Nunatsiaq News (Canada) - We can’t
determine FASD prevalence, Nunavut government says
The Government of
Nunavut still can’t generate numbers on the prevalence of FASD
within the territory’s population, a spokesperson for the GN’s
Department of Health told Nunatsiaq News this week.
The BMJ (Scotland)
- NICE plans new standard for fetal alcohol disorders
A quality standard
on fetal alcohol disorders is set to be developed by the National
Institute for Health and Care Excellence (NICE). The announcement
came as a charity’s report showed that clinical commissioning
groups are failing to commission services for people with
neurodevelopmental disorders arising from exposure to alcohol in the
womb.
The BMJ (Scotland)
- NICE plans new standard for fetal alcohol disorders
Alcohol during
pregnancy, the commonest cause of preventable mental impairment in
Western countries, is enduringly underestimated, although not by the
National Organisation for Foetal Alcohol Syndrome-UK.
Calgary Herald
(Canada) - Opinion: Pushing progress for treating fetal alcohol
spectrum disorder
Recently, the
Calgary Herald published an important series on the realities facing
individuals with fetal alcohol spectrum disorder. This series,
researched and written by Vanessa Hrvatin, shone a light on a
developmental disability that affects over a million Canadians, and
yet is often overlooked, misdiagnosed and misunderstood.
Stuff.co.nz (New
Zealand) - Beautiful tributes at funeral of FASD sufferer who died
in mental health unit
Last week, a young
man living with Fetal Alcohol Spectrum Disorder is suspected of
committing suicide at a mental health unit despite red flags being
raised with staff. His foster parents are angry with the government,
and are calling for change. Matthew Rosenberg reports.
The Swaddle - Kids
Exposed In Utero to Alcohol Show Altered Brain Structure Years Later
A new study has
found that teenagers who were exposed to alcohol while in the womb
showed altered brain connections that impair their cognitive
performance.
Bury Times (UK) -
1,000 children a year brain damaged by alcohol in the womb in
Greater Manchester
A THOUSAND
children are born a year with brain damage in Greater Manchester
because their mums drank while expecting – now health bosses have
launched a pilot to end the "hidden epidemic".
Rochdale Online
(UK) - Campaign launched to prevent unborn children being harmed
by alcohol
A new initiative
is being launched in Greater Manchester to prevent children being
left with life-long health problems because of the effects alcohol
can have during pregnancy.
UPCOMING
Konferencja "FASD - wiele
aspektów, wielu specjalistów, wspólne cele" (September 9-10,
2019
Poland)
Mamy zaszczyt
zaprosić na bezpłatną ogólnopolską konferencję naukową „FASD
- wiele aspektów, wielu specjalistów, wspólne cele”, która
odbędzie się w Krakowie 9 i 10 września. Organizatorem jest
Wojewódzki Specjalistyczny Szpital Dziecięcy im. św. Ludwika w
Krakowie. Konferencja realizowana ze środków Narodowego Programu
Zdrowia na lata 2016-2020.
EYPD -
Understanding Fetal Alcohol Spectrum Disorder –Strategies for
Success (Sep 7, 2019 Vancouver, Canada)
This presentation
contains a general overview of the cause of FASD, its primary and
secondary characteristics, and possible advantages of early diagnosis
and intervention.
VIDEOS and
MATERIALS
GMHSC Partnership
- Go alcohol free, no risk of FASD #DRYMESTER
More than 1,000
children are born each year in Greater Manchester with Foetal Alcohol
Spectrum Disorder, having been exposed to alcohol in the womb.
AlcoholFreePregnancy
- NOFAS Mourns the Passing of Circle of Hope “Warrior Mom”
LaShaunda Harris
NOFAS is saddened
to report that the Washington state coordinator of the NOFAS Circle
of Hope, LaShaunda Harris, recently passed away.
LetsTalkFASDak -
FASD: This could happen to any of us
What FASDs are,
who they affect, how common FASDs are in Alaska and how to prevent
them.
Coast to Coast
Events - Living with Fetal Alcohol Syndrome
Bridgeway Family
Homes - FASD Treatment Homes Pt 2 November 2018
Bridgeway
In-Service Training with Amanda Alton-Rawn
Addiction Centre -
Pregnant Women and Alcohol
A pregnant
mother’s excessive drinking can cause her child severe health
problems that follow him or her into adulthood.
Manitoba FASD
Coalition - Changing the Conversation: the 2019 CNFASD Partnership
Symposium Final Report has arrived!
Take a look at the
2019 CNFASD Partnership Symposium Final Report HERE!
RESEARCH
SFU - Family
Navigation as a Model of Care: Moving Beyond the Barriers
This capstone
explores the disability landscape in British Columbia, Canada through
a Fetal Alcohol Spectrum Disorder (FASD) lens mapping out why a
Family Navigation model of care could facilitate access to and
potential development of needed resources and services for families
with children with FASD.
Journal of family
nursing - “I’m Doing My Part, I Just Need Help From the
Community”: Intervention Implications of Foster and Adoptive
Parents’ Experiences Raising Children and Young Adults With FASD
Individuals with
fetal alcohol spectrum disorders (FASD) have high rates of health
care service utilization. It is vital that health care professionals
understand FASD and associated family experiences to strengthen their
ability to respond to family needs and tailor family-focused
interventions.
Current Opinion in
Psychiatry - Recent advances in fetal alcohol spectrum disorder
for mental health professionals
Developments in
genetics, epigenetics, imaging, and interventions are relevant to the
current knowledge of FASD. MHP are encouraged to recognize the
importance of understanding unique considerations for this
population, including forensic implications and the whole-body
impacts of FASD, which could assist in reducing stigma and improving
quality of care.
Archives of
Disease in Childhood - G215(P) Identifying facial features
associated with prenatal alcohol exposure in newborn infants using 2D
and 3D imaging
To compare 2D and
3D photography using computerised analysis for earlier detection of
craniofacial changes in newborn infants with and without prenatal
alcohol exposure.
Alcoholism:
Clinical and Experimental Research - Global DNA Methylation and
Histone Posttranslational Modifications in Human and Nonhuman Primate
Brain in Association with Prenatal Alcohol Exposure
Based upon
experimental animal studies, the neurodevelopmental abnormalities
associated with prenatal alcohol exposure (PNAE)/fetal alcohol
spectrum disorder (FASD) have been attributed, at least in part, to
epigenetic modifications.
University of
Brighton - Prenatal alcohol exposure, biomarkers and fetal alcohol
spectrum disorders
Fetal Alcohol
Spectrum Disorders (FASD) is the term used to describe
neurobehavioral disorders associated with prenatal alcohol exposure
ranging from the most severe Fetal alcohol syndrome (FAS) with facial
dysmorphology, through partial Fetal alcohol syndrome (pFAS) to
alcohol-related birth defects (ARBD).
International
Journal of Environmental Research and Public Health - Community
Perceptions of Alcohol Exposed Pregnancy Prevention Program for
American Indian and Alaska Native Teens
A community needs
assessment during a tribally-led Changing High-Risk Alcohol Use and
Increasing Contraception Effectiveness Study (CHOICES) intervention
highlighted the need to reduce the risk for alcohol exposed pregnancy
(AEP) among American Indian and Alaska Native (AIAN) adolescent
girls.
BMC Pediatrics -
Prenatal alcohol exposure and infant gross motor development: a
prospective cohort study
We found no
evidence to suggest that low PAE is associated with measurable
impairment in infant GM development at 12-months. Further research is
needed to examine potential PAE impacts on GM development in heavier
exposure groups and through the childhood years when subtle GM
deficits may be more detectable.
International
journal of Environmental Research and Public Health - Partnering
with the Health Professions to Promote Prevention of an
Alcohol-Exposed Pregnancy: Lessons Learned from an
Academic–Organizational Collaborative
Evidence-based
strategies exist to train healthcare professionals to ask their
patients and clients about alcohol use, and are successful.
Implementation of these strategies utilizing a system-level approach
has not been conducted nationwide.
Alcohol - Maternal
Choline Supplementation Mitigates Alcohol-Induced Fetal Cranio-Facial
Abnormalities Detected Using an Ultrasonographic Examination in A
Sheep Model
Early detection of
prenatal alcohol exposure is critical for designing and testing
effectiveness of interventional therapeutics. Choline supplementation
during and after prenatal alcohol exposure has shown promising
benefits in improving outcomes in rodent models and clinical studies.
Brain research -
Glucocorticoid receptor expression in the stress-limbic circuitry
is differentially affected by prenatal alcohol exposure and
adolescent stress
The dense
expression of glucocorticoid receptors (GR) within the amygdala,
medial prefrontal cortex (mPFC) and paraventricular nucleus of
hypothalamus (PVN) mediates many aspect of emotional and stress
regulation.
Archives of
Disease in Childhood - G195 Novel techniques for the analysis of
face-brain morphology in babies and adolescents with prenatal alcohol
exposure (PNAE)
Identifying facial
dymorphia, structural brain anomalies and the relations between them
and cognition is important as it could ultimately help determine the
extent of neuro-structural damage caused by in utero alcohol
exposure, allowing identification of risk groups and improving
earlier diagnosis.
Archives of
Disease in Childhood - G194 Identifying the pattern and
prevalence of alcohol consumption in pregnancy
Alcohol
consumption in pregnancy has adverse consequences for the developing
fetus, but is typically under-reported. Measuring alcohol metabolites
in infant meconium has potential to identify prenatal alcohol
exposure; local pilot data indicated an incidence of significant
alcohol consumption in pregnancy of 15%.
University of
Western Australia - Young people in detention in Western
Australia: An examination of motor skills and the effect of prenatal
alcohol exposure
This thesis
assessed and characterised the motor performance of young people with
a suspected high prevalence of Prenatal Alcohol Exposure (PAE) and
Fetal Alcohol Spectrum Disorder (FASO) residing in a Western
Australian youth detention centre.
IN OTHER LANGUAGES
Terre Marsicane
(Italy) - Alcol in gravidanza. Un fattore di rischio per lo
sviluppo della FAS
Durante la
gravidanza, se la gestante abusa di bevande alcoliche, nel feto può
svilupparsi la malattia nota come Fetal Alcohol Syndrome, ovvero la
sindrome alcolica fetale (FAS) caratterizzata da numerose anomalie
fisiche, mentali e comportamentali.
Casteddu on Line
(Italy) - Fetopatia alcolica, la legge rimasta lettera morta in
Sardegna. Il M5s: 40mila sardi alcolisti, tante donne
In Sardegna si
contano (dati Istati 2010) circa 40.000 alcolisti, di cui la metà
sono donne per la maggior parte in età fertile. Sono circa 650 gli
aborti da abuso alcolico non diagnosticati definiti spontanei nelle
cartelle ospedaliere e 65 le fetopatie alcoliche caratterizzate da
sindromi fenotipiche variabili e ritardo mentale grave.
theseus.fi
(Finland) – FASD-OIREYHTYMÄ Opas Rovaniemen neuvoloiden
odottaville äideille
FASD tarkoittaa
sikiöaikaisen alkoholialtistuksen oireyhtymiä. FASD sisältää
neljä eri diagnoosia, joissa kaikissa on omat oireensa.
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