Sunday, March 7, 2021

FASD News - 9/2021

Byline Times (UK) - Lack of Specialist Services is Failing Children with Foetal Alcohol Spectrum Disorder
Susan Nathan explains how children and young people with foetal alcohol spectrum disorder in the UK are not receiving adequate services due to the lack of understanding of their needs.
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Express (UK) - Youngsters do not use contraception during sex because they are too drunk to remember
A fifth of young adults forget to use contraception at the height of passion because they are too drunk to remember when having sex, a study has found. Research among 1,200 16-25-year-olds revealed many are taking unforeseen risks due to a lack of knowledge, education - and intoxication.
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Newstalk ZB (New Zealand) - Changes in KiwiSaver rules for those with congenital conditions annouced
The Government has announced the four life-shortening conditions that will allow people impacted by them early access to their KiwiSaver funds.
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CanFASD blog - Announcing the 2021 Sterling Clarren Award recipient!
We are excited to announce that this year’s recipient for the Dr. Sterling Clarren FASD Research Award is Dr. Brianne Redquest for her research on understanding and reducing stress in caregivers of individuals with FASD.
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A Heart For All Students - Homeschooling FASD: Support Tips
11 years later, Natalie and John made the decision to homeschool him. They did so in an effort to save him from a constant barage of bullying. Additionally, they needed to provide him with the academic accommodations that homeschooling provides.
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NOFASD Australia - WHEN WE DON’T CALL IT THERAPY
The following blog was written by Elizabeth Hannah of Black Horse Therapies. Her reflections on how we label therapeutic work with young people can be applied to all therapies, including therapy with animals, and may benefit many living with FASD.
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National Organisation for FASD (UK) - Risky Behaviours
In February 2021 the National Organisation for FASD teamed up with OnePoll and 72Point to learn more about young people’s understanding of the risk of sex, alcohol and pregnancy. OnePoll polled 1200 16-25 year olds across the UK.
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VIDEOS and MATERIALS
Gatlinburg Conference Poster Submission - Parental Scaffolding of Play in Children with Developmental Disabilities: Comparing Fetal Alcohol Spectrum Disorder and Autism Spectrum Disorder
To our knowledge, this is the first study to investigate developmental play levels in children with FASD. Parents of children with FASD demonstrated, on average, lower developmental play levels compared to their children – a pattern that has not previously been reported among parent-child dyads with other developmental disorders.
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Community of Practice on ASD/DD - Conversations: What is FASD? What Challenges Does it Bring for Families?
Tim Markle, Director of the Southern Regional Center for CYSHCN, talks with parents and leaders from Orchids WI FASD Services. FASD stands for Fetal Alcohol Spectrum Disorder and is a developmental disability with life-long challenges that is twice as common as autism. Join us to hear from parents facing the challenges of helping children move into adulthood.
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PreventionInstitute1 - Adapting Early Childhood Environments for Children with FASD
All children want to, and can, learn and grow. No child wants to fail. It feels good to succeed. Our job as parents, caregivers, and service providers is to adapt routines, activities, and environments to help children succeed. This webinar provides an introduction to adapting early childhood environments for children with FASD.
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usgovACF - Fetal Alcohol Spectrum Disorders (audio description)
Parenting a child with a disorder on the fetal alcohol spectrum can present many challenges for foster and adoptive families.
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Changing the Perspective - Fetal Alcohol Spectrum Disorder - Interview with Natalie Vecchione

In this interview we learn more about Fetal Alcohol Spectrum Disorder. Natalie adopted her son when he was a baby.  He was later diagnosed with Fetal Alcohol Spectrum Disorder later in life after years of her advocating on his behalf.
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Manitoba FASD Coalition - Using Attachment and Circle of Security To Strengthen Your Relationship with Your Child or Student
Joanne Brown presented on the importance of attachment in relationships with children or students with FASD. Joanne also reviewed the basic components of Circle of Security. Original presentation February 26, 2021.
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Our Homeschool Castle - Special Needs Parents Interview Series || Natalie Vecchione With FASD Hope
This video is in a new series called special-needs parents interviews. I interviewed my friend Natalie over on zoom about her podcast and website FASD Hope.
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Demystifying Medicine - Alcohol Consumption + Pregnancy = A Bad Mix
This video provides information on Fetal Alcohol Spectrum Disorders (FASDs) which occur as a result of alcohol consumption during pregnancy. In the video, the signs and symptoms, different diagnoses, treatment/therapy options, and prevention of FASDs are highlighted.
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New Brunswick Adoption Foundation - Webinar : Fetal Alcohol Spectrum Disorder (FASD)
Learn about Fetal Alcohol Spectrum Disorder (FASD): Information, Strategies & Personal Experiences. Hear an informative talk from Maria DesRoches, Coordinator for the FASD Centre of Excellence.
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Center for Science and Society - Drinking While Pregnant: The Science and Stigma
Professor Khiara M. Bridges, Professor Caitlin Killian, and Dr. Clare McCormack spoke at Drinking While Pregnant: The Science and Stigma, which took place on January 28, 2021, between 4:30​-6:00 PM (ET) on Zoom. The seminar was organized by Columbia University's Presidential Scholars in Society and Neuroscience program.
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CanFASD - FASD – CANADA´S LEADING DEVELOPMENTAL DISABILITY
Canada FASD Research Network (CanFASD) published a new brochure for some basic information about FASD in Canada.
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Our Stories. Our Health. - We Have the Proof ft. Sara Messelt
Our Stories. Our Health. brings you the stories of Minnesotans as they navigate the healthcare system, to change the way we talk about healthcare. We want the debate to be about people, not profits, and names, not numbers.
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Elephant In The Room - Caring for those with FASD.
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RESEARCH
Göteborgs Universitet - Fetal Alcohol Spectrum Disorders in Children and Young Adults with an emphasis on ophthalmology
Fetal alcohol spectrum disorders (FASD) are a group of disorders caused by prenatal alcohol exposure (PAE). The most severe and most studied FASD condition is fetal alcohol syndrome.
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Health & Justice - Navigating complexity to support justice-involved youth with FASD and other neurodevelopmental disabilities: needs and challenges of a regional workforce
The workforce supporting youth to navigate the justice system requires practical interventions to achieve best practice so that young people with FASD and other neurodevelopmental disabilities receive the support that they need.
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Behavioural Brain Research - Executive functioning-specific behavioral impairments in a rat model of human third trimester binge drinking implicate prefrontal-thalamo-hippocampal circuitry in Fetal Alcohol Spectrum Disorders
Individuals diagnosed with Fetal Alcohol Spectrum Disorders (FASD) often display behavioral impairments in executive functioning (EF). Specifically, the domains of working memory, inhibition, and set shifting are frequently impacted by prenatal alcohol exposure.
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Research Square - Barriers and Facilitators of Alcohol Abstinence During Pregnancy - a Qualitative Study in Rural South Africa
Various personal and contextual factors can act as barriers or facilitators of alcohol abstinence during pregnancy. Addressing barriers at structural, community and individual levels may aid women in reducing harmful drinking during pregnancy.
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Neurotoxicology and Teratology - Moderate prenatal alcohol exposure increases total length of L1-expressing axons in E15.5 mice
Public health campaigns broadcast the link between heavy alcohol consumption during pregnancy and physical, cognitive, and behavioral birth defects; however, they appear less effective in deterring moderate consumption prevalent in women who are pregnant or of childbearing age.
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Revista de Neurologia - Psychological interventions on fetal alcohol spectrum disorder across the life span
The results indicate that psychological treatments focused on emotional and behavioral regulation, social skills training and family interventions are the most evidenced treatments for these patients.
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Journal of Neuroscience Research - Microglia and astrocytes show limited, acute alterations in morphology and protein expression following a single developmental alcohol exposure
Fetal alcohol spectrum disorders (FASD) are the most common cause of nonheritable, preventable mental disability and are characterized by cognitive, behavioral, and physical impairments.
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Digitala Vetenskapliga Arkivet - Substance use, pregnancy, and parenthood: A study on problematizations and solutions
With the starting point in the view that how we interpret a problem is decisive for how we think this problem should be dealt with, the overall aim of this dissertation is to explore problematizations of substance use in relation to pregnancy and parenthood within different settings.
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Brain Research - Social behaviors and gray matter volumes of brain areas supporting social cognition in children and adolescents with prenatal alcohol exposure
These findings suggest that children and adolescents with PAE show worse social functioning and smaller volumes of brain areas supporting self-awareness, perspective-taking and emotion-regulation than their same-age peers without PAE.
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Am Acad Pediatrics - Teratogenic Effects of Prenatal Alcohol Exposure on Cardiac Innervation

Alcohol exposure during embryonic development can damage neural crest cells, precursors of the autonomic nervous system. Abnormalities of cardiac innervation are known to result in heart disease, arrhythmias, and are implicated in sudden infant death syndrome (SIDS), the sudden and unexplained death of an infant usually during sleep.
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Alcoholism: Clinical and Experimental Research - Phosphatidylethanol as Blood Biomarker of Alcohol Consumption in Early Pregnancy: An Observational Study in 4067 Pregnant Women
The teratogenic effects of alcohol are well documented, but there is a lack of screening methods to detect alcohol use during pregnancy. Phosphatidylethanol 16:0/18:1 (PEth) is a specific and sensitive alcohol marker reflecting alcohol intake up to several weeks after consumption.
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Birth Defects Research - Early‐life exposure to alcohol and the risk of alcohol‐induced liver disease in adulthood
Alcohol consumption remains prevalent among pregnant and nursing mothers despite the well‐documented adverse effects this may have on the offspring. Moderate‐to‐high levels of alcohol consumption in pregnancy result in fetal alcohol syndrome (FAS) disorders, with brain defects being chief among the abnormalities.
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Journal of Chemical Neuroanatomy - Alteration of CYP2E1, DBN1, DNMT1, miRNA-335, miRNA-21, c-Fos and Cox-2 gene expression in prefrontal cortex of rats’ offspring submitted to prenatal ethanol exposure during their neurodevelopment and the preventive role of nancocurcumin administration: A histological, ultrastructural and molecular study

Ethanol (EtOH) has been linked to neurotoxic effects on the fetus and prenatal alcohol exposure (PAE) has a negative impact on brain neurodevelopment.
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Behavioural Brain Research - Executive functioning-specific behavioral impairments in a rat model of human third trimester binge drinking implicate prefrontal-thalamo-hippocampal circuitry in Fetal Alcohol Spectrum Disorders
Individuals diagnosed with Fetal Alcohol Spectrum Disorders (FASD) often display behavioral impairments in executive functioning (EF). Specifically, the domains of working memory, inhibition, and set shifting are frequently impacted by prenatal alcohol exposure.
Read more

Europe PMC - The effect of maternal pre-/early-pregnancy BMI and pregnancy smoking and alcohol on congenital heart diseases: a parental negative control study
We found evidence of an intrauterine effect for maternal smoking on offspring CHDs, but no evidence for higher maternal BMI or alcohol consumption. Our findings provide further support for why smoking cessation is important during pregnancy.
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psych.colorado.edu - The epigenome as a biological pathway of the effects of prenatal exposure to tobacco, alcohol, and caffeine on childhood internalising problems in offspring: Two large multi-cohort epigenome-wide association studies.
In a large, multi-cohort epigenetic analysis, we found some preliminary evidence that maternal smoking could affect childhood internalising symptoms through DNA methylation, but little evidence that this is the case for prenatal alcohol and caffeine consumption.
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Biomolecules - Impacts of Maternal Diet and Alcohol Consumption during Pregnancy on Maternal and Infant Gut Microbiota
Maternal diet and alcohol consumption can influence both maternal and infant’s gut microbiota. These relationships are still not examined in the Chinese population. The purpose of this study was to explore the effect of alcohol consumption and maternal diet during pregnancy on maternal and infant’s gut microbiota.
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Health & Social Care in the community - Two screening instruments for collecting alcohol‐related information from expectant mothers and fathers: Testing the reliability of the Parent Alcohol Screening Questionnaire and the Social Support for an Alcohol‐Free Pregnancy Questionnaire
The aim is to test the reliability of two alcohol screening instruments: (1) The Parent Alcohol Screening Questionnaire (PASQ5), and (2) the Social Support for an Alcohol‐free Pregnancy (SSAFP) questionnaire.
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IN OTHER LANGUAGES

AOU.LuigiVanvitelli (Italy) - Sindrome feto-alcolica (Fetal Alcohol Syndrome-FAS)
Campagna sensibilizzazione abuso di alcol - No alcol per donne in gravidanza- Sindrome feto-alcolica (Fetal Alcohol Syndrome-FAS).
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