Monday, September 30, 2019

FASD News - 39/2019


STV News (Scotland) - I quit drinking when I learned about baby - but damage was done
Hellen Fernie stopped drinking as soon as she learned she was pregnant - but at 21 weeks the damage was already done.
University of Rochester - Alcohol during pregnancy—September is FASD awareness month
September marks fetal alcohol spectrum disorder (FASD) awareness month. Up to 80 percent of people affected by FASD don’t even know they have the disability.
CBC.ca (Canada) - Kwanlin Dün partners in program to help people with FASD in justice system
Yukon's Kwanlin Dün First Nation is partnering in a new program aimed at helping Indigenous people with fetal alcohol spectrum disorder (FASD) navigate the justice system.
Smithers Interior News - Book seeks to de-stigmatize FASD
A new book by a former Quick resident is shining a more positive light on the trauma of Fetal Alcohol Spectrum Disorder (FASD).
Gisborne Herald (New Zealand) - FASD ‘one of the great crises of our time’
History will judge us harshly on the under- diagnosis of children born with fetal alcohol spectrum disorder (FASD) in New Zealand, predicts Children’s Commissioner Judge Andrew Becroft.
Newsroom (New Zealand) - Courts no place for fetal alcohol victims
People with fetal alcohol syndrome are still being punished by the criminal justice system, despite the Teina Pora case, writes Emma Espiner.
Irish Times (Ireland) - No amount of alcohol is safe for a baby at any stage of pregnancy, HSE warns
No amount of alcohol is safe for a baby at any stage of pregnancy, the Health Service Executive has warned.
Particle - PROFESSOR CAROL BOWER: PUTTING THE FOLATE IN YOUR BREAD
If you eat Australian bread you can thank Carol and her team for the extra folate in your diet. In the early 1990’s, Carol’s research with the Telethon Kids Institute found a direct link between folate and the prevention of neural tube defects in babies.
Modern Ghana (Ghana) - It’s FASD Month: Is Alcohol Use A Public Health Concern In Ghana?
According to the New Zealand Health Promotion Agency, alcohol could basically be described as the ingredient found in beer, wine and spirits that causes drunkenness.
Parent24 (South Africa) - Why alcohol remains a big threat to unborn babies in South Africa
Alcohol consumption is socially acceptable for individuals of legal drinking age. However, drinking during pregnancy is harmful and can lead to irreversible foetal cognitive and developmental issues.
Healthcare Triage - Drinking Alcohol During Pregnancy
Our approach to alcohol and pregnancy is full of good intentions, but may lead to more harm than good. Punitive policies can dissuade women from getting prenatal care, which runs counter to the overall goal of healthier mothers and infants.
ADF (Australia) - Victorian research leads in FASD prevention
The prevalence of FASD in Australia is not well understood, but is thought to be higher than previously estimated.3 There is some data to suggest that it affects between 3% to 5% of Australians and it occurs wherever alcohol is consumed, impacting people across socio-economic, racial and education boundaries.
The Conversation (UK) - Alcohol advice for pregnant women – a lost opportunity to communicate new guidelines
Pregnant women in the UK are now officially advised to consume no alcohol at all. These guidelines, from the Chief Medical Officer (CMO), were issued in January 2016, and replaced a previous recommendation that women should limit themselves to one or two units of alcohol, once or twice per week, and not get drunk.
Scheffield News (UK) - Lindsey talks about the dangers of drinking during pregnancy
As part of International Foetal Alcohol Spectrum Disorder (FASD) awareness day, Sheffield City Council is highlighting the effects of drinking alcohol whilst pregnant.
Nursing in Practice (UK) - 'Mixed messaging' around drinking alcohol while pregnant, says RCM
The Royal College of Midwives has warned of ‘mixed messaging’ after a study revealed that midwives are giving different advice around alcohol consumption during pregnancy.

VIDEOS and MATERIALS
FAS-Föreningen – One in a Hundred
Just in time for 9/9 -19 the Swedish FAS-föreningen launched the campaign www.1av100.se (one in a hundred). The campaign targeted all child healthcare units (BVC) in Sweden.
IAS - Alcohol guidelines for pregnant women
Alcohol exposure during pregnancy can have negative maternal and infant outcomes. Due to a lack of clear evidence of a ‘safe’ threshold for alcohol consumption during pregnancy, the UK Chief Medical Officers (CMOs) revised their guidance in 2016 to advise pregnant women to abstain completely from alcohol.
Michelle Ferreri - Brook Parcel's Story of Living With FASD: Fetal Alcohol Spectrum Disorder
Brook Parcels is 15 years old and shares her powerful story of how your decisions impact an unborn baby.
TheBrilliantEye - Reinier's 12 Minute Chat re: Being On The FASD Spectrum - for Sept 9th, 2019
Lots of talking here. But hopefully some good info and a healthy perspective from INSIDE the FASD bubble.
FASD Network of Saskatchewan - Community FASD Presentation
Here's a condensed version of the FASD Network's Community Presentation on Fetal Alcohol Spectrum Disorder.
KSNV News 3 Las Vegas - Renewed warning to pregnant women: Don't drink
According to UNLV’s School of Medicine, despite years of warnings about the risks associated with drinking while pregnant, doctors across Southern Nevada are still reporting high rates of FASD, Fetal Alcohol Spectrum Disorder
Bang Up Productions - 18th Annual FASD Walk for Awareness with MACSI
thedtiSouthAfrica - Deputy Minister Gina delivers Sobriety week Keynote Address
Deputy Minister Gina Calls on Liquor Industry to Enhance Awareness on Dangers of Consuming Alcohol While Pregnant and on Alcohol Abuse.
Adopt4LifeON - Adopt4Life Webinars: Raising Kids & Youth with FASD—Mental Health Matters
When you’re raising kids and youth with FASD, mental health matters. Young people with FASD frequently have experienced early developmental trauma, and often struggle with ongoing anxiety and depression.
RepMurt - Murt Remarks On Fetal Alcohol Syndrome
State Rep. Tom Murt comments about Fetal Alcohol Spectrum Disorder and the dangers women present to their unborn children by drinking alcohol while pregnant, also stating that FASD is 100% preventable.
The Florida Center For Early Childhood - 3 Major Ways Alcohol Interferes with a Baby's Growth
FASD-related disorders last a lifetime. An estimated 40,000 babies are born each year with FASDs, which can result in birth defects, intellectual or learning disabilities, behavioral problems and trouble learning life skills.
AlcoholThinkAgain - Fetal Alcohol Spectrum Disorder (FASD) Television/Cinema Commercial
Fetal Alcohol Spectrum Disorder (FASD) is the term used to describe the lifelong physical and/or neurodevelopmental impairments that can result from fetal alcohol exposure.

RESEARCH
Journal of Vocational Rehabilitiation - Understanding employment success in adults with fetal alcohol spectrum disorder
Individuals with Fetal Alcohol Spectrum Disorder (FASD) often face employment-related challenges due to cognitive, physical, and behavioural difficulties, however there are adults with FASD who have positive employment experiences.
University of Delaware - THE IMPACT OF NEONATAL ALCOHOL EXPOSURE AND VOLUNTARY EXERCISE ON CHOLINERGIC FIBER LENGTH AND CG2 VOLUME IN THE RAT MEDIAL PREFRONTAL CORTEX
Prenatal alcohol exposure is known to cause chronic behavioral impairment and neurocognitive deficits diagnosed as Fetal Alcohol Spectrum Disorders (FASD). With a prevalence of one in every twenty children affected by prenatal alcohol exposure in the United States, FASD remains a serious public health concern.
The Journal of Maternal-Fetal & Neonatal Medicine - Effects of gestational thiamine-deprivation and/or exposure to ethanol on crucial offspring rat brain enzyme activities
Our findings provide a preliminary characterization of important neurochemical effects due to maternal exposure to EtOH and TDD during gestation that might affect the offspring rat neurodevelopment, and that characterization should be further explored in a brain region-specific manner level as well as through the parallel examination of changes in the offspring rat brain lipid composition.
BMC health Services Research - Protocol for the Yapatjarrathati project: a mixed-method implementation trial of a tiered assessment process for identifying fetal alcohol spectrum disorders in a remote Australian community
Co-designed with the local community, integrated with cultural protocols, and based on implementation science theories, the assessment and training process from this project will have the potential to be scaled-up across other remote locations and trialed in urban settings.
Europe PMC - Asymmetry-index and orthodontic facial analysis of children with foetal alcohol syndrome using 3D-facial scans.
Children with FAS differ significantly from controls in vertical and sagittal facial measurements. Profile analysis and measurement of vertical proportions are easy to apply standard procedures in everyday orthodontic practice and could be time-saving and objective means for additional verification of FAS.
Journal of Obstetrics and Gyneacology - The association of Prenatal Alcohol Exposure on the Cognitive Abilities and Behaviour Profiles of 4‐year‐old children: a prospective cohort study
Low to moderate PAE was not associated with cognitive processing or developmental problems. Women who had many binge drinking episodes during pregnancy were the most at risk for cognitive processing, neurocognitive and behaviour problems in their children at 4 years of age.
Canadian Journal of Nursing Research - Obstetrical Nurses’ Perspectives of Pregnant Women Who Use Illicit Substances and Their Provision of Care: A Thematic Analysis
Obstetrical nurses highlighted a number of conflicting views about caring for pregnant women who use illicit substances. Key actions, such as establishing professional support when nurses experience ethical distress or when they are unable to provide meaningful care to patients, were suggested.
Alcoholism: Clinical and Experimental Research - Alcohol's dysregulation of maternal‐fetal IL‐6 and p‐STAT3 is a function of maternal iron status
These findings suggest that alcohol‐driven stimulation of the IL‐6/JAK2/STAT3 pathway mediates the elevated hepcidin observed in the PAE dam and fetus.
Neuroscience and Biobehavioral Reviews - The Effects of Developmental Alcohol Exposure on the Neurobiology of Spatial Processing
The consumption of alcohol during gestation is detrimental to the developing central nervous system.
European Psychiatry - Family history of alcohol use disorder is associated with brain structural and functional changes in healthy first-degree relatives
Family history of alcohol use disorder is linked to structural and functional variations including brain regions involved in reward processes.
Midwifery - Modifiable risk factors for stillbirth: a literature review
A stillbirth is defined as an infant born weighing 500grammes and/or more or at a gestational age of 24 weeks who shows no signs of life. Having a stillborn baby has a wide range of consequences that can affect parents, family and the healthcare professionals involved.
Journal of Substance Use - Lifestyle-related risk factors during pregnancy: even low-to-moderate drinking during pregnancy increases the risk for adolescent behavioral problems
Low-to-moderate PAE is clearly linked to an increased risk of behavioral problems in adolescent offspring.
BMC Pediatrics - Maternal pre-pregnancy body mass index, smoking in pregnancy, and alcohol intake in pregnancy in relation to pubertal timing in the children
As correlations between HD:SDS and the considered pubertal milestones were comparable to those reported in the literature between age a peak height velocity and the considered pubertal milestones, the validity of HD:SDS seems acceptable.
International journal of Environmental Research and Public Health - Multi-Service Programs for Pregnant and Parenting Women with Substance Use Concerns: Women’s Perspectives on Why They Seek Help and Their Significant Changes
Findings demonstrated that vulnerable, marginalized pregnant and parenting women who are using substances will seek help when health and social care services are configured in such a way as to take into consideration and address their unique roles, responsibilities, and realities.
Deviant Behavior - Teen Pregnancy, Depression, and Substance Abuse: The Conditioning Effect of Deviant Peers
General Strain Theory (GST) suggests that individuals who experience strain are pressured into criminal and deviant behavior. Consistent with GST, the current study assesses the relationship between strain in the form of teenage pregnancy and substance use behavior, specifically alcohol problems and marijuana use.
JAIDS Journal of Acquired Immune Deficiency Syndromes - High Rates of Biomarker-Confirmed Alcohol Use among Pregnant Women Living with HIV in South Africa and Uganda
Alcohol use was prevalent and under-reported among pregnant WLWH in South Africa and Uganda, similar to non-pregnant participants, and associated with depression.
Clinical Practice - Impacts of alcohol use in pregnancy
Alcohol is teratogenic and its ingestion during pregnancy can result in miscarriage, stillbirth, prematurity, birth defects, and problems of growth and development.
Drug and Alcohol Dependence - Alcohol use and binge drinking among U.S. men, pregnant and non-pregnant women ages 18-44: 2002 to 2017
Drinking during pregnancy dropped sharply in the U.S. in the 1980s. More recent time trends in adult drinking and binge drinking in men, non-pregnant and pregnant women have not been directly compared.

IN OTHER LANGUAGES
Svenska YLE (Sweden) - Hur gravida dricker är fortfarande en vit fläck i finländsk alkoholforskning
Det går att plocka fram grafer om hur mycket det dricks och vad som dricks i varje region i vårt land, men det existerar inte en kartläggning av hur gravida kvinnor dricker under de nio månaderna före barnet föds.
FAS Fundacja (Poland) - Międzynarodowa Konferencja Szkoleniowa „Trafna diagnostyka FASD?
W związku z obchodami 20-lecia Światowego Dnia FAS oraz Dnia Świadomości FASD w dniu 09.09.2019r. Fundacja Fascynujący Świat Dziecka zorganizowała Międzynarodową Konferencję Szkoleniową pt.
Trafna diagnostyka FASD? Jest na to sprawdzony sposób – Prawidłowo dostosowana terapia kluczem do sukcesu”.
Osservatorio Malattie Rare (Italy) - Sindrome feto-alcolica: oggi è il FASD Awareness Day
In Italia, l’associazione AIDEFAD è impegnata a promuovere una maggiore informazione sulla patologia, per agevolare prevenzione e diagnosi precoce
MDR (Germany) - Alkohol in der Schwangerschaft - die unterschätzte Gefahr
Kurzer Rausch, langer Leidensweg: Alkohol in der Schwangerschaft. Etwa 13.000 Kinder werden jährlich mit dem fetalen Alkoholsyndrom (FAS) geboren. Doch eine Diagnose erhält nur jeder zehnte Betroffene – mit fatalen Folgen.
OX.PL - Portal Śląska Cieszyńskiego (Poland) - Rozpoczął się rok FAS/FASD w powiecie cieszyńskim
9 września obchodzony jest Światowy Dzień FAS. Ma na celu zwrócenie uwagi społeczeństwa na to, jak niebezpieczne dla rozwoju płodu jest spożywanie alkoholu przez kobiety w czasie ciąży.
Delo (Slovenia) - Ne alkoholu med nosečnostjo!
Mednarodni dan spektra fetalnih alkoholnih motenj ali kako v znamenju štirih devetic opozoriti na trajne posledice pitja za nerojenega otroka.
Helsingin Sanomat (Finland) – Elämän mittaiset jäljet
Annakaisa Koskisen äiti joi ollessaan raskaana. Se vaikuttaa Koskisen elämään edelleen.
Me Naiset (Finland) - Mikolla, 38, on kysymys äidilleen: ”Miksi joit raskauden aikana niin paljon?”
Ymmärrän, että en ymmärrä kaikkea, Mikko Haapanen sanoo. Juuri se tuntuu hänestä vaikeimmalta. Mikko syntyi kehitysvammaisena, koska hänen biologinen äitinsä käytti alkoholia raskausaikana.
B.T. (Denmark) - Gigi blev hjerneskadet i sin mors mave: Jeg bebrejder hende
»Jeg er ikke i tvivl om, at min mor elskede mig. Men jeg bebrejder hende for at have skadet mig.«
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