Middle school student Sebastian Gould appeared before the Central Okanagan Board of Education last Wednesday to shine a light on the struggles and victories he experiences daily as a student diagnosed with Fetal Alcohol Spectrum Disorder (FASD).
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The Conversation (USA) - Hundreds of
thousands of US infants every year pay the consequences of prenatal exposure to
drugs, a growing crisis particularly in rural America
Nearly 1 in 12 newborns in the United States in 2020 – or about 300,000
infants – were exposed to alcohol, opioids, marijuana or cocaine before they
were born.
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FASD United (USA) - Embracing Potential
with Dr. Eric Flake: National Developmental Disabilities Month
March marks a significant time of recognition and advocacy as we celebrate
National Developmental Disabilities Month. This annual observance provides a
platform to raise awareness, promote inclusion, and celebrate the unique
abilities and contributions of individuals with developmental disabilities.
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FASD United (USA) - National Caregiver’s
Day: Interview with FASD United’s Laura Bousquet
As we close out February, we want to celebrate National Caregiver’s Day,
February 16th. To do this, we celebrate Laura Bousquet, an extraordinary
caregiver and advocate in the FASD community.
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Research Features - Developing a diagnostic
test for foetal alcohol spectrum disorder
Alcohol consumption during pregnancy can affect the baby’s development,
causing physical and mental problems, such as low body weight, behavioural
issues, learning disabilities, damage to vital organs including eyes and
kidneys, and abnormal facial features.
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CanFASD (Canada) - Provincial Alcohol
Policies: Learning from Quebec
Each province in Canada has different policies and resources surrounding
alcohol. In this new series, we will look at what is happening in each province
to provide insight into how we can learn from each other.
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CanFASD (Canada) - FASD Lived Experience
Leadership Fund: Increasing Research Participation
People with lived experience must be at the table when discussing research,
policy, and practice. However, economic inequality is often a barrier to the
“Nothing About Us, Without Us” principle, which CanFASD fully endorses.
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FASD Hub Australia (Australia) - One Drink
campaign proves efficacy in supporting the reduction of alcohol use in
pregnancy
The ‘One Drink’ campaign aims to increase awareness that there is no safe
amount or time to drink alcohol during pregnancy. Evaluation outcomes have been
published in the Australian and New Zealand Journal of Public Health proving
the advertising campaign created significant awareness among pregnant women,
those planning a pregnancy – including
men and women – and the broader community of the risks associated with
drinking alcohol during pregnancy.
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FARE Australia - International Women’s Day:
Five female perspectives on alcohol harms
When our community comes together and speaks openly about alcohol harms and
how we can take steps to reduce our alcohol intake, the impacts can be
life-changing.
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VIDEOS and MATERIALS
Drug Education Network - Fetal Alcohol Spectrum Disorder (FASD) Handbook
Launch 2023
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FASD Hub Australia - One Drink campaign
proves efficacy in supporting the reduction of alcohol use in pregnancy
The ‘One Drink’ campaign aims to increase awareness that there is no safe
amount or time to drink alcohol during pregnancy. Evaluation outcomes have been
published in the Australian and New Zealand Journal of Public Health proving
the advertising campaign created significant awareness.
Read more
FASD United - FASD United Policy Forum -
February 2024
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Patricia Kasper, Your FASD Coach - Beyond
the Diagnosis: Danielle’s Quest for Understanding and Advocacy in FASD
Danielle's story is one of resilience and self-discovery, as she recounts
the anger and frustration she felt upon learning of her condition, and how it
explained the challenges she faced throughout her life, particularly with
reading, writing, and math.
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Brant FASD Support Group - FASD: Issues in
Caregiving - Supporting Oneself in Order to Support Others with Dan Dubovsky
Caregiving for a person with FASD is often very stressful, especially if
those surrounding the individual do not recognize the basis of their behaviors.
They are then often seen as willful and need to be consequenced in order to
learn.
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Patricia Kasper, Your FASD Coach - The
Mosaic of Mind: Josh Bechtel on the Art of Navigating FASD
In this heartfelt episode of Living with FASD, join host Patti Kasper as
she engages in an intimate and enlightening conversation with Josh Bechtel, an
adoptee, poet, author, artist, and editor. With his creative spirit and candid
reflections, Josh shares his journey of discovery and understanding of living
with Fetal Alcohol Spectrum Disorders (FASD).
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Viviana Aguilar - SOWK 322 Group 1: Fetal
Alcohol Syndrome Disorder
If you have never heard of Fetal Alcohol Syndrome Disorder (FASD), we hope
you learn through our presentation! We cover symptoms & characteristics,
strengths, resources, and more.
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Laura Gumbiner - FASD Diagnostic SIG
03/01/2024
This month's diagnostic SIG compared four common methods for diagnosing an
FASD. Discussion of common issues ensued.
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Positive Recovery Centers - The Biggest
Barriers to a Healthy Pregnancy with Dr. Rajesh Miranda and Ph.D & Leah
Davies, LMSW
In this week’s episode, we are talking with Dr. Rajesh Miranda, P.h.D and
Leah Davies, LMSW as we discuss the shame and stigma around Fetal Alcohol
Spectrum Disorders (FASD) and how stress is a common denominator that
negatively affects both pregnant women and their families.
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The raw and the real of FASD - Tips and
Tricks we implemented with our FASD diagnosed children
As parents of children diagnosed with FASD, we took a lot (and we still
take A LOT) of training about Fetal Alcohol Spectrum Disorder. Here are a few
tips and tricks that we use all the time in our day-to-day lives. Let's
normalize the use of strategies at all times.
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FMF India - FMFI Fetal Alchohol Spectrum
disorder Webinar
Paper discussion: Fetal MRI based brain atlas analysis detects initial in
utero effects of prenatal alcohol exposure.
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FASD One - New release of 4 PSA’s on FASD
ONE YouTube Channel
Fetal Alcohol Spectrum Disorder Ontario Network of Expertise (FASD ONE)
proudly announces the release of 4 public service announcements dedicated to
preventing Fetal Alcohol Spectrum Disorder.
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FASD Family Podcast - Season 5 Episode 1 -
Be The Change
Welcome to the FASD Family Life Podcast. I am your host, Robbie Seale, FASD
specialist, with more than 25 years experience raising kids with prenatal
alcohol exposure and trauma
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Fasd Success Show - #148 Transforming FASD
Through Peer Mentorship
Episode #148 - Discover the Impact: Transforming FASD with Peer Mentorship -
takes us on a journey into the heart of connection, empathy, and empowerment
with Tracy, Catherine and Nicole.
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RESEARCH
Advances in Neurodevelopmental Disorders - Underrepresented Caregivers in
Research on Prenatal Alcohol Exposure: A Meta-Analysis and Scoping Review
The results of this study suggest that (a) non-adoptive parents, (b)
caregivers who were male, non-White, non-partnered, less educated, and living
outside of the United States, and (c) caregivers of adolescents, and caregivers
raising children with PAE who have not received an FASD diagnosis are currently
underrepresented in the research; however, this literature is limited and
requires further research.
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Cells - Alcohol Exposure Induces Nucleolar
Stress and Apoptosis in Mouse Neural Stem Cells and Late-Term Fetal Brain
This is the first report describing that pharmacologically relevant alcohol
levels suppress ribosome biogenesis, induce nucleolar stress in neuronal
populations, and involve the ribosomal/MDM2/p53 pathway to cause growth arrest
and apoptosis. This represents a novel mechanism of alcohol-mediated neuronal
damage.
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International Journal of Molecular Sciences - Independent
and Combined Effects of Prenatal Alcohol Exposure and Prenatal Stress on Fetal
HPA Axis Development
Prenatal alcohol exposure (PAE) and prenatal stress (PS) are highly
prevalent conditions known to affect fetal programming of the
hypothalamic-pituitary-adrenal (HPA) axis.
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The Journal of Pediatrics - The Impact of
Prenatal Alcohol Exposure on Longitudinal Growth, Nutritional Status, and IGF-1
in Early Childhood in Leyte, The Philippines
This study demonstrates a delayed impact of PAE on growth that manifested
around 6 months of age, underscoring the importance of routine clinical
monitoring in early childhood.
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American Journal of Preventive Medicine - Paternal
pre-conceptional alcohol use disorder with the offspring's mortality risk
Offspring of fathers with AUD before conception had higher mortality risk
from birth to early adulthood, especially when AUD diagnosis is close to
conception.
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International Journal of Environmental
Research and Public Health - Reach, Acceptability, and Sustainability of the
Native Changing High-Risk Alcohol Use and Increasing Contraception
Effectiveness Study (CHOICES) Intervention: A Qualitative Evaluation of an
Alcohol-Exposed Pregnancy Prevention Program
The findings showed the receptivity to and acceptance of Native CHOICES
among AI women. The interview findings offered a glimpse into the effectiveness
of Native CHOICES and how it contributed to participants making healthier
choices surrounding drinking and sexual health.
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Psychiatry Research - Co-occurrence of
mental illness and substance use among US pregnant individuals, 2012-2021
Pregnant individuals with greater severity of mental illness were more
likely to engage in substance use. Evidence-based educational, screening and
treatment services, and public policy changes are warranted to mitigate the
harmful health outcomes of substance use among US pregnant individuals with
mental illness.
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IN OTHER LANGUAGES
Spark Deutschland (Germany) - Alkohol in der Schwangerschaft - So krass sind
die Folgen
Wenn die Mutter in der Schwangerschaft Alkohol trinkt, kommt das Kind
wahrscheinlich mit einer fetalen Alkoholspektrum-Störung (FASD).
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Erziehungsbüro Rheinland gGmbH (Germany) - Pädagogische
Fachtagung zu FASD und Trauma
Familien mit Kindern mit unsichtbaren Behinderungen wie FASD und/oder
Trauma haben im Alltag besondere Herausforderungen zu bewältigen - für alle
Beteiligten ein Seiltanz!
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