Sunday, April 18, 2021

FASD News - 14/2021

The Sidney Morning Herald (Australia) - ‘No intention’: Reynolds dumps draft proposals to cut diagnosis-based NDIS funding
New National Disability Insurance Scheme Minister Linda Reynolds says she has “no intention of excluding Australians from the scheme” on the basis of their diagnosis, appearing to dump radical reforms drafted under the previous minister Stuart Robert.
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Aldergrove Star (Canada) - Fetal alcohol spectrum disorder gets ‘meagre’ support compared to other conditions: B.C. report
Children and teens with fetal alcohol spectrum disorder need to be included in the Ministry of Children and Family Development program that helps support youth with special needs, according to a report released Thursday (April 15) by by the Representative for Children and Youth.
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BabyGaga - Fetus Exposed To Alcohol At Higher Risk For Congenital Disorders
A new study finds that even small amounts of alcohol during pregnancy raises the risk of babies having congenital disorders.
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Representative for Children and Youth (Canada) - Excluded: Increasing Understanding, Support and Inclusion for Children with FASD and their Families
The provincial government should take both immediate and long-term action to improve supports and services to children with fetal alcohol spectrum disorder (FASD) and their families, recommends a report released today by B.C.’s Representative for Children and Youth.
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Agape of North Carolina (USA) - WHAT HAVE I LEARNED AS THE MOM OF A SON WITH AN FASD?
We MUST meet our children where they’re at so they can explore the gifts in them. Learn their interests, support their interests, and nurture their growth.
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CanFASD - Article Summary: Self Care for Caregivers
This is a summary of the recent article Self-care in caregivers of children with FASD: How do caregivers care for themselves, and what are the benefits and obstacles for doing so? that is featured in CanFASD’s Top FASD Articles of 2020. For a complete understanding of the subject matter, read the full paper (not available open access).
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VIDEOS and MATERIALS
Me and My FASD - Calming Cards
A set of cards with suggestions from more than 70 young people with FASD about what  helps them to stay calm. Use these cards to plan strategies that will help you too.
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Kinship Care Advice Service for Scotland - An introduction to FASD
FASD Hub Scotland's presentation on Fetal Alcohol Spectrum Disorder (FASD) - a condition commonly affecting kinship families where there is a history of addiction.
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COCABerksVideo - Alcohol Awareness Month PSA – FASD
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Rural FASD Support Network - Ontario Funding options for people with FASD
Marian and Shannon, our local FASD Workers from Kids Inclusive, share the different funding options caregivers should explore with their FASD worker.
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MRPA Maryland Resource Parent Association - MRPA First Tuesday with Barb Clark of NACAC, Topic: Fetal Alcohol Syndrome Disorder
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UMNPediatrics - "Fetal Alcohol Spectrum Disorders in Children and Adolescents...", by Christopher Boys, PhD, LP
Fetal Alcohol Spectrum Disorders in Children and Adolescents:  Where are We at and Where are We Going?
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Pennsylvania Care Partnership - FASD RESOURCES
Resources for families, community, educators, care providers, and juvenile justice around Fetal Alcohol Spectrum Disorder.
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Buzzsprout - FASD Family Life
FASD Family Life is a podcast for families by families raising children and youth with Fetal Alcohol Spectrum Disorder. The podcast host is Robbie Seale, FASD educator, advocate, and mother of four children with FASD.
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Fasd Success Show - Bonus Episode - All About Insight
I’ve never done this before, a bonus episode of the show. I didn’t plan on creating one, it just turned into one. Here, let me give you some insight. 
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Fasd Success Show - The FASD Justice League: Doctors McLachlan and Flannigan
In the 1996 landmark study by Dr. Anne Streissguth, it was revealed that up to 60% of individuals with FASD will have contact with the justice system.
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CanFASD - Common Messages

The purpose of this document is to assist those writing and talking about FASD – and the issues related to the disability – to use the same language, statistics, and framing of topics. The intended outcome, over time, will be an improved understanding by the reader/listener with consistent and respectful FASD messaging.
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NHS Education for Scotland - Fetal Alcohol Spectrum Disorder (FASD) e-learning resource
Fetal Alcohol Spectrum Disorder (FASD) is both the most common and the most overlooked neurodevelopmental condition in most OECD countries.
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RESEARCH
Reflections: Narratives of Professional Helping - Fetal Alcohol Spectrum Disorders: One Minute to Midnight
This reflection focuses on my experiences as a social worker working with individuals with fetal alcohol spectrum disorders (FASDs) and their families for almost 40 years.
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ResearchGate - Fetal Alcohol Spectrum Disorder and Cognitive Function in Children: A Meta-Analysis and Computational Model
This meta-analysis examines 46 studies comparing 2,307 participants across a range of functional statuses.
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Developmental Cognitive Neuroscience - Functional connectivity of the attention networks is altered and relates to neuropsychological outcomes in children with prenatal alcohol exposure
Increased intra-network together with reduced internetwork FC suggests inefficient network specialization and impaired long-range FC among attention network regions after PAE.
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Illinois Wesleyan University - Effects of Alcohol on the Skeletal Development of the Chicken Embryo
Fetal alcohol syndrome (FAS), which is specifically characterized by growth and mental retardation, craniofacial malformations, and heart and neural defects, is caused by exposure to alcohol during embryonic or fetal development.
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REDAKCIJOS SKILTIS - Alcohol abuse in pregnancy: maternal characteristics, physical and health indices of their newborns (according to Lithuanian medical data of births)
Alcohol abuse complicated the course and outcomes of pregnancy: women who consumed it have had increased morbidity, miscarriages, or stillbirths, and their newborns were 4 times more often premature

and had lower average indices of physical status than the general population.
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The University of New Mexico - Moderate Prenatal Alcohol Exposure Increases Toll-Like Receptors Activity Detectable in Umbilical Cord Blood at Birth
These results support that even moderate PAE may alter the developing immune system, with alterations in cytokine expression that have the potential to impact lifelong immunological reactions.
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IN OTHER LANGUAGES
Radio ESKA (Poland) - Dzieci z FAS/FASD z szansą na terapię. MCPS kontynuuje pilotażwy programm
Mazowieckie Centrum Polityki Społecznej zdecydowało się kontynuować pilotażowy projekt specjalnego poradnictwa dla rodzin z dziećmi z FAS/FASD.
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ARA (Spain) - Formació als cossos policials de Catalunya sobre la SAF
Afasaf-Fasd, l’associació de famílies afectades per SAF/TEAF (síndrome alcohòlica fetal o trastorn de l’espectre alcohòlic fetal), ha iniciat un programa de col·laboració amb els Mossos d’Esquadra –obert a la resta de cossos policials de Catalunya– per a la difusió i formació dels agents sobre els trets de comportament dels afectats per aquests trastorns.
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CAIRN.info (France) - Le syndrome d'alcoolisation fœtale et les troubles causés par l'alcoolisation fœtale
Le SAF est dû à la seule consommation d'alcool par la mère pendant la grossesse. Il touche tous les groupes socio-économiques, toutes les ethnies et donc tous les pays à travers le globe.
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DNP-Der Neurologe & Psychiater (Germany) - Herausforderung FASD-Diagnostik im Erwachsenenalter
Obwohl fetale Alkoholspektrumstörungen die gesamte Lebensspanne über bestehen, sind störungsspezifische Angebote zur Diagnostik und Therapie bei Erwachsenen rar.
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Canal 21 (Spain) - Els Mossos es formen per detectar la síndrome alcohòlica fetal
La síndrome alcohòlica fetal (SAF) és una afectació que provoca anomalies físiques, mentals, conductuals i cognitives a persones que han estat exposades a l’alcohol durant la gestació de l’embaràs.
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