FASD Me (UK) - UK FASD Manifesto
People with FASD here in the UK have created a manifesto that says how they would like doctors, teachers, parents and others to better support people with FASD.
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The Clare Champion (Ireland) - Ireland’s first FASD hub
launched in Ennis
IRELAND’S first national hub to support individuals, families and carers
living with Foetal Alcohol Spectrum Disorder (FASD) launched this week in
Ennis.
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the Vernon Morning Star (Canada) - Report calls on B.C.
to fully fund mental health screening for neurodivergent children
A new research report is reiterating a call for B.C. to fully fund and
implement mental-health screening, assessment and treatment for children and
youth with neurodevelopmental conditions.
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Family Fund (UK) - “Family Fund has had a huge impact on
our lives”
Seven-year-old Isaac lives in Halifax, England, with his adoptive mum,
Amanda, and older sister, Andraya,14. Isaac was diagnosed with Foetal Alcohol
Spectrum Disorder (FASD), which is classed as organic brain damage that first
occurs within the womb when the foetus is growing.
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Run FASD - Get Ready! Run FASD 2023- An Interview with
Coach Rebecca
April is a busy month, and the rest of 2023 seems to promise the same. It
is our immense honor to re-introduce Run FASD and Coach Rebecca Tillou.
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Adoption UK - FASD – Building on 20 years of progress
The FASD conference FASD in the UK: Building on 20 years of progress, held
last week, was an opportunity to look back on the progress that has been made
in that time. I’ve been part of the FASD community for 14 of those 20 years.
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FASD Ireland - Salford FASD Conference
FASD Ireland's Maggie May reviews the Salford FASD Conference as someone
living with FASD.
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Stuff (New Zealand) - Abuse and violence from disabled
children to caregivers commonplace
Anita Gibbs is a professor of social work and criminology at the University
of Otago, and is an adoptive mum of neuro-diverse children; one of whom lives
with FASD. She is actively engaged in organisations and support for families
living with FASD.
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Creating a Family - Explaining Prenatal Exposure to Your
Child
Are you raising an adopted, foster, or kinship child who was exposed to
drugs or alcohol while their birth mother was pregnant? Many of us parenting
kids with prenatal substance exposure grapple with what to tell them about
prenatal exposure. Avoiding the topic can contribute to our kids feeling shame,
confusion, and even self-blame.
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Channel 103 - Calls For Attention On Alcohol In Pregnancy
Jersey's government's being asked to do more to support children who are
suffering as a result of being exposed to alcohol before birth.
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ITV (UK) - Women asked to share whether they drank
alcohol while pregnant
Public Health Jersey is looking for women to share whether they drank
alcohol while they were pregnant.
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VIDEOS and MATERIALS
Inclusion Collaborative - Including the Child with FASD in Your Classroom
Many teachers are aware of the physical characteristics of fetal alcohol
syndrome but fetal alcohol spectrum disorder includes children and adults who
look like neurotypical children and also have normal intelligence.
Read more
3D Learning Experts - Everything You Need to Know About
Fetal Alcohol Spectrum Disorder (FASD) and IEPs
As a mom of neurodiverse children and advocate for legislative change,
Shannon has a wealth of knowledge to share on navigating FASD and behavioral
challenges at home, school, and in the community.
Read more
PCA Families - Certain nutrients can slow the impacts of
FASD on children from disrupted families. Diet matters.
Melanie McGrice is an Advanced Accredited Practising Dietitian with a
Masters in Dietetics. She specialises in
Early Life Nutrition, also known as the 1st 1000 days, from preconception to
toddlerhood, when a child's brain, body and immune system grows the fastest to
set the foundations for a child's future.
Read more
GoodHealthTV - FASD | GoodHealthTV
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Spotlight on FASD - Podcast Season 5 Episode 7 - Laura
Hernandez & Mama Systems
n this episode Jessica talks to Laura Hernandez, founder of Mama Systems.
Read more
FASD Hub Scotland and FASD Hub UK - Wednesday Webinar:
Mike and Kristin Berry, Honestly Adoption Co.
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McLeanHospital - Prenatal Alcohol Exposure – The Past
Decade of Research
Presented by Grace Chang, MD, MPH, Harvard VA Boston Healthcare System
Psychiatry
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FASD Hub Scotland and FASD Hub UK - Wednesday Webinar -
the Value of a FASD Diagnosis
Read more
Clare FM - FASD Ireland Officially Launch National Hub In
Ennis
On Tuesday's Morning Focus, Pat was joined live in studio by Tristan
Casson-Rennie who is the Chief Executive Officer of FASD Ireland.
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RESEARCH
Georgia College - An Application of the Transtheoretical Model for FASDs in
the United States
Overall the study can assist in preventing fetal alcohol spectrum disorders
by educating pregnant women on the risks of alcohol consumption.
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Children - Heated Behaviour in the Classroom for Children
with FASD: The Relationship between Characteristics Associated with ADHD, ODD
and ASD, Hot Executive Function and Classroom Based Reward Systems
Possession of characteristics related to Attention Deficit Hyperactive
Disorder, Oppositional Defiance Disorder, and Autism Spectrum Disorder in
children prenatally exposed to alcohol contributes to challenges within the
diagnostic pathway for Foetal Alcohol Spectrum Disorder (FASD).
Read more
International Journal of Molecular Sciences - Expression
Quantitative Trait Methylation Analysis Identifies Whole Blood Molecular
Footprint in Fetal Alcohol Spectrum Disorder (FASD)
To the best of our knowledge, this study is the first to assess whole blood
gene expression and DNAm-gene expression associations in FASD.
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The FASEB Journal - A multi-organ analysis of the role of
mTOR in fetal alcohol spectrum disorders
The current review focuses on novel FASD research within the context of the
mTOR signaling and sheds light on mechanistic etiologies at various biological
levels including molecular, cellular, and functional, across multiple stages of
development and illuminates the dichotomy between the different mTOR complexes
and their unique signaling roles.
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Archives of Disease in Childhood - Assessing maternal
alcohol consumption in pregnancy: comparison of confidential postnatal maternal
interview and measurement of alcohol biomarkers in meconium
We investigated whether alcohol biomarkers fatty acid ethyl esters (FAEEs)
and ethyl glucuronide (EtG) in meconium are predicted by maternal or newborn
demographics and/or correlate with confidential early postnatal self-report of
alcohol consumption in pregnancy.
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Contemporary Clinical Trials - A virtual randomized
controlled trial of an alcohol-exposed pregnancy prevention mobile app with
urban American Indian and Alaska Native young women: Native WYSE CHOICES
rationale, design, and methods
Our study offers a template for building trust and extending reach to this
underserved population while also providing important lessons and insights on
advances in virtual or hybrid research approaches.
Read more
Research in Developmental Disabilities - Parenting stress
and FASD: A scoping review
5 studies were deemed eligible for this review. This literature suggests
that caregivers of children with FASD experience heightened levels of parenting
stress.
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Current Research in Toxicology - Assessing the
Sensitivity and Specificity of Phosphatidylethanol (PEth) Cutoffs to Identify
Alcohol Exposed Pregnancies
In the literature on alcohol use biomarkers, there has been debate as to
what a valid and/or utilitarian cut off level should be for various research
applications.
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Women's Health - A cross-sectional study on alcohol and
contraception use among sexually active women of childbearing age: Implications
for preventing alcohol-exposed pregnancies
With 20% of women at risk of an alcohol-exposed pregnancy, public health
measures to address alcohol consumption and the effective use of contraception
are critical to reducing the risk for alcohol-exposed pregnancies in NZ.
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CJC Pediatric and Congenital Heart Disease - Cardiac
magnetic resonance imaging in individuals with prenatal alcohol exposure
Children with PAE did not have abnormalities in MRI derived measures of
cardiac structure or function despite smaller brain volumes and sex-specific
differences in body composition, relative to healthy controls.
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Journal of addiction Medicine - The Postpartum Period: An
Opportunity for Alcohol Screening and Counseling to Reduce Adverse Health
Impacts
These findings suggest missed opportunities to promote health and prevent
adverse alcohol-related health outcomes during the postpartum period through
evidence-based tools such as alcohol SBI.
Read more
Experimental Physiology - Even periconceptional alcohol
consumption can have long-term consequences on heart health in the offspring
It is well established that consumption of alcohol during pregnancy
negatively impacts fetal development, causing a range of physical and mental
impairments
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American Journal of Obstetrics and Gynecology - Reduced
prevalence of fetal exposure to alcohol in Italy: a nationwide survey
Ethylglucuronide (EtG) is a direct metabolite of ethanol and is widely
accepted as a reliable biomarker for the assessment of gestational consumption
when measured in maternal hair and prenatal exposure to alcohol when measured
in neonatal meconium.
Read more
IN OTHER LANGUAGES
NDR (Germany) - Rostock: Erste Beratungsstelle für FASD in MV eröffnet
In Rostock ist eine Beratungsstelle für Menschen eröffnet worden, die durch
den Alkoholkonsum ihrer Mutter während der Schwangerschaft behindert sind. Es
ist die erste Einrichtung dieser Art in Mecklenburg-Vorpommern. Träger ist die
Rostocker Stadtmission.
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Chaos im Kopf Podcast - Dein FASD Podcast (Germany) - FASD
und die Lebenshilfe Essen
In dieser Podcast-Episode hören wir von Lena Meister, der Leiterin des
FASD-Zentrums bei der Lebenshilfe Essen.
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Afasaf Fasd (Spain) - Afasaf ConNecta_Terapia Ocupacional
con Aina Gaya
Sesión informativa que realizará una aproximación a la ocupación y a la
terapia ocupacional, como dos componentes fundamentales para el desarrollo de
una vida diaria significativa y equilibrada.
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