EUFASD - 7th European Conference on FASD
2024
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“When I train parents on parenting kids with FASD, I say throw your consequences out the window,” said Orr, who, in addition to focusing on FASD in her practice as a therapist, is a mother to five children, four of whom she adopted out of foster care. “Consequences mean absolutely nothing to these kids.”
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NZ Doctor (New Zealand) - First workforce
qualification for Fetal Alcohol Spectrum Disorder meets urgent need for
professional FASD-informed services in Aotearoa
Many professionals across social services, health, justice and education
sectors in Aotearoa NZ feel they do not have the knowledge required to meet the
needs of people with Fetal Alcohol Spectrum Disorder (FASD).
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Highland Radio (Ireland) - ‘Government’s
approach to FASD slack’ – Deputy Pringle
Donegal Deputy Thomas Pringle has highlighted the need for a foetal alcohol
project to be undertaken with a multi-care sector approach to FASD, a condition
he told the Dail that is unrecognised in Ireland.
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RNZ (New Zealand) - Fetal alcohol training for frontline workers
'groundbreaking' – advocate
An advocate for people affected by fetal alcohol spectrum disorder is
welcoming a new qualification for frontline professionals, but says financial
support for training is critical.
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13WIBW (USA) - Car
show to benefit ‘Dream Acres’ and its mission to help people with FASD
Cars, music and fireworks will combine for a great event to benefit an
organization supporting those affected by fetal alcohol syndrome.
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Red Shoes Rock - Finding
Joy in Small Moments with FASD
Navigating life with Fetal Alcohol Spectrum Disorder (FASD) can be
challenging, but finding joy in small moments can significantly enhance your
well-being.
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VIDEOS and MATERIALS
KNH Research - Fetal Alcohol Spectrum Disorders (FASD)
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AWHONN - AWHONN Insights: Understanding
Fetal Alcohol Spectrum Disorder – The Nurse’s Role
Together, we learn more about neurodiversity, living with FASD, and
implementing evidence-based care practices that reduce stigma and educate about
the risks of substance and alcohol use while pregnant.
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Interwoven Connections - Snack & Chat:
FASD and Mindset
Join us as we chat with Christine Bofenkamp, FASD Educator as we chat all
about Mindset in those living with FASD and those raising them.
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Health Nexus Santé - Towards Healthy
Outcomes for Individuals with FASD
Join Dr. Jacqueline Pei in this webinar where she will present the new
version of Towards Healthy Outcomes for Individuals with FASD.
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FASD Awareness - Allegations with Andrew
Fox - FASD Webinar #27
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Health Nexus Santé - Supporting Birth
Parents Raising Children with FASD
This webinar is for those who want to learn more about how to support birth
parents caring for their children with FASD.
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CFAR - Dr Joanna Chu on Fetal Alcohol
Spectrum Disorder (FASD) in Aotearoa New Zealand
In this video, Joanna tells us why we need more research into Fetal Alcohol
Disorder (FASD) in Aotearoa NZ, as why she's personally motivated to help those
affected by FASD and their whānau.
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Patricia Kasper, Your FASD Coach - FASD, U
Salford, RASD research, FASD & Criminology, courts with compassion, living
experience
In this episode of Living with FASD, we welcome Dr. David Gilbert,
University Fellow at the University of Salford, in the UK. Dr. Gilbert shares
his groundbreaking research on fetal alcohol spectrum disorder (FASD) and its
implications within the justice system.
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Patricia Kasper, Your FASD Coach - Gullibility
& FASD: the Untold Story of Social Challenges with Dr. Stephen Greenspan
In this special episode, host Patti Kasper engages in a candid conversation
with Dr. Steven Greenspan, an emeritus professor of educational psychology at
the University of Connecticut. Dr. Greenspan, a leading expert in social
competence and intellectual disabilities, shares his insights on the importance
of social intelligence in individuals with FASD.
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Patricia Kasper, Your FASD Coach - Unmasking
FASD: Insights from Dr. Kenneth Lyons Jones
In this enlightening episode of Living with FASD, we welcome Dr. Kenneth
Lyons Jones, a pioneering figure in the field of fetal alcohol spectrum
disorders.
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Lisa Dion | Synergetic Play Therapy Institute
- Natascha Lawrence: Fetal Alcohol Spectrum Disorders in the Playroom
In this podcast, Lisa is
joined by special guest Natascha Lawrence as they work to break down the
confusion surrounding FASD while exploring the ways to most effectively support
these amazing and misunderstood children.
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RESEARCH
Scientific Reports - Serum levels of leptin, ghrelin putative peptide YY-3
in patients with fetal alcohol spectrum disorders
The aim of this study was to examine the concentrations of hormones
involved in appetite regulation—ghrelin, leptin, and putative peptide YY-3
(PYY)—in the serum of individuals with FASD. Additionally, we investigated the
relationship between these hormone levels and clinical indicators.
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Kriminologija & socijalna integracija :
časopis za kriminologiju, penologiju i poremećaje u ponašanju - Social risks
and social problems related to fetal alcohol spectrum disorder
The aim of this review paper is to present, summarize and elaborate
knowledge about fetal alcohol spectrum disorders, risk factors for the
development of fetal alcohol spectrum disorders, difficulties, social risks,
and social problems of persons with fetal alcohol spectrum disorders, as well
as different forms and programs of support for families of those who deal with
fetal alcohol spectrum disorders.
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Biological Research - Exercise reduces
physical alterations in a rat model of fetal alcohol spectrum disorders
Our data suggests that individualized, scheduled, and supervised training
of resistance is more beneficial than endurance or enriched environment
exercise for adolescents FASD.
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Alcohol: Clinical and Experimental Research - Prevalence
of fetal alcohol spectrum disorder in foster care: A scoping review
This study examines two questions. Firstly, what is the prevalence of FASD
among infants and children in foster care? Secondly, what is the likelihood of
placement in foster care for infants and children with FASD?
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BMC genomics - Analysis of
alcohol-metabolizing enzymes genetic variants and RAR/RXR expression in
patients diagnosed with fetal alcohol syndrome: a case-control study
Understanding the mechanisms underlying alcohol metabolism and its
regulation, including the effect of polymorphisms in alcohol-metabolizing
enzymes, is crucial for research on Fetal Alcohol Spectrum Disorders.
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University of Saskatchewan - Fostering
FASD-Informed Practice with Incarcerated Adults with Fetal Alcohol Spectrum
Disorder: Towards More Informed, Strengths-Based, Investigative and Connected
Correctional Environments
The aim of this study was to critically consider how Fetal Alcohol Spectrum
Disorder (FASD)-informed practice could be fostered within Correctional Service
of Canada (CSC) facilities.
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International Journal of Molecular Sciences - Moderate Prenatal Alcohol Exposure
Increases Toll-like Receptor Activity in Umbilical Cord Blood at Birth: A Pilot
Study
The results of this pilot investigation support further work into the
impact on TLR2 and TLR4 response following PAE to delineate if alterations in
levels of pro- and anti-inflammatory cytokines have clinical significance that
could be used in patient management and/or attention to follow-up.
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Journal of Osteopathic Medicine - Association
of prenatal substance exposure and the development of the amygdala,
hippocampus, and parahippocampus
We found a significant association between prenatal tobacco exposure and
smaller parahippocampal volume, which may have profound impacts on the
livelihood of individuals including motor delays, poor cognitive and behavioral
outcomes, and long-term health consequences.
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JMIR Infodemiology - Analyzing
Questions About Alcohol in Pregnancy Using Web-Based Forum Topics: Qualitative
Content Analysis
Web-based discussions within a UK parenting forum indicated that users were
often unclear on guidance and risks associated with prenatal alcohol use and
that they used this platform to seek information and reassurance from peers.
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JAACAP Open - Independent
and Interactive Impacts of Prenatal Exposure to Legal Substances and Childhood
Trauma on Emotion Processing in Pre-adolescents: Preliminary Findings From the
ABCD Study
Children experiencing these “double hit” conditions may represent at-risk
individuals who could benefit from early interventions to mitigate the onset of
psychopathology.
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Reproductive BioMedicine
Online - Periconceptional maternal and paternal alcohol consumption and
embryonic and foetal development: the Rotterdam periconception cohort
Moderate maternal alcohol consumption is negatively associated with foetal
growth parameters. Moreover, alcohol is proven a strong teratogen and the
consumption before and during pregnancy should be discouraged in both women and
men since it affects both several parameters of embryonic and foetal
development.
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SDU - Substance use
and abuse among pregnant women in Denmark
Our results did not uncover indications suggesting that the current
antenatal care program overlooks pregnant women with substance use, but we
identified several challenges within the program related to the self-reporting
approach and the guidelines regarding preventive measures for substance use in
pregnancy.
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