Sunday, June 28, 2020

FASD News - 25/2020

Proof Alliance (USA) - Landmark legislation: A Victory for the FASD Community
While legislators didn’t complete many items during the special session, we are excited about this legislative win that will improve outcomes for children entering the Minnesota foster care system.
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Mirage News (Australia) - Senate inquiry into effective approaches to prevention and diagnosis of FASD and strategies for optimising life
When it comes to Fetal Alcohol Spectrum Disorder (FASD), the health and wellbeing of our families and communities should be at the forefront of the development of policies and programs to prevent the disorder and to support people who are impacted.
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Mirage News (Australia) - Commission evidence to FASD Inquiry
The Australian Human Rights Commission is calling for the Australian Government to adopt community led responses informed by targeted investment in research, education, training, diagnosis and treatment to combat Fetal Alcohol Spectrum Disorder (FASD).
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WCCO | CBS Minnesota (USA) - ‘U’ Announces Breakthrough Study On Treating Fetal Alcohol Spectrum Disorders
It is considered to be the most serious substance to unborn babies. Doctors believe they’re only beginning to understand the problems drinking alcohol while pregnant will lead to. But, as we found breakthroughs here at home will mean some kids will face brighter futures.
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The RiotACT (Australia) - Campaign urges expecting mums to take a ‘Pregnant Pause’
Alcohol plays an important part in the social life of most Australians, and giving it up can be tough, even if you’re pregnant.
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FARE (Australia) – ALCOHOL HEALTH WARNINGS + PREGNANCY
The majority (70%) of Australians support an effective health warning on all alcohol products and would take action on the issue.
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New Zealand Doctor (New Zealand) - Otago expert fears increase in fetal alcohol disorder following lockdown
A University of Otago researcher fears the soaring rates of alcohol purchases during lockdown may result in more babies being born with Fetal Alcohol Spectrum Disorder (FASD) next year.
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Our Sacred Breath - DISRUPTED SCHOOL PLACEMENTS AND FASD
With graduations completed or in process, this seems like a good time to reshare this information in case anyone is feeling they are alone or are looking for some resources. In case their child or teen did not make the honour roll or win an award.
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Crises Prevention Institute - How to Help Someone Who Has a Fetal Alcohol Spectrum Disorder
Because of the nature of their disability, individuals with Fetal Alcohol Spectrum Disorders (FASD) have very specific needs. CPI’s Nonviolent Crisis Intervention training program is relevant for those supporting individuals with FASD, and there are specific considerations and possible adaptations for making your training as applicable as possible to this very unique group.
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National Institute on Alcohol Abuse and Alcoholism - Fetal Alcohol Spectrum Disorders May Increase the Risk of Type 2 Diabetes and Other Metabolic Issues
Adults with fetal alcohol spectrum disorders (FASD) may have an increased risk of type 2 diabetes, and other metabolic abnormalities such as low HDL cholesterol and elevated levels of triglycerides compared to people without FASD, according to a new study supported by the National Institute on Alcohol Abuse and Alcoholism (NIAAA), part of the National Institutes of Health.
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Courier Sun (Australia) - Mum details toll of fetal alcohol disorder
Cheryl walks around her home with a set of keys to doors, cupboards and even the fridge. Her adopted son is so heavily impacted by fetal alcohol spectrum disorder that many things have to be locked away in order to keep him safe.
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VIDEOS and MATERIALS

Proof Alliance - When Quarantine Feels Like Chaos and the Power of The Reset with FASD training Aubrey Page
Are you thriving or surviving right now? Sometimes we just need some perspective on how we can best accommodate our child’s brain. Let’s talk about why quarantine can be hard for our kids, how to implement a routine, and what does and does not matter about distance learning.  We'll also chat about how we can shift our perspective to handle escalating behaviors better in the moment and reduce them in the future.
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Special Books by Special Kids - Four Brothers with Fetal Alcohol Syndrome (The Story of a Blended Family)
The Sessions are a blended family and 4 of their 6 children are diagnosed with fetal alcohol syndrome. They hope that before casting judgement, others will take the time to see they are a loving family.
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WCCO - CBS Minnesota - 'U' Announces Breakthrough On Treating Fetal Alcohol Spectrum Disorders
Doctors believe they're only beginning to understand the problems drinking alcohol while pregnant will lead to, Jeff Wagner reports (2:01). WCCO 4 News At 5 - June 19, 2020
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Aucdnetwork - Resources for Building and Strengthening FASD Initiatives
The new fetal alcohol spectrum disorders (FASD) SIG invites you to join them for a review of resources that you might use in your work building or expanding your program of services and supports for individuals with FASD.
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Indiana NOFAS - Positive approaches to understand the complexities of FASD with Susan Elsworth
Susan Elsworth, director of Indiana NOFAS, talks with you how FASD can take its toll on families and individuals. Susan encourages us all to think positively as successful caregivers to children with FASD.
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FASDHub Scotland - Webinar with Jennifer Nock FASD strategies
This webinar took place on Friday 15 May.  Dr Jennifer Nock has over 25 years of experience supporting individuals with additional learning needs and their families. Jenny runs her own training organisation (http://www.jennifernocktrainingandcon...).
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FAREAustralia - Tracy calls for visible health warnings on alcohol
Tracy is the birth mum of a 9-year-old with FASD and knows first-hand the devastating harm alcohol can cause during pregnancy.
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FAREAustralia - Chris calls for visible health warnings on alcohol
Chris is a foster dad to two children with FASD. His story highlights the need for access to clear information about the harm alcohol can cause during pregnancy.
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FAREAustralia - Cheryl and Pete call for visible health warnings on alcohol
Cheryl and Pete share their lived experience with FASD and why access to clear information about products that can harm our children is so important.
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FAREAustralia - Neroli calls for visible health warnings on alcohol
Neroli has cared for more than 100 foster children, many of whom had FASD. Her story highlights why access to clear information about products that can harm our children is so important.
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FAREAustralia - Kaye calls for visible health warnings on alcohol products
Kaye has three children in special guardianship, all of whom have FASD. This is why access to clear information about products that can harm our children is so important.
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FAREAustralia - Kath calls for visible health warnings on alcohol products
Kath is a foster mum to two children with FASD and knows first-hand the devastating harm alcohol can cause during pregnancy.
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The Fetal Medicine Foundation - Robert Sokol - Fetal alcohol syndrome
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FASD Hub Scotland - FASD Hub Scotland Newsletter
A warm welcome to all of our followers from the FASD Hub Scotland and Adoption UK Scotland.  We’re delighted to be celebrating the first anniversary of the FASD Hub Scotland launch – it has been such a fast, and action filled year, it seems to have gone by very quickly!
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RESEARCH

Alcohol - Moderate prenatal alcohol exposure alters the number and function of GABAergic interneurons in the murine orbitofrontal cortex
Together these data suggest that moderate prenatal alcohol exposure alters the disinhibitory function in the OFC, which may contribute to the executive function deficits associated with FASD.
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Alcoholism: Clinical and Experimental Research - Transcriptome‐wide Regulation of Key Developmental Pathways in the Mouse Neural Tube by Prenatal Alcohol Exposure
These data give a comprehensive view of the changing landscape of the embryonic transcriptome networks in regions of the neural tube that give rise to brain structures impacted by a neurulation‐stage alcohol exposure.
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Congenital Anomalies in Neonates-Clinical - The Pathogenesis of Congenital Anomalies: Roles of Teratogens and Infections
Congenital anomalies present with significant financial, social, and moral issues and questions to the family and society and are difficult to rehabilitate. In utero exposure to teratogenic agents and infection are the two most important causes of nongenetic acquired anomalies presenting at birth.
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Infant Mental Health Journal - Predictors and moderators of improved social‐emotional functioning in mothers with substance use disorders and their young children enrolled in a relationship‐based case management programm
Mothers with substance use disorders (SUDs) typically have trauma histories and psychosocial difficulties that lead to poor social‐emotional functioning and disrupted mother–child relationships.
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Birth Defects Research - Prenatal alcohol exposure induced congenital heart diseases: From bench to bedside
Alcohol consumption is increasing worldwide. Many child‐bearing‐aged women consume alcohol during pregnancy, intentionally or unintentionally, thereby increasing the potential risk for severe congenital diseases.
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Scientific Reports - Alcohol consumption before pregnancy causes detrimental fetal development and maternal metabolic disorders
Collectively, our study suggests that even moderate ethanol intake may be detrimental to fetal development and may cause growth retardation through maternal metabolic disorders.
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IJRASET - A Study of Risk Factors in Children with Developmental Delay below 5 Years of Age
The study is an attempt to find out the risk factors in children with developemental delay below 5 years of age. Thirty children were taken for the study. The children’s age ranged from 1 to 5 years. Who were attending Sweekar Rehabilitation Institute for Handicapped, Secunderabad.
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Journal of Studies on Alcohol and Drugs - Alcohol Industry Corporate Social Responsibility, Strategic Ambiguity, and the Limits of Fact-Checking: Response to Drinkaware UK and International Alliance for Responsible Drinking Regarding Our Study of Misinformation on Alcohol Consumption and Pregnancy
Sim et al. (2020, this issue) start by saying that our analysis “seems intent on proving that the UK alcohol education charity, Drinkaware, is presenting misinformation to the public.” This seems to be a misunderstanding of the scientific process. We therefore welcome the opportunity to briefly describe the body of research that supports the rationale for the current work and that led to the hypotheses in question.
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Research Square - The K nearest neighbor algorithm for imputation of missing longitudinal prenatal alcohol data
Missing data are a source of bias in many epidemiologic studies. This is problematic in alcohol research where data missingness may not be random as they depend on patterns of drinking behavior.
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Alcohol Clin Exp Res - Transcriptome-wide Regulation of Key Developmental Pathways in the Mouse Neural Tube by Prenatal Alcohol Exposure
These data give a comprehensive view of the changing landscape of the embryonic transcriptome networks in regions of the neural tube that give rise to brain structures impacted by a neurulation-stage alcohol exposure.
Read more

Alcoholism: Clinical and Experimental Research - Para‐limbic Structural Abnormalities are Associated with Internalizing Symptoms in Children with Prenatal Alcohol Exposure
Prenatal alcohol exposure (PAE) is associated with a variety of structural abnormalities in the brain, including several within the para‐limbic system. Children with PAE have higher rates of internalizing disorders, including depression and anxiety, which may be related to underlying limbic system anomalies.
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Journal of Ethnicity in Substance Abuse - Alcohol use and problems among Latinas at risk of an alcohol-exposed pregnancy: The role of acculturation and interpersonal factors
Path analysis was used to examine the role of acculturation, helping relationships, partner status, age, and education on heavy drinking and alcohol problems among 119 Latina adults at risk of an alcohol-exposed pregnancy (AEP).
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Drug and Alcohol Dependence - Respiratory and emotional reactivity to ethanol odor in human neonates is dependent upon maternal drinking patterns during pregnancy
These results validate the notion of human fetal alcohol programming that is detected immediately after birth. The reported early functional signs indicative of relatively high alcohol gestational exposure should broaden our capability of diagnosing FASD and lead to appropriate primary or secondary clinical interventions.
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BMC Pregnancy and Childbirth - Drowning our sorrows: clinical and ethical considerations of termination in alcohol-affected pregnancy
Clinicians caring for pregnant women who consume alcohol face many ethical considerations. They are obligated to provide non-judgmental and non-directive advice. Although current practice is guided by existing clinical guidelines these are based on limited scientific evidence.
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IN OTHER LANGUAGES

stern TV (Germany) - So gefährlich ist Alkohol während der Schwangerschaft
Herzfehler, motorische Störungen, Lernschwächen - schon geringe Mengen Alkohol während der Schwangerschaft können Kindern dauerhafte Schäden zufügen.
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eDziecko (Poland) - FAS to temat wstydliwy. Zdarza się w rodzinach, w których nikt nie jest alkoholikiem
FAS nie wywołuje genetyka, tylko picie alkoholu w ciąży. To temat wstydliwy. Chociaż dotyczy najczęściej dzieci adoptowanych, to niepełnoobjawowe FAS zdarza się w rodzinach, w których nikt nie jest alkoholikiem.
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ZARLLOR (Portugal) - A disfunção tireoidiana leve afeta uma em cada cinco mulheres com histórico de aborto espontâneo ou infertilidade
Os distúrbios da tireóide são comuns em mulheres com potencial para engravidar. Embora a incidência de distúrbios da tireóide durante a gravidez seja bem conhecida, pouco se sabe sobre a frequência com que esses distúrbios ocorrem em mulheres antes da gravidez.
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