Byline Times (UK)
- Lack of Specialist Services is Failing Children with Foetal Alcohol
Spectrum Disorder
Susan Nathan explains how children and young people with foetal alcohol spectrum
disorder in the UK are not receiving adequate services due to the lack of
understanding of their needs.
Read more
Express (UK) - Youngsters
do not use contraception during sex because they are too drunk to remember
A fifth of young adults forget to use contraception at the height of
passion because they are too drunk to remember when having sex, a study has
found. Research among 1,200 16-25-year-olds revealed many are taking unforeseen
risks due to a lack of knowledge, education - and intoxication.
Read more
Newstalk ZB (New
Zealand) - Changes in KiwiSaver rules for those with congenital conditions
annouced
The Government has announced the four life-shortening conditions that will
allow people impacted by them early access to their KiwiSaver funds.
Read more
CanFASD blog - Announcing
the 2021 Sterling Clarren Award recipient!
We are excited to announce that this year’s recipient for the Dr. Sterling
Clarren FASD Research Award is Dr. Brianne Redquest for her research on understanding
and reducing stress in caregivers of individuals with FASD.
Read more
A Heart For All
Students - Homeschooling FASD: Support Tips
11 years later, Natalie and John made the decision to homeschool him. They
did so in an effort to save him from a constant barage of bullying.
Additionally, they needed to provide him with the academic accommodations that
homeschooling provides.
Read more
NOFASD Australia
- WHEN WE DON’T CALL IT THERAPY
The following blog was written by Elizabeth Hannah of Black Horse
Therapies. Her reflections on how we label therapeutic work with young people
can be applied to all therapies, including therapy with animals, and may
benefit many living with FASD.
Read more
National Organisation
for FASD (UK) - Risky Behaviours
In February 2021 the National Organisation for FASD teamed up with OnePoll and
72Point to learn more about young people’s understanding of the risk of sex,
alcohol and pregnancy. OnePoll polled 1200 16-25 year olds across the UK.
Read more
VIDEOS and MATERIALS
Gatlinburg Conference Poster Submission - Parental Scaffolding of Play in
Children with Developmental Disabilities: Comparing Fetal Alcohol Spectrum
Disorder and Autism Spectrum Disorder
To our knowledge, this is the first study to investigate developmental play
levels in children with FASD. Parents of children with FASD demonstrated, on
average, lower developmental play levels compared to their children – a pattern
that has not previously been reported among parent-child dyads with other
developmental disorders.
Read more
Community of
Practice on ASD/DD - Conversations: What is FASD? What Challenges Does it
Bring for Families?
Tim Markle, Director of the Southern Regional Center for CYSHCN, talks with
parents and leaders from Orchids WI FASD Services. FASD stands for Fetal
Alcohol Spectrum Disorder and is a developmental disability with life-long challenges
that is twice as common as autism. Join us to hear from parents facing the
challenges of helping children move into adulthood.
Read more
PreventionInstitute1
- Adapting Early Childhood Environments for Children with FASD
All children want to, and can, learn and grow. No child wants to fail. It
feels good to succeed. Our job as parents, caregivers, and service providers is
to adapt routines, activities, and environments to help children succeed. This
webinar provides an introduction to adapting early childhood environments for
children with FASD.
Read more
usgovACF - Fetal
Alcohol Spectrum Disorders (audio description)
Parenting a child with a disorder on the fetal alcohol spectrum can present
many challenges for foster and adoptive families.
Read more
Changing the
Perspective - Fetal Alcohol Spectrum Disorder - Interview with Natalie
Vecchione
In this interview we learn more about Fetal Alcohol Spectrum Disorder.
Natalie adopted her son when he was a baby.
He was later diagnosed with Fetal Alcohol Spectrum Disorder later in
life after years of her advocating on his behalf.
Read more
Manitoba FASD
Coalition - Using Attachment and Circle of Security To Strengthen Your
Relationship with Your Child or Student
Joanne Brown presented on the importance of attachment in relationships
with children or students with FASD. Joanne also reviewed the basic components
of Circle of Security. Original presentation February 26, 2021.
Read more
Our Homeschool
Castle - Special Needs Parents Interview Series || Natalie Vecchione With
FASD Hope
This video is in a new series called special-needs parents interviews. I
interviewed my friend Natalie over on zoom about her podcast and website FASD
Hope.
Read more
Demystifying
Medicine - Alcohol Consumption + Pregnancy = A Bad Mix
This video provides information on Fetal Alcohol Spectrum Disorders (FASDs)
which occur as a result of alcohol consumption during pregnancy. In the video,
the signs and symptoms, different diagnoses, treatment/therapy options, and
prevention of FASDs are highlighted.
Read more
New Brunswick
Adoption Foundation - Webinar : Fetal Alcohol Spectrum Disorder (FASD)
Learn about Fetal Alcohol Spectrum Disorder (FASD): Information, Strategies
& Personal Experiences. Hear an informative talk from Maria DesRoches,
Coordinator for the FASD Centre of Excellence.
Read more
Center for
Science and Society - Drinking While Pregnant: The Science and Stigma
Professor Khiara M. Bridges, Professor Caitlin Killian, and Dr. Clare
McCormack spoke at Drinking While Pregnant: The Science and Stigma, which took
place on January 28, 2021, between 4:30-6:00 PM (ET) on Zoom. The seminar was
organized by Columbia University's Presidential Scholars in Society and
Neuroscience program.
Read more
CanFASD - FASD
– CANADA´S LEADING DEVELOPMENTAL DISABILITY
Canada FASD Research Network (CanFASD) published a new brochure for some
basic information about FASD in Canada.
Read more
Our Stories. Our
Health. - We Have the Proof ft. Sara Messelt
Our Stories. Our Health. brings you the stories of Minnesotans as they
navigate the healthcare system, to change the way we talk about healthcare. We
want the debate to be about people, not profits, and names, not numbers.
Read more
Elephant In The
Room - Caring for those with FASD.
Read more
RESEARCH
Göteborgs Universitet - Fetal Alcohol Spectrum Disorders in Children and
Young Adults with an emphasis on ophthalmology
Fetal alcohol spectrum disorders (FASD) are a group of disorders caused by
prenatal alcohol exposure (PAE). The most severe and most studied FASD
condition is fetal alcohol syndrome.
Read more
Health &
Justice - Navigating complexity to support justice-involved youth with FASD
and other neurodevelopmental disabilities: needs and challenges of a regional
workforce
The workforce supporting youth to navigate the justice system requires
practical interventions to achieve best practice so that young people with FASD
and other neurodevelopmental disabilities receive the support that they need.
Read more
Behavioural Brain
Research - Executive functioning-specific behavioral impairments in a rat
model of human third trimester binge drinking implicate
prefrontal-thalamo-hippocampal circuitry in Fetal Alcohol Spectrum Disorders
Individuals diagnosed with Fetal Alcohol Spectrum Disorders (FASD) often
display behavioral impairments in executive functioning (EF). Specifically, the
domains of working memory, inhibition, and set shifting are frequently impacted
by prenatal alcohol exposure.
Read more
Research Square -
Barriers and Facilitators of Alcohol Abstinence During Pregnancy - a
Qualitative Study in Rural South Africa
Various personal and contextual factors can act as barriers or facilitators
of alcohol abstinence during pregnancy. Addressing barriers at structural,
community and individual levels may aid women in reducing harmful drinking
during pregnancy.
Read more
Neurotoxicology
and Teratology - Moderate prenatal alcohol exposure increases total length
of L1-expressing axons in E15.5 mice
Public health campaigns broadcast the link between heavy alcohol
consumption during pregnancy and physical, cognitive, and behavioral birth
defects; however, they appear less effective in deterring moderate consumption
prevalent in women who are pregnant or of childbearing age.
Read more
Revista de
Neurologia - Psychological interventions on fetal alcohol spectrum disorder
across the life span
The results indicate that psychological treatments focused on emotional and
behavioral regulation, social skills training and family interventions are the
most evidenced treatments for these patients.
Read more
Journal of Neuroscience
Research - Microglia and astrocytes show limited, acute alterations in
morphology and protein expression following a single developmental alcohol
exposure
Fetal alcohol spectrum disorders (FASD) are the most common cause of
nonheritable, preventable mental disability and are characterized by cognitive,
behavioral, and physical impairments.
Read more
Digitala
Vetenskapliga Arkivet - Substance use, pregnancy, and parenthood: A study on
problematizations and solutions
With the starting point in the view that how we interpret a problem is
decisive for how we think this problem should be dealt with, the overall aim of
this dissertation is to explore problematizations of substance use in relation
to pregnancy and parenthood within different settings.
Read more
Brain Research - Social
behaviors and gray matter volumes of brain areas supporting social cognition in
children and adolescents with prenatal alcohol exposure
These findings suggest that children and adolescents with PAE show worse
social functioning and smaller volumes of brain areas supporting
self-awareness, perspective-taking and emotion-regulation than their same-age
peers without PAE.
Read more
Am Acad
Pediatrics - Teratogenic Effects of Prenatal Alcohol Exposure on Cardiac
Innervation
Alcohol exposure during embryonic development can damage neural crest
cells, precursors of the autonomic nervous system. Abnormalities of cardiac
innervation are known to result in heart disease, arrhythmias, and are
implicated in sudden infant death syndrome (SIDS), the sudden and unexplained
death of an infant usually during sleep.
Read more
Alcoholism:
Clinical and Experimental Research - Phosphatidylethanol as Blood Biomarker
of Alcohol Consumption in Early Pregnancy: An Observational Study in 4067
Pregnant Women
The teratogenic effects of alcohol are well documented, but there is a lack
of screening methods to detect alcohol use during pregnancy.
Phosphatidylethanol 16:0/18:1 (PEth) is a specific and sensitive alcohol marker
reflecting alcohol intake up to several weeks after consumption.
Read more
Birth Defects
Research - Early‐life exposure to alcohol and the risk of alcohol‐induced
liver disease in adulthood
Alcohol consumption remains prevalent among pregnant and nursing mothers
despite the well‐documented adverse effects this may have on the offspring.
Moderate‐to‐high levels of alcohol consumption in pregnancy result in fetal
alcohol syndrome (FAS) disorders, with brain defects being chief among the
abnormalities.
Read more
Journal of
Chemical Neuroanatomy - Alteration of CYP2E1, DBN1, DNMT1, miRNA-335,
miRNA-21, c-Fos and Cox-2 gene expression in prefrontal cortex of rats’
offspring submitted to prenatal ethanol exposure during their neurodevelopment
and the preventive role of nancocurcumin administration: A histological,
ultrastructural and molecular study
Ethanol (EtOH) has been linked to neurotoxic effects on the fetus and
prenatal alcohol exposure (PAE) has a negative impact on brain
neurodevelopment.
Read more
Behavioural Brain
Research - Executive functioning-specific behavioral impairments in a rat
model of human third trimester binge drinking implicate
prefrontal-thalamo-hippocampal circuitry in Fetal Alcohol Spectrum Disorders
Individuals diagnosed with Fetal Alcohol Spectrum Disorders (FASD) often
display behavioral impairments in executive functioning (EF). Specifically, the
domains of working memory, inhibition, and set shifting are frequently impacted
by prenatal alcohol exposure.
Read more
Europe PMC - The
effect of maternal pre-/early-pregnancy BMI and pregnancy smoking and alcohol
on congenital heart diseases: a parental negative control study
We found evidence of an intrauterine effect for maternal smoking on
offspring CHDs, but no evidence for higher maternal BMI or alcohol consumption.
Our findings provide further support for why smoking cessation is important
during pregnancy.
Read more
psych.colorado.edu
- The epigenome as a biological pathway of the effects of prenatal exposure
to tobacco, alcohol, and caffeine on childhood internalising problems in
offspring: Two large multi-cohort epigenome-wide association studies.
In a large, multi-cohort epigenetic analysis, we found some preliminary evidence
that maternal smoking could affect childhood internalising symptoms through DNA
methylation, but little evidence that this is the case for prenatal alcohol and
caffeine consumption.
Read more
Biomolecules - Impacts
of Maternal Diet and Alcohol Consumption during Pregnancy on Maternal and
Infant Gut Microbiota
Maternal diet and alcohol consumption can influence both maternal and
infant’s gut microbiota. These relationships are still not examined in the
Chinese population. The purpose of this study was to explore the effect of
alcohol consumption and maternal diet during pregnancy on maternal and infant’s
gut microbiota.
Read more
Health & Social
Care in the community - Two screening instruments for collecting
alcohol‐related information from expectant mothers and fathers: Testing the
reliability of the Parent Alcohol Screening Questionnaire and the Social
Support for an Alcohol‐Free Pregnancy Questionnaire
The aim is to test the reliability of two alcohol screening instruments: (1)
The Parent Alcohol Screening Questionnaire (PASQ5), and (2) the Social Support
for an Alcohol‐free Pregnancy (SSAFP) questionnaire.
Read more
IN OTHER
LANGUAGES
AOU.LuigiVanvitelli
(Italy) - Sindrome feto-alcolica (Fetal Alcohol Syndrome-FAS)
Campagna sensibilizzazione abuso di alcol - No alcol per donne in
gravidanza- Sindrome feto-alcolica (Fetal Alcohol Syndrome-FAS).
Read more
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