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Sunday, May 21, 2023

FASD News - 20/2023


Government of Saskatchewan (Canada) - Government Of Saskatchewan Funds FASD Awareness And Prevention Programming
Agencies that promote awareness and prevention of Fetal Alcohol Spectrum Disorder (FASD) in the province are receiving $220,775 in funding from the Saskatchewan Liquor and Gaming Authority (SLGA).
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IOL (South Africa) - Foetal alcohol disorders: why women need urgent help
Improved support was needed for women who might have a higher risk of drinking during pregnancy - given that South Africa has the highest recorded prevalence of foetal alcohol spectrum disorders (FASD) globally, and that children suffering from FASD carried it into adulthood.
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ABC (Australia) - Gold Coast family push to reduce stigma around foetal alcohol spectrum disorder
As a little boy, Jazpa Pinnell was so hyperactive he'd run up and down the balconies at school, was unable to concentrate in class, and his meltdowns were so bad friends and family would tell his mum he needed a "belting".
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ABC News (Australia) - What is FASD and how much of a role did it play in the latest Banksia Hill Detention Centre riot?
For the last week, the WA premier has been locked in a bitter and impassioned battle even another massive budget surplus couldn't distract from.
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ABC News (Australia) - Calls for mandatory FASD assessments in juvenile justice
Childrens' advocates want all young people who enter the youth detention system to be automatically assessed for a neurological disorder known as FASD.
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HRI Portal - Understanding How to Diagnose Preschoolers with Prenatal Alcohol Exposure
Fetal Alcohol Spectrum Disorder (FASD) is a lifelong disability impacting the brain and body of someone exposed to alcohol prenatally. FASD is one of the most common neurodevelopmental disabilities, impacting more Canadians than Autism, cerebral palsy, and Down syndrome combined.
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Change.org (Canada) - Petition the Government of Ontario to include FASD in their categories of exceptionalities
Fetal Alcohol Spectrum Disorder (FASD) is a lifelong disability that affects individuals who were exposed to alcohol in utero. It is estimated that FASD affects 4% of the Canadian population.
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Giddy - Why Does Fetal Alcohol Spectrum Disorder Occur?
Fetal alcohol spectrum disorder (FASD) is entirely preventable. These conditions can affect children in different ways—with mild to severe repercussions.
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CanFASD - What’s Happening in FASD Research?
There’s a lot on the go right now in the realm of FASD research. Many studies are looking for people to share their ideas and experiences. There’s also new resources and articles being published every day. Read on to find out what’s happening in FASD research right now!
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Fox9 (USA) - Combatting prenatal alcohol exposure in Minnesota
For the last 25 years, the Proof Alliance has been working to put and end to prenatal alcohol exposure. The latest numbers show that it impacts 1 in 20 babies in the United States and it's an even bigger problem in Minnesota.
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Prue Walker - Why I take FASD training to the NT
Occasionally, I am asked why I provide FASD training in the Northern Territory, despite residing in Melbourne. It’s a valid question, and the answer involves a backstory that I’d like to share with you. Please note that this narrative is rather lengthy, so feel free to skip ahead if you wish.
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VIDEOS and MATERIALS
FASD United (formerly NOFAS) - FASD United Affiliate Meeting - May 18, 2023
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FASD United (formerly NOFAS) - FASD United Affiliate Meeting - April 2023
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National FASD - Raja & Neil's FASD Book Club - Session 13, How Does Alcohol Affect the Developing Fetus?
In this virtual book club series, we’ll be breaking down the research and findings in the book ‘Prevention, Recognition and Management of Fetal Alcohol Spectrum Disorders’, written by a range of FASD specialists, and co-edited by Professor Raja Mukherjee and Dr Neil Aiton.
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Newzroom Afrika - 'SA leads in the world's Foetal Alcohol Spectrum Disorders'
According to the World Health Organization, South Africa is among countries battling Foetal Alcohol Spectrum Disorder.
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Rural FASD Support Network - Health Care Accessibility for People with FASD in Eastern Ontario
Researcher Claudia Reed shares her findings on the accessibility of health care for people with FASD in Eastern Ontario using primarily a voice-first method.
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Fasd Justice - FASD & the Justice System: A Better Understanding - Part II
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The Crisis Files - Case File #42: Zero Proof
Studies show that globally more than 1700 infants are born with fetal alcohol spectrum disorders each day. Exposure to alcohol during pregnancy can lead to lifelong challenges, yet more than 13% of expecting mothers report drinking while pregnant.
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FASD Hope - 165 - Mom, Author and Navigator - A Conversation with Laura Bedard
Episode 165 welcomes back Laura Bedard (Ep. 149 / September 2022) of MASSFAS, an FASD United Affiliate. Laura recently published her second book titled "My FASD Feelings: A Guide to Children's Experience with Fetal Alcohol Spectrum Disorders". Laura is also a Family Navigator with FASD United.
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Alaska Center for FASD - 8 Keys for Adults with FASD – Trailer
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National Association of Social Workers - EP101: Preventing Fetal Alcohol Spectrum Disorders
We speak with Dr. Mary Velasquez and Anna Magnum about National Partnerships to Address Prenatal Alcohol and other Substance Use and Fetal Alcohol Spectrum Disorders, the Centers for Disease Control grant that began October 2023 in partnership with the University of Texas at Austin.
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NOFASD Australia - ALCOHOL AND PREGNANCY: A GUIDE FOR ALCOHOL AND OTHER DRUG WORKERS
As the peak body for parents, caregivers and individuals impacted by Fetal Alcohol Spectrum Disorder, NOFASD led a consultation process with a range of key stakeholders to include individuals with lived experience, to inform a suite of targeted resources to support women who are at greater risk of having alcohol-exposed pregnancies.
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RESEARCH
SOCIAL INNOVATIONS FOR SUSTAINABLE REGIONAL DEVELOPMENT - EMOTIONAL AND MENTAL FUNCTIONING OF CHILDREN WITH FASD AFTER SENSORY INTEGRATION CLASSES IN THE OPINION OF PARENTS AND GUARDIANS
Most of parents (97%) participating in the study observed a positive change in the functioning of their children after attending sensory integration therapy.
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Journal of Integrative Neuroscience - Towards a Distinct Sleep and Behavioural Profile of Fetal Alcohol Spectrum Disorder (FASD): A Comparison between FASD, Autism and Typically Developing Children
The findings in this study highlight several syndrome specific features (shorter sleep duration, executive functioning difficulties, and higher levels of social and behavioural problems and panic) that potentially contribute to the unique phenotype of FASD.
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Antioxidants - Effect of Postnatal Epigallocatechin-Gallate Treatment on Cardiac Function in Mice Prenatally Exposed to Alcohol
Prenatal alcohol exposure affects the cardiovascular health of the offspring. Epigallocatechin-3-gallate (EGCG) may be a protective agent against it, but no data are available regarding its impact on cardiac dysfunction.
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Journal of Translational Medicine - Ethanol causes cell death and neuronal differentiation defect during initial neurogenesis of the neural retina by disrupting calcium signaling in human retinal organoids
Our study demonstrated that short-term ethanol exposure greatly impaired the initial neurogenesis of hROs by disrupting the RYR1 related calcium signaling.
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Alcoholism: Clinical and Experimental Research - Lived experiences of the diagnostic assessment process for fetal alcohol spectrum disorder: A systematic review of qualitative evidence
Early assessment and diagnosis of FASD are crucial in providing therapeutic interventions that aim to enhance meaningful participation and quality of life for individuals and their families, while reducing psychosocial difficulties that may arise during adolescence and adulthood.
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Children - Children with FASD—Evolving Patterns of Developmental Problems and Intervention Costs in Ages 0 through 16 in Finland
This is a retrospective chart review of 55 persons (mean age 11 years, range 2–28 years) diagnosed with fetal alcohol spectrum disorder (FASD) in one Finnish central hospital.
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University of Kentucky - PRENATAL ETHANOL EXPOSURE IMPAIRS PERFORMANCE ON SPATIAL AND TACTILE SEQUENTIAL DISCRIMINATION TASK IN JUVENILE RATS
Fetal alcohol spectrum disorders (FASDs) are a set of cognitive and behavioral abnormalities that arise in ~5% of children who have been prenatally-exposed to alcohol.
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The Journal of Pediatrics - Latent Class Analysis of Prenatal Substance Exposure and Child Behavioral Outcomes
The differences in prenatal polysubstance use may increase risk for specific childhood problem behaviors; however, child outcomes appeared comparably adverse for both licit and illicit polysubstance exposure.
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Drug and Alcohol Review - Why stigma matters in addressing alcohol harm
Alcohol problems are amongst the most stigmatised of conditions, resulting in multiple additional harms for people with alcohol use disorder. Alcohol stigma encompasses widely endorsed negative stereotypes leading to prejudice and discrimination towards people with alcohol use disorder.
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Frontiers in Nutrition - Nutritional status of a group of polish children with FASD: A retrospective study
During the care of children with FASD, a continuous evaluation of nutritional status, height, and weight is necessary. This group of patients is often affected by low birth weight, short stature and weight deficiency, which require differential diagnosis and appropriate dietary and therapeutic management.
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Drug and Alcohol Dependence - Polysubstance use during pregnancy: The importance of screening, patient education, and integrating a harm reduction perspective
One in five individuals who reported use of any substance during pregnancy engaged in polysubstance use, highlighting the importance of comprehensive screening and evidence-based interventions including harm reduction.
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IN OTHER LANGUAGES
lubiehrubie.pl (Poland) - Hrubieszów: Dziecko z FAS/FASD [ZDJĘCIA]
W dniu 21 kwietnia 2023 roku, Poradnia Psychologiczno-Pedagogiczna w Hrubieszowie we współpracy z Powiatowym Centrum Pomocy Rodzinie w Hrubieszowie, zorganizowało szkolenie pt.: „Dziecko z FAS/FASD”.
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Landkreis Esslingen (Germany) - „Auf das Kindeswohl – In der Schwangerschaft kein Alkohol!“
Alkoholkonsum in der Schwangerschaft ist die häufigste Ursache für eine verzögerte geistige Entwicklung bei Kindern. Die Kinder wurden mit einer alkoholbedingten Fetalen Alkoholspektrum-Störung (FASD) geboren.
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Ung.no (Norway) - Kan jeg finne ut av om mor drakk alkohol i svangerskapet?
Hei. Kan legen min finne ut om min mor drakk alkohol i svangerskapet når jeg lå i magen? Og hvordan gjør legen det? Mamma har sagt at jeg var veldig liten når jeg ble født.
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Helsingin Sanomat (Finland) - Miten alkoholi vaikuttaa lapseen raskauden alussa?
On arvioitu, että noin 15 prosenttia suomalaisnaisista juo alkoholia raskaana ollessaan, mutta alkuraskauden aikana luku on todennäköisesti huomattavasti suurempi.
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Lääkärilehti (Finland) - Alkoholin käyttö raskauden ensiviikkoina on edelleen yleistä
Yli puolet raskaana olevista naisista ei pidättäytynyt alkoholista ennen positiivista raskaustestiä. Heikompi koettu elämänlaatu voi viitata lisääntyneeseen tuen tarpeeseen.
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MBL (Iceland) - Er bannað að drekka á meðgöngu?
Marg­ir elska án efa bragðið af ís­köld­um bjór. Eins og flest­ir von­andi vita þá er áfengi eitt það fyrsta sem þarf að frysta á meðgöngu enda er áfengi afar óhollt fyr­ir vax­andi fóst­ur.
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Microbiologia Italia (Italy) - Consumo di alcol da parte del padre può causare danni al feto
Un recente studio sul legame tra la sindrome feto-alcolica (Fetal Alcohol Syndrome, FAS) e il consumo di alcol da parte del padre prima del concepimento ha rivelato importanti implicazioni per la salute fetale. Secondo i ricercatori, l’attenzione dovrebbe essere rivolta non solo alla madre, ma anche al padre, nella prevenzione della FAS.
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Hospital Clínic de Barcelona (Spain) - Trastorno del Espectro Alcohólico Fetal en primera persona | PortalCLÍNIC
Yolanda: "Notábamos dificultades de aprendizaje, impulsividad, mucha movilidad y falta de control".
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TAZ (Germany) - Raus aus dem Seelenkeller
Ein adoptiertes Kind, das nie richtig in die Gesellschaft passt. Eine Mutter, die sich schuldig fühlt. Und nach drei Jahrzehnten endlich die Diagnose: Fetales Alkoholsyndrom.
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