The Conversation (Canada) -
People with
Fetal Alcohol Spectrum Disorder face a heightened risk of homelessness
Canada is in the midst of a housing crisis. A systematic failure to provide
decent and affordable housing means far too many people are ending up homeless.
Rigid and unresponsive policies perpetuate adversity and fuel stigma that
places blame on the individual.
Read more
NZ Herald (New Zealand) - 1 in 10 Far North
children could be affected by fetal alcohol spectrum disorder
As many as one in 10 Far North children could be affected by fetal alcohol
spectrum disorder, which can lead to lifelong learning and social difficulties.
Read more
BBC (UK) - 'Art saved my life' - teen's joy
at book of paintings
A teenage artist born with foetal alcohol spectrum disorder (FASD) has
published a book of his work to help others struggling with the condition.
Read more
UofLNews (USA) - UofL researchers studying
specific causes of fetal alcohol syndrome
University of Louisville researchers have secured $2.3 million from the
National Institutes of Health to study how genetics may increase the risk of
Fetal Alcohol Spectrum Disorders (FASD) in infants — and, what may help lower
that risk.
Read more
NZ Doctor (New Zealand) - Ministerial
announcement on Fetal Alcohol Spectrum Disorder (FASD)
On 25th September the Minister for Health, Dr Shane Reti, announced new
initiatives relating to Fetal Alcohol Spectrum Disorder (FASD) at a symposium
in Tāmaki-Makaurau.
Read more
IOL (South Africa) - Foetal Alcohol
Spectrum Disorder (FASD): There is no 'safe time' to consume alcohol during
pregnancy
Foetal Alcohol Spectrum Disorder (FASD) is a serious condition caused by
women drinking alcohol during pregnancy.
Read more
University of Bristol (UK) - Fetal Alcohol
Spectrum Disorder - the quest for a new UK database
To time with Fetal Alcohol Spectrum Disorder Awaress Month a team of
researchers at the University of Bristol have published a paper on Establishing
a national linked database for Fetal Alcohol Spectrum Disorder (FASD) in the
UK: multi-method public and professional involvement to determine acceptability
and feasibility.
Read more
FARE Australia (Australia) - From
Misdiagnosis to Understanding: Sharing our FASD story
As a mum of a kiddo with FASD, I have navigated the challenge of disclosing
my story, getting an accurate diagnosis and advocating for the support my son
needs.
Read more
FASD ONE - Adopting: Do You Know About
Fetal Alcohol Spectrum Disorder (FASD)?
Research has shown that the majority (80%) of children with FASD are not
raised by their biological parents, and are cared for by other family members
or by child welfare agencies.
Read more
Illuminate Colorado - The Key to FASD
Prevention is Education and Empathy
While it sounds simple that FASD can be prevented by refraining from
alcohol consumption during pregnancy, the challenge of actually preventing FASD
remains complex.
Read more
Kinsight - Breaking Stigma and Building
Connections: Reflections on International FASD Day
On a grey September morning, as a cool breeze cast a somber backdrop, Mary
and I set up our booth for an event marking International Fetal Alcohol
Spectrum Disorder (FASD) Awareness Day, September 9th, at Hyack Square in New Westminster.
Read more
VIDEOS and MATERIALS
The Scottish Parliament - Members' Business: Foetal Alcohol Spectrum
Disorder (FASD) Awareness Month - 26 September 2024
Read more
City of Cape Town - Living with Foetal
Alcohol Spectrum Disorder
A foster mom shares some insights into raising a teen with FASD.
Read more
University of Bristol - Improving the
clinical coding of fetal alcohol spectrum disorder (FASD)
A short video with guidance for diagnosing clinicians, general
practitioners and primary care teams to ensure timely and accurate coding of
fetal alcohol spectrum disorder using SNOMED CT systems.
Read more
The Arc of Indiana - FASD Awareness &
Interventions
Fetal Alcohol Spectrum Disorder (FASD) is one of the most prevalent
developmental disabilities that no one has ever heard of. It is estimated to
impact 1 in every 20 Americans.
Read more
Alaska Center for FASD - 8 Keys for Adults
with FASD
Seven adults with fetal alcohol spectrum disorders telling their stories,
challenges, strengths, and strategies for success.
Read more
National FASD - FASD Not Commissioned
Briefing
On 16 September 2024 The National Organisation for FASD held a briefing on
its new report, "Not Commissioned: Systemic Confusion in NHS Services for
alcohol, pregnancy and FASD."
Read more
FASD United (formerly NOFAS) - FASD United
Red Shoes Gala 2024 – Highlights
Read more
Health Nexus Santé - Towards Healthy
Outcomes for individuals with FASD (1.0)
Webinar on the guide 'Towards Healthy Outcomes for Individuals with FASD'.
Read more
Patricia Kasper, Your FASD Coach - Unmasking
False Confessions in FASD Cases
In this episode of Living with FASD, we welcome back Dr. Jerrod Brown to
discuss the critical issue of false confessions and their impact on individuals
with fetal alcohol spectrum disorders (FASD).
Read more
Human Development Center at LSU HSC - FASD
and Neurodiversity 101
With 1 in 20 children estimated to have Fetal Alcohol Spectrum Disorders
(FASD) in the United States, FASD isn't rare. It's everywhere.
Read more
FASD Hub Scotland and FASD Hub UK - Wednesday
Webinar with Harrison's Hope's Mary Byrnes
Read more
Turning Point - Maternal Alcohol Reduction
Interventions (MARI)
This presentation will give an overview of women’s alcohol use and harm
across the life course, discussing how the role of alcohol changes during
different life stages.
Read more
Rural FASD Support Network - Shannon Butt,
ALC Changemaker presents
In this tear-jerking presentation, Shannon blends FASD research with her
own living experience to introduce her Anchors program.
Read more
RESEARCH
The Journal of Pediatrics - Clinical Features of Typically Developing
Children With and Without Prenatal Alcohol Exposure
Even when meeting developmental norms, children with PAE exhibited trends
of poorer growth and cognitive/behavioral traits than children without PAE.
These findings support the notion that abstinence during pregnancy is best.
Read more
Quality in Sport - The Role of Physical Activity in the
Rehabilitation of Children with Fetal Alcohol Syndrome: Why It Should Be
Considered a Vital Part of Treatment
This literature review examines the pivotal role of physical activity in
the treatment and rehabilitation of children with Fetal Alcohol Syndrome (FAS).
Read more
Social Sciences - The
Invisible Struggle: Parents with FASD, the Courts and the Child Intervention
System
Parents with FASD who are involved in child intervention may be required to
participate in many programs simultaneously, potentially resulting in an
overwhelming experience.
Read more
Journal of
Intellectual & Developmental Disability - Knowledge, attitudes and
practices towards fetal alcohol spectrum disorder among healthcare workers in
New Zealand
Of the 96 participants, more than 90% self-reported a good or very good
understanding of FASD, and around half had a patient with FASD. However, less
than half felt prepared to support someone with FASD. Participants identified
lack of professional training, services, and funding as barriers to support
individuals with FASD.
Read more
Substance Use & Addiction
Journal - Multi-Level Approaches to Fetal Alcohol Spectrum Disorders
Prevention Education and Training for Health Professionals
FASD prevention education is wrought with a variety of challenges related
to stigma, discomfort, and misinformation, which these programs encountered in
a variety of ways.
Read more
Alcohol, Clinical and
Experimental Research - Exploring the intersection of polygenic risk scores
and prenatal alcohol exposure: Unraveling the mental health equation
Our findings highlight the specific interaction between increased genetic
risk for bipolar disorder and prenatal alcohol exposure in shaping offspring
mental health outcomes.
Read more
Journal of Affective Disorders
- Properties of the prefrontal tracts and cingulum bundle in children with
prenatal alcohol exposure
PAE may be weakly associated with restricted diffusion in the right
parahippocampal cingulum and multiple intra-frontal tracts. However,
diffusivity changes related to PAE might not be the primary contributor to
emotional and behavioural challenges in children and adolescents with PAE.
Read more
Substance Use & Addiction
Journal - Using Planned and Unplanned Adaptation to Implement Universal
Alcohol Screening and Brief Intervention to Prevent Alcohol-Exposed Pregnancies
in Four Primary Care Health Systems
Unplanned adaptations were observed across the 4 cases and emphasized the
importance of flexible, adaptive designs when implementing evidence-based
practice in dynamic settings.
Read more
Folia medica
Cracoviensia - Effects of Chronic Prenatal Alcohol Exposure on Nociceptive
Responses to Mechanical and Thermal Stimuli in Rats
The results of this study highlight a critical aspect of the harmful
systemic effects of alcohol, while also underscoring the need for further
research to elucidate the underlying mechanisms, including the role of the
hypothalamic-pituitary-adrenal axis and the serotonergic system in modulating
pain responses in individuals prenatally exposed to alcohol.
Read more
BMC pediatrics - Neurodevelopmental
outcome at two years of age and predictive value of General Movement Assessment
in infants exposed to alcohol and/or drugs during pregnancy: a prospective
cohort study
Neurodevelopmental outcome at two years of age was poorer in a group of
children exposed to alcohol and/or drugs in pregnancy compared with a control
group of healthy, unexposed children.
Read more
Drug and Alcohol
Review - Representations of ‘risky’ drinking during pregnancy on Mumsnet: A
discourse analysis
Forum users demonstrated a desire to adhere to ‘responsible motherhood’,
which did not equate to abstinence if consumption was perceived as acceptable
and justified.
Read more
