Monday, July 15, 2019

FASD News - 28/2019


Anchorage Daily News - Living with FASD: ‘I’m going to have this for the rest of my life’
Like many other city-dwelling, twentysomething Alaskans, Shawna gets up in the morning and goes to work. She spends time with her family. She posts cute selfies on Instagram. She likes funny memes and reading and makeup.
Buffalo News (USA) - Another Voice: Fetal alcohol spectrum disorders demand more attention
I find myself in a small, nondescript meeting room in my county’s Department of Human Services. Again. The faces are familiar — the judge, the developmental service agency representatives and the disability rights lawyer who has invited me again to testify. The only person new to this room is the caregiver — a grandmother of a 10-year-old boy whom we’ll call “Marcus.”
Noted - The women out to dispel myths about fetal alcohol spectrum disorder
Every week, Eleanor Bensemann leaves her Kāpiti home to drive north to see her 22-year-old grandson. Daniel no longer lives with her, but she raised him for much of his life. He was eight when he first got into trouble with the law, then he spent his time as a teenager in and out of the courts and living on the streets.
Noted (New Zealand) - What the death of a young-adult FASD sufferer shows about NZ's health system
Heke, who came into the Willcox’s care at the age of one, was their second foster child with FASD. His disability meant he was slower to crawl and walk, and needed help with eating. At times, his behaviour and the level of care he needed were so difficult that the couple asked for extra support from the then Child, Youth and Family agency.
Particle (Australia) - PARTICLE PODCAST: TACKLING FASD IN WA
Fetal Alchohol Spectrum Disorder – or FASD – has been a growing concern for families in regional Australia.
Jamaica Observer - PAHO launches online course to address alcohol use in pregnancy
The Pan American Health Organisation (PAHO), worried that the rates of alcohol disorders among women are higher in the region of the Americas than in any other region of the world, has launched a new initiative to provide health care workers with the technical skills they need to identify and address alcohol consumption in pregnant women and those of reproductive age.
The Guardian (UK) - How secondhand drinking ruins lives: ‘Every family has been touched by this’
Passive smoking is treated as a serious hazard. So why have we been so slow to wake up to the dangers alcohol poses to those who live with – or have a devastating encounter with – a heavy drinker?
Police News - Why a different approach is needed when interacting with people with disabilities
Police officers are sworn to protect and serve the public. Not one of them wants to be in a situation where they use force on an individual who they mistakenly believe is being noncompliant when, in fact, the person has a disability or communication disorder. Yet, it happens all too frequently.
Rehab4Alcoholism - The Dangers of Drinking Alcohol When Pregnant
Are you pregnant but wondering if taking one or two glasses of wine on a weekend can harm the fetus growing in your womb? If yes, then you are not alone.

VIDEOS and MATERIALS
FASD Hub Australia - GPaskthequestion project stresses the importance of talking to women planning pregnancy about their alcohol use
GPs are often the first health professional a woman goes to when she is either planning a pregnancy or thinks she may be pregnant.
HOPE+RESQ / HOPE 27 - Embraced - Joel on Why Donate
Filmmaker, Joel Sheagren sharing why we need donations to make the documentary, Embraced, Truth About Fetal Alcohol Spectrum Disorders. FASD is the Western Hemisphere's number one birth defect that few people know about.
HOPE+RESQ / HOPE 27 – Jodee-endorsement
Embraced, Truth About FASD (Fetal Alcohol Spectrum Disorder).
Embraced Movement – A Documentary Film Project About Fetal Alcohol Spectrum Disorder
Embrace, Truth About FASD came out of a passion to help my son, Sam, who was diagnosed with ARND — Alcohol Related Neurological Disorders — a specific diagnosis under the FASD umbrella a few years ago.
Rhiannon Tuffield (Australia) - FASD Clinic
In the community of Shepparton, substance abuse has long been a driver behind community health issues, according to GV Health's Clinical Director of Paediatrics, Dr Dan Garrick.

RESEARCH
canfasd.ca - Policy Action Paper: Toward a Standard Definition of Fetal Alcohol Spectrum Disorder in Canada
Language is a reflection of how people in a society see one another, which can impact perceptions and consequently how people think. In particular, language is a powerful tool in influencing how society and culture constructs disabilities.
BioRxiv - Hippocampal transcriptome analysis following maternal separation implicates altered RNA processing in a mouse model of fetal alcohol spectrum disorder
Fetal alcohol spectrum disorders (FASD) are common, seen in 1-5% of the population in the United States and Canada. Children diagnosed with FASD are not likely to remain with their biological parents, facing early maternal separation and foster placements throughout childhood.
BMC Public Health - Population-based prevalence of fetal alcohol spectrum disorder in Canada
This study provides the first population-based estimate of the prevalence of FASD in Canada. The estimate is approximately double or possibly even triple previous crude estimates.
Int. J. Environ. Res. Public Health - The Distribution of Available Prevention and Management Interventions for Fetal Alcohol Spectrum Disorder (2007 to 2017): Implications for Collaborative Actions
The global prevalence of Fetal Alcohol Spectrum Disorder (FASD) remains high despite the various preventive and management interventions that have been designed and implemented to tackle the issue in various settings.
South African Medical Journal - Maternal alcohol use and children’s emotional and cognitive outcomes in rural South Africa
While HD rates were low, maternal/caregiver alcohol use negatively impacted on parenting and children’s behavioural/cognitive outcomes. International evidence suggests that integrated approaches engaging parents and families may be more effective for parent-child outcomes than individual psychiatric or medical care for the parent on their own.
International journal of Environmental Research and Public Health - The Prevalence of Fetal Alcohol Spectrum Disorders in An American Indian Community
The prevalence of fetal alcohol spectrum disorders (FASD) differs among populations and is largely unknown among minority populations. Prevalence and characterization of FASD is necessary for prevention efforts and allocation of resources for treatment and support.
OSFPREPRINTS - A preliminary investigation of the effects of prenatal alcohol exposure on facial morphology in children with Autism Spectrum Disorder
Alcohol exposure during pregnancy has been associated with altered brain development and facial dysmorphology. While autism spectrum disorder (ASD) is not specifically related to distinct facial phenotypes, recent studies have suggested certain facial characteristics—increased facial masculinity and asymmetry—may be associated with ASD
bioRxiv - Prenatal alcohol exposure programs offspring disease: Impacts on metabolic health and dietary preference in a rat model of acute exposure
These data suggest that a relatively low-level, acute PAE can still program metabolic dysfunction in offspring in a sex-specific manner. These results highlight that alcohol consumption during pregnancy has the potential to affect the long-term health of offspring.
BMJ - Analysis of non-respondent pregnant women who were registered in the Japan Environment and Children’s Study: a longitudinal cohort study
The non-response rate decreased when participants reported health-related behaviour or characteristics. Obtaining the understanding of people around each participant might help increase response rates.
Frontiers in Pediatrics - NEONATAL OUTCOMES IN MATERNAL DEPRESSION IN RELATION TO INTRAUTERINE DRUG EXPOSURE
SSRIs (Selective Serotonin Reuptake Inhibitors) are the most useful drugs to treat depression during pregnancy. Intrauterine exposure to SSRIs may increase the risk of growth restriction, preterm birth and neonatal complications.

IN OTHER LANGUAGES
Neue Presse (Germany) - Vollrausch im Mutterleib: So gefährlich ist Alkohol in der Schwangerschaft
Ein Glas Wein kann nicht schaden? Alkohol in der Schwangerschaft ist gefährlicher, als die meisten glauben. Auch geringe Mengen können verheerende Folgen haben – fast jedes vierte Pflegekind ist betroffen.

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