Life Podcast” who also
has experiencing with raising children who were prenatally exposed to alcohol.
Read more
FASDHub Scotland
- FASD Professionals, FASD Month 2021
We asked FASD professionals from across the country why we should 'think
differently' about FASD. Here's what they had to say.
Read more
National FASD - Break
it Down!
The FASD Break it Down board is a visual tool to help people with FASD work
through good and not-so-good situations, to help them identify different
strategies and strengths that can help them.
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FASD Awareness
#BeAware - Tracy Allen - FASD Awareness Founder and Advocate - Webinar #6
Following a career in retail, Tracy Allen decided to help children through
fostering whilst bringing up her family and running a property development
business.
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ConnectFASD - Fact
sheets
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Rural FASD
Support Network - Self-Advocacy Efficacy Scale
Katherine Thompson, MSc. shares why and how she developed evidence-based
self-advocacy efficacy scale. These
simple six questions help students measure how successful they are at
advocating for themselves.
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Learning with
FASD - Evidence-based resources to help educators understand and support
children with FASD in Australian primary schools.
Learning with FASD is an Australian Government Department of Health funded
initiative to provide evidence-based resources to help Australian primary
teaching and support staff understand and support children with FASD.
Read more
Fasd Success Show
- #100 A Meeting with My Mentor: 10 FASD Tips from Donna Debolt
This episode is a celebration. It marks the 100th episode of The FASD
Success Show but more importantly, and on a personal note, it brings me to the
person who was the catalyst for my own professional FASD journey – Donna
Debolt.
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Creating a family
- Parenting Kids with Prenatal Exposure (Part 2): Transitioning Into
Adolescence and Adulthood
The impact of prenatal exposures to alcohol and drugs is not something that
kids outgrow and the transition into adolescence and adulthood can be
particularly tricky. We talk about this transition with Kathy Hotelling, a
licensed clinical psychologist who specializes in Fetal Alcohol Spectrum
Disorders and is the co-founder of NCFASDInformed.org. She is also the mother
of a 27-year-old with FASD.
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RESEARCH
Archives of Disease in Childhood - Impact of fetal alcohol spectrum disorder
on families
FASD impacts children’s health, and function of the family and unaffected
siblings. These novel findings highlight the need for family-oriented service
development.
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Scientific
Reports - A data driven approach to identify trajectories of prenatal
alcohol consumption in an Australian population-based cohort of pregnant women
Accurate information on dose, frequency and timing of maternal alcohol
consumption is critically important when investigating fetal risks from
prenatal alcohol exposure.
Read more
The University of
Western Ontario - Motives for Caregivers of Children with FASD Who Connect
with a Caregiver to Caregiver Mentor
This study was intended to determine the motives of caregivers of children
and youth with Fetal Alcohol Spectrum Disorder (FASD) who accessed caregiver to
caregiver mentors.
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Journal of
Neurodevelopmental Disorders - mRNA expression analysis of the hippocampus
in a vervet monkey model of fetal alcohol spectrum disorder
Prenatal alcohol exposure leads to global downregulation in mRNA
expression. The cellular interference model of EFNB1 provides a potential clue
regarding how genetically susceptible individuals may develop the phenotypic
triad generally associated with classic fetal alcohol syndrome.
Read more
Journal of Mental
Health Research in Intellectual Disabilities - A Comparison of the
Demographic and Clinical Characteristics of Caregivers of Autistic Children and
Caregivers of Children with Fetal Alcohol Spectrum Disorder
Given the similarities in these two caregiver groups, and the shortage of
research on families of people with FASD relative to families of autistic people,
interventions for family caregivers in the autism community may also be
applicable for FASD families, for whom fewer resources are available.
Read more
NeuroToxicology -
BLOOD BRAIN BARRIER AS AN INTERFACE FOR ALCOHOL INDUCED NEUROTOXICITY DURING
DEVELOPMENT
In this review, we address the effects of alcohol exposure on the formation
of the BBB, specifically describing the cellular and molecular events induced
by ethanol in the physiology of endothelial cells and glial cells, as well as
their interaction during CNS development.
Read more
Cavendish
Repository - ASSESSMENT OF OCCURENCE OF ALCOHOL CONSUMPTION AMONG WOMEN OF
CHILDBEARING AGE AT LIVINGSTONE CENTRAL HOSPITAL, ZAMBIA
Age, education level, employment status and presence of chronic physical or
mental illness were associated with alcohol consumption among women of
childbearing age.
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Alcoholism - Sexually
dimorphic organization of open field behavior following moderate prenatal
alcohol exposure
These findings support the conclusion that adult male rats have an
increased susceptibility to the effects of PAE in the organization of open
field behavior.
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Systematic
Reviews - Prevalence of neurodevelopmental disorders and their impact on the
health and social well-being among looked after children (LAC): a systematic
review protocol
Attaining an estimated prevalence of these NDDs and identifying any impacts
on health and social well-being might inform key stakeholders in health,
educational and social sectors with important information that might aid in the
early identification and intervention to safeguard and meet the unique needs of
these children.
Read more
Obstetrics,
Gynecology and Reproduction - A current view on the alcohol-related
teratogenic effects during pregnancy. Potential preventive measures
Preventing FAS is an urgent and unexplored issue in Russia. Medical doctors
able to conduct pregravid preparation of a married couple while they plan to
conceive a healthy child are highly demanded.
Read more
International
Journal of Environmental Research and Public Health - Adult Daughters of
Alcoholic Parents—A Qualitative Study of These Women’s Pregnancy Experiences
and the Potential Implications for Antenatal Care Provision
The adult children of alcoholic parents are at increased risk of having
health problems compared to the adult children of nonalcoholic parents. Little
is known about how growing up with alcoholic parents affects women’s
experiences when pregnant.
Read more
Nutrients - Untargeted
Metabolome Analysis Reveals Reductions in Maternal Hepatic Glucose and Amino
Acid Content That Correlate with Fetal Organ Weights in a Mouse Model of Fetal
Alcohol Spectrum Disorders
Prenatal alcohol exposure (PAE) causes fetal growth restrictions. A major
driver of fetal growth deficits is maternal metabolic disruption; this is
under-investigated following PAE. Untargeted metabolomics on the dam and fetus
exposed to alcohol (ALC) revealed that the hepatic metabolome of ALC and
control (CON) dams were distinct, whereas that of ALC and CON fetuses were
similar.
Read more
BJSE - ‘I'm
always up against a brick wall with them’: parents' experiences of accessing
support for their child with a newly recognised developmental disorder
There needs to be greater awareness of additional needs in children without
externalising behaviours, the presence of gender-specific differences in the
presentation of DDs, and FASD as a commonly occurring DD.
Read more
Journal of
Medical Ethics - Can routine screening for alcohol consumption in pregnancy
be ethically and legally justified?
In the UK, it has been proposed that alongside the current advice to
abstain from alcohol completely in pregnancy, there should be increased
screening of pregnant women for alcohol consumption in order to prevent
instances of fetal alcohol spectrum disorder.
Read more
Front. Cell Dev.
Biol - Transgenerational Effects of Prenatal Ethanol Exposure in
Prepubescent Mice
Our results suggest that robust, clinically-relevant behavioral
abnormalities are passed transgenerationally to the offspring of mice directly
exposed to prenatal ethanol.
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IN OTHER
LANGUAGES
Index.hr (Croatia) - Stručnjaci predložili bilježenje svake čaše alkohola u
trudnoći u djetetov karton
UOBIČAJENA je praksa da se buduće mame odvraća od pijenja alkohola premda
se njihove navike nikad nisu formalno i detaljno dokumentirale. Novi savjet
Nacionalnog instituta za izvrsnost zdravlja i njege (NICE) ima za cilj
identificirati bebe s poremećajem fetalnog alkoholnog spektra (FASD).
Read more
Zona de prenza
(Spain) - Las mujeres embarazadas tendrán UNA SOLA copa de vino registrada
en las notas médicas en un paso controvertido
Las mujeres EMBARAZADAS tendrán cada copa de vino que beben registrada por
los médicos. Previamente, a las futuras mamás se les ha disuadido de beber,
pero sus hábitos no se han escrito formalmente.
Read more
Studio3 (Germany)
- Clara und Luise Andrees, Zwillingsschwestern mit FASD
Geboren werden die eineiigen Zwillinge Clara und Luise (27) mit dem
Krankheitsbild Fetale Alkoholspektrumstörungen (FASD). Ihre Mutter hatte
während der Schwangerschaft Alkohol getrunken und die beiden untergewichtigen
Frühchen nach der Geburt zurückgelassen.
Read more
