Sunday, April 4, 2021

FASD News - 13/2021

Mirage News (Australia) - FARE and NOFASD raise concern about reports on exclusion of FASD from NDIS eligibility
The Foundation for Alcohol Research and Education (FARE) and the National Organisation for Fetal Alcohol Spectrum Disorders (NOFASD) have called on the Australian Government to immediately confirm that people with FASD will not have their access to the NDIS restricted further.
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CBC (Canada) - Advocacy group says people with developmental disabilities should be prioritized for COVID-19 vaccine
Alberta's next phase of the coronavirus vaccine rollout is underway and more than 945,000 Albertans with underlying health conditions are eligible to book their vaccination appointment.
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The Queens Nursing Institute Scotland - Hiding in Plain Sight
I was recently invited to work with QNIS to help plan a five-year programme that will address Scotland’s longstanding blind spots around both preconception health and FASD.
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NOFASD Australia - THE SENATE INQUIRY SERIES: SENATE INQUIRY FINDINGS
On 9 September 2019, International FASD Awareness Day, an inquiry was referred to the Senate Community Affairs References Committee into effective approaches to prevention and diagnosis of Fetal Alcohol Spectrum Disorder (FASD) and strategies for optimising life outcomes for people with FASD.
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National Organisation for FASD (UK) - Announcing the Me and My FASD Break it Down Board
The National Organisation for FASD is pleased to launch an all-new resource to help young people with FASD break down situations, explore strategies that help and focus on their strengths.
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MediaPlanet - The Importance of Early Diagnosis and Intervention for Kids with FASD
Based on recent epidemiological studies, it’s estimated that there are over one million people with Fetal Alcohol Spectrum Disorder (FASD) in Canada, making this one of the leading causes of developmental disability in the country.
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The International Journal of Birth and Parent Education - Australian report on FASD
Fetal Alcohol Spectrum Disorder (FASD) is a preventable permanent disability. A Senate committee in Australia has found that FASD is still not well understood or recognised and has highlighted a critical need for prevalence data and a robust study of its economic and social impact.
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PRObono Australia - ‘Just a draft’ still means it was – or is – in the mix
The leaking of draft changes to the NDIS strikes a blow not just to those potentially affected, but at the very heart of what could, and should, be a life and society-changing scheme, writes Adam Schickerling from brain injury peak body, Synapse.
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VIDEOS and MATERIALS
OhioMHAS - Screening, Referral, and Diagnosis of FASD
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Thrive Children's Centre - FASD: What is Fetal Alcohol Spectrum Disorder?
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Thrive Children's Centre - FASD: Impulsivity
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Thrive Children's Centre - FASD: Sleep
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Thrive Children's Centre - FASD: Lying
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Ring Productions - FASD & Educational Accommodations
Individuals that are diagnosed with Fetal Alcohol Spectrum Disorder face many challenges at home, in the community, and in the classroom. This video is a first-hand account of how appropriate supports and accommodations can improve the daily life of an individual living with FASD in an educational setting.
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ADHD Love - ADHD and FASD
My guest is Aubrey. She is the CEO of CSH Collab. Her company is a “collaborate of advocates and educators for neurodiversity” She shares more details about why she decided to create a company and who all she supports and what she does to support them.
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Me and My FASD - Fun with straws
Sometimes using straws helps people with FASD.  If you have a straw at home you can try some activities.
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Julie Kurtz - Dr. Kathryn Page on the Intersection of Trauma and FASD
Dr. Kathryn Page has worked in a variety of mental health, child welfare, juvenile justice, and educational settings over the years—all leading to her current focus on Fetal Alcohol Spectrum Disorders.
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Courthouse Libraries BC - Understanding FASD: Re-Balancing the Wheel Healing from the Heart
In this 1.5-hr presentation, Lori Cox and Noel Milliea from the Eastern Door Centre and Nogemag Healing Lodge speak about their experience working with people with FASD.
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Kirstie Henderson - FASD Parent and Carer
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CanChild - Indigenous Family Engagement in Fetal Alcohol Spectrum Disorder Research
Students of the Family Engagement in Research course developed a webinar that aims to enhance Indigenous family engagement in Fetal Alcohol Spectrum Disorder (FASD) research.
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AKCenterForResourceFamilies - FASD Across the Lifespan: Session 2 Infant Learning and Early Intervention
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David Balog - Understanding the Brain: Fetal Alcohol Spectrum Disorders (Healing the Brain Book 5)
The brain is a lifelong work in progress. Development takes place most rapidly before birth, maintains a furious pace in infancy and continues briskly through childhood and adolescence, but never ceases altogether.
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Attachment Theory in Action - Eileen Devine - The Intersection of Attachment and Fetal Alcohol Spectrum Disorders - Part 2
Karen welcomes Eileen Devine back to the show for the conclusion of their two-part discussion on the intersection of attachment and fetal alcohol spectrum disorders. Part two will be released on Tuesday, December 22nd.
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FASD Hub Australia - 'Research to drive practice and behaviour change'
We invited five early and mid-career researchers to share their work within the theme 'Research to drive practice and behaviour change' at a webinar on 25 March, 2021.
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The Alcohol and Other Drugs Knowledge Centre – Grog in pregnancy videos - partners, women and men
In these videos community members share information with one another about drinking alcohol and Fetal alcohol spectrum disorder (FASD).
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FASD Success - #060 Vanessa Hrvatin: Journalist and FASD Champion
When you think of media coverage for FASD what stories immediately come to your mind? Is it a respectful and honest piece or is it stereotypical and sensationalized? Do you know how feature stories are pitched, decided, and developed? 
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RESEARCH
Department of Justice Canada - Exploring the Use of Restorative Justice Practices with Adult Offenders with Fetal Alcohol Spectrum Disorder
There are serious concerns about the vulnerability and needs of individuals with fetal alcohol spectrum disorder (FASD) in the criminal justice system (CJS). FASD, a diagnostic term used to describe the impacts of prenatal alcohol exposure on the brain and body, is a lifelong disability.
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Anales de Pediatria - Neurocognitive and behavioral profile of fetal alcohol spectrum disorder
A neurocognitive and behavioral profile specific for FASD has not been defined and all the symptoms are common to other etiologies. The aim of this work is to review the neuropsychological profile in the diagnosis of TEAF.
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Nutrients - The Effectiveness of Smoking Cessation, Alcohol Reduction, Diet and Physical Activity Interventions in Improving Maternal and Infant Health Outcomes: A Systematic Review of Meta-Analyses
Diet, physical activity, smoking and alcohol behaviour-change interventions delivered in pregnancy aim to prevent adverse pregnancy outcomes. This review reports a synthesis of evidence from meta-analyses on the effectiveness of interventions at reducing risk of adverse health outcomes.
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WALDEN DISSERTATIONS AND DOCTORAL STUDIES - Multiple Case Analysis Exploration of Prenatal Substance Exposure on Juvenile Adjudicative Competence
This study promotes positive social change by providing insight into the neurological and cognitive factors that affect adolescents’ psycholegal abilities when there is prenatal substance exposure. Juveniles with prenatal substance exposure are a vulnerable population that needs protective measures to ensure their constitutional rights.
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Exploratio - Maternal, Fetal, and Long-term Effects of Substance Abuse During Pregnancy
Substance abuse has continued to be a major public health concern for many years. Over the past couple decades, the rates for addiction have increased drastically, affecting many more women than before.
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Neurotoxicity Research - Neuroimaging of Supraventricular Frontal White Matter in Children with Familial Attention-Deficit Hyperactivity Disorder and Attention-Deficit Hyperactivity Disorder Due to Prenatal Alcohol Exposure
These findings suggest white matter differences between the PAE and familial etiologies of ADHD. Abnormalities detected by magnetic resonance spectroscopy and diffusion tensor imaging co-localize in supraventricular white matter and are relevant to executive function symptoms of ADHD.
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Oxford Research Encyclopedia - Substance Use and Use Disorders in Pregnancy in Two Cultural Contexts: The United States and Afghanistan
Women in all countries use substances, and for some women, such use continues during pregnancy. When substance use impairs life functioning and becomes a use disorder, regardless of the type of substance, effective treatments are available (e.g., medication to treat opioid and alcohol use disorders and behavioral approaches to treat tobacco, stimulant, and other substances).
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Journal of Obstetric, Gynecologic & Neonatal Nursing - Scoping Review of the Associations Between Perinatal Substance Use and Perinatal Depression and Anxiety
There is a paucity of published research on co-occurring PSU and PDA. However, polysubstance use appears to be associated with the greatest risk for PDA. It is essential to address PSU and PDA together to better understand the effects on maternal and infant outcomes.
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Analytical and Bioanalytical Chemistry - Development and validation of a method for the simultaneous analysis of fatty acid ethyl esters, ethyl sulfate and ethyl glucuronide in neonatal meconium: application in two cases of alcohol consumption during pregnancy
The method proved to be sensitive, specific, simple and fast and allowed for the reduction of the amount of organic solvent used for extraction compared to other published data while higher recoveries were obtained. The method was used for analysis of meconium samples in two cases of mothers who were consuming alcohol during pregnancy.
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Psychopharmacology - Neural mechanisms of sexual decision-making in women with alcohol use disorder
Visual sexual cues produced reactivity like that previously demonstrated for alcohol cues, suggesting a shared or domain-general mechanism for alcohol and sexual cue reactivity in women with AUD.
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International Journal of Environmental Research and Public Health - “The Problem Is that We Hear a Bit of Everything . . . ”: A Qualitative Systematic Review of Factors Associated with Alcohol Use, Reduction, and Abstinence in Pregnancy
The impact of structural and systemic factors on prenatal alcohol use was largely absent in the included studies, instead focusing on individual choice. This silence risks perpetuating stigma and highlights the criticality of addressing intersecting structural and systemic factors in supporting maternal and fetal health.
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IN OTHER LANGUAGES
FAS Portalen (Sweden) - Efterlängtat boksläpp för ökad kunskap om FASD
Boken Medfödda alkoholskador hos barn släpps 25 mars! Boken är den första om FASD/FAS på svenska och vänder sig till yrkesverksamma inom vård, pedagogisk verksamhet och socialtjänst samt till studerande inom dessa utbildningar.
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InfoWire (Poland) - FAS i FASD – jakie konsekwencje dla dziecka ma ekspozycja na alkohol w okresie płodowym?
O skali problemu, jakim są alkoholowy zespół płodowy (FAS) i spektrum płodowych zaburzeń alkoholowych, oraz o różnicach w definicji i obrazie klinicznym obu zaburzeń opowiedział w programie “Oblicza Medycyny” prof. dr hab. n. med. Marcin Wojnar, kierownik Katedry i Kliniki Psychiatrycznej Warszawskiego Uniwersytetu Medycznego.
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Iltalehti (Finland) - Moni voi olla tietämättään FASD-aikuinen – tässä lista oireista, jotka saavat hälytyskellot soimaan
Suomessa syntyy joka vuosi satoja lapsia, joita äidin alkoholinkäyttö on vaurioittanut pysyvästi jo ennen syntymää. Heilä on muutamia hyvn tyypillisiä oireita.
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24Live (Italy) - La prima tesi sulla FASD in Scienze del Servizio Sociale è di una barcellonese
L’ha discussa da remoto per l’Università degli Studi di Messina, la tesi su un argomento letto per la prima volta sulla nostra testata giornalistica
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