CBC (Canada) - Years-long wait for Manitoba FASD diagnosis highlights 'critical' need for more Resources
Youth in Manitoba are waiting years to be diagnosed with fetal alcohol spectrum disorder — a delay one occupational therapist says is putting already vulnerable kids at risk as they wait for an assessment that could give them the help they need.
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Medriva - The Dangers of Alcohol
Consumption during Pregnancy: A Comprehensive Guide
Drinking alcohol during pregnancy is a topic that has been studied
extensively, and the overwhelming consensus is that it can have severe,
long-lasting effects on the baby.
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Aberdeen Live (UK) - More than 200 babies
born with substance dependencies at NHS Grampian hospitals
Ministers have been told to “shoulder blame” after figures revealed almost
1,400 babies have been born dependent on substances since 2017.
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Toronto Sun (Canada) - Small majority
favours putting warnings on booze and wine bottles: Poll
A slim majority of Canadians wants to see warning labels placed on bottles
of beer, wine and liquor, according to polling commissioned by the country’s
Department of Health.
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Indiana Alliance (USA) - Navigating the
Legal System for Individuals with Fetal Alcohol Spectrum Disorder (FASD)
Facing challenges with the law can be tough, especially for individuals
with Fetal Alcohol Spectrum Disorder (FASD). FASD can occur when a fetus is
exposed to alcohol prenatally, leading to difficulties in thinking, learning,
and behavior. Sometimes, these challenges can create trouble with the law.
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FASD United (USA) - Give FASD a Seat at the
Table: Our Mission for 2024
In 2023, the FASD community actively engaged in advocacy, education, and
awareness initiatives.
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Institute of Health Visiting (UK) - HVs’
role in providing alcohol advice to women who are pregnant or planning a
pregnancy
What is the role of health visitors (HVs) in providing alcohol advice to
women who are pregnant or planning a pregnancy?
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Institute of Alcohol Studies (UK) - Dragging
their heels: the alcohol industry’s response to mandatory pregnancy warning
labels
What would it look like if the alcohol industry really didn’t want an
alcohol harm-reduction initiative introduced? No doubt they would invoke the
tried-and-true harmful industry playbook that involves denying harm,
distracting through implementation of industry-run voluntary systems, and
delaying compliance with mandatory requirements.
Read more
FASD United (USA) - January is National
Birth Defects Awareness Month!
Welcome to 2024, a new year of information, excitement, and growth.
However, January’s awareness month hasn’t changed- It’s National Birth Defects
Awareness Month.
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VIDEOS and RESOURCES
FASD United (formerly NOFAS) - FASD United Policy Forum - December 2023
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Patricia Kasper, Your FASD Coach - FASD and
Sleep Disturbances, Part 1, with Dr. Jerrod Brown
This week I welcome back to Living with FASD Dr. Jerrod Brown. Dr. Brown,
PhD., MA, MS, MS, MS, is a professor, trainer, researcher and consultant with
multiple years of experience teaching collegiate courses.
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Patricia Kasper, Your FASD Coach - Supporting
our Young Adults with FASD: a Candid Conversation with author Melissa Jacobus
This week I am excited to be joined at the mic by Melissa Jacobus, FASD
Advocate and author of The Accomplice. Melissa Jacobus has been advocating for
her adopted children and the rights of
all individuals with FASD since 1998.
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Patricia Kasper, Your FASD Coach - Married
with FASD: Advocacy & Research: Justin Shepherd & Dr. Kristina Uban
This week, I am pleased to have Justin Shepherd & Dr. Kristina Uban on
the podcast. Married with FASD, Justin is an FASD self-adovocate and his wife,
Kristina, is an FASD researcher.
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Kay-Kay Smith - How To Understand ADHD-
Understanding FASD
Natalie Vecchione is an FASD parent advocate, podcaster, new author, wife
and homeschool mom of two. Natalie and her husband, John, built their family
through adoption. Their son, who is almost 19, lives with an FASD (Fetal
Alcohol Spectrum Disorder). He has graduated from homeschool and he is working
part time as a carpentry apprentice.
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Bunny Hugs and Mental Health - 39. Robbie
Seale - Fetal Alcohol Spectrum Disorder (FASD). I have multiple children with
FASD and...
Robbie Seale is a mother to multiple children with FASD. Over the last 20
years of parenting, she has gained priceless knowledge on the subject. Not only
does the stigma and misdiagnosis affect children with FASD, but after speaking
with Robbie, it clearly affects the mental health of parents and care givers.
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Fasd Success Show - #140: Audrey McFarlane
– Pioneering Progress in FASD
Join us for a captivating episode of 'The FASD Success Show' with the
insightful Audrey McFarlane, Executive Director of the Canada FASD Research
Network, who has been at the forefront of FASD research and advocacy for over
two decades.
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RESEARCH
Children's Health Care - Fetal alcohol spectrum disorder: an exploratory
telehealth pilot group intervention for caregivers
The Family Foundations: Behavioral, Emotional, Social, and Team-Based
[B.E.S.T.] program is a novel trauma-informed intervention for caregivers of
children with Fetal Alcohol Spectrum Disorders (FASD) to address emotional,
behavioral, and cognitive problems.
Read more
Alcohol: Clinical and Experimental Research - Parenting
by individuals with fetal alcohol spectrum disorders and neurobehavioral
outcomes in their offspring
Parents with FASD display notable strengths including a predominantly
authoritative parenting style. However, parents with FASD underrecognize child
trauma and underutilize developmental services compared to socioeconomically
matched controls, despite similar neurocognitive impairments.
Read more
Journal of Studies on Alcohol and Drugs - Hesperidin
Protects Alcohol-induced Mitochondrial Abnormalities via the Inhibition of
Oxidative Stress and MPT Pore opening in Newborn Male Rats as Fetal Alcohol
Syndrome Model
This study demonstrates that hesperidin exerts a potent mitochondria
protective effect against alcohol-induced mitochondrial toxicity in FAS model.
Moreover, these findings indicates that hesperidin might be a useful compound
for prevention of alcohol-induced fetal developmental abnormalities during
pregnancy.
Read more
JAMA Network Open - In Utero Exposure to Alcohol and Tobacco
and Electroencephalogram Power During Childhood
These findings support the public health message that any level of alcohol
and/or tobacco consumption during pregnancy has a potentially harmful impact on
brain development in the offspring.
Read more
Progress in Orthodontics
- Dentofacial characteristics of children and adolescents with foetal
alcohol spectrum disorders: a comparison with matched controls
Dentofacial characteristics of children and adolescents with FASD
significantly differ from controls. Early orthodontic diagnosis and prophylaxis
should play a part of the interdisciplinary care of patients in this group.
Read more
Children - Fetal
Alcohol Spectrum Disorders and Inadequacy of Care: Importance of Raising
Awareness in Clinical Practice
FASD diagnosis and management have not been sufficiently established and
tailored. Stigma, cultural contexts, knowledge gaps, and the heterogeneity of
clinical manifestations are significant barriers to an accurate diagnostic
process.
Read more
Archives of Women's
Mental Health - The association between depression and alcohol use among
pregnant adults in the USA
This study showed a positive association between MDE and past-month alcohol
use among pregnant women, with strongest effect estimates in the third
trimester.
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Addiction Science
& Clinical Practice - Improving the quality of antenatal screening and
early intervention for alcohol and other drug use: protocol for a multi-stage
approach to systems reform
From a public health perspective, this project has the potential to make a
significant impact on reducing risk of harm from substance use disorders among
pregnant women, and contribute to better health outcomes for their children.
Read more
Children's Health Care
- Fetal alcohol spectrum disorder: an exploratory telehealth pilot group
intervention for caregivers
The Family Foundations: Behavioral, Emotional, Social, and Team-Based
[B.E.S.T.] program is a novel trauma-informed intervention for caregivers of
children with Fetal Alcohol Spectrum Disorders (FASD) to address emotional,
behavioral, and cognitive problems.
Read more
Alcohol Clin Exp Res -
Parenting by individuals with fetal alcohol spectrum disorders and
neurobehavioral outcomes in their offspring
Parents with FASD display notable strengths including a predominantly
authoritative parenting style. However, parents with FASD underrecognize child
trauma and underutilize developmental services compared to socioeconomically
matched controls, despite similar neurocognitive impairments.
Read more
Frontiers in
Neuroscience - Editorial: Perspectives and recent advances in Fetal Alcohol
Spectrum Disorders research
Collectively, the included articles highlight that FASD is a highly complex
neurodevelopmental disorder with life-long consequences that calls for
concerted efforts of investigation on all fronts, at all levels, and across
lifespan, to advance and improve treatment and management of FASD.
Read more
Psychiatry, Psychology
and Law - Knowledge, attitudes and practices towards fetal alcohol spectrum
disorder among lawyers in New Zealand
Fetal alcohol spectrum disorder (FASD) is a developmental disability that
can cause difficulties with communication, emotional regulation and executive
function, making people with FASD vulnerable to adverse involvement within the
criminal justice system.
Read more
Alcohol Clin Exp Res -
Maternal risk factors for fetal alcohol spectrum disorders: Distal variables
Differences in distal FASD risks were identified. Complex models to
quantify risk for FASD hold promise for guiding prevention/intervention.
Read more
IN OTHER LANGUAGES
Radio-Canada (Canada) - La rareté d'experts serait à la base des retards de
diagnostics TSAF, selon une médecin
Face aux temps d'attente élevés pour recevoir un diagnostic de trouble du
spectre de l'alcoolisation fœtale (TSAF), « ça prend une équipe d'abord » afin
de régler la situation, d'après la médecin spécialisée en toxicomanie Ginette
Poulin.
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Obserwatorium ROPS Lublin (Poland) - "Czynniki
ryzyka i trudności dzieci z FAS" - Rozmowa Ewelina Drzał
Regionalny Punkt Diagnozy i Terapii FAS/FASD w Lublinie zaprasza do
wysłuchania cyklu 10 audycji – Specjaliści o FAS. Wśród prelegentów usłyszymy
Read more
Chaos im Kopf Podcast - Dein FASD Podcast
(Germany) - FASD auf den Punkt gebracht: Die 3 Top Episoden 2023 (C65)
In dieser Podcastfolge werfe ich einen Rückblick auf das erfolgreiche Jahr
2023 des "Chaos im Kopf" Podcasts. Mit insgesamt 13.700 Downloads
präsentiere ich die Top 3 Episoden, darunter Interviews zur FASD-Diagnose,
sozialrechtliche Fragen rund um Eingliederungshilfe und eine kurze Erklärung
von FASD in nur 360 Sekunden.
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Ketju (Finland) - Sikiöaikana päihteille
altistuneilla usein mielenterveysongelmia nuoruusiässä
Koulutuksen ja toimeentulon ongelmat sekä mielenterveyshaasteet ovat
selvästi muita nuoria yleisempiä raskausaikana päihteille altistuneilla
nuorilla.
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ROP (Norway) - Rusbruk under graviditet -
hvordan oppdage, forebygge og behandle
Alkohol er både det vanligste og det mest skadelige rusmiddelet å bruke
under graviditet. I Norge fødes det årlig 60 til 120 barn med fullt utviklet
føtalt alkoholsyndrom (FAS). Man antar at 600 til 1200 nyfødte er på
syndromspekteret (FASD).
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