FASD News 36/2022

Nordic Welfare Center - How to strengthen the focus on children affected by prenatal alcohol exposure to help them lead a good life?
The primary focus of this report is the post-pregnancy period and the support and follow-up for children born with prenatal alcohol exposure, and their families.
Read more

Government of Northwest Territories (Canada) - September is FASD Awareness Month: Building Strengths and Abilities
September is Fetal Alcohol Spectrum Disorder (FASD) awareness month. This time is dedicated to creating conversation about FASD, improving prevention of FASD, and supporting those living with FASD. The theme for this year’s FASD awareness month is Building Strength and Abilities.
Read more

Stuff (New Zealand) - Calls for more support on FASD Awareness Day
When *Reuben thinks about fetal alcohol spectrum disorder he imagines barriers. He thinks about the struggles of relationships, addiction and drug abuse, recalling the challenges he faced in school.
Read more

CBC (Canada) - Opening the door to my identity: How an FASD diagnosis shaped my life during the COVID-19 pandemic
I was at home watching YouTube in March 2020 when I first learned about COVID-19 getting serious. I saw a video that said the virus was spreading around China and getting to other parts of the world. After that, we were told to stay home.
Read more

CapeTalk (South Africa) - SA's high rate of FASD largely due to ignorance - FARR SA
Africa Melane is joined by Dr Leana Olivier, CEO at Foundation For Alcohol Related Research to talk about how consuming alcohol affects unborn babies.
Read more

CQ Today (Australia) - ‘Silent’ epidemic is preventable
Held on Friday, 9 September, International FASD Awareness Day is about “giving a voice for the unborn”.
Read more

Saltwire - GRANT FROST: Don't let brief spotlight on fetal alcohol fade into inaction
If you happen to be strolling past Halifax’s City Hall on Friday night, you may notice something odd. The entire building will be bathed in a glow of red light.
Read more

The Irish Times (Ireland) - Why does Ireland have so many cases of foetal alcohol syndrome?
Ireland is estimated to have the third-highest prevalence of FAS in the world, with about 600 babies born here each year with the syndrome
Read more

EWN (South Africa) - DRINKING WHILE PREGNANT IS LIKE PLAYING RUSSIAN ROULETTE WITH YOUR BABY’S FUTURE
Refiloe Mpakanyane was in conversation with Dr Fundile Nyati - the CEO of Proactive Health Solutions as the world marked Foetal Alcohol Syndrome Day (FASD) on Friday.
Read more

The George Institute - ‘Glass baby’ makes future parents think before they drink
A hard-hitting awareness campaign on the dangers of drinking during pregnancy successfully increased concerns about unborn babies’ exposure to alcohol and discouraged women from drinking while pregnant.
Read more

Blada (France) - SAFTHON 2022
On September 9, on the occasion of the international day for the fight against Fetal Alcohol Disorder (FASD) and throughout the month of September, many actions will be deployed in France, overseas and worldwide, as part of SAFTHON.
Read more

Metro (UK) - I just thought I was a bit stupid – but my mum’s pregnancy drinking gave me brain damage
My bedroom is full of novels, but most of them are left unfinished. I love reading, but I can never get beyond the first chapter.
Read more

FASD Hope - 151 - FASD at 50 - A Conversation with Dr. Kenneth Lyons Jones and Andrea Torzon
Episode 151 is airing on September 9th - International FASD Awareness Day titled "FASD at 50" with Dr. Kenneth Lyons Jones and Andrea "Andy" Torzon, LMFT of the University of California San Diego School of Medicine's Institute for Fetal Alcohol Spectrum Disorders Discovery.
Read more

CanFASD (Canada) - National FASD Strategy
Fetal alcohol spectrum disorder (FASD) is the leading cause of neurodevelopmental disability in Canada, affecting 4% of the population. The prevalence of FASD is greater than Autism, Down Syndrome, and Cerebral Palsy combined.
Read more

NOFASD Australia - A FATHER’S STORY CONTINUES – MY SON STEPS INTO THE ADULT WORLD
In my first blog a year ago, I talked about the challenge of getting a FASD diagnosis for our son, despite many years of assessments looking for answers. We didn’t give up and eventually a diagnosis was given.
Read more

 

VIDEOS and MATERIALS
RNAO Communications - International FASD Awareness Day, featuring Dr Brenda Stade
On #FASDDAY, @RNAO will continue to support awareness on this disorder, with calls to the government on the issue, passing resolutions on FASD prevention, holding a symposium, publishing stories, engaging with the media and collaborating with other organizations.
Read more

SABC News - International Foetal Alcohol Spectrum Disorders Awareness Day
Today marks International Foetal Alcohol Spectrum Disorders Awareness Day. According to the World Health Organisation, South Africa has the highest reported FASD prevalence rate in the world.
Read more

WCDSBTube - Fetal Alcohol Spectrum Disorder Presentation
Read more

Spotlight on FASD - Season 5 Episode 1 - Celebrating The Launch Of The NICE Quality Standards
Season 5 launches with a wonderful celebration for the FASD community in England. We celebrate in this episode with Prof Raja Mukherjee and Sandy Butcher about the creation and launch of our very first NICE Quality standards for FASD.
Read more

Alcohol Forum Ireland - ‘FASD : The need for a compassionate approach’
ENDpae & Alcohol Forum are delighted to share with you our videos raising voices of those with lived experience and asking you to get involved in the conversation.
Read more

Southern New Jersey Perinatal Cooperative - Public Service Announcement: September is Fetal Alcohol Spectrum Disorder Awareness Month
No amount of alcohol is safe when you’re pregnant -- at any time during your pregnancy. If you started drinking, it’s never too late to stop. If you need assistance, help is available.
Read more

HSE Health and Wellbeing - Pregnant woman and midwife alcohol brief intervention
In this video we will look at an example of a brief intervention between a midwife and a young student mother attending her first antenatal appointment.
Read more
Pregnant woman and GP alcohol brief intervention
Read more
Pregnant woman and social worker alcohol brief intervention
Read more
Pregnant woman and obstetrician alcohol brief intervention
Read more

Jeff Noble - What I Want People To Know About FASD
Happy International FASD Awareness Day! I asked some of our caregivers and their loved ones “What is one thing people should know about FASD? and this is what they said.
Read more

Me and My FASD - The FASD Song
“The FASD Song” was written and performed by TB for September FASD Awareness Month 2022.
Read more

FASD Awareness - FASD Case Study #2 - The Revolving Door
Here is one of our case study films showing how important early diagnosis, a correct assessment and obtaining the right level of support is, and the potential impacts if these are not put in place.
Read more
FASD Case Study #1 - Steven's Story
Read more

 

RESEARCH
Cureus - Fetal Alcohol Spectrum Disorder in a Newborn
Our objective was to evaluate a three-day-old male infant born at 37 weeks gestation via vaginal delivery to a mother with admitted excessive alcohol intake for FASD. On physical appearance, the newborn had evidence of smooth philtrum and thin vermillion border, which are two of the three cardinal facial characteristics for dysmorphology.
Read more

Alcoholism: Clinical and Experimental Research - Fetal Alcohol Spectrum Disorders and access to Regional Center Services in San Diego County
The 6.9% prevalence estimate among Regional Center clients was higher than the prevalence estimate of 2.3% in the same community among 5–7-year-old children in the general population.
Read more

African Journal of Reproductive Health - Barriers and facilitators of alcohol abstinence during pregnancy
There is a limited understanding of why pregnant women drink in the South African context, particularly in rural settings, where the prevalence of FASD is highest.
Read more

City University of Seattle - Fetal Alcohol Spectrum Disorder (FASD): Examining How School Counsellors Can Support Students Diagnosed with FASD Through Life Skills and Social-Emotional Learning
The research question I will addressed in this capstone is: How can school counsellors support students diagnosed with fetal alcohol spectrum disorder through life skills and social-emotional learning?
Read more

SSRN - Maternal Alcoholism Affects Cell Lineage in Adult Hippocampal Neurogenesis
These results suggest that pathways implicated in cell determination were affected by PEE and remained affect in adulthood.
Read more

Laurier - “The system is not set up for individuals with FASD”: Lived and Caregiver Perspectives Regarding Current and Ideal Housing Supports for Canadian Adults with Fetal Alcohol Spectrum Disorder
This study offers insight into the perspectives of adults with FASD regarding their daily living support, which is critical to inform future supported housing and support self-determination.
Read more

AAIDD - The Strengths and Positive Influences of Children With Fetal Alcohol Spectrum Disorders
This study is the first to examine strengths and positive influences of young children with fetal alcohol spectrum disorder (FASD).
Read more

Drug and Alcohol Review - Evaluation outcomes of an alcohol and pregnancy campaign targeting multiple audiences
Results indicate the campaign was well received by respondents, increased concern about drinking alcohol during pregnancy and positively influenced women's intentions to refrain from drinking while pregnant.
Read more

Biomedicines - Sex-Related Differences in Voluntary Alcohol Intake and mRNA Coding for Synucleins in the Brain of Adult Rats Prenatally Exposed to Alcohol
These findings indicate that the impact of PAE on transcriptional regulation of synucleins may be sex-dependent, and in males’ disruption in α-synuclein mRNA expression may contribute to increased vulnerability to alcohol-associated behavior.
Read more

Substance Abuse Treatment, Prevention, and Policy - Effectiveness of a practice change intervention in reducing alcohol consumption in pregnant women attending public maternity services
Special occasion drinking was reduced following implementation of guideline-recommended care. Failure to change other patterns of alcohol use in pregnancy may reflect barriers to implementing the model of care in antenatal care settings and the need to address other social determinants of alcohol use.
Read more

Child Psychiatry & Human Development - Characteristics of the Symptoms of the Proposed ND-PAE Disorder in First Grade Children in a Community Sample
The proposed symptoms for Neurobehavioral Disorder Associated with Prenatal Alcohol Exposure (ND-PAE) were evaluated in children who participated in the Collaboration on Fetal Alcohol Spectrum Disorders Prevalence study.
Read more

Dialogues in Health - Prevention of alcohol related harm though preconception care: A scoping review of barriers and enablers
Investment in alcohol education and skills training for healthcare professionals is required to ensure a coherent message is communicated across services, and that shared decision making about healthcare between service users and health professionals is facilitated.
Read more

Journal of Karnali Academy of Health Sciences - Alcohol Consumption during Pregnancy and its association with Fetal Outcome in a Mountainous District of Nepal
The prevalence of alcohol consumption during pregnancy was seen in one out of three mothers. Mothers were at the highest risk of delivering low birth weight babies if they had a binge alcohol consumption pattern.
Read more

Frontiers - How the alcohol industry fought against pregnancy warning labels in France. A press coverage analysis spanning 20 years
This study fills a gap in the Anglosphere research on lobbying against alcohol warnings by analyzing lobbyists' arguments over a 20-year period covering both failed and successful industry lobbying.
Read more

Qualitative Health Research - Researching Alcohol Consumption During Pregnancy. Opportunities and Challenges With Two Methods of Data Acquisition
These results have implications for research about female substance use. Knowledge of the issues will bestow a valuable contribution to researchers working in the field of substance use to help develop appropriate research approaches, as they engage in research into this highly stigmatized and controversial area.
Read more

 

IN OTHER LANGUAGES
EHYT (Finland) - Alkoholinkäyttö raskausaikana suuri, mutta näkymätön ongelma
Suomalaisten alkoholinkäyttö on arkipäiväistynyt ja hedelmällisyysiässä olevista naisista lähes 90 % käyttää alkoholia. Alkoholi ei kuitenkaan kuulu raskauteen ja sikiön kehityksen kannalta päihteistä alkoholi aiheuttaa eniten sikiövaurioita.
Read more

Societa Italiana di Pediatria (Italy) - Giornata mondiale della sindrome feto-alcolica (FASD)
Il 9 settembre è la Giornata mondiale della sindrome feto alcolica e disturbi correlati, un appuntamento che dal 1999 viene celebrato simbolicamente il nono giorno del nono mese dell’anno per sensibilizzare su come l’uso di alcol in gravidanza possa essere dannoso per lo sviluppo fisiologico e sulla vita futura del nascituro.
Read more

MTV Uutiset (Finland) - Näistä liikkeistä et saa perjantaina alkoholia vielä yhdeksältä – "Tämä pieni teko on tärkeä viesti"
FASD-päivän kampanjassa muistutetaan, etteivät alkoholi ja raskaus sovi yhteen. Tämän vuoksi alkoholinmyynti aloitetaan useassa paikassa hieman tavallista myöhemmin perjantaina 9. syyskuuta.
Read more

RMF24 (Poland) - Uszkadza mózg dziecka, powoduje trudności w szkole. Czym jest FASD?
Problem dotyczy 2 proc. polskich dzieci. Objawia się trudnościami w uczeniu i problemami rozwojowymi. Czasem widać go nawet w rysach twarzy.
Read more

Kehitysvammaliitto (Finland) - HELMIS – KANSAINVÄLINEN FASD-PÄIVÄ 9.9.
Ihan tähän alkuun haluan sanoo kiitos Kehitysvammaliitolle, että sain julkaista blogin Elämäni Käännekohdat 1994-2022. Nyt mä käännän uuden sivun elämässä, eli täst lähtee HELMIS OSA 2! Tästä syksystä eteenpäin mä otan sut mukaan mun arkeen, joka tulee varmasti sisältämään paljon seikkailuja ja uusia kokemuksia, mutta toivon myös tutustuvani uusiin ihmisiin!
Read more

Mitteldeutsche Zeitung (Germany) - FASD bei Kindern: Der Schaden ist vermeidbar
Alkohol während der Schwangerschaft sollte Tabu sein – Denn viel zu viele Neugeborene leiden unter dem fetalen Alkoholsyndrom, was das Leben stark beeinflusst.
Read more

Läkartidningen (Sweden) - Fetalt alkoholsyndrom kan förebyggas – Inför varningstext
Missbruk och användande av olika slags droger orsakar stort lidande för den drabbade och anhöriga, men det orsakar också stora kostnader för samhället [1].
Read more

ERR (Estonia) - Lauri Beekmann: üheksanda kuu üheksanda päeva sümboolne tähendus
September on ülemaailmne alkoholi põhjustatud sünnikahjustuste teadlikustamise kuu ja selle üheksanda kuu üheksas päev on selle kuu kõrghetk. Kuigi fetaalse alkoholisündroomi avastamisest möödub tuleval aastal 50 aastat, on inimeste teadlikkus siiski lubamatult madal, kirjutab Lauri Beekmann.
Read more

FASD Deutschland e.V. (Germany) - FASD Deutschland e.V. Schwanger - nur alkoholfrei
Read more

Bundesverband behinderter Pflegekinder e.V. (Germany) - FASD Part 1 - (die Mutter) von Aang Patchacuteq in Kooperation mit dem BbP e.V.
Zu Beginn möchten wir deutlich machen, dass der Text Menschen mit FASD betrifft und auf diese emotional einwirken kann. Ebenso auf die direkten Mitmenschen, in diesem Fall besonders auf die Mütter!
Read more
FASD Part 2 - (das Kind) von Aang Patchacuteq in Kooperation mit dem BbP e.V.
Read more

CISA - Centro de Informações sobre Saúde e Álcool (Brazil) - [9/9] Dia Mundial da Prevenção da SAF #GravidezSemAlcool
Você sabia que consumir qualquer quantidade de bebidas alcoólicas durante a gravidez e a lactação podem prejudicar o desenvolvimento do bebê?
Read more

fasd de (Germany) - FASD DEUTSCHLAND - Offizieller Trailer
Erfahre jetzt mehr auf: http://www.fasd-deutschland.de
Read more