Sunday, November 22, 2020

FASD News - 46/2020

News Medical - Researchers highlight gap in effective mental health and substance use treatment options for people with FASD
This week, a team of researchers and partners published findings that show a startling gap in the evidence about treatment for mental health and substance use challenges for people with Fetal Alcohol Spectrum Disorder (FASD).
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Toronto Star (Canada) - Support worker aims to erase FASD stigma through education
A Fetal Alcohol Spectrum Disorder (FASD) support worker in Victoria says stigma in her line of work has led to a lack of information that’s available for families.
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Kore Biomedical Review (South Korea) - EUMC opens Asia’s 1st fetal alcohol syndrome prevention Center
Ewha Womans University Medical Center (EUMC) Thursday opened the Fetal Alcohol Syndrome (FAS) Prevention Center for the first time in Asia to promote a healthy life for women and children.
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Stuff (New Zealand) - A documentary three years in the making: How Stuff Circuit's Emma was created
Stuff Circuit’s Emma tells the story of 27-year-old Emma Barrett and her journey to Russia to find her biological family. Barrett, born with fetal alcohol syndrome, was adopted and brought to live in New Zealand in the 1990s. She grew up not knowing if she had any family in Russia, or if they wanted to meet her.
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Celcis - We need to talk about FASD
This Adoption Week Scotland, Barbara Ogston, FASD Advisor in the FASD Hub Scotland, managed by Adoption UK, who is an adoptive parent, discusses the impact of Fetal Alcohol Spectrum Disorder (FASD) within the care community, and why it’s vital that children and families receive the support they need.
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BBC News (Scotland) - My adopted son's life was changed by alcohol in pregnancy
When Lorna took the leap to adopt, she had no idea her new family could be living with the effects of alcohol for the rest of their lives.
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Our Sacred Breath - HOW TO CREATE COLLEGE PROGRAMS FOR STUDENTS WITH FASD
Fetal Alcohol Spectrum Disorder is 2.5 times more common than autism (Flannigan, Unsworth, & Harding, 2018). Yet as the most common of all developmental disabilities it remains largely unrecognized and supported.
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CanFASD - Book Review: FASD and the Online World
Every parent struggles with managing the internet and social media for their child(ren) but there are additional worries when it comes to raising a child with FASD in this digital world.  There are not many resources available to assist with managing the online world with individuals with FASD but this new book by Dr. Ira Chasnoff is a useful one.
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AdoptionUK - Half and Hour Changes the View – An FASD Diagnosis
It’s only taken two year since we first met them and 4 years since we first voiced our concerns. but we have left today with a FASD diagnosis with the sentinel facial features (SFF).
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 VIDEOS and MATERIALS

Spotlight on FASD - Podcast Episode 6 - An interview with Dr Raja Mukherjee, Part One

In this weeks episode, part 1 of our very first guest interview, we welcome the one and only Dr Raja Mukherjee. With almost 20 years experience he’s a big deal in the FASD world so this episode is definitely one not to be missed! Come back next week to listen to part 2!
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Osmosis - Fetal alcohol syndrome - causes, symptoms, diagnosis, treatment, pathology
What is fetal alcohol syndrome? Fetal alcohol syndrome, or FAS, occurs because of maternal use of alcohol during pregnancy.
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Inclusion Collaborative - Cognitive Supports for Children with Fetal Alcohol Spectrum Disorders (Part I)
A recent study estimated that anywhere from 1.1 to 5% of children in the US have an FASD*, making it the most frequent developmental disability in the nation. However, very few educational professionals are given FASD-specific training or an understanding of how FASD impacts the brain and, therefore, how it impacts a child’s learning experience and behaviors.
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Inclusion Collaborative - Cognitive Supports for Children with Fetal Alcohol Spectrum Disorders (Part II)
A recent study estimated that anywhere from 1.1 to 5% of children in the US have an FASD*, making it the most frequent developmental disability in the nation. However, very few educational professionals are given FASD-specific training or an understanding of how FASD impacts the brain and, therefore, how it impacts a child’s learning experience and behaviors.
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QNI Scotland - Scottish Government launches FASD eLearning resource
The Scottish Government has just launched its free FASD eLearning resource on the NHS Education for Scotland (NES) website. QNIS welcomes this essential online learning resource. It could have significant benefits for professionals and the individuals/families affected if widely used and shared.
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Manitoba FASD Coalition - Looking After Each Other Virtual Gathering - Session 1: The Seven Sacred Teachings
This video is the first of three Virtual Gathering sessions focusing on healthy families which took place on September 30th, 2020. It features Elder Dr. Dave Courchene and Grandmother Florence Paynter delivering the The Seven Sacred Teachings.
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FASD AWARENESS (UK) - USEFUL RESOURCES
Links to FASD information posters, videos and downloads.
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Laughing Bird - How to deal with it | FASD
For all of you guys that do not know I moved into a new place(large place) on Halloween. And one of my projects is to work on the grooming shed so I can have some clients. It's taking a lot longer than we thought.
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College Of Science SJSU - Long term changes in metabolism and gene expression in a Drosophila model of Fetal Alcohol Spectrum
Developmental alcohol exposure causes fetal alcohol spectrum disorder (FASD), which is the biggest cause of preventable intellectual disability worldwide.
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Me and My FASD – Welcome to Me and My FASD
Here you will find lots of fun and interesting things to help you learn about FASD.
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PreventionInstitute1 - FASD: Let’s Change the Conversation and Challenge the Stigma
It is not easy to talk about FASD. Fetal Alcohol Spectrum Disorder is complex. Much of the conversation around FASD makes it more complicated and increases stigma.
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FASD Hub - FASD Research Australia Awards & Celebration: Shining a light on FASD
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FASD Hub - FASD Virtual Seminar – Education
Hear from educators, researchers and parents across Australia & New Zealand helping children, teenagers and young adults with FASD navigate the education system.
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NationalFASD - FASD: Preferred UK Language Guide
The National Organisation for FASD and Seashell are pleased to announce the launch the new FASD: Preferred UK Language Guide produced through their partnership project, “Resources and Training to Support Children and Young People with FASD,” funded by the Department of Health.
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DryMester - BIRTHDAY TRAILER
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Adoption Week Scotland - A Conversation with Aubrey Page on FASD
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PreventFASD.info - The Competition: Get Creative! You will change lives
We are looking for creative ideas to prevent tens of thousands being born each year in the UK with lifelong damage to their brains and bodies from alcohol exposure in pregnancy. Get creative! Send us a video, a poster, a song, a poem, an idea for a campaign. It’s time to make some noise!
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CanFASD - Towards Healthy Outcomes for Individuals with FASD
All human beings are motivated to experience purpose and success. It is not enough to ‘get by’ in life, rather we must feel as though we are achieving expectations set by us and others. People of all abilities need to feel as though they have a purpose and that they are able to meaningfully contribute to society.
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COMING UP
Alcohol Forum, To Create & Inspire Change  - Alcohol & The Rights of the Child - Webinar 2
Join us looking at challenges for people with #FASD; their families; learn about the impact that parental substance misuse can have on children.
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Indiana NOFAS - Fetal Alcohol Spectrum Disorder 101 – FASD 101
Are you a parent, caregiver, or service provider to a child who has trouble seeing the connection between choices and consequences, has difficulty with age-appropriate attentiveness, continues to make poor choices no matter how much appropriate instruction they receive, and who struggles to hold it together at even the smallest disruption of routine?
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ABLE2 - FASD Symposium Registration Information
The 2021 Symposium is a virtual event. Attendees will be able to participate online (virtually) from home or office from all parts of Canada and the United States.
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RESEARCH
Alcoholism: Clinical and Experimental Research - Glutathione Protects the Developing Heart from Defects and Global DNA Hypomethylation Induced by Prenatal Alcohol Exposure
Fetal Alcohol Spectrum Disorder (FASD) is caused by prenatal alcohol exposure (PAE), the intake of ethanol (C2H5OH) during pregnancy. Features of FASD cover a range of structural and functional defects including congenital heart defects (CHDs).
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Brain Sciences - Sleep and Cognition in Children with Fetal Alcohol Spectrum Disorders (FASD) and Children with Autism Spectrum Disorders (ASD)
Children with Fetal Alcohol Spectrum Disorders (FASD) and Autism Spectrum Disorders (ASD) experience significantly higher rates of sleep disturbances than their typically developing peers.
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Nutrients - Choline Plus Working Memory Training Improves Prenatal Alcohol-Induced Deficits in Cognitive Flexibility and Functional Connectivity in Adulthood in Rats
Fetal alcohol spectrum disorder (FASD) is the leading known cause of intellectual disability, and may manifest as deficits in cognitive function, including working memory. Working memory capacity and accuracy increases during adolescence when neurons in the prefrontal cortex undergo refinement.
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Drug and Alcohol Dependence - The prevalence, child characteristics, and maternal risk factors for the continuum of fetal alcohol spectrum disorders: A sixth population-based study in the same South African community
Seventeen years after the first study in this community, FASD prevalence remains high at 16% to 31%. The FAS rate may have declined somewhat, but rates of PFAS and ARND seemed to plateau, at a high rate.
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Scientific reports - Hospitalizations and mortality among patients with fetal alcohol spectrum disorders: a prospective study
With nearly 10% of women consuming alcohol during pregnancy, fetal alcohol spectrum disorders (FASDs) are becoming an increasing concern for clinicians and policymakers interested in the field of healthcare.
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Birth Defects Research - Examination of cortically projecting cholinergic neurons following exercise and environmental intervention in a rodent model of fetal alcohol spectrum disorders
We examined the cytoarchitectonics of cholinergic neurons in NBM and PFC in adulthood following early postnatal AE and two interventions. We show that AE reduces ChAT+ neuron number in NBM, and this is not mitigated by either intervention.
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Research Square - Pregnant Women’s Knowledge About Alcohol Consumption During Pregnancy and its Consequences: An Israeli Survey
A high percentage of pregnant women in Israel drank alcohol close to conception and during pregnancy. Although most of the woman ceased drinking after realizing they were pregnant, a still-worrying percentage continued consuming alcohol and had low knowledge and awareness of the plausible dangers of this behavior.
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Alcoholism: Clinical and Experimental Research - Altered Resting‐State Neural Oscillations and Spectral Power in Children with Fetal Alcohol Spectrum Disorder
Our results were consistent with previous studies and provide new insight into resting‐state oscillatory differences both between children with FAS and TDC, and within FASD subgroups.
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Nelson Mandela University - Awareness, knowledge and practices with regards to alcohol use of pregnant women in the Missionvale area
South African statistics, when compared to global statistics, has an above-average occurrence of Fetal Alcohol Spectrum Disorder(FASD). Alcohol use during pregnancy is on the rise globally and has far-reaching consequences.
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Clinical Oral Investigations - The oral health status and treatment needs of children with fetal alcohol spectrum disorder
Children with FASD may be at a higher risk for poor oral health outcomes and have more extensive treatment needs. Our results indicate that they may also be at a higher risk for treatment under GA.
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Drugs: Education, Prevention and Policy - Is it FASD? And does it matter? Swedish perspectives on diagnosing fetal alcohol spectrum disorders
Fetal alcohol spectrum disorders (FASD) is an umbrella term covering a range of conditions related to prenatal alcohol exposure. In Sweden, only the most severe of these conditions, Fetal alcohol syndrome (FAS), is used as a medical diagnosis.
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Alcoholism: Clinical and Experimental Research - Prevention of Alcohol‐Exposed Pregnancies and Fetal Alcohol Spectrum Disorder Among Pregnant and Postpartum Women: A Systematic Review
The current review identified variable results from available interventions to prevent alcohol use among pregnant and postpartum women.
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Alcoholism: Clinical and Experiment Research - A Systematic Review of Interventions to Improve Mental Health and Substance Use Outcomes for Individuals with Prenatal Alcohol Exposure and Fetal Alcohol Spectrum Disorder
Combined, these studies provide preliminary and emerging evidence for a range of intervention approaches that may support positive outcomes for individuals with FASD across the life course.
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Neuropsychiatrie - Challenge abstinence-a case report and overview on therapy of alcohol dependence during pregnancy
The potentially deleterious and teratogen effects of alcohol consumption during pregnancy are an important medical as well as socio-economic topic.
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Am Psychiatric Assoc - Considering Prenatal Alcohol Exposure in a Developmental Origins of Health and Disease Framework
Although alcohol is considered a teratogen, there is a lack of clarity about the nature of the association between prenatal alcohol exposure, particularly low-level exposure, and offspring development in part because of the potential for unmeasured factors to play a role.
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Alcoholism: Clinical and Experimental Research - Glutathione Protects the Developing Heart from Defects and Global DNA Hypomethylation Induced by Prenatal Alcohol Exposure
GSH supplementation shows promise to inhibit effects of PAE by improving survival, reducing the incidence of morphological defects including CHDs, and preventing global hypomethylation of DNA in heart tissues.
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npj Primary Care Respiratory Medicine - Smoke and Alcohol Free with EHealth and Rewards (SAFER) pregnancy study: a before−after study protocol
The primary outcome measure is cessation of smoking and/or alcohol use at 34−38 weeks of gestation, or after six group sessions if women did not become pregnant during the study period. Secondary outcomes focus on the barriers and facilitators for implementation of the SAFER pregnancy intervention.
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Alcoholism: Clinical and Experimental Research - Prevention of Alcohol‐Exposed Pregnancies and Fetal Alcohol Spectrum Disorder Among Pregnant and Postpartum Women: A Systematic Review
The current review identified variable results from available interventions to prevent alcohol use among pregnant and postpartum women. Preliminary evidence demonstrated that BIs may be effective among subgroups of pregnant women with higher initial alcohol consumption, those with partner involvement, and those who used alcohol and other substances concurrently.
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J Korean Soc Matern Child Health. - Analysis of Drinking Related to Health Behaviors during Pregnancy: Focus on Community Health Survey Data
Several factors are associated with drinking during pregnancy. To improve health promotion during pregnancy, alcohol prevention programs should be developed that consider one’s socioeconomic status and health behaviors.
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The American Journal of Drug and Alcohol Abuse - Alcohol messages disseminated to pregnant women by midwives
Concerted efforts are needed to ensure information disseminated aligns with health guidelines and encourages abstinence during pregnancy.
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Journal of Fetal Alcohol Spectrum Risk and Prevention - Health Professionals are the Preferred Source of Information on Alcohol Use in Pregnancy for Australian Women: A National Survey
We identified where Australian women obtained information about alcohol during pregnancy, their preferred sources of information, and their perceptions of the role of health professionals in providing information.
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Health Economics - Pregnancy persistently reduces alcohol purchases: Causal evidence from scanner data
We analyze household‐level changes in alcohol consumption in response to pregnancy. Using scanner data, we identify households with a pregnant household member.
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Research in Developmental Disabilities - Yarning about fetal alcohol spectrum disorder: Outcomes of a community-based workshop
The current study identified key learnings from workshop facilitators and participants. The findings call attention to the importance of a co-design approach, where collaboration is vital to support the appropriate adaption of evidence-based practice to suit the local context.
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