Sunday, September 23, 2018

FASD News - 38/2018

ABC News (Australia) - Thousands of children with Fetal Alcohol Spectrum Disorder miss out on NDIS funding due to lack of diagnosis
Thousands of children with Fetal Alcohol Spectrum Disorder (FASD) are missing out on National Disability Insurance Scheme (NDIS) funding because there are so few specialists who can diagnose and assess the impact of the disorder.
AAP News (USA) - Managing patients with FASD: New report offers clinical guidance
“I did not know alcohol could harm his brain while his mom was pregnant.”
Those are the words of a father unaware that alcohol is a known teratogen and that prenatal alcohol exposure is the etiology of the most common preventable cause of intellectual disability and developmental delay in the U.S.
ScienceBlog.com - Maternal Cytokine Balance May Play Role in FASD Risk
A study done in conjunction with the Collaborative Initiative on Fetal Alcohol Spectrum Disorders (CIFASD), which is supported by the National Institute on Alcohol Abuse and Alcoholism, reports that disruptions in levels of certain immune system molecules during pregnancy can alter the risk for fetal alcohol spectrum disorders (FASD).
The Sunday Post - Adoptive parents of child with “substantial health issues” believe they were kept in dark by doctors
A TEACHER has told how she fought to get doctors to diagnose her son’s medical condition that, she believes, they had known about for years.
PerthNow (Australia) - Former chief justice Wayne Martin calls for new policy on foetal alcohol spectrum disorder
FORMER chief justice Wayne Martin will today spearhead a call for the State Government to change its policy and the law surrounding those afflicted by foetal alcohol spectrum disorder.
SBS (Australia) - Doctors urged to quiz pregnant women about drinking habits
Doctors are being urged to ask pregnant women tough questions about their alcohol consumption as part of efforts to reduce the number of children born with Fetal Alcohol Spectrum Disorder (FASD).
HSC Newsbeat (USA) - One Drink is Too Many
You’ve probably heard that having a few alcoholic drinks while pregnant won’t harm the baby – you could have heard it from your parents, your friends or even a doctor. This is an all-too-common notion that researchers participating in Fetal Alcohol Spectrum Disorders (FASD) Awareness Month are hoping to eliminate.
Express.co.uk (UK) - Tragic child victims of the mothers-to-be who drink
A TEAM of top experts are to tackle foetal alcohol syndrome, as a shock study reveals up to a quarter of children in care suffer irreversible damage because their mothers drank during pregnancy. The Department of Health advisory panel is to be launched this week and will be chaired by deputy chief medical officer Professor Jonathan Van-Tam.
Alex News (South Africa) - Alcohol abuse worsens prospects for country’s babies
South Africa’s image has been dented by the recent release of the country’s high Fetal Alcohol Syndrome Disorder (Fasd) statistics.
News24 (South Africa) - Educating the world about FAS
This is the message that Vivien Lourens, founder of the FAS Information Centre, wants to sends out into the world.
702 - The face of foetal alcohol syndrome
Former 702 producer and now executive producer at the Full View Megan Lubke has been dubbed journalist of the year at the South African Breweries Responsible Drinking Awards for her radio documentary on foetal alcohol syndrome and the problem of substance abuse in Eldorado Park.
Joburg (South Africa) - JOBURG DECLARES WAR ON FETAL ALCOHOL SPECTRUM DISORDER
If South Africa does not do anything, the country will soon be faced with a huge foetal alcohol spectrum disorder. The country has the highest prevalence of foetal alcohol spectrum disorder in the world, more than 14 times the global average.
The Connexion (France) - Minister wants larger ‘no alcohol when pregnant’ logo
Health minister Agnès Buzyn has called for a larger “no alcohol when pregnant” warning logo on alcohol bottles in France, sparking criticism from producers who say it gives a bad impression of their products.
SowetanLIVE Sunday World (South Africa) - Soweto woman regrets drinking heavily during pregnancy
A Soweto woman regrets drinking heavily during pregnancy after her daughter was born with an intellectual disability.
All4Women (South Africa) - “Women who drink alcohol while pregnant should be arrested” – Bogopane-Zulu
Women who consume alcohol during pregnancy, causing Foetal Alcohol Syndrome (FAS) on unborn babies, should be sent to jail, Deputy Minister of Social Development Hendrietta Bogopane-Zulu said on Friday.
Missoula Current - Community, St. Pat’s to develop program for pregnant women fighting substance use
The number of children removed from their parents’ care in Missoula County has doubled over the last five years, a problem some experts trace to perinatal opioid exposure and other substance abuse disorders.
ADF (Australia) - Creating equity for young people living with FASD
To acknowledge the nine months of pregnancy, Fetal Alcohol Spectrum Disorder (FASD) Day is held on 9 September every year. This is a time to raise awareness of the spectrum of neurological conditions that may occur due to fetal alcohol exposure.
The Intelligencer (Canada) - Learning more about FASD
The effort to create a better local understanding of fetal alcohol spectrum disorder took another big step Wednesday as parents, clinicians and others held a workshop in Belleville.
Pediatric News - How to screen for, manage FASD in a medical home
Fetal alcohol spectrum disorder should be screened for, diagnosed, and managed in an integrated pediatric medical home, providing early intervention and accessing community resources, according to a clinical report from the American Academy of Pediatrics.
ADLS (New Zealand) - FASD and the criminal justice system
Fetal Alcohol Spectrum Disorder (FASD) is an invisible neurodisability with implications for ascertaining criminal responsibility, participation, false confessions and Family Court resolutions.
Read more
DrinkTank (Australia) - FASD and the two questions on everyone’s lips! Can we answer them?
Discussions about Fetal Alcohol Spectrum Disorder (FASD), disabilities caused by prenatal alcohol exposure, always prompt two questions.
The WIRE - CHILDREN WITH FASD MISSING OUT ON THE NDIS
Families who have children with Fetal Alcohol Spectrum Disorder (FASD) have expressed concern that they are missing out on receiving funding from the National Disability Insurance Scheme (NDIS).
Read more
NordAN (Sweden) - Katarina Wittgard: Slowly but surely it’s getting better
September is FASD (Fetal Alcohol Spectrum Disorders) Awareness Month and September 9 is global FASD Awareness Day. We turned to Katarina Wittgard, who is the leader of FAS-föreningen in Sweden, to ask about their work in Sweden and the situation in other countries in our region.
NordAN (Scotland) - Dr Jonathan Sher: “Weak action around FASD is an international phenomenon”
We spoke with Dr Jonathan Sher who has long been an advocate for action on FASD in Scotland, the rest of the UK and internationally. He was an Independent Consultant based in Edinburgh at the time of writing the co-authored article mentioned below.


VIDEOS and MATERIALS
CENTRAL OKANAGAN SCHOOL DISTRICT 23 - EDUCATION MODULE: FETAL ALCOHOL SPECTRUM DISORDER (FASD)
It is our vision to equip young people with up-to-date evidence that will keep them and others safe by increasing their individual and collective capacities for healthy decisionmaking in relation to alcohol consumption, safe sexual practices, and pregnancy.
ChatNews Today - Mocktails for Moms raising awareness for FASD
Each year it's estimated that four out of every 100 babies in Canada are affected by Fetal Alcohol Spectrum Disorder. There is still no cure for FASD.
LetsTalkFASDak - FASD: Missing the Signs
It is possible that 5% of Alaska's population is affected by FASDs. Marilyn Pierce-Bulger, CNM discusses the impact that early diagnosis and intervention can have on improving outcomes for affected individuals and how that benefits the state.
FASD Network of Saskatchewan - FASD Q&A Video #1
To continue our Question & Answer event for International FASD Awareness Day we're answering the questions you send in online!
SABC Digital News - DISCUSSION: Adverse effects of alcohol consumption during pregnancy
On Sunday the nation observed the National Foetal Alcohol Syndrome Day. The day aims to re-inforce messages about the risk of drinking alcohol during pregnancy and to encourage early prevention of foetal alcohol syndrome.
Illuminate Colorado - PASS IT ON 2018
September is FASD Awareness Month, and Illuminate is excited to share what we have planned! Help us Pass It On by sharing this information with your networks and communities.

RESEARCH
International Journal of Population Data Science - Data Byte: An Insight on Fetal Alcohol Spectrum Disorder and Educational Achievement
Data Bytes are bite-sized pieces of data from the longitudinal project, Experiences of Alberta Children and Youth Over Time, 2005-06 to 2010-11. To promote public engagement, the Data Byte series is designed to highlight a finding from a full report to give readers a quick data morsel to chew on.
International Journal of Population Data Science - Education and social service use patterns of children and youth with neurodevelopmental disorders
This study uses linked administrative data to identify Albertan children and youth (aged 0 to 25 years) with Autism Spectrum Disorder (ASD), Cerebral Palsy (CP) or Fetal Alcohol Spectrum Disorder (FASD), and to examine their government service use patterns from 2005/06 to 2010/11.
International Journal of Population Data Science - Prenatal care of women who give birth to Children with Fetal Alcohol Spectrum Disorder in a universal health care system: A retrospective cohort study utilizing linkable administrative data
Results represent opportunity for screening and brief intervention programs to be delivered in PNC health care settings, as well as outreach programs to facilitate the uptake of PNC among high risk women.
Birth defects research - The past, present, and future of fetal alcohol spectrum disorder work in Newfoundland and Labrador: A landscape paper for change
In this paper, we provide an overview of best practices in FASD prevention, diagnostic, and interventions and supports. In Canada, people diagnosed with Fetal Alcohol Spectrum Disorder (FASD) represent a fraction people living with FASD.
University of New Mexico - The effects of prenatal alcohol exposure on the resting state functional brain connectivity in a sample of individuals with fetal alcohol spectrum disorder
It is well established that alcohol exposure during prenatal development can lead to a heterogeneous and wide ranging set of morphological and neurobehavioral deficits that are collectively known as Fetal Alcohol Spectrum Disorders (FASDs).
Pediatrics - The Role of Integrated Care in a Medical Home for Patients With a Fetal Alcohol Spectrum Disorder
Fetal alcohol spectrum disorder (FASD) is an umbrella term used to describe preventable birth defects and intellectual and/or developmental disabilities resulting from prenatal alcohol exposure.
International Journal of Developmental Neuroscience - A review of interventions against fetal alcohol spectrum disorder targeting oxidative stress
Fetal alcohol spectrum disorder is caused by maternal ethanol exposure; it causes physical, behavioral, cognitive, and neural impairments (Murawski et al., 2015).
Western Michigan University - Language Profiles of Children Who Have Experienced Complex Trauma and Fetal Alcohol Spectrum Disorders
Children who experience maltreatment and children with Fetal Alcohol Spectrum Disorders (FASD) have similar neurological differences and are at risk for language impairments.
UC Riverside Electronic Theses and Dissertations - Neurobiological Effects of Prenatal Ethanol Exposure and Perceived Safety of Ethanol Consumption During Pregnancy
The final study of this dissertation assesses the general perception of safe dietary behavior during pregnancy including alcohol. Responses demonstrated a lack of understanding about the danger of items containing teratogens like BPA, mercury and prescription pain medications and revealed a misconception about the safety of periodic wine drinking throughout pregnancy.

IN OTHER LANGUAGES
PortalSpozywczy.pl (Poland) - W Łodzi rozpoczęła się kampania o płodowych zaburzeniach alkoholowych
Edukacja społeczeństwa na temat Spektrum Płodowych Zaburzeń Alkoholowych (FASD) to cel kampanii rozpoczętej w poniedziałek przez samorząd woj. łódzkiego. W promowanie idei zachowania abstynencji przez kobiety w ciąży włączyli się m.in. naukowcy i blogerzy.
Fundacja FAScynujący Świat Dziecka (Poland) - Fetal Alcohol Syndrome – FAS
Problems may include an abnormal appearance, short height, low body weight, small head size, poor coordination, low intelligence, behavior problems, and problems with hearing or seeing. Those affected are more likely to have trouble in school, legal problems, participate in high-risk behaviors, and have trouble with alcohol or other drugs.

No comments: