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The government is promising to step up the response to Fetal Alcohol Spectrum Disorder (FASD), promising to boost diagnoses and raise awareness.
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The Clare Champion (Ireland) - Funding
boost for FASD in Ennis
ENNIS-based FASD Ireland, the country’s first national hub to support
individuals, families and carers living with Foetal Alcohol Spectrum Disorder
(FASD), is to be awarded €200,000 in funding.
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PsyPost - Scientists link small changes in
facial and brain structure to low/moderate prenatal alcohol exposure
Recent scientific studies reveal that even low levels of alcohol
consumption during pregnancy might subtly alter fetal craniofacial development
and specific brain structures, although these changes do not appear to
significantly impact broader socio-cognitive development in early childhood.
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Post and Courier (USA) - DSS, DAODAS Launch
New Public Campaign Highlighting Risks of Drinking While Pregnant
The South Carolina Department of Social Services (SCDSS) and the South
Carolina Department of Alcohol and Other Drug Abuse Services (DAODAS) have
collaborated on a new Public Service Announcement (PSA) campaign aimed at
raising awareness about the risks of drinking alcohol during pregnancy and the
potential consequences for unborn babies, including Fetal Alcohol Spectrum
Disorders (FASDs).
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FARE Australia - “A 10,000-megawatt
personality”: Caring for a young person with FASD
As a clinical psychologist, Dr Vanessa Spiller knew she had the tools to
support Dylan when she and her partner welcomed him into their home as a baby.
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FASD United (USA) - FASD NPN Spotlight:
American Academy of Family Physicians (AAFP)
FASD United is excited to spotlight each of the CDC’s National Partner
Network organizations. We launched our
spotlight series in March with a feature on the American Academy of Pediatrics
(AAP).
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VIDEOS and MATERIALS
FARE Australia - “A 10,000-megawatt personality”: Caring for a young person
with FASD
While it became clear that Dylan’s diagnosis of Fetal Alcohol Spectrum
Disorder (FASD) meant there were some challenges for him growing up, Vanessa
said his charming personality shone through, especially when he focused on his
passions like BMX riding.
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Me and My FASD - Rossi - If a child with
FASD is struggling get them to do what they're good at
Rossi says when you get upset and need to re-centre, do what you love to do
to help you bring yourself back towards yourself.
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FASD United (formerly NOFAS) - Glimpses of
FASD - Meet Brenna!
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FASD United (formerly NOFAS) - Jessica
Birch, ALC FASD Changemakers, Australia - FASD Research Conference 2024
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Health Nexus Santé - Out
of the box ideas for successful FASD support groups
Delve into the intricacies of facilitating support groups for individuals
with FASD. Gain insights from their experiences in running support groups over
the past fiscal year, exploring successes, challenges, and invaluable lessons
learned along the way.
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Multiethnic Advocates
for Cultural Competence - FASD 101 Condensed Version
The video serves as foundational training to support FASD workshops, and we
strongly recommend that individuals watch it before attending FASD workshops.
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Mending Families - Fetal
Alcohol Spectrum Disorder, the school system, and finding support with Sandra
Flach
On today’s episode, Sandra shares about her own experiences with FASD and
how she came to the place she is now, which is speaking and advocating for
those affected by FASD. We talk about the school systems and ways to support
our kids in the educational setting.
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Comfort Cases - How
Children affected by Fetal Alcohol Syndrome can benefit from exposure to farms
and farm animals!
Today’s episode of Fostering Change is an in depth discussion with Susan
Rich, founder and president of 7th Generation Foundation, about FAS: Fetal
Alcohol Syndrome.
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Patricia Kasper, Your
FASD Coach - Refracted Realities: Exploring FASD Across Generations with
Neil Turley
In this profound episode of Living with FASD, host Patti Kasper is joined
by Neil Turley, a cherished member of the FASD community and an active
participant on the Flying with Broken Wings Facebook page.
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Me and My FASD - Rossi
Live
Rossi - a make up artist with FASD and one of our Me and My FASD advisors -
answered questions on 25 April 2024 from people with FASD and their families
about being on BBC Three's Glow Up.
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Patricia Kasper, Your
FASD Coach - Unmasking My Challenges: Elena Schmidt's FASD Epiphany
In this deeply personal and enlightening episode of Living with FASD, join
host Patti Kasper as she warmly welcomes Elena Schmidt, a brave voice in the
FASD community.
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Conversations on
Showing Up for Kids! - Conversations: What is FASD? What Challenges Does it
Bring for Families?
Tim Markle, Director of the Southern Regional Center for CYSHCN, talks with
parents and leaders from Orchids WI FASD Services. FASD stands for Fetal
Alcohol Spectrum Disorder and is a developmental disability with life-long
challenges that is twice as common as autism.
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Karyn Moyle - Karyn
Moyle talking about Auntie's place and our Youth impacted by FASD
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FASD Success - #153
Engaging Reluctant Dads: Strategies for Shared Success
Join host Jeff Noble in this week's episode of The FASD Success Show as he
sits down with Dr. Mike Howlett, a dedicated father, and veterinarian, who
shares his personal and professional experiences in navigating FASD within his
family.
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RESEARCH
Criminal Behaviour and Mental
Health - Screening and identification of fetal alcohol spectrum disorder in
criminal legal settings: A realist review.
Findings of this review can be used to inform the development, selection,
implementation and evaluation of FASD screening tools in criminal legal
settings and underscore a continued need for enhanced resources, policy and
cross-sectoral response to better support the needs of people with FASD in the
criminal legal contexts.
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Frontiers in Public
Health - Development and psychometric evaluation of a questionnaire to
measure university students' knowledge on the effects of alcohol use during
pregnancy
This study developed and validated a questionnaire to assess university
students' knowledge regarding the effects of alcohol during pregnancy.
Read more
Heliyon - “Taking
part in the project has really changed our experience as a family”
Investigating parents’ experience of participation in a study to screen for
Fetal Alcohol Spectrum Disorder.
The findings suggest that parents generally view participation positively
and perceive limited negative impact. These insights contribute to a better
understanding of the challenges and benefits associated with screening children
for FASD.
Read more
BMJ Open - Fetal
alcohol spectrum disorder and attention deficit hyperactivity disorder
stimulant trial in children: an N-of-1 pilot trial to compare stimulant to
placebo (FASST): protocol
This series of N-of-1 trials aims to provide pilot data on the feasibility
of conducting N-of-1 trials in children with FASD and ADHD.
Read more
Journal of Neurodevelopmental
Disorders - An overview of current advances in perinatal alcohol exposure
and pathogenesis of fetal alcohol spectrum disorders
In this review, we systematically summarize the current research progress
on the pathogenesis of FASD, which hopefully provides new insights into
differential early diagnosis, treatment and prevention for patents with FASD.
Read more
Frontiers in
Neuroscience - Machine Learning Algorithms to the early diagnosis of Fetal
Alcohol Spectrum Disorders
This study explores the application of Machine Learning algorithms (ML) in
diagnosing FASD and its subtypes: Foetal Alcohol Syndrome (FAS), partial FAS
(pFAS), and Alcohol-Related Neurodevelopmental Disorder (ARND).
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Europe PMC - Caregivers’
experiences of predisposing vulnerabilities to, and within, Justice system
encounters of their children with Fetal Alcohol Spectrum Disorder
Systematic review evidence highlights that individuals with Fetal Alcohol
Spectrum Dis-order (FASD) are nineteen times more likely to be incarcerated
than individuals without FASD.
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Child Neuropsychology
- Carer-reported sleep disturbance and carer- and teacher-rated executive
functioning in children with prenatal alcohol exposure and Fetal Alcohol
Spectrum Disorder
The current study examined whether caregiver-reported insomnia symptoms and
nightmares predicted difficulties with EF in children with PAE who were
assessed at FASD diagnostic clinics.
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Nutrients - Prenatal
Choline Supplementation Improves Glucose Tolerance and Reduces Liver Fat
Accumulation in Mouse Offspring Exposed to Ethanol during the Prenatal and
Postnatal Periods
This study investigated how maternal choline supplementation (CS) may
modify the metabolic health of offspring with prenatal and postnatal AE
(AE/AE). C57BL/6J female mice were fed either a Lieber–DeCarli diet with 1.4%
ethanol between embryonic day (E) 9.5 and E17.5 or a control diet.
Read more
Nature Reviews
Psychology - Prenatal alcohol exposure influences visual processing in
infants
Prenatal alcohol exposure disrupts the timing of visual processing in the
brains of infants, according to research published in Developmental Psychology.
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Behavioral Neuroscience
- Organization of spontaneous spatial behaviors under dark conditions is
unaffected in adult male and female long–Evans rats after moderate prenatal
alcohol exposure
The impact of moderate prenatal alcohol exposure (mPAE) on the organization
of spontaneous open-field behaviors under darkened conditions has not been
investigated.
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University of New
Mexico - Prefrontal Medial Cortex Dendritic Complexity Alteration Following
Prenatal Alcohol Exposure and Placental Insufficiency
Executive functioning is the ability to control and coordinate abilities
and behaviors, but prenatal alcohol exposure (PAE) negatively impacts these
functions.
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Sao Paulo Medical
Journal - Alcohol consumption during pregnancy by women from southern
Brazil: a cross-sectional study
Alcohol intake during pregnancy is common and affects nearly one-third of
pregnant women. Knowledge of the population at risk and protective factors is
essential for the development of campaigns that seek to reduce consumption and,
therefore, its consequences for the mother and fetus.
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Journal of Studies on
Alcohol and Drugs - Preliminary Efficacy of a Web-Based Alcohol and Emotion
Regulation Intervention on Sexual Risk Behaviors Among College Women
Skills to reduce alcohol use and improve ER skills may be beneficial in
helping women make adaptive decisions surrounding their sexual wellbeing.
Read more
Heluyon - “Taking
part in the project has really changed our experience as a family”
Investigating parents’ experience of participation in a study to screen for
Fetal Alcohol Spectrum Disorder.
The findings suggest that parents generally view participation positively
and perceive limited negative impact. These insights contribute to a better
understanding of the challenges and benefits associated with screening children
for FASD.
Read more
IN OTHER LANGUAGES
QfI-Qualifizierung für Inklusion (Germany) - Schulische
Unterstützungsmaßnahmen für Kinder und Jugendliche mit Fetalen
Alkoholspektrumstörungen (FASD) – Ein Scoping Review
Der nachstehende Beitrag betrachtet bereits realisierte bzw. beforschte
Möglichkeiten zur schulischen Unterstützung von Kindern mit FASD (fetales
Alkoholsyndrom).
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Dziecko
Krzywdzone (Poland) - Terapia dzieci ze spektrum zaburzeń poalkoholowych i
wsparcie rodziców w procesie opieki i wychowania
Dzieci ze spektrum zaburzeń poalkoholowych (fetal alcohol spectrum disorder
– FASD) stanowią grupę o dużym zróżnicowaniu trudności rozwojowych.
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Salud, Ciencia y
Tecnología (Spain) - Complicaciones neonatales en gestantes por adicción al
alcohol y tabaco
El alcohol y el tabaco, presentes en la sociedad por siglos, representan
graves riesgos durante el embarazo. El alcohol puede causar trastornos del
espectro alcohólico fetal (TEAF), mientras que el tabaco se vincula con bajo
peso al nacer y problemas respiratorios.
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