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Sunday, April 14, 2024

FASD News - 15/2024

Irish Examiner (Ireland) - Women earning more than €35k annually are most at risk for babies having fetal alcohol spectrum disorder
Women earning more than €35,000 annually are most at risk for babies having fetal alcohol spectrum disorder, a leading public health consultant has warned.
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Clare FM (Ireland) - FASD Ireland Celebrates First Birthday
FASD Ireland, a support service, based in Ennis, people living in Ireland with Foetal Alcohol Spectrum Disorder recently celebrated its first birthday.
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News-Medical - Even moderate alcohol use by pregnant patients may affect babies' prenatal development
University of New Mexico researchers have found that even low to moderate alcohol use by pregnant patients may contribute to subtle changes in their babies' prenatal development, including lower birth length and a shorter duration of gestation.
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The Oxford Scientist - More than a diagnosis: recognising FASD
Foetal alcohol spectrum disorder (FASD) is widely under-recognised within society. Caused when a person is exposed to alcohol before birth, FASD is characterised by features such as birth defects, neurodevelopmental issues, and cognitive impairment.
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VIDEOS and MATERIALS
FASD United (formerly NOFAS) - FASD United March 2024 Policy Forum
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Alaska Public Media - Talk of Alaska: Raising Awareness about FASD
Babies who were exposed to alcohol during pregnancy can develop lifelong developmental disabilities known collectively as Fetal Alcohol Spectrum Disorder or FASD.
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CanFASD - Towards Healthy Outcomes 2.0: Framework Updates and Policy Implementations
In this webinar recording, viewers will hear about the updates to the Towards Healthy Outcomes framework and how it may be implemented from a policy perspective.
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UCLA Tarjan Center - UCLA Tarjan Distinguished Lecture: Not Just A Pretty Face: FASD Prevalent & Underdiagnosed
UCLA Tarjan Center Distinguished Lecture Series
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Patricia Kasper, Your FASD Coach - FASD Service Dogs, with Donnie Winokur & Jodee Kulp
In this heartwarming and educational episode of Living with FASD, host Patti Kasper is joined by two remarkable guests, Jodee Kulp and Donnie Winokur, to explore the transformative impact of FASD service dogs.
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Patricia Kasper, Your FASD Coach - From Misunderstood to Mentor with RJ Formanek
Join us on a profound journey in this episode of Living with FASD, where host Patti Kasper sits down with the remarkable Mr. R.J. Formanek, a cherished figure in the FASD community. R.J., a man who has walked the path of self-discovery and triumph, opens up about his late diagnosis at age 47 and how it reshaped his understanding of his past struggles and behaviors.
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Thriving Adoptees - Thriving With FASD - Robbie Seale, FASD Educator & Parent
Robbie has 5 kids including 4 by adoption who came from very difficult beginnings. Her dream is for them to thrive despite this and FASD. A great episode full of her learnings on the way.
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CanFASD - 2024 Version of the FASD Common Messaging Guide Released
Since 2017, we have been publishing an FASD Common Messages Guide, a resource focused on respectful ways of writing and talking about FASD. Each spring, we review the guide and update it with new research and conversations that emerge in the FASD community.
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Girls, Women, Alcohol, and Pregnancy - Substance use and pregnancy: Updated info sheets for service providers
When addressing alcohol use during pregnancy and the prevention of FASD, it’s important to remember that alcohol use does not occur in isolation.
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Journey to Wellness & Beyond - EPISODE 24: UNDERSTANDING FASD WITH JOEL & CEDRICK
Have you come across the term FASD? It’s called “Fetal Alcohol Spectrum Disorder” As the name suggests, they’re a group of conditions that can occur in a person whose mother consumed alcohol during pregnancy.
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RESEARCH
Nature - Low to moderate prenatal alcohol exposure and neurodevelopment in a prospective cohort of early school aged children
Evidence is strong for adverse fetal effects of high level or chronic prenatal alcohol exposure (PAE), but many pregnant women continue to drink at lower levels.
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Pediatric Reports - The Impact of Prenatal Alcohol Exposure on the Autonomic Nervous System and Cardiovascular System in Rats in a Sex-Specific Manner
The study investigates the effect of PAE on the autonomic system, including sex differences that may aid in early FASD diagnosis, which is essential for effective interventions.
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International Journal of Molecular Sciences - Oxidative Effects in Early Stages of Embryo Development Due to Alcohol Consumption
This review focuses on its impact during fetal development, when it leads to a spectrum of disorders collectively termed Fetal Alcohol Spectrum Disorders (FASD).
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BMC Pregnancy and Childbirth - Prevention of alcohol exposed pregnancies in Europe: the FAR SEAS guidelines
The FAR SEAS guidelines are a tool to support policy-makers and service managers in implementing effective programmes to reduce prenatal alcohol exposure among general and at-risk population groups.
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Plos one - Fetal alcohol spectrum disorder diagnostic clinic capacity in Canadian Provinces and territories
This study investigated the diagnostic capacity for Fetal Alcohol Spectrum Disorder (FASD) in multidisciplinary clinics across several provincial and one territorial jurisdictions of Canada: Alberta, British Columbia, Manitoba, Ontario and Northwest Territories.
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medRxiv - Genetic admixture predictors of fetal alcohol spectrum disorders (FASD) in the South African Cape Coloured population
Our findings indicate that the SACC population may be a valuable asset to identify novel disease-associated genetic loci for FASD and other diseases.
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Alcohol: Clinical and Experimental Research - A multi-year, multi-site study of the prevalence of fetal alcohol syndrome in South Africa in a multi-year, multi-site study
As with previous studies, we found a concerningly high prevalence of FASD in South Africa. Given the scope of the problem it should be a high priority for health and welfare services to address.
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medRxiv - Establishing a national linked database for fetal alcohol spectrum disorder (FASD) in the UK: multi-method public and professional involvement to determine acceptability and feasibility
Multi-method and multidisciplinary public and professional involvement activities demonstrated the feasibility and acceptability of establishing a national linked database for FASD in the UK.
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Digital Health - Larger-scale feasibility trial of the families moving forward (FMF) connect mobile health intervention for caregivers raising children with fetal alcohol spectrum disorders
Recruitment strategies proved sufficient with 171 caregivers screened and 105 deemed eligible. Analyses identified a few predictive demographic and outcome variables related to attrition. Several study measures were sensitive to change.
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Frontiers in Human Neuroscience - Sex and age effects on gray matter volume trajectories in young children with prenatal alcohol exposure
Prenatal alcohol exposure (PAE) occurs in ~11% of North American pregnancies and is the most common known cause of neurodevelopmental disabilities such as fetal alcohol spectrum disorder (FASD; ~2–5% prevalence).
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Alcohol: Clinical and Experimental Research - A dose–response analysis of the effects of prenatal alcohol exposure on cognitive development
These findings suggest that linear models based on total AA/day are appropriate for assessing whether PAE affects a given cognitive outcome. However, examination of alcohol dose/occasion and drinking frequency is needed to fully characterize the impact of different levels of alcohol intake on cognitive impairment.
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Plos one - Unmet need for alcohol use disorder treatment in reproductive-age females, with emphasis on pregnant and parenting populations in the United States: Findings from NSDUH 2015–2021
This study describes the most recent patterns in the past year AUD prevalence and treatment among reproductive-aged women, with a specific focus on pregnant and parenting women, and barriers to treatment among those affected.
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Applied Neuropsychology - A working memory intervention for children with prenatal alcohol exposure: Pilot study
Preliminary findings indicate that computerized interventions may positively impact WM and attention control and that these changes may be maintained after a delay period.
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bioRxiv - Sexually dimorphic effects of prenatal alcohol exposure on the murine skeleton
Evidence herein suggests for the first time that PAE exerts divergent sex effects on the skeleton, possibly influenced by underlying sex specific transcriptional mechanisms of osteoblasts.
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Ophthalmic Epidemiology - Ophthalmic Findings in Aboriginal Children with High Rates of Prenatal Alcohol Exposure and Fetal Alcohol Spectrum Disorder: The Lililwan Project
Despite the small sample, some eye abnormalities were higher in children with PAE and/or FASD. Access to eye services or assessment of vision and structural eye anomalies is essential for Indigenous children, particularly those with PAE or FASD to allow early effective treatment.
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Alcohol: Clinical and Experimental Research - Characteristics of sleep in children with heavy prenatal alcohol exposure
Despite similar 2-week average sleep outcomes, children with prenatal alcohol exposure showed greater intraindividual sleep variability and parents reported more sleep problems related to sleep behavior and snoring.
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BMC Pregnancy and Childbirth - Reduced fetal cerebral blood flow predicts perinatal mortality in a mouse model of prenatal alcohol and cannabinoid exposure
Fetal cerebrovasculature is significantly impaired by exposure to alcohol or cannabinoids, and co-exposure confers additional risk for adverse birth outcomes.
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Australian Midwifery News - Arranging support to achieve or maintain an alcohol-free pregnancy
This article is the last of a 5-part series about alcohol and pregnancy, the 5As Framework and its application to conversations on the topic.
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Maternal and Child Health Journal - A Comparison of Two Statewide Datasets to Understand Population Prevalence of Substance Use in Pregnancy: Findings and Considerations for Policy & Research
Mental health conditions including substance use disorder are the leading cause of pregnancy-related deaths in the U.S. Unfortunately, fears of child protective services’ involvement interfere with maternal self-disclosure of substance use in pregnancy.
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Alcohol: Clinical and Experimental Research - A multi-year, multi-site study of the prevalence of fetal alcohol syndrome in South Africa in a multi-year, multi-site study
As with previous studies, we found a concerningly high prevalence of FASD in South Africa. Given the scope of the problem it should be a high priority for health and welfare services to address.
Read more

 

IN OTHER LANGUAGES
PFLB (Germany) - Das Fetale Alkoholsyndrom als pädagogische Herausforderung
Dieses entsteht durch mütterlichen Konsum von Alkohol während der Schwangerschaft und manifestiert sich in vielfältigen Störungen, Problemen und Behinderungen.
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Powiatowa Stacja Sanitarno-Epidemiologiczna w Rypinie (Poland) - Wielkimi krokami zbliża się Światowy Dzień Zdrowia. Pamiętacie Hanię? Wielkimi krokami zbliża się Światowy Dzień Zdrowia. Pamiętacie Hanię? Ta mała dziewczynka sama dotknięta #FASD razem ze swoją rodziną walczy o zdrowie dla innych dzieci. Każde dziecko ma prawo do zdrowia, żadne nie musi być dotknięte #FAS.
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Chaos im Kopf Podcast (Germany) - Dein FASD Podcast - FASD-Meltdown: mit Verständnis und Empathie begleiten
In dieser Podcastfolge geht es um das Thema Meltdowns und FASD. Ein Meltdown kann als eine Art Kontrollverlust beschrieben werden, in dem Emotionen und Sinneseindrücke überwältigend werden.
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Afasaf Fasd (Spain) - Afasaf ConNecta_Estigma y autoestigma en el TEAF con José Ignacio Díaz Carvajal
Sesión informativa sobre el estigma y cómo afectan las actitudes estigmatizantes a la autopercepción de las personas con SAF/TEAF. Además se abordó cuál es el papel de las familias frente al estigma y cómo podemos acompañar a nuestro hijo o hija.
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Verneri.net (Finland) - FASD eri ikäkausina
Päihteille altistunut lapsi tarvitsee syntymänsä jälkeen erityisen turvallisen ja tasapainoisen kasvuympäristön. Alkoholille altistunut lapsi saattaa syntyessään kärsiä alkoholin aiheuttamista vieroitusoireista: vastasyntynyt tärisee ja hänellä on kouristuksia.
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Katho (Germany) - Erstes Fachbuch zur Schulbegleitung von Kindern und Jugendlichen mit FASD erschienen
Ein bisher einzigartiges Fachbuch zur Unterstützung von Kindern und Jugendlichen mit einer Fetalen Alkoholspektrumstörung (FASD) im Schulalltag ist jetzt im Beltz-Verlag erschienen.
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Oslo universitetssykehus (Norway) - Gravide, småbarnsforeldre og rusmiddelavhengighet
Hvordan skal vi møte blivende mødre og småbarnsfamilier med rusmiddelproblemer? Hvilke tilbud finnes til denne målgruppen? Hva sier retningslinjene om LAR og graviditet? Denne artikkelen samler informasjon og nyttige lenker.
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