News Medical - Researchers
highlight gap in effective mental health and substance use treatment options
for people with FASD
This week, a team of researchers and partners published findings that show
a startling gap in the evidence about treatment for mental health and substance
use challenges for people with Fetal Alcohol Spectrum Disorder (FASD).
Read more
Toronto Star
(Canada) - Support worker aims to erase FASD stigma through education
A Fetal Alcohol Spectrum Disorder (FASD) support worker in Victoria says
stigma in her line of work has led to a lack of information that’s available
for families.
Read more
Kore Biomedical
Review (South Korea) - EUMC opens Asia’s 1st fetal alcohol syndrome
prevention Center
Ewha Womans University Medical Center (EUMC) Thursday opened the Fetal
Alcohol Syndrome (FAS) Prevention Center for the first time in Asia to promote
a healthy life for women and children.
Read more
Stuff (New
Zealand) - A documentary three years in the making: How Stuff Circuit's Emma
was created
Stuff Circuit’s Emma tells the story of 27-year-old Emma Barrett and her
journey to Russia to find her biological family. Barrett, born with fetal
alcohol syndrome, was adopted and brought to live in New Zealand in the 1990s.
She grew up not knowing if she had any family in Russia, or if they wanted to
meet her.
Read more
Celcis - We
need to talk about FASD
This Adoption Week Scotland, Barbara Ogston, FASD Advisor in the FASD Hub
Scotland, managed by Adoption UK, who is an adoptive parent, discusses the
impact of Fetal Alcohol Spectrum Disorder (FASD) within the care community, and
why it’s vital that children and families receive the support they need.
Read more
BBC News
(Scotland) - My adopted son's life was changed by alcohol in pregnancy
When Lorna took the leap to adopt, she had no idea her new family could be
living with the effects of alcohol for the rest of their lives.
Read more
Our Sacred Breath
- HOW TO CREATE COLLEGE PROGRAMS FOR STUDENTS WITH FASD
Fetal Alcohol Spectrum Disorder is 2.5 times more common than autism
(Flannigan, Unsworth, & Harding, 2018). Yet as the most common of all
developmental disabilities it remains largely unrecognized and supported.
Read more
CanFASD - Book
Review: FASD and the Online World
Every parent struggles with managing the internet and social media for
their child(ren) but there are additional worries when it comes to raising a
child with FASD in this digital world. There
are not many resources available to assist with managing the online world with
individuals with FASD but this new book by Dr. Ira Chasnoff is a useful one.
Read more
AdoptionUK - Half
and Hour Changes the View – An FASD Diagnosis
It’s only taken two year since we first met them and 4 years since we first
voiced our concerns. but we have left today with a FASD diagnosis with the
sentinel facial features (SFF).
Read more
VIDEOS and
MATERIALS
Spotlight on FASD - Podcast Episode 6 - An interview with Dr Raja Mukherjee,
Part One
In this weeks episode, part 1 of our very first guest interview, we welcome
the one and only Dr Raja Mukherjee. With almost 20 years experience he’s a big
deal in the FASD world so this episode is definitely one not to be missed! Come
back next week to listen to part 2!
Read more
Osmosis - Fetal
alcohol syndrome - causes, symptoms, diagnosis, treatment, pathology
What is fetal alcohol syndrome? Fetal alcohol syndrome, or FAS, occurs
because of maternal use of alcohol during pregnancy.
Read more
Inclusion
Collaborative - Cognitive Supports for Children with Fetal Alcohol Spectrum
Disorders (Part I)
A recent study estimated that anywhere from 1.1 to 5% of children in the US
have an FASD*, making it the most frequent developmental disability in the
nation. However, very few educational professionals are given FASD-specific
training or an understanding of how FASD impacts the brain and, therefore, how
it impacts a child’s learning experience and behaviors.
Read more
Inclusion
Collaborative - Cognitive Supports for Children with Fetal Alcohol Spectrum
Disorders (Part II)
A recent study estimated that anywhere from 1.1 to 5% of children in the US
have an FASD*, making it the most frequent developmental disability in the
nation. However, very few educational professionals are given FASD-specific
training or an understanding of how FASD impacts the brain and, therefore, how
it impacts a child’s learning experience and behaviors.
Read more
QNI Scotland - Scottish
Government launches FASD eLearning resource
The Scottish Government has just launched its free FASD eLearning resource
on the NHS Education for Scotland (NES) website. QNIS welcomes this essential
online learning resource. It could have significant benefits for professionals
and the individuals/families affected if widely used and shared.
Read more
Manitoba FASD
Coalition - Looking After Each Other Virtual Gathering - Session 1: The
Seven Sacred Teachings
This video is the first of three Virtual Gathering sessions focusing on
healthy families which took place on September 30th, 2020. It features Elder
Dr. Dave Courchene and Grandmother Florence Paynter delivering the The Seven
Sacred Teachings.
Read more
FASD AWARENESS
(UK) - USEFUL RESOURCES
Links to FASD information posters, videos and downloads.
Read more
Laughing Bird - How
to deal with it | FASD
For all of you guys that do not know I moved into a new place(large place)
on Halloween. And one of my projects is to work on the grooming shed so I can
have some clients. It's taking a lot longer than we thought.
Read more
College Of
Science SJSU - Long term changes in metabolism and gene expression in a
Drosophila model of Fetal Alcohol Spectrum
Developmental alcohol exposure causes fetal alcohol spectrum disorder
(FASD), which is the biggest cause of preventable intellectual disability
worldwide.
Read more
Me and My FASD – Welcome
to Me and My FASD
Here you will find lots of fun and interesting things to help you learn about
FASD.
Read more
PreventionInstitute1
- FASD: Let’s Change the Conversation and Challenge the Stigma
It is not easy to talk about FASD. Fetal Alcohol Spectrum Disorder is
complex. Much of the conversation around FASD makes it more complicated and
increases stigma.
Read more
FASD Hub - FASD
Research Australia Awards & Celebration: Shining a light on FASD
Read more
FASD Hub - FASD
Virtual Seminar – Education
Hear from educators, researchers and parents across Australia & New
Zealand helping children, teenagers and young adults with FASD navigate the
education system.
Read more
NationalFASD - FASD:
Preferred UK Language Guide
The National Organisation for FASD and Seashell are pleased to announce the
launch the new FASD: Preferred UK Language Guide produced through their
partnership project, “Resources and Training to Support Children and Young
People with FASD,” funded by the Department of Health.
Read more
DryMester - BIRTHDAY
TRAILER
Read more
Adoption Week
Scotland - A Conversation with Aubrey Page on FASD
Read more
PreventFASD.info - The Competition: Get Creative! You
will change lives
We are looking for creative ideas to prevent tens of thousands being born
each year in the UK with lifelong damage to their brains and bodies from
alcohol exposure in pregnancy. Get creative! Send us a video, a poster, a song,
a poem, an idea for a campaign. It’s time to make some noise!
Read more
CanFASD - Towards Healthy Outcomes for Individuals with
FASD
All human beings are motivated to experience purpose and success. It is not
enough to ‘get by’ in life, rather we must feel as though we are achieving
expectations set by us and others. People of all abilities need to feel as
though they have a purpose and that they are able to meaningfully contribute to
society.
Read more
COMING UP
Alcohol Forum, To Create & Inspire Change - Alcohol & The Rights of the Child -
Webinar 2
Join us looking at challenges for people with #FASD; their families; learn
about the impact that parental substance misuse can have on children.
Read more
Indiana NOFAS - Fetal
Alcohol Spectrum Disorder 101 – FASD 101
Are you a parent, caregiver, or service provider to a child who has trouble
seeing the connection between choices and consequences, has difficulty with
age-appropriate attentiveness, continues to make poor choices no matter how
much appropriate instruction they receive, and who struggles to hold it
together at even the smallest disruption of routine?
Read more
ABLE2 - FASD
Symposium Registration Information
The 2021 Symposium is a virtual event. Attendees will be able to participate
online (virtually) from home or office from all parts of Canada and the United
States.
Read more
RESEARCH
Alcoholism: Clinical and Experimental Research - Glutathione Protects the
Developing Heart from Defects and Global DNA Hypomethylation Induced by
Prenatal Alcohol Exposure
Fetal Alcohol Spectrum Disorder (FASD) is caused by prenatal alcohol
exposure (PAE), the intake of ethanol (C2H5OH) during pregnancy. Features of
FASD cover a range of structural and functional defects including congenital
heart defects (CHDs).
Read more
Brain Sciences - Sleep
and Cognition in Children with Fetal Alcohol Spectrum Disorders (FASD) and
Children with Autism Spectrum Disorders (ASD)
Children with Fetal Alcohol Spectrum Disorders (FASD) and Autism Spectrum
Disorders (ASD) experience significantly higher rates of sleep disturbances
than their typically developing peers.
Read more
Nutrients - Choline
Plus Working Memory Training Improves Prenatal Alcohol-Induced Deficits in
Cognitive Flexibility and Functional Connectivity in Adulthood in Rats
Fetal alcohol spectrum disorder (FASD) is the leading known cause of
intellectual disability, and may manifest as deficits in cognitive function,
including working memory. Working memory capacity and accuracy increases during
adolescence when neurons in the prefrontal cortex undergo refinement.
Read more
Drug and Alcohol
Dependence - The prevalence, child characteristics, and maternal risk
factors for the continuum of fetal alcohol spectrum disorders: A sixth
population-based study in the same South African community
Seventeen years after the first study in this community, FASD prevalence
remains high at 16% to 31%. The FAS rate may have declined somewhat, but rates
of PFAS and ARND seemed to plateau, at a high rate.
Read more
Scientific
reports - Hospitalizations and mortality among patients with fetal alcohol
spectrum disorders: a prospective study
With nearly 10% of women consuming alcohol during pregnancy, fetal alcohol
spectrum disorders (FASDs) are becoming an increasing concern for clinicians
and policymakers interested in the field of healthcare.
Read more
Birth Defects
Research - Examination of cortically projecting cholinergic neurons
following exercise and environmental intervention in a rodent model of fetal
alcohol spectrum disorders
We examined the cytoarchitectonics of cholinergic neurons in NBM and PFC in
adulthood following early postnatal AE and two interventions. We show that AE
reduces ChAT+ neuron number in NBM, and this is not mitigated by either
intervention.
Read more
Research Square -
Pregnant Women’s Knowledge About Alcohol Consumption During Pregnancy and
its Consequences: An Israeli Survey
A high percentage of pregnant women in Israel drank alcohol close to conception
and during pregnancy. Although most of the woman ceased drinking after
realizing they were pregnant, a still-worrying percentage continued consuming
alcohol and had low knowledge and awareness of the plausible dangers of this
behavior.
Read more
Alcoholism:
Clinical and Experimental Research - Altered Resting‐State Neural
Oscillations and Spectral Power in Children with Fetal Alcohol Spectrum
Disorder
Our results were consistent with previous studies and provide new insight
into resting‐state oscillatory differences both between children with FAS and
TDC, and within FASD subgroups.
Read more
Nelson Mandela
University - Awareness, knowledge and practices with regards to alcohol use
of pregnant women in the Missionvale area
South African statistics, when compared to global statistics, has an
above-average occurrence of Fetal Alcohol Spectrum Disorder(FASD). Alcohol use
during pregnancy is on the rise globally and has far-reaching consequences.
Read more
Clinical Oral
Investigations - The oral health status and treatment needs of children with
fetal alcohol spectrum disorder
Children with FASD may be at a higher risk for poor oral health outcomes
and have more extensive treatment needs. Our results indicate that they may
also be at a higher risk for treatment under GA.
Read more
Drugs: Education,
Prevention and Policy - Is it FASD? And does it matter? Swedish perspectives
on diagnosing fetal alcohol spectrum disorders
Fetal alcohol spectrum disorders (FASD) is an umbrella term covering a
range of conditions related to prenatal alcohol exposure. In Sweden, only the
most severe of these conditions, Fetal alcohol syndrome (FAS), is used as a
medical diagnosis.
Read more
Alcoholism:
Clinical and Experimental Research - Prevention of Alcohol‐Exposed
Pregnancies and Fetal Alcohol Spectrum Disorder Among Pregnant and Postpartum
Women: A Systematic Review
The current review identified variable results from available interventions
to prevent alcohol use among pregnant and postpartum women.
Read more
Alcoholism:
Clinical and Experiment Research - A Systematic Review of Interventions to
Improve Mental Health and Substance Use Outcomes for Individuals with Prenatal
Alcohol Exposure and Fetal Alcohol Spectrum Disorder
Combined, these studies provide preliminary and emerging evidence for a
range of intervention approaches that may support positive outcomes for
individuals with FASD across the life course.
Read more
Neuropsychiatrie -
Challenge abstinence-a case report and overview on therapy of alcohol
dependence during pregnancy
The potentially deleterious and teratogen effects of alcohol consumption
during pregnancy are an important medical as well as socio-economic topic.
Read more
Am Psychiatric
Assoc - Considering Prenatal Alcohol Exposure in a Developmental Origins of
Health and Disease Framework
Although alcohol is considered a teratogen, there is a lack of clarity
about the nature of the association between prenatal alcohol exposure,
particularly low-level exposure, and offspring development in part because of
the potential for unmeasured factors to play a role.
Read more
Alcoholism:
Clinical and Experimental Research - Glutathione Protects the Developing
Heart from Defects and Global DNA Hypomethylation Induced by Prenatal Alcohol
Exposure
GSH supplementation shows promise to inhibit effects of PAE by improving
survival, reducing the incidence of morphological defects including CHDs, and
preventing global hypomethylation of DNA in heart tissues.
Read more
npj Primary Care
Respiratory Medicine - Smoke and Alcohol Free with EHealth and Rewards
(SAFER) pregnancy study: a before−after study protocol
The primary outcome measure is cessation of smoking and/or alcohol use at
34−38 weeks of gestation, or after six group sessions if women did not become
pregnant during the study period. Secondary outcomes focus on the barriers and
facilitators for implementation of the SAFER pregnancy intervention.
Read more
Alcoholism:
Clinical and Experimental Research - Prevention of Alcohol‐Exposed
Pregnancies and Fetal Alcohol Spectrum Disorder Among Pregnant and Postpartum
Women: A Systematic Review
The current review identified variable results from available interventions
to prevent alcohol use among pregnant and postpartum women. Preliminary
evidence demonstrated that BIs may be effective among subgroups of pregnant women
with higher initial alcohol consumption, those with partner involvement, and
those who used alcohol and other substances concurrently.
Read more
J Korean Soc
Matern Child Health. - Analysis of Drinking Related to Health Behaviors
during Pregnancy: Focus on Community Health Survey Data
Several factors are associated with drinking during pregnancy. To improve
health promotion during pregnancy, alcohol prevention programs should be
developed that consider one’s socioeconomic status and health behaviors.
Read more
The American
Journal of Drug and Alcohol Abuse - Alcohol messages disseminated to
pregnant women by midwives
Concerted efforts are needed to ensure information disseminated aligns with
health guidelines and encourages abstinence during pregnancy.
Read more
Journal of Fetal
Alcohol Spectrum Risk and Prevention - Health Professionals are the
Preferred Source of Information on Alcohol Use in Pregnancy for Australian
Women: A National Survey
We identified where Australian women obtained information about alcohol
during pregnancy, their preferred sources of information, and their perceptions
of the role of health professionals in providing information.
Read more
Health Economics
- Pregnancy persistently reduces alcohol purchases: Causal evidence from
scanner data
We analyze household‐level changes in alcohol consumption in response to
pregnancy. Using scanner data, we identify households with a pregnant household
member.
Read more
Research in
Developmental Disabilities - Yarning about fetal alcohol spectrum disorder:
Outcomes of a community-based workshop
The current study identified key learnings from workshop facilitators and
participants. The findings call attention to the importance of a co-design
approach, where collaboration is vital to support the appropriate adaption of
evidence-based practice to suit the local context.
Read more
