Mirage News (Australia) - FARE and NOFASD raise concern about reports on exclusion of FASD
from NDIS eligibility
The Foundation for Alcohol Research and Education (FARE) and the National
Organisation for Fetal Alcohol Spectrum Disorders (NOFASD) have called on the
Australian Government to immediately confirm that people with FASD will not
have their access to the NDIS restricted further.
Read more
CBC (Canada) - Advocacy
group says people with developmental disabilities should be prioritized for
COVID-19 vaccine
Alberta's next phase of the coronavirus vaccine rollout is underway and
more than 945,000 Albertans with underlying health conditions are eligible to
book their vaccination appointment.
Read more
The Queens
Nursing Institute Scotland - Hiding in Plain Sight
I was recently invited to work with QNIS to help plan a five-year programme
that will address Scotland’s longstanding blind spots around both preconception
health and FASD.
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NOFASD Australia
- THE SENATE INQUIRY SERIES: SENATE INQUIRY FINDINGS
On 9 September 2019, International FASD Awareness Day, an inquiry was
referred to the Senate Community Affairs References Committee into effective
approaches to prevention and diagnosis of Fetal Alcohol Spectrum Disorder
(FASD) and strategies for optimising life outcomes for people with FASD.
Read more
National
Organisation for FASD (UK) - Announcing the Me and My FASD Break it Down
Board
The National Organisation for FASD is pleased to launch an all-new resource
to help young people with FASD break down situations, explore strategies that
help and focus on their strengths.
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MediaPlanet - The
Importance of Early Diagnosis and Intervention for Kids with FASD
Based on recent epidemiological studies, it’s estimated that there are over
one million people with Fetal Alcohol Spectrum Disorder (FASD) in Canada,
making this one of the leading causes of developmental disability in the
country.
Read more
The International
Journal of Birth and Parent Education - Australian report on FASD
Fetal Alcohol Spectrum Disorder (FASD) is a preventable permanent
disability. A Senate committee in Australia has found that FASD is still not
well understood or recognised and has highlighted a critical need for
prevalence data and a robust study of its economic and social impact.
Read more
PRObono Australia
- ‘Just a draft’ still means it was – or is – in the mix
The leaking of draft changes to the NDIS strikes a blow not just to those
potentially affected, but at the very heart of what could, and should, be a
life and society-changing scheme, writes Adam Schickerling from brain injury
peak body, Synapse.
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VIDEOS and
MATERIALS
OhioMHAS - Screening, Referral, and Diagnosis of FASD
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Thrive Children's
Centre - FASD: What is Fetal Alcohol Spectrum Disorder?
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Thrive Children's
Centre - FASD: Impulsivity
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Thrive Children's
Centre - FASD: Sleep
Read more
Thrive Children's
Centre - FASD: Lying
Read more
Ring Productions
- FASD & Educational Accommodations
Individuals that are diagnosed with Fetal Alcohol Spectrum Disorder face
many challenges at home, in the community, and in the classroom. This video is
a first-hand account of how appropriate supports and accommodations can improve
the daily life of an individual living with FASD in an educational setting.
Read more
ADHD Love - ADHD
and FASD
My guest is Aubrey. She is the CEO of CSH Collab. Her company is a
“collaborate of advocates and educators for neurodiversity” She shares more
details about why she decided to create a company and who all she supports and
what she does to support them.
Read more
Me and My FASD - Fun
with straws
Sometimes using straws helps people with FASD. If you have a straw at home you can try some
activities.
Read more
Julie Kurtz - Dr.
Kathryn Page on the Intersection of Trauma and FASD
Dr. Kathryn Page has worked in a variety of mental health, child welfare,
juvenile justice, and educational settings over the years—all leading to her
current focus on Fetal Alcohol Spectrum Disorders.
Read more
Courthouse
Libraries BC - Understanding FASD: Re-Balancing the Wheel Healing from the
Heart
In this 1.5-hr presentation, Lori Cox and Noel Milliea from the Eastern
Door Centre and Nogemag Healing Lodge speak about their experience working with
people with FASD.
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Kirstie Henderson
- FASD Parent and Carer
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CanChild - Indigenous
Family Engagement in Fetal Alcohol Spectrum Disorder Research
Students of the Family Engagement in Research course developed a webinar
that aims to enhance Indigenous family engagement in Fetal Alcohol Spectrum
Disorder (FASD) research.
Read more
AKCenterForResourceFamilies
- FASD Across the Lifespan: Session 2 Infant Learning and Early Intervention
Read more
David Balog - Understanding
the Brain: Fetal Alcohol Spectrum Disorders (Healing the Brain Book 5)
The brain is a lifelong work in progress. Development takes place most
rapidly before birth, maintains a furious pace in infancy and continues briskly
through childhood and adolescence, but never ceases altogether.
Read more
Attachment Theory
in Action - Eileen Devine - The Intersection of Attachment and Fetal Alcohol
Spectrum Disorders - Part 2
Karen welcomes Eileen Devine back to the show for the conclusion of their
two-part discussion on the intersection of attachment and fetal alcohol
spectrum disorders. Part two will be released on Tuesday, December 22nd.
Read more
FASD Hub
Australia - 'Research to drive practice and behaviour change'
We invited five early and mid-career researchers to share their work within
the theme 'Research to drive practice and behaviour change' at a webinar on 25
March, 2021.
Read more
The Alcohol and
Other Drugs Knowledge Centre – Grog in pregnancy videos - partners, women
and men
In these videos community members share information with one another about
drinking alcohol and Fetal alcohol spectrum disorder (FASD).
Read more
FASD Success - #060
Vanessa Hrvatin: Journalist and FASD Champion
When you think of media coverage for FASD what stories immediately come to
your mind? Is it a respectful and honest piece or is it stereotypical and
sensationalized? Do you know how feature stories are pitched, decided, and
developed?
Read more
RESEARCH
Department of Justice Canada - Exploring the Use of Restorative Justice Practices
with Adult Offenders with Fetal Alcohol Spectrum Disorder
There are serious concerns about the vulnerability and needs of individuals
with fetal alcohol spectrum disorder (FASD) in the criminal justice system
(CJS). FASD, a diagnostic term used to describe the impacts of prenatal alcohol
exposure on the brain and body, is a lifelong disability.
Read more
Anales de
Pediatria - Neurocognitive and behavioral profile of fetal alcohol spectrum
disorder
A neurocognitive and behavioral profile specific for FASD has not been
defined and all the symptoms are common to other etiologies. The aim of this
work is to review the neuropsychological profile in the diagnosis of TEAF.
Read more
Nutrients - The
Effectiveness of Smoking Cessation, Alcohol Reduction, Diet and Physical
Activity Interventions in Improving Maternal and Infant Health Outcomes: A
Systematic Review of Meta-Analyses
Diet, physical activity, smoking and alcohol behaviour-change interventions
delivered in pregnancy aim to prevent adverse pregnancy outcomes. This review
reports a synthesis of evidence from meta-analyses on the effectiveness of
interventions at reducing risk of adverse health outcomes.
Read more
WALDEN
DISSERTATIONS AND DOCTORAL STUDIES - Multiple Case Analysis Exploration of
Prenatal Substance Exposure on Juvenile Adjudicative Competence
This study promotes positive social change by providing insight into the
neurological and cognitive factors that affect adolescents’ psycholegal
abilities when there is prenatal substance exposure. Juveniles with prenatal
substance exposure are a vulnerable population that needs protective measures
to ensure their constitutional rights.
Read more
Exploratio - Maternal,
Fetal, and Long-term Effects of Substance Abuse During Pregnancy
Substance abuse has continued to be a major public health concern for many
years. Over the past couple decades, the rates for addiction have increased
drastically, affecting many more women than before.
Read more
Neurotoxicity
Research - Neuroimaging of Supraventricular Frontal White Matter in Children
with Familial Attention-Deficit Hyperactivity Disorder and Attention-Deficit
Hyperactivity Disorder Due to Prenatal Alcohol Exposure
These findings suggest white matter differences between the PAE and
familial etiologies of ADHD. Abnormalities detected by magnetic resonance
spectroscopy and diffusion tensor imaging co-localize in supraventricular white
matter and are relevant to executive function symptoms of ADHD.
Read more
Oxford Research
Encyclopedia - Substance Use and Use Disorders in Pregnancy in Two Cultural
Contexts: The United States and Afghanistan
Women in all countries use substances, and for some women, such use
continues during pregnancy. When substance use impairs life functioning and
becomes a use disorder, regardless of the type of substance, effective
treatments are available (e.g., medication to treat opioid and alcohol use
disorders and behavioral approaches to treat tobacco, stimulant, and other
substances).
Read more
Journal of
Obstetric, Gynecologic & Neonatal Nursing - Scoping Review of the
Associations Between Perinatal Substance Use and Perinatal Depression and
Anxiety
There is a paucity of published research on co-occurring PSU and PDA.
However, polysubstance use appears to be associated with the greatest risk for
PDA. It is essential to address PSU and PDA together to better understand the
effects on maternal and infant outcomes.
Read more
Analytical and
Bioanalytical Chemistry - Development and validation of a method for the
simultaneous analysis of fatty acid ethyl esters, ethyl sulfate and ethyl
glucuronide in neonatal meconium: application in two cases of alcohol
consumption during pregnancy
The method proved to be sensitive, specific, simple and fast and allowed
for the reduction of the amount of organic solvent used for extraction compared
to other published data while higher recoveries were obtained. The method was
used for analysis of meconium samples in two cases of mothers who were
consuming alcohol during pregnancy.
Read more
Psychopharmacology
- Neural mechanisms of sexual decision-making in women with alcohol use
disorder
Visual sexual cues produced reactivity like that previously demonstrated
for alcohol cues, suggesting a shared or domain-general mechanism for alcohol
and sexual cue reactivity in women with AUD.
Read more
International
Journal of Environmental Research and Public Health - “The Problem Is that
We Hear a Bit of Everything . . . ”: A Qualitative Systematic Review of Factors
Associated with Alcohol Use, Reduction, and Abstinence in Pregnancy
The impact of structural and systemic factors on prenatal alcohol use was largely
absent in the included studies, instead focusing on individual choice. This
silence risks perpetuating stigma and highlights the criticality of addressing
intersecting structural and systemic factors in supporting maternal and fetal health.
Read more
IN OTHER
LANGUAGES
FAS Portalen (Sweden) - Efterlängtat boksläpp för ökad kunskap om FASD
Boken Medfödda alkoholskador hos barn släpps 25 mars! Boken är den första om
FASD/FAS på svenska och vänder sig till yrkesverksamma inom vård, pedagogisk
verksamhet och socialtjänst samt till studerande inom dessa utbildningar.
Read more
InfoWire (Poland)
- FAS i FASD – jakie konsekwencje dla dziecka ma ekspozycja na alkohol w
okresie płodowym?
O skali problemu, jakim są alkoholowy zespół płodowy (FAS) i spektrum płodowych
zaburzeń alkoholowych, oraz o różnicach w definicji i obrazie klinicznym obu
zaburzeń opowiedział w programie “Oblicza Medycyny” prof. dr hab. n. med.
Marcin Wojnar, kierownik Katedry i Kliniki Psychiatrycznej Warszawskiego
Uniwersytetu Medycznego.
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Iltalehti
(Finland) - Moni voi olla tietämättään FASD-aikuinen – tässä lista oireista,
jotka saavat hälytyskellot soimaan
Suomessa syntyy joka vuosi satoja lapsia, joita äidin alkoholinkäyttö on
vaurioittanut pysyvästi jo ennen syntymää. Heilä on muutamia hyvn tyypillisiä
oireita.
Read more
24Live (Italy) - La
prima tesi sulla FASD in Scienze del Servizio Sociale è di una barcellonese
L’ha discussa da remoto per l’Università degli Studi di Messina, la tesi su un
argomento letto per la prima volta sulla nostra testata giornalistica
Read more
