Sunday, March 20, 2016

FASD News - 11/2016

News-Medical.net - Alcohol worst of all drugs that affect fetal health
The Centers for Disease Control and Prevention (CDC) set off a firestorm of controversy this month when they suggested that women stop drinking alcohol if they are trying to get pregnant, or could get pregnant. Some people took this advice as the CDC prioritizing hypothetical, yet-to-be-conceived children over real women, which has brought up a number of issues from female autonomy to access to birth control—but how clear is the science about what causes fetal alcohol syndrome (FAS) and related fetal alcohol spectrum disorders (FASD).
The News-Press (USA) - SalusCare: Help available for addicted moms-to-be
Pregnancy on most occasions is a most joyous time in a woman’s life. However, for women with addiction to alcohol and/or other licit or illicit drugs it can be traumatic. Addiction in these cases are usually accompanied by depression and loss of hope and helplessness. Unfortunately, these events happen all too often.
Ottawa Citizen (Canada) - Ontario set to unveil first strategy on fetal alcohol disorder
The Ontario government is set to announce the province’s first strategy to combat Fetal Alcohol Spectrum Disorder (FASD) – a strategy expected to include a massive education effort aimed at would-be mothers, teachers and health care providers.
The Guardian (Australia) - Northern Territory attorney general backs Roseanne Fulton ruling
John Elferink dismisses calls for 24-year-old woman with foetal alcohol disorder to be placed in secure facility but ‘won’t second guess’ court decision she was fit to stand trial for property offences.
Sentinel Standard - Let's Talk About It: Fetal Alcohol Spectrum Disorders: The missing diagnosis
“Class, I want everyone to open up your desks, take out your math books, turn to page 49 and work on problems 1-10.” The previous set of instructions, or similar, has no doubt been spoken in classrooms all over Ionia County, and indeed the state, if not the U.S. Also, undoubtedly, most children were able to complete those instructions.
Science Daily - For both men and women, pregnancy and alcohol are toxic mix
Scientists are rather unequivocal on the issue, as it turns out. "Alcohol is probably the worst of all of the drugs in terms of effects on the fetus," said Rajesh C. Miranda, Ph.D., professor at the Texas A&M Health Science Center College of Medicine.

UPCOMING
European Conference on FASD 2016: Abstract Submission and Registration
The 4th European Conference on Fetal Alcohol Spectrum Disorders (FASD) will be held at the prestigious campus of the Royal Holloway University, London, from 12th to 15th September 2016. The research symposium will take place from the 12th to the 14th with an accredited Professional Training Day to be held on the 15th September. The training day is co-organized with NOFAS-UK.
FASD and Justice Webcast (March 24)
This is a great opportunity to take advantage of another free webcast, titled: FASD and Justice, which runs for one hour and thirty minutes.
Research on Adolescents and Adults: If Not Now, When? (April 6 - April 9)
This interactive 2016 conference will provide an opportunity to be at the forefront of addressing these issues. We will leverage the experience of the diverse group of professionals, researchers, students, families and individuals with FASD who attend to stimulate the discussion of research, evidence for practice, models, and ideas to expand our knowledge of how we can sustain and enhance the lives of those with FASD.

VIDEOS and MATERIALS
Challenged Hope - FASD Podcast
It was my privilege to be interviewed live by Art Waves radio host, Bernadette Rule, on Sunday, March 13, 2016, on the subject of FASD and also my memoirs: Two Decades Of Diapers, and, Fetal Alcohol Syndrome: The Teen Years, plus my novellas.
Drinktank - Communication and people with FASD
While a child with FASD might want to do what they are asked, whether they are eventually able to do so will depend on the way the instructions are expressed. For example, a neuro-typical child will respond appropriately when asked to pour water into a glass.

RESEARCH
J Popul Ther Clin Pharmacol - Adults with Fetal Alcohol Spectrum Disorder: Factors Associated with Positive Outcomes and Contact with the Criminal Justice System
As has been found previously, early diagnosis of FASD is associated with more positive outcomes including reduced amount of contact with the CJS. It is likely that early diagnosis leads to the receipt of more supports throughout childhood and contributes to a better understanding of FASD by family and caregivers.
Pediatrics - Prenatal Alcohol Exposure, FASD, and Child Behavior: A Meta-analysis
Fetal alcohol spectrum disorders (FASD) and prenatal alcohol exposure (PAE) are associated with behavioral difficulties, although there are no published systematic reviews that summarize and critique the literature.
Journal of Intellectual and Developmental Disability - Adaptation in families raising children with fetal alcohol spectrum disorder. Part I: What has helped
There is limited research investigating the lived experiences of parents raising children with fetal alcohol spectrum disorder (FASD). The aim of this paper is to use qualitative analysis to identify how parents have adapted to the experience of raising their child with FASD.
Ethics, Medicine and Public Health - Expert evidence in fetal alcohol spectrum disorder cases
Fetal Alcohol Spectrum Disorder (FASD) is an umbrella term relating to a set of disorders, including Fetal Alcohol Syndrome (FAS), partial Fetal Alcohol Syndrome (pFAS), Alcohol Related Developmental Disorder (ARND) and Alcohol Related Birth Defects (ARBD).
American Journal of Forensic Medicine & Pathology - Fetal Alcohol Syndrome in Sudden Unexpected Death in Infancy: A Case Report in Medicolegal Autopsy
Fetal alcohol spectrum disorder is a range of birth defects associated with prenatal alcohol exposure. Fetal alcohol syndrome (FAS) is the most serious form of fetal alcohol spectrum disorder.
Alcoholism - Theory of Mind in Children with Fetal Alcohol Spectrum Disorders
Theory of mind (ToM) refers to the ability to understand and make inferences about other people's intentions, feelings, and beliefs. Although children with fetal alcohol spectrum disorders (FASD) are known to have deficits in social-cognitive function, little is known about ToM in FASD.
Canadian Journal of Criminology and Criminal Justice - Experiences in the Canadian Criminal Justice System for Individuals with Fetal Alcohol Spectrum Disorders: Double Jeopardy?
The study explored the experiences of individuals in the criminal justice system with a Fetal alcohol spectrum disorder (FASD) in order to identify possible ways to reduce the likelihood of re-entry into the criminal justice system.
J Popul Ther Clin Pharmacol. - Life Expectancy of People with Fetal Alcohol Syndrome
To estimate the life expectancy and specify the causes of death among people with fetal alcohol syndrome (FAS). MethodsIncluded were all patients recorded in Alberta provincial databases of inpatients, outpatients, or practitioner claims from 2003 to 2012.

IN OTHER LANGUAGES
Stadt-Panorama (Germany) - Vortrag: Alkohol in der Schwangerschaft und die Folgen für das Kind
Anläßlich des Weltfrauentages bietet die Gleichstellungsstelle der Stadt Dinslaken in Kooperation mit der Drogenberatung im Diakonischen Werk eine gemeinsame Vortragsveranstaltung zu dieser Thematik an.

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