FASD Hub Scotland - Download
'You Are My Song' - FASD Month
Donate to receive an email link to download 'You Are My Song' featuring
Darren Day and the FASD Choir (Minimum donation £1 of which £0.69 is the
download price, all other sums directly support our FASD work).
Read more
The song will also
be performed live by Darren Day and the FASD Choir at Wembley Arena in March
2023 as part of the Voice In A Million concerts.
If you would like to take part in the Wembley performance of the song you can
register here
Read more
The Queen's Nursing
Institute Scotland - Considering Fetal Alcohol Spectrum Disorders
Helen Gilpin is a Queen’s Nurse and Nurse Specialist for Looked After and
Accommodated Children and Young People in NHS Highland. Learning about FASD has
changed the way she approaches her initial consultations with children and
young people and has allowed her to explore new treatment options for those she
cares for.
Read more
The Conversation - Why suicide prevention support is
crucial for people with fetal alcohol spectrum disorder
Fetal alcohol spectrum disorder (FASD) is a lifelong disability that
affects the brain and body of people prenatally exposed to alcohol. New
research is backing concerns raised by the FASD community about the high rates
of suicidality among people with FASD.
Read more
The Crime Report
- Fetal Alcohol Syndrome and the Justice System
The link between Fetal Alcohol Syndrome (FAS) and criminal behavior is
rarely acknowledged as a mitigating factor in U.S. jurisprudence, says a New
York Law School Legal Studies Research Paper.
Read more
Stuff (New
Zealand) - Stuff Circuit's Disordered investigation wins global award
Stuff Circuit has taken out an international media award for its
investigation into the epidemic of Fetal Alcohol Spectrum Disorder.
Read more
Love What Matters
- ‘If you want them you need to move.’: Mom shares sudden adoption of foster
siblings with Fetal Alcohol Spectrum Disorder
“I taped it on my door frame to remember to pray. The article spoke of the
atrocities that were happening in the First Republic of the Congo Civil War,
which was when the Ninja and Cobra militias fought against the President’s
Cocoye militia. I read how the pregnant women’s babies were cut out and left to
die and how women and children were being crucified.
Read more
Stuff.co.nz (New
Zealand) - Schools, early childhood centres 'failing disabled learners',
Education Review Office says
The families of many disabled learners are being actively discouraged from
enrolling their children at early childhood services and schools, according to
two Education Review Office (ERO) reports released on Wednesday.
Read more
Oxygen (USA) - Neuropsychologist
Testified Nikolas Cruz Likely Faked Fetal Alcohol Syndrome Symptoms
Prosecutors presented evidence that Parkland school shooter Nikolas Cruz's
supposed symptoms of fetal alcohol syndrome were incompatible with the speed at
which he committed the massacre.
Read more
Girls, Women, Alcohol,
and Pregnancy - Actionable research! Reflecting on 5 years of FASD
prevention research
Last month, the Journal of Fetal Alcohol Spectrum Disorder (FASD) released
a special collection of articles about FASD prevention, diagnosis, intervention
and support.
Read more
BBC (UK) - Devon
woman in film tackling alcoholism while pregnant
A Devon woman's story features in a new film created to highlight the
dangers of alcohol abuse during pregnancy.
Read more
University of
Salford (UK) - Assessing the Prevalence of FASD
Fetal Alcohol Syndrome was first discovered in the 70’s, and given the high
risk of drinking alcohol in pregnancy, it has received surprisingly little
attention so far.
Read more
Our Sacred Breath
- FASD: A TALE TOLD IN 9 TS
September has been a busy month as advocates, individuals, caregivers,
organizations and professionals came together to raise the profile of fetal
alcohol spectrum disorder.
Read more
FIRST NATIONS
HEALTH AUTHORITY (Canada) - The importance of bonding and building on
strengths and abilities in FASD families
Fetal alcohol spectrum disorders (FASDs) are a group of conditions that can
occur in a person who was exposed to alcohol before birth. FASDs have lifelong
effects, including problems with behaviour and learning as well as physical
problems.
Read more
Illuminate
Colorado (USA) - Reflecting Back and Looking Ahead– Being FASD Aware is a Year-Round
Endeavor
At the beginning of September, we called on you to Show Your Respect This
FASD Awareness Month. As the month comes to a close, we wanted to take a moment
to reflect on all of the efforts that were made to spread awareness this month
and look ahead to all that is still needed to work toward prevention of Fetal
Alcohol Spectrum Disorders (FASDs) and appropriate support for individuals and
families in Colorado who are impacted.
Read more
CanFASD Blog
(Canada) - What Happened During FASD Awareness Month 2022
FASD Awareness Month is almost over! Our theme this year was building
strengths and abilities. The goal was to recognize and celebrate the strengths
and abilities of individuals with FASD and this community. Here is a roundup of
what happened for FASD awareness during the month of September!
Read more
VIDEOS and
RESOURCES
PAHO TV - Fetal alcohol spectrum disorders (FASD): Community approaches for
prevention and care
Recording of the webinar “Fetal alcohol spectrum disorders (FASD):
Community approaches for prevention and care” organized on September 8, 2022 by
PAHO and the WHO Office in Europe, in which the role of the community was
addressed in the prevention and care of people with fetal disorders caused by
alcohol.
Read more
FASD Hub
Australia - Role of Men in FASD
When it comes to FASD prevention, awareness and management, men play a
vital role. Whether as partners supporting an alcohol-free pregnancy, or as
fathers raising children with FASD, mentors to young people, or peers and role
models, men are important in many arenas.
Read more
FASDHub Scotland
- FASD: What do I need to know? A webinar for prospective adopters
Read more
Voice in a
Million - ‘You Are My Song’ featuring musical theatre star Darren Day &
the FASD Choir
You Are My Song, which JHM was commissioned to write and produce for a
charity campaign, is aimed at raising awareness of Fetal Alcohol Spectrum
Disorder (FASD).
Read more
FASD United
(formerly NOFAS) - How Schools Can Begin to Develop a Response to FASD, with
Deb Evensen, MA
FASD in the Classroom by FASD Network of Northern California
Read more
FASD United
(formerly NOFAS) - FASD United Policy & Training Center: September 2022
Virtual Forum
Read more
FASDHub Scotland
- FASD Hub Webinar with Morag Burns, Speech and Language Therapist
Read more
FASD United
(formerly NOFAS) - FASD & Mental Health, with Dan Dobovsky, MSW
FASD in the Classroom by FASD Network of Northern California
Read more
Alcohol Awareness
- ZERO ALCOHOL DURING PREGNANCY
Since 2016, on the occasion of World FAS Awareness Day on September 9, the
CRAG, carried by the COREADD Nouvelle-Aquitaine, in partnership with the RPNA
launches a prevention campaign “Zero alcohol during pregnancy” in September.
Read more
In the Cut Global
- CUT TALK PODCAST | EP. 34 - ADD or FASD? Fetal Alcohol Spectrum Disorders
w/ Patti Kasper
Patti is committed improving children's lives by providing practical tools
to parents and professionals who care for children with brain-based
differences, whose behaviors are reflective of brain changes that resulted from
exposure to prenatal toxins and/or from trauma, AND reflective of the poor fit
between their cognitive abilities and the world's expectations of them.
Read more
JumpStartPsychology
1 - Understanding why kids with FASD can go from 0 to 100 and strategies to
manage this
Ever wondered why our kids with FASD seems to go from 0 to 100 seemingly
out of nowhere? Discover the brain based reasons why this can happen and what
you can do about it!
Read more
National FASD - What
Have You Learned From People With FASD?
Our Director of Innovation, Jo Buckard, asked other attendees at the EU
FASD conference in Norway what they had learned from people with FASD. Here's
what they had to say!
Read more
PLEXUS FASD - The
word PLEXUS means an intricate network. Those with FASD, their caregivers,
service providers and community members all make up this network of people who
create space for individuals of all ages and their families. PLEXUS can help
access FASD informed services and supports.
Read more
Fasd Success Show
- #126 Ask Me Anything about FASD with Jeff Noble ROUND 2
The first AMA episode (#112) was so successful I am back with brand new
questions, submitted by caregivers, for Round 2 of the Q and Ehs!
Read more
FASD Hope - 156
- It’s Our Two Year Podversary! With Guest Host Jennifer Wisdahl
FASD Hope Podcast is celebrating it's 2 year anniversary ( aka
"Podversary")! FASD Hope launched on October 1, 2020. We are airing
this milestone episode (a day early) on Friday, September 30th - International
Podcasting Day.
Read more
Emory MSACD - MSACD
FASD Webinar Series Part -4 | Molly Millians, D.Ed
This webinar will discuss the impact of PAE on learning, academic, and
school functioning. It will review the
need to view individual learning profiles to determine how to support
children's learning and interactions across school settings.
Read more
RESEARCH
The Child Health Interdisciplinary Literature and Discovery Journal - Short
and Long Term Impacts and Implications of Fetal Alcohol Syndrome Disorders on
Cognitive Development in Childhood
Fetal alcohol syndrome disorders (FASD) represent a collection of disorders
with which a child is born, due to maternal consumption of alcohol during
pregnancy.
Read more
The Child Health
Interdisciplinary Literature and Discovery Journal - The Need for
Educational Reform Concerning the Paternal Role in FASD Pathogenesis
FASD is a preventable disorder: prophylactic measures such as increasing
the information and educational resources to reach a larger population could
greatly reduce the risk and incidence of FASD.
Read more
Pediatrics - Psychotropic
Medication Utilization Among Children Diagnosed With Fetal Alcohol Spectrum
Disorder
These results exemplify the complexity of the neurobehavioral profile of
children with FASD and the challenge of treatment. Future studies may determine
how supportive services for these children will affect psychotropic medication
use.
Read more
Edmonton and Area
Fetal Alcohol Network - FETAL ALCOHOL SPECTRUM DISORDER: THE IMPORTANCE OF ADOPTING
A STANDARD DEFINITION IN CANADA
Our standard definition of FASD provides an opportunity to ensure
consistency in language, increase awareness of FASD, promote dignity, and
reduce stigma upon people with FASD and their families.
Read more
Developmental Medicine
& Child Neurology - Combining neuroanatomical features to support diagnosis
of fetal alcohol spectrum disorders
Our results suggest that adding an explicit composite
neuroanatomical–radiological criterion for FASD diagnosis may improve its
specificity, especially in NS-FASD.
Read more
Advances in Neurodevelopmental
Disorders - Improving the Journey Before, During and After Diagnosis of a
Neurodevelopmental Condition: Suggestions from a Sample of Australian Consumers
and Professionals
The findings from this study provide a foundation for future work to
improve the diagnostic journey for neurodevelopmental conditions through a
collaborative effort between consumers, professionals, researchers and policy
makers.
Read more
Child Psychiatry
& Human Development - Effectiveness of Psychotropic Medications in
Children with Prenatal Alcohol and Drug Exposures: A Case Series and Model of
Care
The goal of the current study is to report on the effectiveness of
psychotropic medications in a case series of 16 individuals with prenatal
alcohol/drug exposure and propose a model for psychiatric care for this
population.
Read more
The American
Journal of Drug and Alcohol Abuse - Prenatal alcohol exposure causes persistent
microglial activation and age- and sex- specific effects on cognition and
metabolic outcomes in an Alzheimer’s Disease mouse model
ALC animals showed age-related cognitive impairments that did not interact
with AD risk but did correlate with metabolic dysfunction and somewhat with
microglial activation. Thus, metabolic disorders may be a therapeutic target
for people with FASDs.
Read more
Life - Phosphatidylethanol
in Maternal or Neonatal Blood to Detect Alcohol Exposure during Pregnancy: A
Systematic Review
PEth is a promising marker for monitoring alcohol use in pregnancy;
however, at the present time, its use is still limited mainly by the absence of
a globally agreed interpretative cut-off, the paucity of data regarding its
specificity/sensitivity, and the lack of standardization on the diagnostic
efficiency of the different isoforms.
Read more
Women's Health - Complementary
therapies in substance use recovery with pregnant women and girls
This study provides novel evidence on the potential impacts of CTs in
substance use treatment for pregnant women and girls, and important contextual
factors to consider when implementing these approaches.
Read more
Journal of
Obstetrics and Gynaecology - Perception of safety and consumption of
alcoholic beverages during pregnancy
Pregnant women who considered various alcoholic beverages safe in pregnancy
were significantly more likely to consume them during pregnancy. Healthcare
providers should assess women’s perception of the safety of different alcoholic
beverages and offer counselling to discourage their consumption during
pregnancy.
Read more
Journal of Fetal
Alcohol Spectrum Disorder - At a Juncture: Exploring Patterns and Trends in
FASD Prevention Research from 2015 – 2021 Using the Four-Part Model of
Prevention
Through our generated deductive themes, this review synthesized the
findings and demonstrated how the work on FASD prevention has been amplified in
recent years and how efforts to support women and children’s health are complex
and interconnected. The findings highlight opportunities for prevention through
research and evidence-informed policy and practice.
Read more
Critical Public
Health - From self- to other- surveillance: a critical commentary on the
English policy framework for Fetal Alcohol Spectrum Disorder (FASD)
England now has a policy framework for Fetal Alcohol Spectrum Disorder
(FASD). This proposes a suite of healthcare interventions, some of which attend
to assessment and support for those who may be diagnosed with the disorder.
Read more
IN OTHER LANGUAGES
Kehitysvammaliitto (Finland) - HELMIS – NORGE EUFASD 2022
Hallo og hilsen fra Norge! Mun matka lähti tosiaan Helsinki-Vantaan
lentokentältä kohti Norjaa. Tarkemmin siis Arendalin kaupunkiin, joka on
pääkaupunki Oslosta noin 250 km etelään. Tai olisko ennemmin lounaaseen päin.
Mun maantieto oli jo peruskoulussa ihan surkeeta, joten pahottelut mun
ilmansuunta taidoista.
Read more
Theseus (Finland)
- Äidin raskaudenaikaisen päihteiden käytön vaikutukset lapseen
Opinnäytetyön tarkoituksena on kuvata kuvailevan kirjallisuuskatsauksen
avulla äidin raskaudenaikaisen päihteiden käytön fyysisiä ja psyykkisiä
vaikutuksia lapseen.
Read more
Chaos im Kopf
Podcast (Germany) - FASD Kleinstgruppe mit persönlichem Budget (C44) - Chaos
im Kopf - Dein FASD Podcast
Mein Interviewgast in dieser Folge ist Kristian Korn. Er ist Mitarbeiter in
einer Kleinstgruppe für Menschen mit FASD und hat auch deren Gründung
begleitet.
Read more
AIDEFAD (Italy) -
6a Conferenza Europea sulla FASD
Dopo il rinvio causato dall’emergenza epidemiologica da COVID 19,
quest’anno si è finalmente svolta in presenza la 6a Conferenza Europea sulla
FASD (EUFASD 2022).
Read more
PFLEGEKINDERRECHT-BLOG
(Germany) - Gründung eines FASD Bundesverbandes
Die Fetale Alkoholspektrum-Störung (FASD) ist die häufigste angeborene
Behinderung. Sie wird ausschließlich durch Alkoholkonsum in der Schwangerschaft
verursacht und ist die einzige vermeidbare Behinderung.
Read more
No comments:
Post a Comment