CBC (Canada) - How
My Teen With A Disability Is Teaching Me About Dignity
Dignity is defined as the state or quality of being worthy of honour or
respect. It comes from the Latin dignitas, meaning worthy.
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News Medical - New
research examines how alcohol exposure impacts aspects of neuroplasticity
It is now well accepted that the birth and integration of new neurons
continue beyond development and into adulthood. New discoveries and insights on
how alcohol impacts this and other plastic processes are discussed in
"Alcohol and Neural Plasticity," a special issue of Brain Plasticity.
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Healthing - As
kids with FASD turn 18, worry over support intensifies
Many families across the country are struggling to figure out what comes
next for their adult child living with a developmental disability.
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Hello Sunday
Morning - I didn’t know alcohol could harm my baby, before knowing I was
pregnant
I conceived my first child at 30. I had been married for 4 years when I
ceased my long-term use of the birth control pill. I continued to drink alcohol
at weekends, socially, but knew about avoiding certain foods and to reduce my
caffeine intake. I am well educated and had done my research. I didn’t want to
completely change my lifestyle, as long as my approach was ‘safe’ for my
developing baby.
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Eileen Devine - Tending
Both Sides of the Parenting Coin
When I ask how you’re doing, knowing intimately what’s involved in
parenting a child who requires massive amounts of your time and energy, the
thing I am most curious and concerned about is how you are doing at a
physiological, nervous-system level.
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CanFASD - Top
FASD Research Articles of 2020
Announcing our list for the top FASD articles of 2020! Every January
CanFASD does a literature search for research that was published within the
previous year. This year the search revealed over 400 articles published on
FASD in 2020.
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March of Dimes – Beyond
Labels
Stigma may stop someone, including a pregnant woman, from accessing the
health and support services they need.
Read more
ABC News
(Australia) - FASD has no cure and is often misdiagnosed, but there is hope
and help for those affected
This is what happened to Jessica, who says there were clear signs she had
issues throughout her childhood, but her symptoms were dismissed as phases she
would grow out of.
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VIDEOS and MATERIALS
CanFASD - Identifying Best Practices for FASD Prevention, Intervention, and
Support
More and more online opportunities for professional development are popping
up in our increasingly virtual environment. Although there are lots of courses
out there for specific professions, there are very few online learning
opportunities for the range of professionals who work with people with FASD and
women who are at risk of having a child with FASD.
Read more
FASD Hub
Australia - Meet Dr Nicole Hayes
Meet Dr Nicole Hayes, who is exploring the impact of sleep difficulties on
children with FASD and their carers. She hopes this research will help identify
ways we can support these children and families in their daily lives.
Read more
FASD Hub
Australia - Meet Dr Rebecca Pedruzzi
Meet Dr Rebecca Pedruzzi from the Telethon Kids Institute, whose research
goal is to ensure women and their families are supported through effective
public health campaigns to make the decision not to drink during pregnancy.
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Change.org - Recognition
of FASD as a Disability in the QLD Education System
We are calling to recognise FASD as a disability under the QLD Education
Adjustment Program (EAP) to give these kids the support they need. The lack of
recognition of FASD as a disability is profoundly limiting the educational
engagement of this vulnerable population.
Read more
Adoption with
Nyree - Could your ADOPTED child have fetal alcohol syndrome?
Adopting a child with fetal alcohol syndrome which is often undiagnosed and
the common behaviours to expect. Many children with fetal alcohol syndrome go
undiagnosed and unsupported throughout their lives. Here are some common
behaviors for you to understand that may help you on your adoption journey as
an adoptive family.
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Rural FASD
Support Network - FASD Transitional Planning
Pateresa Winter of the Lakeland Centre for FASD in Cold Lake, Alberta share
how they have provided transitional planning for youth and young adults with
FASD for the past 12 years in a rural setting.
Read more
Spotlight on FASD
- Podcast Season 2, Episode 6 - Why Does Your Child With FASD Lie?
In this week's episode we open up the conversation around this very tricky
aspect of living with FASD. So many parents, carers, teachers and other
professionals really struggle with what feels like being lied to, we talk about
what it really is and how we make the adjustments required to handle it.
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usgovACF - Fetal
Alcohol Spectrum Disorders (audio description)
Parenting a child with a disorder on the fetal alcohol spectrum can present
many challenges for foster and adoptive families. It is vital for these
families and the professionals who support them to understand the reasons
behind any learning and behavioral challenges so they—together—can “try
differently.”
Read more
FosterFamiliesNC
- Introduction to Fetal Alcohol Spectrum Disorders
Recent research has shown that 1 in 20 first graders have Fetal Alcohol
Spectrum Disorder, but so few physicians, allied health professionals, and
parents really know how this lifelong developmental disability manifests
itself.
Read more
AKCenterForResourceFamilies
- FASD Across the Lifespan: Session 1 Introduction and Diagnosis
In Session one of the FASD Across the Lifespan Training Series, Marilyn
Pierce-Bulger present information about Fetal Alcohol Spectrum Disorder and
prenatal alcohol exposure and details the diagnostic process in Alaska.
Read more
Proof Alliance – Let's
Have a Conversation
We appreciate you joining us in having an important talk about fetal alcohol
spectrum disorders, or FASD. FASD occurs when a baby is exposed to alcohol in
the womb, leading to lifelong brain injury, among many other potential
conditions.
Read more
AUCD FASD SIG - Services
and Supports for Adults with FASD
When children with disabilities become adults, there is a significant reduction
in services and supports available. For individuals with fetal alcohol spectrum
disorders (FASD), however, that loss of services is even more dramatic.
Read more
Elephant In The
Room – Podcast: Caring for those with FASD
Talking about raising and caring for individuals with FASD. The trials, the
tribulations...the love.
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RESEARCH
Global Pediatric Health - Institutionalized Children and the Risk of Fetal
Alcohol Spectrum Disorder (FASD); A Primer for Clinicians, Adoption Staff and
Parents
A large proportion of adopted institutionalized children may not follow a
normal developmental trajectory. If not afflicted by FASD, there is a positive
impact of adoption on children’s cognitive development and in general they are
comparable to their non- adopted peers.
Read more
Journal of
Intellectual & Developmental Disability - “It’s ignorant stereotypes”:
Key stakeholder perspectives on stereotypes associated with fetal alcohol
spectrum disorder, alcohol, and pregnancy
Our results align with research about difficult experiences of FASD
stakeholders. However, while Canadian news analyses found people with FASD
portrayed as criminals, our participants identified mostly non-crime stereotypes.
Participants also sometimes shifted the burden of motherhood stereotypes from
low-income to higher-income women.
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Journal of
Obstetrics and Gynaecology Canada - Perspectives of Canadian Health Care
Providers on Fetal Alcohol Spectrum Disorder: A brief report exploring 15 years
The findings from these surveys may inform the development of ongoing
educational initiatives to help HCPs with screening for alcohol use during
pregnancy and early diagnosis and prevention of FASD.
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European Journal
of Paediatric Neurology - Evidence-based interventions for children and
adolescents with fetal alcohol spectrum disorders – A systematic review
There are only a few randomized-controlled trials regarding therapy
research for children and adolescents with FASD. Evidence-based intervention
studies indicate that especially the combination of parent and child sessions
present a promising approach for the treatment of FASD.
Read more
Alcoholism:
Clinical and Experimental Research - Estimated Prevalence of Harmful Alcohol
Consumption in Pregnant and Non‐pregnant Women in Saxony‐Anhalt (North‐East
Germany) Using Biomarkers
Estimated prevalence rates differ greatly with respect to the biomarkers
and cut‐offs used. The isolated measurement of CDT/%CDT might result in an
overestimation of harmful alcohol consumption during pregnancy.
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Journal of
Neuroscience Research - Ethanol modulation of cerebellar neuroinflammation
in a postnatal mouse model of fetal alcohol spectrum disorders
Fetal alcohol spectrum disorders (FASD) are alarmingly common, result in
significant personal and societal loss, and there is no effective treatment for
these disorders.
Read more
BMC Pregnancy and
Childbirth - Barriers and enablers of implementation of alcohol guidelines
with pregnant women: a cross-sectional survey among UK midwives
Our results suggest that skill development and reinforcement of support
from colleagues and the wider maternity system could support midwives’
implementation of alcohol advice at each antenatal appointment, not just at
booking could lead to improved outcomes for women and infants.
Read more
Plos one - Protective
factors against tobacco and alcohol use among pregnant women from a tribal
nation in the Central United States
Identifying social determinants of tobacco and alcohol use during pregnancy
is critical to improving health outcomes for the next generation. This is
especially important on a rural Tribal Nation where influences such as
isolation, cultural barriers, and historical trauma have made it uniquely
challenging to prevent substance use during pregnancy.
Read more
Children - Maternal
Tobacco and Alcohol Use in Relation to Child Malnutrition in Gauteng, South
Africa: A Retrospective Analysis
This study determined the association between maternal tobacco and alcohol
use, and malnutrition, among infants aged ≤ 12 months (n = 300), in selected
health facilities situated in Gauteng, South Africa.
Read more
Molecular
Medicine Reports - Prenatal ethanol exposure impairs the formation of radial
glial fibers and promotes the transformation of GFAPδ‑positive radial glial cells into astrocytes
During embryonic cortical
development, radial glial cells (RGCs) are the major source of neurons, and
these also serve as a supportive scaffold to guide neuronal migration. Similar
to Vimentin, glial fibrillary acidic protein (GFAP) is one of the major
intermediate filament proteins present in glial cells.
Read more
Alcoholism, Clinical
and Experimental Research - Phosphatidylethanol as Blood Biomarker of
Alcohol Consumption in Early Pregnancy: An Observational Study in 4067 Pregnant
Women
In an unselected pregnant population in Norway 1.4 % had a positive PEth
sample around gestational week 12 whereas 0.4% had a positive sample around
week 24. The use of PEth as an alcohol biomarker should be further investigated
as a possible diagnostic tool in the antenatal setting.
Read more
BMC Psychiatry - Magnitude
and associated factors of substance use among pregnant women attending
antenatal care in public hospitals of eastern Ethiopia
The magnitude of antenatal substance use in the study area was 26.5%. Pre-
pregnancy substance use, partner substance use, monthly house hold income and
family substance use were found to be positively associated with substance use
during pregnancy.
Read more
Child
Maltreatment - Prenatal Substance Exposure and Child Maltreatment: A
Systematic Review
State and federal policies regarding substance use in pregnancy,
specifically whether a notification to child protective services is required, continue
to evolve. To inform practice, policy, and future research, we sought to
synthesize and critically evaluate the existing literature regarding the
association of prenatal substance exposure with child maltreatment.
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Drug and Alcohol
Dependence - Timing of mortality in mothers with recurrent convictions for
driving under the influence of alcohol and their children, from childbirth to
child age 17
Severe maternal AUD, as characterized by rDUI, increases the risk for child
mortality over that of Controls through age 17. Delays in rDUI maternal
mortality until child age 6 may indicate a period when maternal referral for
intervention to reduce harm to child and mother is likely to be especially
effective.
Read more
Public health
nursing - Intimate partner violence, prenatal stress, and substance use
among pregnant Black women
Perceived stress during pregnancy partially mediated the association
between previous experience of IPV and marijuana use among pregnant Black
women. Interventions are needed to reduce IPV that would lower stress during
pregnancy and consequently substance abuse to improve pregnancy outcomes and
maternal and newborn health.
Read more
Public Health
Reports - Discordance Between Perinatal Alcohol Use Among Women and Provider
Counseling for Alcohol Use: An Assessment of the Pregnancy Risk Assessment
Monitoring System
Disparities in alcohol counseling occurred despite the national
recommendation for universal screening and counseling prenatally. Continued
integration of universal screening for alcohol use during pregnancy is needed.
Read more
