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Sunday, December 17, 2023

FASD News - 50/2023


Penticton Herald (Canada) - Lakeland Centre for FASD open house empowers and supports
The Lakeland Centre for Fetal Alcohol Spectrum Disorder (FASD) open house drew attention as it provided a platform for education, awareness, and support for individuals and families navigating the challenges of this complex condition.
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EurekAlert! - Researcher says men should abstain from drinking at least three months prior to conceiving
Researchers at Texas A&M University have already shown that paternal drinking habits prior to conception can have a negative effect on fetal development — with semen from men who regularly consume alcohol impacting placenta development, fetal alcohol syndrome (FAS)-associated brain and facial defects, and even IVF outcomes.
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Mamamia - During her pregnancy, Sophie drank occasionally. At 14, her son received a diagnosis.
From the moment Sophie found out she was pregnant, she was excited for the future that lay ahead. She was 30, and this was going to be her first child.
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Birmingham Live - 'My mother drank too much before she had me - now it feels like I have dementia at 21'
In her spare time, she volunteers at her local hospital, picks litter off the street and keeps her neighbourhood safe - but for years Chloe Lambert has been unable to land a job because of her disability. The disability campaigner from Wolverhampton lives with a little-known disability which she says is like having ‘dementia’ at the age of 21.
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The Australian (Australia) - How glass baby campaign hit home for mums-to-be
A study published in the Australian and New Zealand Journal of Public Health has revealed new data on the efficacy of an advertising campaign designed to support alcohol-free pregnancies.
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FARE Australia (Australia) - Every Moment Matters campaign celebrates two year milestone
Every Moment Matters is a groundbreaking national health campaign about alcohol, pregnancy and breastfeeding. The campaign has been developed by the Foundation for Alcohol Research and Education (FARE) and is funded by the Australian Government from July 2020 to September 2024.
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Canada.ca - Government of Canada announces partnership with the Canadian Academy of Health Sciences to assess fetal alcohol spectrum disorder in Canada
Today, the Honourable Ya'ara Saks, Minister of Mental Health and Addictions and Associate Minister of Health announced close to $950,000 for the Canadian Academy of Health Sciences (CAHS) to undertake a comprehensive scientific assessment on FASD.
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FASD Ireland (Ireland) - Parliamentary Questions
Below you will find all PQ's submitted since 2017 related to Foetal Alcohol Spectrum Disorder along with the responses from Ministers and the HSE.
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FASD United - FASD in the Criminal Justice Space: Interview with Captain Brian Holloman
Research highlights the connection between FASD and interactions with law enforcement and the criminal justice system. While these statistics may spark concern, they emphasize an important point.
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Research in Practice - Supporting people with Fetal Alcohol Spectrum Disorders
For the first 26 years of my professional career, I had no knowledge at all about Fetal Alcohol Spectrum Disorders (FASD), and only found out about it 'accidentally' in 2008 when I came across it in my personal life.
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FASD United - Prevention-Based Messaging and Perspectives From Those with FASDs
In the FASD space, prevention messaging undoubtedly plays a crucial role, but focusing solely on prevention can sometimes inadvertently cast a shadow over those living with this disability.
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VIDEOS and MATERIALS
FASD Hub Australia - Building blocks for success: Understanding & supporting children with FASD in the school environment
In this short webinar hosted by FASD Hub Australia and Learning With FASD, our experts in paediatrics, occupational therapy, and education provide an overview of the common challenges that children with FASD may face in the classroom, as well as strategies to set them up for success.
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FASD Awareness - Our FASD Strategies & Coping Mechanisms -FASD Webinar #22
In this December webinar we have listened to many of the requests coming into FASD Awareness and we have arranged some of the world’s leading advocates of FASD to discuss their methods, techniques, and strategies around the day to day coping mechanism that they use to thrive.
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Northwest ATTC - Tailoring Treatment for Clients with PAE/FASD
Fetal Alcohol Spectrum Disorder (FASD) is an umbrella term that refers to a wide range of life-long physical, cognitive, and behavioral effects that can occur as a result of prenatal alcohol exposure (PAE).
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FASD United (formerly NOFAS) - FASD United Policy Forum - November 2023
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The Matilda Centre - Learning with FASD: Building blocks for success: Understanding and supporting children with FASD
This webinar is aimed at primary school teaching and support staff looking to learn more about Fetal Alcohol Spectrum Disorder (FASD), and how to support children with FASD to thrive at school.
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Program Lead CAPCCPNPNetwork - FASD Webinar: A Complicated and Beautiful Brain
This presentation will help the participants to recognize that FASD is a part of all of our job descriptions. We will discuss the urgent need for us on the front line to understand that drinking during pregnancy is actually on the rise despite what we know.
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United States Drug Testing Laboratories (USDTL) - Toxtime: Identifying & Helping Newborns Affected by Alcohol & Other Drug Misuse
In preparation of Fetal Alcohol Spectrum Disorder Awareness Month in September, join Guida Brown of Guided by Guida at USDTL’s next ToxTime on “Identifying & Helping Newborns Affected by Alcohol & Other Drug Misuse.”
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Al Coates - Episode 5 of FASD - What’s da Craic? Foster Carer Frank
In this episode Scott had a chat with foster carer and parent Frank. Frank and his wife adopted in the early 90’s in the UK and since then have returned to Ireland to live. Franks shares his families story of living with FASD, how they became aware of it, how they were supported, as well as how it impacted everyone in the longer term with the sad passing of his son 4 years ago from suicide.
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CanFASD - About FASD Prevention
Canadian prevention specialists have identified four mutually reinforcing prevention approaches as effective in delivering FASD prevention, linked to overall policy strategies. The four levels span general and specific practices that assist women to improve their health and the health of their children, with support from family, support networks, services and community.
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Able to Care Podcast - Understanding Foetal Alcohol Spectrum Disorder (FASD) - Able To Care Podcast
This months podcast explores Foetal Alcohol Spectrum Disorder and how we can help those living with it.
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RESEARCH
Frontiers in Cellular Neurosci. Sec. Cellular Neurophysiology - Expression of placental CD146 is dysregulated by prenatal alcohol exposure and contributes in cortical vasculature development and positioning of vessel-associated oligodendrocytes
Recent data showed that prenatal alcohol exposure (PAE) impairs the "placenta-brain" axis controlling foetal brain angiogenesis in human and preclinical models.
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Revue de l'infirmiere - Alcohol and pregnancy: talking about it without taboos to prevent pregnancy
From the earliest stages of adolescence, the question of alcohol consumption should be addressed by health professionals (GPs, midwives, gynecologists, pediatricians, nurses) working in the field of perinatal care or public health. All alcohol consumption is prohibited during pregnancy.
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Alcohol Clin Exp Res - Pregnancy characteristics and outcomes among birthing individuals with a diagnosis of fetal alcohol syndrome
These findings highlight the need for improved recognition of FAS among birthing people. The results suggest that individuals with FAS would benefit from early and sustained medical care prior to pregnancy to optimize perinatal outcomes.
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Archives of Public Health - The role of general practitioners in Reunion in detecting alcohol use in pregnant women and identifying fetal alcohol spectrum disorder: a qualitative study
GPs reported barriers to the identification of FASD: challenges in overcoming social taboos and paradoxical injunctions, the influence of limited knowledge and experience, non-specific and highly variable symptoms, ambiguous classification and method of diagnosis involving the mobilization of a multidisciplinary team and lengthy consultations.
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The Journal of Pediatrics - Normative MRI Data Increase the Sensitivity to Brain Volume Abnormalities in the Classification of Fetal Alcohol Spectrum Disorder
Age- and sex-adjusted brain volumes based on a large normative dataset may be useful predictors of functional outcomes and may identify a greater number of individuals with FASD than the currently used criterion of OFC.
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Frontiers in Neuroscience - Editorial: Perspectives and recent advances in Fetal Alcohol Spectrum Disorders research
This Frontiers in Neuroscience Research Topic entitled “Perspectives and recent advances in Fetal Alcohol Spectrum Disorders research” was launched shortly after the 45th Annual Research Society on Alcohol Scientific Meeting held in Orlando, Florida from June 25–29, 2022.
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The American Journal of Clinical Nutrition - Polymorphisms in the choline transporter SLC44A1 are associated with reduced cognitive performance in normotypic but not prenatal alcohol-exposed children
Two functional alleles that increase vulnerability to choline deficiency, rs3199966(G) (Ser644Ala) and rs2771040(G) (3′ untranslated region), are associated with worsened cognition in otherwise normotypic children.
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Alcohol: Clinical and Experimental Research - Predicting fetal alcohol spectrum disorders in preschool-aged children from early life factors
As early identification and treatment optimize outcomes of children with FASD, classifier models from early life characteristics show promise in predicting FASD.
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JAMA Network - Brain Volume in Fetal Alcohol Spectrum Disorders Over a 20-Year Span
These findings suggest that a sustained spectrum of brain volume deficits endured from adolescence into early middle age based on the original severity of dysmorphia and a diagnostic distinction between fetal alcohol syndrome and alcohol-related neurodevelopment disorder.
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Forensic Science International: Mind and Law - ‘I inevitably get in trouble … in one way or another’: Qualitative exploration of the vulnerabilities and experiences of justice system encountered individuals with fetal alcohol spectrum disorder
Individuals with FASD are highly vulnerable to, and within, encounters with the CJS. Procedural justice will benefit by employing alternative methods in dealing with situations where individuals with FASD may be involved, and in obtaining information via interviews from the FASD population.
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Journal of Public Health - Identifying the motives for and against drinking during pregnancy and motherhood, and factors associated with increased maternal alcohol use
Stress reduction motives may be a risk factor for heavier maternal drinking, while motives for not drinking seem to be focused on child welfare and maternal well-being.
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IN OTHER LANGUAGES
Dentonet (Poland) - Zdrowie jamy ustnej i jakość życia osób z FASD
Zdrowie jamy ustnej może znacząco wpłynąć na ogólny stan zdrowia i jakość życia. Tym bardziej dotyczy to osób z niepełnosprawnością rozwojową, taką jak spektrum poalkoholowych zaburzeń rozwojowych (ang. foetal alcohol spectrum disorder; FASD).
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SWR.de (Germany) - Alkohol in der Schwangerschaft: Viele Kinder in der Pfalz leiden unter den Folgen
Hirnschäden, die Kinder im Mutterleib durch Alkohol erleiden, sind keine Seltenheit. Pfälzer Pflegefamilien berichten: Das Alkoholsyndrom beeinträchtigt das ganze Leben.
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Società Italiana di Pediatria (Italy) - Allattamento, sindrome feto-alcolica e sviluppo neurologico del bambino
Molti studi si sono occupati di valutare se i bambini allattati al seno presentano un migliore neurosviluppo rispetto a bambini che vengono alimentati con una formula. I dati finora disponibili sono in parte contrastanti ma, eliminati fattori confondenti, è stata riscontrata un’associazione statisticamente significativa a favore degli allattati al seno.
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Krajowe Centrum Przeciwdziałania Uzależnieniom (Poland) - FASD powszechna ale wciąż mało znana choroba
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Alko.fi (Finland) - Näkymätön kansanterveysongelma
Raskausaikana äitinsä päihteidenkäytölle altistuneista nuorista noin puolella on mielenterveyden ja käyttäytymisen häiriöitä 15–24 vuoden iässä. Mielenterveyden ongelmilla puolestaan on yhteys muun muassa muita nuoria huonompaan koulumenestykseen ja taloudellisiin vaikeuksiin.
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